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Happy end to a hard month
Ladies, I have been holding back. This has been a tough month at our house. My father-in-law died, and then on the day of the funeral our son-in-law's lung collapsed requiring major surgery. I ended up with spots in my left breast from a recent mammogram so more testing there, and a CT to be done to see if the treatment…
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Feeling Renewed.Feeling so alive and thankful.
Despite this ever lurking alligator waiting in the marsh to pounce. Grateful that when I dared to really look my glass is still half full. HELLO LADIES ! I returned from a wonderful vacation on Friday and played catch up some, with the missed posts. I am happy we are all still here (above ground) with yet another day to…
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some thoughts on the "battle" metaphor...and goodbye to this board
i've been on this board for a while, posted a bit, read a lot of posts...haven't really seemed to connect with any of you beautiful women and you haven't connected with me either -- ie i don't get responses to my posts or comments. i feel excluded. i see other women being welcomed. nobody has welcomed me. maybe because…
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New Book..The Gene Therapy Plan
I just found out about this new book by, Mitchell Gaynor. I heard about it on the NPR radio channel. It made me very excited. This doctor has a lot of experience treating cancer w/ modern medicine and nutrition. He isn't against chemo, he is pro, use food and supplements to support your other treatments. His book comes…
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First Oncology Appt.
Hello, I'm 31 years old and was just diagnosed with Uterine Cancer. What can I expect for my first oncology appointment? The appointment is Monday the 26th and I'm terrified of what I will hear.
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Looking for input on chemo after stereotactic radiotherapy for lung met
Just finished my 3rd and final stereotactic radiation treatment for lung met measuring about 1 cm. There is one other, smaller nodule measuring in the mm's. The larger nodule took about a year to develop. Have appt on Wednesday with oncologist who will likely recommend chemo again - my 3rd time. The radiologist gave me…
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Clear cell vs serous cell
Can I ask how many of you lovely ladies are clear cell, serous cell or a mix of both, and which grade? I had a CT scan today and when I got home started reading several research papers about the odds of recurrence. It seems clear cell is most likely to be found at an early stage where serous is 3/4. It may make it a bit…
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I want to thank you all.
I want to thank you all for the support and information you have given me. I have a great chemo nurse and a lot of support from family and friends but YOU are the ones who have been through this and know the ups and downs. I've accepted the cancer and I'm not angry or afraid but I'm going to fight with everything I've got.…
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My moms diagnosis
Last month my mother was diagnosed with uterine cancer. She is stage 3 and she has had two weeks of radiation. I am trying to be there for my family and I am scared and angry for her. Does anyone else feel this way and if so does the anger ever go away?
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Radiation takes how long?
Hello all you amazing women, Im so thankful you are here. My mom just finished 6 rounds of carbo/taxol and needs radiation. It looks like most of the women on this board get around 25 treatments of external beam pelvic radiation. How long between each of these treatments? Is it one per day, one per week? She would like to…
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None the Wiser
Hi Ladies, I've finally had my MRI scan, the hospital scanner kept breaking down and appointments cancelled. Five weeks seems such a long time, so I had to pay for one. The results are sent to my consultant. I now have to have a PET CT scan. which I don't know very much about so any info would be very helpful. I still am…
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Stage II UPSC
For the ladies here with stage 2 UPSC- Sandy and EZLiving 66 and only here, Linda P. reported in a research study that reviewed the effectiveness of various treatments in terms of disease free survival. In the title search, type in: New 'March 2009' and her post will come up. Not bad prognosis with chemo +/- radiation,…
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Graduated to every six months for check ups
Fellow survivors, I have always felt so incredibly lucky to have had my UPSC caught at Stage 1A, and my heart aches for all of the women who have not been as fortunate. With that said, I met with my oncologist today and she said with the end of three years post treatment approaching that it is time to switch to every six…
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Another CA-125 question
Hi Gals, I do not post often but I do read on the board. I have UPSC. I finished treatment about 4 years ago and have been NED since then...YEAH!! My oncologist retired at the end of last year and I got another oncologist in the same practice. When I was diagnosed my CA-125 was 22.2...not high. After surgery it went up to…
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Well, back to chemo again
I am healing very well from my bowel resection surgery 4 1/2 weeks ago. My surgeon/ gyn-onc called my medical oncologist and they discussed and debated my options and came up with several options for me. We are going to try the Taxol/ Carbo combo again, because it did work well until I had a reaction to the Carbo. they are…
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Genome Testing
Abbycat2 brought up something in another thread I am curious about. How many of you have had genome testing? I know AWK has, but the more I research and read, the more I think that perhaps this is something that should be standard for these more aggressive cancers. Why have women going through months of treatment with…
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probiotics question
hey ladies -- for those of you take (or were taking) probiotics...how much/many did you take per day? i am taking a very high potency one -- ultimate flora women's 90 billion 12 strains -- once a day as directed on the bottle. but it occurs to me that's prolly the dosage for folks whose systems haven't just been through…
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Bowel problems after radiation. Does it get better?
I just finished 26 rounds of radiation. I am having trouble with frequency of bowel movements with little production. It is so frequent that is in minutes instead of hours. I am taking imodium to help with this. I do not want to get over constipated however. I am now obsessing and worrying that it will be permanent. I find…
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There have been a few women who have mentioned clusters of cancer in their neighnorhoods.
If you have experienced the same or a similar occurrence, would you mention it here?
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Cuculigata
I have been thinking about you. How are you doing? Were you able to get your 6th and final?!!!! Sending good thoughts and hugs your way. Cindi
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How is everyone's Pinktober going?
I thought I would ask as this can be a tough month for those of us who are peachy or even our teal sisters. People ask me if I am battling breast cancer frequently and I have been told that I am lucky that I am not. I figured out that this was a great opportunity to educate people about uterine cancer and the fact that…
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Just diagnosed with endometrial/uterine cancer and wondering about different surgery options
I am hoping someone can give me some feedback on the type of surgery they had and their recovery experience. I am helping a friend who just got diagnosed to understand the options and be able to communicate more clearly with her doctor on what she feels might be best for her. She is very concerned about a traditional…
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Question about CA 125
When I first met with my medical oncologist, she told me that my CA 125 was 8 before my hysterectomy, thus, not a good marker for me. Today, when I went to have my blood drawn before my chemo tomorrow, she had ordered a CA 125 test. Is this usual? If it isn't a good marker, then what is the point of having the test done?…
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Update on my clinical trial - good news!
After two cycle which consist of three treatments each; a platelet transfusion and two blood transfusions and lots of sleep we met with the team to review scans from last week and see if I could continue with the trial. The scans revealed the met resting on my heart now has "dead" tissue in it and two of my other mets have…
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Chemo #7 Postponed on Purpose
Hi All, Today was supposed to be my 7th weekly treatment. However, fatigue continued to plague me and I made the decision to move to the every 3 week schedule. The changes that we made last week with the Decadron and adding Prilosec made a huge difference on my burning stomach and acid reflux. I wanted to make sure to note…
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Anyone visits or visited Namaste Health Center ?
I would go there, but if someone can share her personal experience with this place, doctors, etc. it will be a great help. If we are not allowed to write about it here, you can send me a message. Thank you in advance.
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How much help at home during radiation?
Hello all again, Those of you who went through radiation, what was it like at home? Will my mom be as fatigued as she was during chemo? Thx, Kate
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How much help at home during radiation?
Hello all again, Those of you who went through radiation, what was it like at home? Will my mom be as fatigued as she was during chemo? Thx, Kate
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Radiation takes how long?
Hello all you amazing women, Im so thankful you are here. My mom just finished 6 rounds of carbo/taxol and needs radiation. It looks like most of the women on this board get around 25 treatments of external beam pelvic radiation. How long between each of these treatments? Is it one per day, one per week? She would like to…
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Chemo and Seasickness
So I was wondering... friends have invited me to go sailing a week after my next chemo session. In the past, I haven't had any seasickness unless I try to read on a boat. But... I was wondering if the chemo may make me more likely to succumb to that. I haven't had much nausea at all so far. I plan to take my compazine with…