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Just got home from grams last chemo round!!!!
Grams last round of chemo went great, hopefully she does well through this coming week. The doctor seemed very hopeful just upon physical examination alone, the largest mass he used to be able to feel during an abdomnial exam and can no longer feel anything. She gets her follow up scans april 14th. So fingers crossed. They…
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Results from initial PET/CT scan coming in the next hour or so
Dear CSN friends, I am shaking in anticipation. I had the initial PET scan this morning, which they actually downloaded onto a CD for me to take home. Thinking I'm a semi-intelligent person, I thought I'd be able to make sense of the images and video but I just can't guess what I'm looking for. Dark spots, white spots,…
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3rd chemo completed
i had my 3rd chemo today and it went well but long. My magnesium was low so I had an hour infusion of that. Also, my dr wasn't here today so I saw the PA instead. I told her about the bit of neuropathy I was having. She said that some people have some relief taking Gabapentin, so she said she could prescribe some if I…
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Just told endometrial cancer
Hi, I'm not even sure which board to post this on... You all seem so helpful in your responses, I'm just starting out. Biopsy results indicate cancerous mass in uterus, pelvic sono results were initially reported to me by radiologist as possible fibroid or polyp at the end of the vaginal canal. CT scan is next. I'm pretty…
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Physical Therapy Today
I went for my first physical therapy today. The first hour was testing and then half an hour of therapy. I could hardly walk out of there and tonight I am in more pain than I've been in for a long time. I think I'm going to take a hot shower, half a Percoset and go to bed. I have to go back on Thursday and hopefully I will…
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I don't get to finish chemo tomorrow
Blood work is low, but I think the one they're worried about again is the platelets. Down to 73 today, and they won't do chemo until they're above 100. So they postponed my 6th (& final) chemo until next Thursday, depending on the blood work on Wednesday. I'm not thrilled with waiting, mostly because my chemo buddy (my…
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Tomorrow is surgery day! Happy St. Patrick's Day!
Hi Sisters! Well, the day has finally come and I am scheduled for surgery at 8:00 tomorrow morning. It will be the whole shebang, robotic total abdominal hysterectomy bilateral salpingo oophorectomy (TAH BSO). What a mouthful! I'm hoping for a flatter tummy! So having a fun day today with the bowel prep, which actually is…
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Awesome News
Just got awesome news from the doctor. I am 6 years cancer free of USPC cancer. I am blessed
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Off Topic but IRS dosen't care
OK, I get that IRS doesn't care that we spend big bucks for our health care, but really? I dreaded figuring my tax return, but went into the office today to see what if any my medical bills would make to my 1040 itemized deductions. Of course, thankfully, my insurance maximum kicked in at $4,000 but it amounted to $46…
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Happy Easter
Happy Easter Everyone. Here's to a cancer free day with friends, family, partners, and significant others. We all certainly deserve it! Red Corvette
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Good Resource on Diet
Here's a great resource on diet written by a 3x cancer survivor and registered dietitian. Considered great resource within field of dietetics. Wanted to share with my new sisters. http://www.amazon.com/Dietitians-Cancer-Story-Diana-Dyer/dp/096672383X
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Looking for recovery room advice
Robot assisted complete hysterectomy coming up in 10 days. I want to prepare a written list of questions for my husband to ask for me After the surgery. Class 2 Adenocarcinoma so far. Been waiting a month for surgery. Taking suggestions from those who have been there.
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Great Resource for All of Us-The Patient's Playbook
Hi Sisters: As I was up last night watching my beloved Terps (I'm a fan as a Terp parent!) lose to Kansas, I was channel surfing and found this author speaking on the PBS channel. So I ordered the book at 2:00 AM and by 5:00 PM today it was on my doorstep. Isn't Amazon amazing? Anyway, I consider myself a pretty savy…
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New and just beginning
A little about myself I guess is in order. Currently 36 (just had birthday on the 10th). For years I delt with abnormal periods, between ages of 20-28 I had no period. All the while I've been diagnosed as 1. Morbidly obese (was loosing weight though, YAY me. Went from 340 to 263 but that is on hold for now) 2. PCOS 3.…
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May I share?
Ok, today was my first external beam radiation treatment. The set up on the table took 15 minutes and the actual treatment about 4 minutes. I got up, got dressed and headed to blood draw then off to my low dose infusion. I was told to have an empty stomach and a full bladder for the radiation so that's what I had. While…
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Newbie
Hello, I just signed in and have been reading all the post. Great information, and very uplifting. I wanted to introduce myself. I am 65 years old and have Uterine Cancer. Had surgery and everything removed on Nov 2, 2015 I have completed 5 rounds of chemo and have my last one is on Wed. I was wanting to know what NED…
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Hair Growing Back Between Treatments
I am happy that my hair has started to grow back on my head, eyebrows and eye lashes but... it's also growing back with a vengeance on my face! I have this facial fuzz all over my cheeks and long side burns. Beggars can't be choosers but, wow, this is crazy. Has anyone else had this? If so, how did you handle it?
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Hi Ladies - I am new
I have not been diganosed with Uterine Cancer but I have an appointment tomorrow for a uterine biopsy and just wondered if any of you ladies could answer my questions My uterine thickness is .42 cm. Isnt that what the "ENDO Thick" means? I am 44 and not in menopause. is that not pretty close to normal? My doctor requesting…
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Just Diagnosed
Hello All, I am 39 yrs old, (will be 40 in Sept). I was diagnosed with PCOS in 2007 and never had a pregnancy. For years I had irregular periods. I was just diagnosed with Uterine cancer yesterday after a biopsy revealed abnormal cells. I go to see a specialist on Monday for my first consultation. I have been experiencing…
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Which UPSC Sisters haven't found us yet in our new site location?
Who is still among the missing of the UPSC Sisters? Do any of you have email addresses so that we can let any of the others who haven't posted yet here, know where we are? I wish they'd fix the 'email notification' feature since that would give them the link automatically.
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Round 31 started
Blood counts were all higher than my doctor had hoped for. Al high enough to go ahead so I was able to start this round of chemo. the chemo was lowered al little with the hope that a lowere dosage would keep from having to get a transfusion. We are also going to try to space them 4 weeks apart instaed of 3 to give my blood…
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Genomics
Not sure if there is a thread on here about genomics. Apparently latest research shows that some high grade endometroid tumors have certain types of genomic alterations also found in serous tumors and may benefit from more aggressive treatment after surgery. Plan to ask my surgeon to make sure genetic testing is done on my…
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Neuropathy!
Here I am almost 3 weeks out from my final chemo and wham! Neuropathy hits with a vengeance! I realize it can come at any time, but thought I was getting by without this symptom. Numbness from feet up to my throbbing knees plus hands and feeling it move up my arms today, I also feel cold. I was hoping to go shopping today…
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Update from Lou Ann
Today was supposed to be chemo 31 but no such luck. Because o the Nuelasta shot my wbc was the only blood counts that were any where near. Platelets, RBC and hemoglobin were way to low. So I got two units of blood instead. By the time they typed, cross matched it and infused it we got on the road to head home at 4:30 in a…
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Hi!
I'm back, the water is going down, the road is washed out, I-10 is closed, the mud stinks, BUT no water in the house this time, Thank God! My poor uncle has 7 feet in his house, but he's ready to get that out and start over! TTYL Debra(Jo)
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Can't eat
I'm trying, but after Sundays fiasco with some funky herby chicken, I can;t seem to eat anything. Nothing tastes good, bordering on getting sick after two bites. Tonight I tried 5 different things, only to throw them all away. The only thing that tasted good was an irish coffee from the local irish pub. I'm giving up for…
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Roll Call For UPSC only
Would like to find out the number of women on here who have UPSC, stage, NED or not yet status, age at discovery, and treatment. For such a "rare" cancer, there seems to be quite a few of us on here and showing up recently. Debra, Vidor, Texas, 57.6 years at dx.,UPSC 1a/b, grade c, treatment at M D Anderson in Houston, six…
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Moli updating
Hello ladies I hope today finds you all in good spirit and tomorrow will come with clearer views and NED. My Journey continues . Just as I expected, my surgery is postponed although I had my pre-op meeting on Friday I still have a meeting with the plastic surgeon on Tuesday instead of surgery, due to the fact that I…
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Well.....
As some of you know East Texas and West Louisiana have been slammed by the flooding. I thought my house might be in the clear this time, but I can't take the chance on staying here with my 90 year old mother. We had three feet in the house last time. So, I will be bugging out tomorrow with her. My house is inbetween the…
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CT Results
Well, CT results are in: 1. History of endometrial cancer with enlarged left external iliac and left para-aortic retroperitoneal nodes that are highly suspicious for nodal involvement. Prominent right external iliac aortocaval lymph nodes are also worrisome for nodal spread of disease. im taking this as NOT good news.…