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Finally some good new
2nd round of Avastin today and lab work was the best it has been for many, many months. I am no longer anemic although I still have fatigue. Best news my CA 125 dropped from 268- 118. Yesterday I had an appointment with a radiologist at the orthopedic place and he put an injection in my SI joint to help the pain in my back…
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No scarf or wig today
For the first time I went to work and out to lunch with no wig or no scarf. It was a little hard but I pushed through. We went to our usual place for lunch and several of the waitresses who I've known for almost 20 years came over to tell me how cute it looked. That really helped!! I had to use some goopy gel to get it to…
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Sex
Hi Dear Ones, I have follow up with my surgeon tomorrow following March 27 DaVinci and abdominal hysterectomy. I'm eager to resume my sex life, but it's been 5 months and I was 20 years post menopausal before the surgery so I'm thinking it's pretty cramped, thin, and dry down there. I'm going through 18 weeks of weekly…
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One More To Go
Hello beautiful ladies. We've been quiet the past few weeks but still check the board most days. My wife and I took a cancer break and went away to a little island near Barbados for a week to get some much needed rest between chemos. She slept between 10 and 12 hours a day and really got her strength back. Thanks to icing…
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MoliMoli - Good luck tomorrow!
Just wanted to say that I feel it in my bones - you are going to do great in surgery tomorrow! That stringy thing is just around the bend! Please let us know how you are doing once you feel up to posting. Love and Hugs, Cindi
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New development and change in diagnosis
I was diagnosed with endometrial cancer last week but what confused me was that a pelvic sono found a 3.3 cm mass in cervical canal. I wanted to know if one had to do with the other, in other words, did this mean that the cancer from my uterus had broken through to my cervix where it was discovered. I do not have the…
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Nurses Week
This week is nurses week and May is Oncology Nurses Month. These nurses are angels on earth. Be sure to let them know how important they are to our recovery.
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Ibrance
Anyone heard of this drug? Ibrance is being given for metestized breast cancer(my daughter in law) who has mets to her bones and liver. Her numbers were in the 900's and droped to the 400's in one month. This coming month they are predicting she will be in the 100's or lower! There are almost no side affects with this…
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6 MONTH SCAN UPDATE!!!! NURVES
its been 6 months since my post op from my surger, the dr's requested that a scan be done, neither good or bad results right now but i can help but be scared, one of the lynph nodes in my pelvice area has inlarged two sizes since surgery and my chest area shows two more, not to mention i have two spots on my lungs that…
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Losing hair again!!!
Oh joy, my 1/2 inch long hair is now falling out again. Apparently my little follicles felt safe when I skipped taxol #5 and then #6 was delayed... and they started to grow. Oh the poor things, taxol #6 was completed mid April, and yup, just like the first time, I'm shedding. Oh well, it's not like it was really covering…
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I can't reply
Ladies, Not only did I lose my profile information, I can't reply to anyone's posts. Very frustrating. I am given the option of save or preview. And, if I hit either of those options, it goes to an error page. Submit is not an option for me. Just wanted you to know that I am here and reading... Love and Hugs, Cindi
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Radiation Damage after IMRT and Brachytherapy for Endometrial Cancer
Hello All, Long time since I have posted here. I finished radiation and brachytherapy last Oct. 2015, but since Dec 2015 have been having rectal bleeding and pain. An MRI revealed worsening of my rectum and colitis, which is a way of saying I have radiation damage to my rectum. I am bleeding and in pain when I have bowel…
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Need advice about "hysterectomy backache"
3 weeks out from surgery and hitting a wall! I have a serious allergy to either the glue or to some antibiotic placed in the wounds across my belly. Abdomen covered for 2 weeks of firy itch still! Now I have a UTI which is a condition I am not prone to - from the catheter I guess. Antibiotics for that really causing…
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Just connected with shortmarge
Marge was diagnosed the end of 2008 with UPSC. She only did four rounds of chemo and three sessions of radiation. She said 7 1/2 years later she's doing good with only a few pains in her feet once in awhile. I told her we LOVE hearing stories like hers. I think we just assume the worst when we don't hear from someone for…
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Did anyone else lose their About Me information?
Hi All, I just noticed that my About Me information is gone. I have a feeling it was wiped out with the maintenance upgrade yesterday. Cindi
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Hello dear ones!
I am, for good or worse, back! Thank you all for keeping me in your thoughts and prayers and Moli's hug! It was a rough one, coupled with my heart getting wonky again. So far they are going to treat it with meds and hope to keep it stable til I turn 65 in Dec. to get the problem really diagnosed. They seem to think the…
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OK - I'm officially "de"ported!
Just got back from the surgeon's office. My port is officially out of my body. Time to celebrate. Can't wait for it to heal where I can stretch my left arm up without pulling. It is an interesting little device. The doctor showed it to me. I could feel it pop out when he removed it. I think the apprehension was worse than…
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Lou Ann updating update
Avastin infusion want well and the side effects seem minimal for now. The fatigue is there and it is causing some digestive issues, no appitite, a little constipatio, and a little nausia. I have a little pain in my lower right abdomaen and the area were I have a couple of tumors. I had a visit with a orthopedist yesterday…
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Tech difficulties again
Ok, since I decided to add a picture to my post, it is sideways and I don't know why and I have no idea how to correct it. Anyone have an idea?
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Port Question
im getting my port on Monday. I was thinking it would be better to have it on my non-dominant side (which would be left for me.). But as I was driving in the car today, I realized that might be exactly where the seatbelt hits. Which side is preferable for the port or do we have a choice?
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Lymphederma
On recovering from the robotic surgery 2 weeks ago I have endeavored to take a walk in the neighborhood as much as is comfortable. The length of the walk increased slightly every time (about every 2 days). On last Monday I noticed I could not walk as far as earlier due to groin pain and actually had to lay on the side of…
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chemo 6 is done, I got to ring the bell!
I held my breath when I looked at my blood work yesterday and was surprised. My platelets were 149 - I'm almost normal! I can't believe they gained from 63 last week to 149. So I got full course of chemo today, although I think both were at the reduced dose. I asked for the maximum, but my doctor told me that the reduced…
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Lou Ann updating
I don't feel like I have been doing a very good job here lately. Some times I have been so tired that I have had trouble reading everyone's posts. Everything kind of blends together Chemo brain at its best. I know there are new members of this selective group that I haven't welcomed and many posts that I haven't answered.…
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Back to work tomorrow
Tomorrow is a big day for me as I will be returning to work after being off for 8 months to complete & recover from surgery and chemo-radiation. I am looking forward to this day as the beginning of my new life; however, I find myself being extremely emotional today which is not normal for me. I've just returned from a week…
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Oxaliplatin?
Hello Ladies, I am not frequently on this blog but when I do, I find you all have such great information. I love reading the NED stories and all the hopeful and good scans. To recap: I was diagnosed in January of 2015 with stage 4 endometrial and in Feb 2015, had a successful surgery removing both small and large tumors…
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Fasting: interesting experiment!
So, I gained weight the last 3 years which my Dr. said correlated to my current diagnosis. I don't have diabetes or high blood pressure or anything but definitely have been meaning to get serious about slimming back down. As soon as I received that lovely call telling me I had cancer, my first instinct was to think how I…
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Clinical Trial
Hello ladies, My sister is still continuing to struggle with finding a chemo to work. She had 6 rounds of carbo/taxol...mixed results and spread to liver. Doxil...liver growth....Doxil with Avastin (one round) but then got back bad blood work for her liver. Dr thought there might be blockage and was planning on putting in…
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Pathology report post DiVinci - Requesting guidance
I'm Not sure how to post this news and have delayed it a few days. I care about all the sisters here who have weathered with grace all my complaining and moaning so it's with a pinch of irrational guilt that I report this good news. The path report following last week's hysterectomy came back: "Grade dropped to 1 from the…
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Possible recurrence at incision update
Ok. I went to the doctor and she sent me to a surgeon. I am actually having a CT scan today and meeting with surgeon tomorrow about removing the mass. The mass is now bigger than a golf ball and starting to cause some pain. CT scan should show how far into the abdominal cavity the mass goes and how invasive the surgery…
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And the healing continues
Apparently I did end up getting an infection. They have put me on amox-clav to try and clear it up. I got to meet with my oncol, and she said 6 more weeks of nothing strenuous .. pick nothing up over 6 lbs, no baths still... etc. It's funny, since my surgery I've craved nothing but sweets and meat. Before my surgery I…