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New here -Looking for support - from breast to uterus?
Hi- in 2007 I posted "new here" I'm breast cancer.org. It was such a great community. I learned so much and received, and gave in return unbelievable support. Double mastectomy - DCIS 1, 3 tumors on one side and star clusters on other; necrosis. I was unbelievably lucky. I did not have time for reconstructive surgery but…
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Scheduled D&C
Hi ladies- I just had the absolute worst period of my life. I'm 43 years old and have a very normal cycle, like clockwork. My period dragged on for 10 days with very large cLots. I have a history of a thickened endometrium. These ultrasounds were done mid cycle. The bleeding and clots were so bad I went to the ER. They did…
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September is Gynecological Cancer Awareness Month!!
Ladies, I hope our sisters on the Ovarian board (It was world Ovarian Cancer Awareness day TODAY) and from the "Other than gynecological cancers" (who deserve as much attention as us) spread the word with all the ones they love about September as Gynecological Cancer Awareness month! Another site has a very cute "<3 Love…
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UCSF Event - Living with Gynecological Cancer
For those of you in the SF Bay area on 9/11. http://cancer.ucsf.edu/events/2014/09/11/living-with-gynecological-cancers.5479
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Femara/Letrozole
Hello Ut sisters, I've been off the boards for awhile - away, then had company, not feeling well, etc. It is good to catch up. I'm impressed with the knowledge and experience women share here with each other. Is anyone familiar with using Femara/letrozole or another aromatase Inhibitor for advanced stage estrogen positive…
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Possible long term effects of radiation
All, this is from the UK and talks about long tern effects of radiation therapy for cervical cancer patients. Since most of us have had radiation for our uterine/endometrial cancers, I wanted to pass along the information as it could be applicable to us as well. A friend of mine has had a lot of issues and in her searches…
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Went for consultations today
Today at 9:31 PM My first consultation was with the thoracic surgeon. My lymph node is too big to do the surgery with a scope. He said the node could be removed that way. The two surgery options he gave me was one a thoracotomy. He would make an incision on my right side and go through the ribs to remove the lymph node.…
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Stage IIICI papillary serous endometrial cancer
I am undergoing the "sandwich treatment". I have had three rounds of chemo (carboplatin/taxol) and so far, seventeen treatments of external radiation with eight remaining. Initially, the radiologist said I would have three treatments of internal radiation (brachytherapy). The second week of external radiation, he told me…
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Serous Adenocarcinoma of the endometrium
My wife was just diagnosed with serous adenocarcinoma of the endometrium she has multipule nodules through out her abdoman,,, has anybody ever heard of this ? she has done 1 chemo and is set to do another soon July 20 what can we expect? what is the prognosis? she is only 57 yrs old and other wise healthy
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OTC Pain Killers
Hi. I've been relying heavily on Tylenol (6-8 extra strength a day) for moderate arthritis pain in my knees and chronic lower back pain (weight related!). Before I got sick I used to take one Aleve a day, but then I heard (online I think) that Aleve and Advil affect estrogen levels and that my sort of cancer-- Endometrioid…
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Survival with UPSc stage IV
After reading the UPSC roll call, I'm now wondering how many of you have survived with stage IV of UPSC longer than I have. I had my surgery May 11, 2010 and I remember seeing some people in the past who had survived it longer than I had, but I haven't seen any recently. Are there any others left who have survived longer…
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Post menop bleeding after BC
I have a question. I was diagnosed with IDC hormon + Her2+ in November 2009. I had 6 rounds of Chemo and 32 radiation treatments. My periods stopped after my 2nd chemo treatment and never came back until last month. I was on Tomaxafin until about a year ago with no side effects. They put my on the post menopausal drug and…
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Greetings.
In March of 2013 my wife and best friend of ten years lost her battle with Stage 4B uterine cancer. It's been a while since I've posted on here, but i have read a lot of posts. Like many of you my wife was scared when she was diagnosed. I think i was more scared than she was to be honest. Michele was a fighter and one of…
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I need any Grade 3, Stage 4 Endometrial cancer survivors out there to support my sister
Eight weeks ago my sister was told she had grade3 1A Endometrial cancer but now the cancer has spread and turned our condition to Stage 4B. She is only 31 years old and devastating and keeps wondering how long she could still live and how to deal with her pelvic pain and chemo..etc. If you are one of the survivors, could…
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Found Incidental Thyroid Nodules
Hi, I have UPSC and am very fortune to be NED at this time. I had my yearly CT scan. This time it included the chest....usually just the abdomen/pelvis area. However, it showed a thyroid nodule. I was then scheduled for an ultrasound, which I had 1/1/2 weeks ago. I had an oncology appointment this past Monday. My doctor…
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Sad News - Jan
It is with a heavy heart that I share this; Jan passed away yesterday, surrounded by family. I believe her name here was Jazzy1. She had a wonderful spirit and fought hard. She will be deeply missed. My prayers are with her family.
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Monitoring UPSC
Good Morning, Ladies, I saw my gynecologic oncologist yesterday for a three month checkup and so far so good- I am 5 months out from my last treatment and am presently showing NED. My doctor said that there are three things he monitors regularly: 1). How I am feeling physically; 2) my CA-125 (11 now) and 3). my…
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Bleeding after intercourse and Post cervical cancer treatments
Hello, I am new and I was diagnosed with Stage IIB cervical cancer in late February 2014. I went through all my radiation/chemotherapy treatments and just last week got my 3 month post checkup and was given a cancer-free diagnosis. Praise God. I was told to use a dilator and have regular sex three or more times a week. But…
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Abdominal pain after eating
My mom has upsc 3c and finished her treatment in Feb, chemo and radiation. She is now complaining from abdominal pain after she eats certain food. She had a scan and nothing was abnormal. I just want to know if anyone have the same problem??? The docs first said it could be virus infection but it has been two weeks now. We…
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Sara Zipora
Has anyone heard from her? It's been awhile. I miss her positive, upbeat posts.
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I am grateful
I want to say thank you to all the wonderful women who post on this forum and tell you how grateful I am for the kindness and caring that you show for us all. Since Jan's passing I am aware more than ever how important it is to acknowledge each other and be thankful for those who are there for us. It is so encouraging and…
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Mother said to only have a few weeks to live, think she has stage IV
Hi, I am a 18 year old kid and my mom has been given a few weeks to live. At least that is what my family says. My dad reminds me that she probably will only live a few more week and then says maybe she could live a few more years. However, she has done her will and has chosen to be cremated and I guess I feel like the few…
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Trying to find answers
Hi Everyone, My mom was diagnosed with endometrial cancer back in 2008 and my husband and I had been doing everything we could to help her out throughout the years (and to help ourselves cope)...including joining this site. We never would post anything, but we would read the boards and found so much hope and comfort. So…
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The P word
Hi everyone, I've been reading your posts for a few weeks. You're such a lovely and supportive group that I decided to post a message. Ten months ago I collapsed at home after a massive blood loss in the shower. I was taken to hospital for emergency surgery. In my uterus they found a large tumor, 24x16x14cm. I was given a…
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RO !! I know how you are feeling!!!
So sorry Ro, I know you knew Jan for a long time and it must be difficult for you. But think of her as being in a deep sleep. No more pain, no hospital trips, no tears no more worring and waiting for results thinking what chemo next. She is resting.
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Various immunoassay methods for CA 125
Good Morning, Ladies, I have had three CA-125 immunoassay tests done and each one used a different method to obtain the results. It is confusing and frustration because I don't think these various methods for assessing the CA-125 can be compared with one another. My first CA-125 test was done in November, 2013,…
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Very Scared High White Cells
Dear All, I always read Uterine board from 2009. I never replied due to lack of knowldge. My mother was diagnoised stage 3c and grade 1 in may 2009. she had 6 rounds of chemo and surgery. She was fine till May 14 when they found recurrence in her right lung. luckily she had only 1 spot which they resected. She has gain…
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Brachytherapy - Long-Term Side Effect
Hi All: I have just encountered one of the long-term side effects of brachytherapy. I had surgery yesterday for a placement of a ureter stent. At first, I thought it was due to the soft tissue mass that I have wherein my left ureter passes through it. However, after surgery yesterday, my urologist indicated that she feels…
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Vanderbilt doing new drug treatment
My sister-in-law, Kelly, has carcinoma sarcoma of the uterus stage four. She has METS in her lungs, stomach and colon, she is still doing very well. While she was in Nashville at the conference she met a doctor who knew that a doctor at Vanderbilt was doing some experimental drugs. She got in touch with Dr. Todd Bauer at…
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Wigs and what to do with them when done.
My aunt passed away in April of this year. My cousin is trying to find out what she can do with the wigs my aunt accumulated. Is there a place that will be able to pass them on to someone else who needs them from chemo.? I suggested she contact Gilda's Club. Any other suggestions? Would appreciate any thoughts. My aunt…