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Just diagnosed with endometrial/uterine cancer and wondering about different surgery options
I am hoping someone can give me some feedback on the type of surgery they had and their recovery experience. I am helping a friend who just got diagnosed to understand the options and be able to communicate more clearly with her doctor on what she feels might be best for her. She is very concerned about a traditional…
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Question about CA 125
When I first met with my medical oncologist, she told me that my CA 125 was 8 before my hysterectomy, thus, not a good marker for me. Today, when I went to have my blood drawn before my chemo tomorrow, she had ordered a CA 125 test. Is this usual? If it isn't a good marker, then what is the point of having the test done?…
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Update on my clinical trial - good news!
After two cycle which consist of three treatments each; a platelet transfusion and two blood transfusions and lots of sleep we met with the team to review scans from last week and see if I could continue with the trial. The scans revealed the met resting on my heart now has "dead" tissue in it and two of my other mets have…
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Chemo #7 Postponed on Purpose
Hi All, Today was supposed to be my 7th weekly treatment. However, fatigue continued to plague me and I made the decision to move to the every 3 week schedule. The changes that we made last week with the Decadron and adding Prilosec made a huge difference on my burning stomach and acid reflux. I wanted to make sure to note…
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Anyone visits or visited Namaste Health Center ?
I would go there, but if someone can share her personal experience with this place, doctors, etc. it will be a great help. If we are not allowed to write about it here, you can send me a message. Thank you in advance.
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How much help at home during radiation?
Hello all again, Those of you who went through radiation, what was it like at home? Will my mom be as fatigued as she was during chemo? Thx, Kate
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How much help at home during radiation?
Hello all again, Those of you who went through radiation, what was it like at home? Will my mom be as fatigued as she was during chemo? Thx, Kate
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Radiation takes how long?
Hello all you amazing women, Im so thankful you are here. My mom just finished 6 rounds of carbo/taxol and needs radiation. It looks like most of the women on this board get around 25 treatments of external beam pelvic radiation. How long between each of these treatments? Is it one per day, one per week? She would like to…
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Chemo and Seasickness
So I was wondering... friends have invited me to go sailing a week after my next chemo session. In the past, I haven't had any seasickness unless I try to read on a boat. But... I was wondering if the chemo may make me more likely to succumb to that. I haven't had much nausea at all so far. I plan to take my compazine with…
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Intraperitoneal Chemotherapy (IP)
Hello to all you beautiful ladies. As a caregiver for my 53 yr old mother, I was wondering if any of you have received intraperitoneal chemotherapy (IP)? My mom was diagnosed with UPSC stage IVb (fluid in lungs) in late July, had a radical hysterectomy Aug 3, followed with IV chemo on cycle 1 then they decided to just…
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A candid answer about prognosis
Hello, so I've posted my sister's diagnosis on several posts here. In summary, she was diagnosed with Uterine Cancer. Was staged 1A grade 2 after surgery. Had radiation just as a precaution becuase of the grade 2 cancer. Her CT scan prior to surgery was negative for pelvis, abdomen and lungs. 4 months after surgery, she…
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Grade 3 not 2 as originally thought and LVI noted on report
Hello ladies, my sister just sent me her path reports becuase I keep asking her quetions that she really didnt have the asnwers to. Her Dr originally had said it was grade 2 when we were at her appointment pre surgery. But since her CT scan came back with mets 4 months after surgery, Im trying to know more about her cancer…
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Intraperitoneal Chemotherapy (IP)
Hello to all you beautiful ladies. As a caregiver for my 53 yr old mother, I was wondering if any of you have received intraperitoneal chemotherapy (IP)? My mom was diagnosed with UPSC in late July, had a radical hysterectomy Aug 3, followed with IV chemo on cycle 1 then they decided to just change it to IP chemo for cycle…
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Planned Outage on 10/9
There will be a planned CSN outage on 10/9/15 from 5am-8am EST while the site undergoes some maintenance. We apologize for the inconvenience. Rowan CSN Support Team
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Checking in
I just want to come by and say hello to you all. I have not been writing on here for awhile and feel guilty about not sharing what is going on with me. I want to help others that might be going through my issues. I am fighting the vaginal cuff beast. Is anyone else going through this too? I see a lot of familiar names and…
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Starting Chemo on Thursday -- Any Advice?
Round 1 of 6 begins on Thursday I read everything I could on what to expect but what am I not ready for? Experienced advice welcome. Chemo protocol is taxol/carbo and I have stage IIIC I also have a notoriously delicate stomach, dry skin and mouth (from removed saliva glands) and am addicted to Diet Coke, though I've tried…
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Postponing Chemo #6?
Is it bad if you postpone the "last" chemo? My headache got worse and I believe my blood counts are already very low. I won't get neulasta,I rather have another transfusion. What do you think sisters? I'm going to call my doctor to see, my chemo #6 should be on October 8.
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curcumin suppliments
Is anyone taking curcumin suppliments? I am wondering which brand to buy and how much dosage daily? There are a lot of different strengths ones in the market. If you have any info or advice please share. Thankyou.
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Molimoli Updating.
Hi ladies,I hope this is the start of a blessed, renewed strength week end for all of you. I have read your different journeys and spiritually travelling with you all.May the goodness and grace of the Creator find you wherever you are.and cause you renewed spirit,renewed health and most of all a certain kind of peace of…
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Staging after Metastasis
Hello, My sister is about to start chemo for reoccurance of endometrial cancer. It has metastisized to other areas, there are about 6 small tumors found 4 months after surgery and radiation. They never re-staged her, which is something I thought that they'd do. Ive been looking on line at treatment and statistics for her…
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Post Hysterectomy Spotting
I had my radical hysterectomy about 2 months ago. I'm currently on carbo/taxil. Lately, I have some pink vaginal spotting on the toilet paper. No discharge. No pain. This seems to occur about 2 days after my weekly chemo treatments. Anyone else have this?
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JUST DIAGNOSED W/UTERINE CANCER...HAVE QUESTIONS, HELP?
Hi, I'm 45 and have just received late stage 2 (until they check for other places) uterine cancer. I had abnormal bleeding for a couple of years and it was chalked up to being in my 40's by the docs...but symptoms got worse and worse, heavier, more pain, radiating pain, etc...until I ended up at the ER for blood loss and…
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Pain Meds While going through Chemo
Hello, I just want to say that all of you have been such great help in answering my questions thus far and I've been passing along all information to my sister who has just started chemo for Metastic Uternine Cancer. So yes, Im here to ask more questions!! Sorry! Prior to being diagnosed with Stage 1B grade 2 endometrial…
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It's Back
CT scan Sunday, results Wednesday. Says it all really. A pelvic mass on the left side. Arranging MRI scan, originally booked for 29/09 but I will be on holiday. Consultant 06/10. They trying to arrnage one for this weekend. If it's one tumour they plan to remove it, if it's multi then my options are limited. I have been…
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CA 125 Progression
I have a question regarding CA125 test and everyone's experiences with it. In October 2014, my CA125 prior to surgery was 28.2. I was diagnosed with endometrial adenocarcinoma Stage 1a Grade 2. I had surgery but no other treatment. In February 2015, my CA125 was 7.4. In June 2015, my CA125 was 7.6. In June, when I saw my…
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A question about Curcumin use before treatment other therapies
hi, thanks in advance of your answers. Curcumin is said to be a great supplement. Is it better to take it before or after chemo and other therapies? Does Curcumin help to reduce the blood supply to the tumor or cancer? If so would u not want to take it until after therapy is complete so the treatments can reach the areas…
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A little bump in the road
My rollor coaster ride took a deep dip three weeks ago, but I am finally headed uo again.. Three weeks ago I started with severe nausia and vomiting. Not able to eat or dink anything. New meds from the Dr. nothing helped. Hydration Friday th Dr. sent me to the emergency room. Ct Scan. bowel blockage!. GI tube and more…
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Update on my sister, had some questions
Hi, I had originally posted about my sister's endo cancer coming back. In summary, she was diagonosed with uterine cancer, had the robotic surgery, staged 1A or 1B (not quite sure) but what they said was that it was contained to the uterus with less than 50 percent into the wall of uterus. All nodes tested were negatvie…
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update after the transfusion
On Friday instead of chemo 5 I got transfusion...... Most of my levels were half of the minimum. Chemo is postponed for next week. I was so upset and I cried. What is your experience? Can you comfort me a bit, I need it... Thanks
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September is Gynecologic Cancer Awareness Month
Get your colors for the different gynecological cancers going. Purple is for all cancer but it also states on the FWC.org that it is for all gynecological cancers. Peach is for Uterine Cancer. Teal is Ovarian. Cervical is Teal/White. There is a lot of new information out there for women to make sure they know what the…