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Weird night - I had a dream I was in pain but it was just a dream
Has this happened to any of you? I woke up about 3:00 a.m. "thinking" I was in terrible pain. My side of the bed is about four steps to our bathroom and I went in there to get some percoset. But....when I got in there, there was no real pain at all. I felt just fine! I wiggled my arms and legs and moved around a bit and,…
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Bleeding
I had my hysterectomy September 30th with no complications except a UTI. Today I started bleeding. I did about 20 minutes of EASY exercise this morning for the first time since surgery. I came back from the hospital where I went for my blood test and found it. It's stopped now. All afternoon I played telephone tag with my…
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Great news
I got the results of my CT scan that I had done today. I am a MMMT uterine cancer stage 2 grade 3 survivor now. I am 1 year NED. I stopped chemo on Oct 21 2014 and that is when my Dr. said to start counting. I have a lot of other issues but for now I am doing the happy dance. I am 74 years old and am a 3 year Lobular…
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pity party for one
havnt posted anything in some time back in aug i had my surgery, well all went well or so i thought things do not seem to be improving as it seems this ride that i so despritly want to get off of does not seem to stop. well according to my last ct they did find a spot on my lung and they are not sure if cancer or not. they…
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Joint Pain with chemo
Hello ladies, my sister has had 3 rounds of carbo/taxol...just recently had the 3rd one and one of the worst side effects she is having is joint pain. Is this normal and can anyone suggest how they've overcome it?? She said her knees, hips, ankles everything hurts, even when just sitting. thank you!!
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Book Recommendation - Eating on the Wild Side
The author, Jo Robinson, has written a fascinating book about how we have manipulated and hybridized a lot of the nutrients out of our fruits and vegetables over hundreds of years. But, she offers information on how to select and/or grow the most nutritious varieties as well as the best ways to store and cook them to…
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First chemo went good
I had my first chemo yesterday at noon and I was home by 3:30. That was really good time because I didn't have any adverse reaction to it. I'm having Taxotere and Carboplatin after a steroid which takes about 15 minutes. I took the Miralax as a lot of your recommended and have been drinking so much I have a path worn from…
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Still NED after 4 years
Just went to by gyn onc for 6 month checkup. I was DX on 1 April 2011 with MMMT from a D&C surgery for post menopausal bleeding. Had surgery 8 Apr 2011 had 6 rounds of Carbo/Taxol every 21 days with last chemo 22 Aug 2011. So I am now 4 years NED. I asked if I could now go to yearly checkups and she said no because it was…
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Anyone else having chemo induced anemia?
I am in a clinical trial and have had ongoing issues with this to the point where it is part of my official diagnosis. I get transfusions for both platelets and blood plus iron. I have made diet adjustments too but it is so severe the diet is probably more for me mentally to feel in control. Any other ideas? The level of…
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Today, I have reached two years NED
and I am celebrating! Some time ago, I questioned my gyne oncologist as to when "NED" officially begins. I've read here that it is when a woman first heard those dreadful words "You have cancer." I've also heard that it is when adjuvant Tx ended, i.e., chemo or radiation after surgery. My surgeon said that NED starts with…
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Family's reaction
I know some of you haven't told your children about your diagnosis but I'm wondering how the rest of you are dealing with your family's reaction. At first I didn't tell my husband because I didn't want him to worry in case this turned out to be nothing but when I had to have the hysterectomy it was pretty hard to hide. I…
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Great news/ good news/not so good news
I had my check up today, CA125 at 15.8(where it's been for over a year), physical exam good. Now, I have the Certificate from M.D. Anderson, suiteable for framing, proclaiming that I have advanced to the Survivorship Program now that I am officialy five years NED! Whew! Good news, the second new heart valve they put in in…
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Want to apologize for not replying to your posts - some issues developed
I know I pop on and off these boards and sometimes I can give a quick reply to some of your posts. I wish these boards had a button to push on a post something like "thinking of you" "prayers" especially if you can't reply like you would like. I want each and everyone of you to know that you are in my thoughts and prayers…
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Just got out of the hospital
This past weekend has not been good. I went to see our son get his baseball award during halftime of his old college's football game. It really tired me out! I've been having such bad diarrhea since I started chemo. By last night I was dehydrated, couldn't keep anything in my stomach (not nauseous though) and thought I…
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Ipad problems
Is just me or is any one else having problems posting. I have to redo writing 3 or 4 times sometimes, constantly changes things and won't let me correct and then it freeze up. Lou Ann
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Frequent Urination like every 30 minutes
I am post 3 weeks of radiation and am now experiencing frequent urination almost every 30 minutes. At first I thought it was a UTI but it is not. Has anyone else experienced this post to radiation and does it go away? I really appreciate any input anyone has as well as any suggestions that could come this down as it is…
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Good News
We have gotten good news all week; Even the doctor says that the tumor is melting. At the same time I want to help more and I can't I feel helpless. I try to have a postive attitude and most of the time I do. I just feel exausted, taking care of my mom, my brother, and my fiancee has finally taken it's toll. We are only…
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I changed my username
Cucu me, former cucligata. I liked how Cindi called me and changed my username. Only cucu was not available so I decided to be "Cucu me". Post chemo "brain" I guess, but I like it.
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Annabella Rose
Has anyone heard from Annabelle? I am worried about her. As far as I can remember, she has not posted since August and she sounded depressed then. Annabelle if you are still coming to the uterine board, please drop us a not and let us know how everything is going for you. Sandy
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Good news
Today we went to radiation as usual, we found out that the treatment was most likely working and that the tumor was melting.
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Spotting after Hysterectomy
Hi, I am having some spotting. I have MMMT uterine cancer stage 2 grade 3. I am 74 years young. My hysterectomy was June of 2014 followed by 5 chemo treatments and 3 brachytherapy treatments. I have had some pain like everything is going to fall out and bloating but now heavy spotting. I have been feeling so great but I…
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Happy end to a hard month
Ladies, I have been holding back. This has been a tough month at our house. My father-in-law died, and then on the day of the funeral our son-in-law's lung collapsed requiring major surgery. I ended up with spots in my left breast from a recent mammogram so more testing there, and a CT to be done to see if the treatment…
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Feeling Renewed.Feeling so alive and thankful.
Despite this ever lurking alligator waiting in the marsh to pounce. Grateful that when I dared to really look my glass is still half full. HELLO LADIES ! I returned from a wonderful vacation on Friday and played catch up some, with the missed posts. I am happy we are all still here (above ground) with yet another day to…
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some thoughts on the "battle" metaphor...and goodbye to this board
i've been on this board for a while, posted a bit, read a lot of posts...haven't really seemed to connect with any of you beautiful women and you haven't connected with me either -- ie i don't get responses to my posts or comments. i feel excluded. i see other women being welcomed. nobody has welcomed me. maybe because…
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New Book..The Gene Therapy Plan
I just found out about this new book by, Mitchell Gaynor. I heard about it on the NPR radio channel. It made me very excited. This doctor has a lot of experience treating cancer w/ modern medicine and nutrition. He isn't against chemo, he is pro, use food and supplements to support your other treatments. His book comes…
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First Oncology Appt.
Hello, I'm 31 years old and was just diagnosed with Uterine Cancer. What can I expect for my first oncology appointment? The appointment is Monday the 26th and I'm terrified of what I will hear.
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Looking for input on chemo after stereotactic radiotherapy for lung met
Just finished my 3rd and final stereotactic radiation treatment for lung met measuring about 1 cm. There is one other, smaller nodule measuring in the mm's. The larger nodule took about a year to develop. Have appt on Wednesday with oncologist who will likely recommend chemo again - my 3rd time. The radiologist gave me…
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Clear cell vs serous cell
Can I ask how many of you lovely ladies are clear cell, serous cell or a mix of both, and which grade? I had a CT scan today and when I got home started reading several research papers about the odds of recurrence. It seems clear cell is most likely to be found at an early stage where serous is 3/4. It may make it a bit…
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I want to thank you all.
I want to thank you all for the support and information you have given me. I have a great chemo nurse and a lot of support from family and friends but YOU are the ones who have been through this and know the ups and downs. I've accepted the cancer and I'm not angry or afraid but I'm going to fight with everything I've got.…
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My moms diagnosis
Last month my mother was diagnosed with uterine cancer. She is stage 3 and she has had two weeks of radiation. I am trying to be there for my family and I am scared and angry for her. Does anyone else feel this way and if so does the anger ever go away?