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Moli at another cross roads and mentally crying out loud.
No sounds . no tears but brain is hollering loud and nuff. What To do with the reality of this illness.? Hello my sisters, my soul sustainers Hello. Although I hae been on the board I have not posted because my treatment suggestions , rejections,request rejection, indicisions ,actions and inactions keeps getting in the…
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An expected bump in the road
Well, my week went all to hell. Late Tuesday night I woke up with horrible pains in my abdomen. At first I thought it was just a gas pain, though the worst have them have subsided in the past week. Within 10 minutes, I knew it was something worse. So, off to the ER. An ultrasound and a CT scan showed the sphincter between…
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lorraine
It's been a while since I've been on here. Lorraine has stage 4 ovarian, but I posted on the uterine board because...well, because I was confused. Lorraine just finished her 3rd surgery on Monday. This was a hernia/bowel surgery. Overall things are okay. Her marker # which before her initial surgery was 8,000, last check…
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Essiac tea
Hi everyone, Just wondering if any of you have used or are using essiac tea as part of your anti cancer diet? Any knowledge, experience, testimonial you can share will be very helpful. Thank you. regards, diya
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Side Effects of Megace and Oral Cytoxan(cyclophosphamide)?
Has anyone out there been on Megace and/or oral Cytoxan(cyclophosphamide)? If so, did you have abdominal pain as a side effect? My mother has been on Megace since February and Cytoxan since May. She is having acute stomach pains in the lower abdomen, especially when walking for any period of time. She had a colon resection…
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Our furry family members are so affected by our journeys - Editgirl this is for you! Plus some thing
It has been a hard week or so for me. My last treatment went fine but post treatment my counts all took a dive. I can't even describe to anyone adequately what my energy level was (or wasn't). Just total exhaustion. Other signs of a platelet issue included bleeding gums and crusty blood in my nose in the am, diaharea, zero…
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thesecondopinion
Has anyone here in California ever heard of or used this organization's free services? thesecondopinion.org
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My doctor said I can have my port remove at my first three month check up..strange?
I had my first follow up with my oncolgest today. The office was packed and he was running 2 1/2 hours late. When it was my turn to get examined, he mention to the nurse I can be set up to have my port removed. Then he said, no wait, let's get her pet scan first. He didn't order blood work, which was strange to me. Is that…
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On the way to chemo town...
So I met with my medical oncologist yesterday who will be handling the chemotherapy. 6 rounds of carbo/taxol 3 weeks apart. Interesting about your 18 week plan, TeddyandBears. I have to say that a smaller dose sounds appealing to me, and I may bring this up to my doctor. I am a later stage, though, and I wonder if that…
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Thinking about you TeddyandBears
Hi, Cindi, i have been thinking about you and hoping that you got good results from your pathology report. I remember that you said you would get the results yesterday. Sending you positive vibes and wishing you the best outcome. Warm Wishes, Cathy
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Can bloating be a sign of a reacurrence
Hi again, I am having some bloating i think. I don't think it feels like gas. My shorts and pants are getting very tight around the waist. I have gained around 14 pounds in the last 4 months. I have been eating more junk but I cut down and still my stomach is big. I have MMMT utetine cancer Grade 3 Stage 2. All 17 nodes…
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Cranky, mad and Angry - Has anyone had this before
Every since my diagnosis of recurrence I have been extremely irritable, cranky and angry. Is this normal? BTW, the CT scan showed two 1.2 and 2.2 cm masses that I supposed need to be removed. Not sure if it is going to only be radiation. Help for the crankies please.
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Intraperitoneal Chemo
Since Dx and surgery 11/2011 (stage IVb) I have tried numerous chemo combinations. After 3 rounds of taxol-carboplatin (6 sessions each) between 12/2011 and 6/2014, I was determined to be platinum resistant. My CA 125 ran between 30 and 36 last summer. Last December my CA 125 was 74, and I started on doxil. After 3…
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Gc maf, have you heard anything about it
I read in Internet, sounds good, but is it true? https://gcmaf.se/ As for many other "cures" we don't know what to believe. I would try marihuana for sure, if not for the cancer for my headache. Today for first time I tried yoga for beginners from you tube and I liked it. Just an update. Surgery in May, after 3 chemo…
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I don't trust the numbers
I am glad none of my doctors have told me what the chances are that I will have a recurrence and how much time I have left to live. If I were told I had a low chance of recurrence I'm afraid I would see it as a guarantee and choose not to get all the preventative treatment I might need. On the other hand, if I were given a…
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Stage1 Grade1 Recurrence Treatment with Vaginal Radiation - You want to put that where???
Hi, I just saw my doctor today and he thinks I am having recurrence. Strange since it was only 5% chance - will know more Friday. I do not want to have vaginal radiation as I have read some terrible things. Could you all please give me your honest experience with it? Good bad and truth. I have read some women have terrible…
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Stage 1 Grade 1 Recurrence Cancer only Treatable with Radiation - Chemo won't work?
I posted earlier last week about being the the 5% recurrent for endometrial cancer, stage 1 grade 1. I saw the doctor today and there are two masses 1.1 Cm and 2.2 cm that he wants to treat with radiation. He says radiation should work, but I asked him if it did not would I do chemo and he said chemo does not work on lower…
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Not the pathology I had hoped for
I had my post-op appointment today along with obtaining my path report. Grade 3, which I knew, Stage IIIC. Tumor penetrated 85% into the myometrium and 4 of 22 lymph nodes came back positive, 2 para-ortic and 2 pelvic. If there is an upside, the nodes were positive for carcinoma, not sarcoma, and according to my doctor,…
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Anxiety before results
tomorrow my mum's 4 month scan results come out. The anxiety is getting to me. Haven't been able to sleep or do anything. It is nerve wrecking. Last time we saw the doctors the pet scan lit up her lungs like anything. we were told that she has about 12 months. they can't fix her and we should make the most of our time with…
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Surgery went well
Hi All, Just wanted to give you an update. Surgery lasted 6 hours. 12-6 on Wednesday. Wednesday night wasn't bad at all. I suppose all of the drugs may have had a lot to do with it. I was able to come home yesterday. Last night was rough. The gas pains were pretty intense. I am doing really well today. Walking and resting…
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Ladies
I am waaaaay over-stepping my authority when I tell you this. We have lost another sweet lady on this board and Heaven has gained another Angel! When I have her husbands permission I will tell you more. For now, requesting Unspoken Prayers for this family. Debra
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Advertisement?
Ladies, It looks like those last two posts are advertisements. And, they are newly created members. I have flagged them for review. Let me know if I should not have done that. I was concerned with them gaining access to our emails and bugging us. Cindi
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Thank you a million times
Ijust want to express my gratitude to you all. I found your discussion board googling uterine cancer survival rates. I saw vaginal blood yesterday. I am 66 years old so I knew something was wrong. Went to ER immediately. After exam, culture and ultrasound, I was told the lining of my uterus is thick and may be indicative…
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Pinching in the abdomen area
Hi Ladies, I'm going to have my 3rd chemo on Friday. Since I started the chemo I'm feeling some pinching in my abdomen. It does not hurt, it's some time and in different points. Don't know what is it? Is it the way chemo works or it's the way cancer works.... Have you felt something like that?
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Ultrasound results
Hi, I had ultrasounds on May 26 of reproductive organs due to occasional sptoting, cramping, & dull pain at my Gyno. This past Thursday met with the doc to go over results and he informed me he would be doing an endometrial biopsy due to thickening of uterine wall, small myomas, and fluid in endometrial canal. I'm 51, soon…
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One of US needs the rest of US
I have reasons to be concerned and downright worried about Yamster34. (posts on this and ovarian board.) If prayer works for you please pray for her If good wishes works, please make a wish If just hoping is your thing ,Please hope that her current condition improves For me , I pray, I hope, I wish. Don't have full…
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Femara/letrozole
Over a year ago I completed my second round of chemo (carboplatin/taxol) for recurrent uterine cancer to the lungs. They said I'd had my max of chemo so they put me on Femara. I've been on it for almost a year and although it seems to be working, it sucks! My main complaints are joint and muscle pain, some hand…
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CAT Scans and CA125 testing for follow-ups for advanced cancer
Hi, I just elected not to have a CAT scan. I'm 1-1/2 years from my radical hysterectomy (stage 3 -- spread to nodes, 93% through uterine wall, positive washings) and 1 year since I finished treatment. Often, my oncologist forgets to order CA-125 and he said that CAT scans do not really change overall prognosis, that often…
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Newly Diagnosed
Hi. It's been a whirlwind couple of days. I went in to my OB/GYN on Wednesday after noticing a pink discharge Tuesday night. At 62, I knew this wasn't normal. OB/GYN did an endometrial biopsy and seeing the amount of tissue she got, she immediately scheduled me for ultrasounds, both external and transvaginal. Pathology…
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Clinical Trial meeting today - Wish me luck!
I have my meeting with Cedars Sinai this afternoon and will post any information I receive from it. My understanding is that they have qualified me for two different trials based on my genome test results and targeting solid metastatic tumors (which I have). I hardly got any sleep last night; not feeling anxious but more…