Please remember that these discussion boards are a public forum, which means open to the public (i.e. non-CSN members) and the content can be found via internet search engines. Members are strongly advised not to share personal identifiers such as real names, email address, telephone number, street address, etc. This information can be used to identify you and link you to the content you provide. Other areas of CSN are restricted to members only and cannot be found by search engines.

Uterine/Endometrial Cancer

Here's whats been happening - my little ramble
Hi All: I hope everyone is enjoying the summer (or winter depending where your locaton is). As you may know, I have been experiencing many different types of symptoms. The past several months, I went on a quest to find out exacty what is going on with me. Here's a brief (hopefully) outline of what's been going on:…
Every woman should know
I just read an article in the July issue of Prevention entitled When Cutting Edge Kills. I'm sorry, I don't know how to create a link but if you google the title, it comes up on line. We cancer survivors need to help educate our sisters about this procedure. I know many women on this site were unaware they had cancer until…
Told no cancer but questions about Postmenopausal women
I am 60 years old and have been in menopause since I had chemo for breast cancer over 11 years ago. I recently had spotting and pelvic pressure. I saw my gynecologist and she did a very painful uterine biopsy in her office and sent me for ultrasounds the following week. The biopsy came back as insufficient tissue. The…
Uterine Carcinosarcoma
Hi - I am new to the boards. My mom was recently diagnosed with Uterine Carcinosarcoma Stage 3. She had a hysterectomy in November 2013 and started carbo/taxol chemo in early 2014. CT scans showed a golf ball size tumor and small nodules on her lungs, so her cancer is considered Platinum resistant and she is now on a…
I'm Baaaccckkk
Hello All, Have been running some things down, and the latest is this lab result from my PAP. And I have NEVER before had an abnormal PAP. Got no follow up call from my GYN, and to top that, the info says no follow up needed, I Don't Think so! So, I'm here for a 'what this means' from you all's experience....and yes, I am…
How long time did You need to wait for the diagnosis and treatment?
How long time did You need to wait for the diagnosis and treatment? I Did You feel nervous? I went to my gynegologist for a couple of weeks ago and she took ultrasound and told that there was endometrial hyperplacia that maybe could be cancer. The endometrium was 15 millimeter tjock. She sent an urgent referral to a…
Any Uterine Carcinomasarcoma with Brain Mets survivors?
I'm writing for my sister il, diagnosed September 2012 urterine carcinomasarcoma (MMMT). Stage 3C, complete hysterectomy 6 rounds of carbo/taxol, no radiation. Diagnosed 1/5/14 with 2 brain mets, she had surgery and has had 1 treatment with cyber Knife and will have 3 more treatments this week. Kelly is doing great but we…
Hair!
Good Morning Ladies, When I came to work today with my wig on my coworkers asked me about how my hair is growing. They have not seen my hair since about three weeks ago before I left for a trip. Well, I showed them and they thought that I looked "cool" and convinced me that I don't have to wear my wig anymore. Not certain…
kkstek Karen please
I am curious to know if you eventually tried the Alpha Lipoic Acid for your neuropathy? On reading about it I note that it is also supposed to have a positive effect with regard to cancer. 600 mg a day seems to be the maximum toleration without side effects. I am going to give it a go...nothing venture!!! Will start on 300…
Serous Uterine Cancer and Severe Small Fiber Neuropathy - New Member
Hello everyone. My name is Debi and I just found this site last night :) Stayed up half the night reading posts. I wish i had known this site existed a year ago. I sure could have used some guidance and still need do. Here's my (long) story: First I'd like to say I live in a very small down about 45 min south of Atlanta. I…
Private Message Spam
Hello everyone, Some of you know that we have had previous problems with a particularly tenacious scammer named sarah, and unfortunately she has struck again. While we have security measures in place, we can't prevent all spam. We are currently working on measures to try and block this kind of private message spamming. If…
Have You told to many people what disease You have? I mean in the beginning.
Hi My case is so new and uncertain that it has not yet been topical to tell about it to many people, I haven’t got any diagnosis yet and I’m waiting for scraping. But the way the gynegologists have commented the ultrasound pictures, is a little bit alarming. This forum knows much more about my situation than the people…
low back pain from Neulasta
has anyone experienced low back pain from the Neulasta shot? I had to have the shot after round 3 of chemo (Taxol and carboplatin). They told me to take the Claritin the day before and 3 days after. They said I would probably have some degree of pain in my arms and legs. I didn't. Everything was fine. Then the evening of…
What is better, laparoscopy or regular surgery for hysterectomy?
Does anyone have an opinion on this? Davinci robotic or regular surgery? And what was your experience after your procedure and during and how long was recovery? Thank you! And good luck to everyone!
Uterine Carcinosarcoma (also called MMMT) -- guidance/insight appreciated!!!!!!!!
New to this board -- it's so inspirational to hear all these stories of courage and survival. My 66-year-old mom has recently been diagnosed with Stage 3B uterine carcinosarcoma (or MMMT). She has had a full-stomach hyst. and most of the tumor has been removed, though there are still small pebbles in her pelvic lining. I'm…
My mom diagnosed June 25 2014
So I'm Sand and I'm 38. I will be 39 in July 2014. I have been looking for work for more than 2 years and I have had job interviews each week in the month of June. I was on such a freaking high. Feels great to have so many job interviews! I have another one June 27th. But my mom had a biospy on June 11th. And we got the…
Done with treatment - NED - but emotionally in knots
I feel so stupid. I was driven and positive all during treatment, but now that I've had a clean MRI and my hair is coming back in and the feeling is coming back in my hands and feet I feel depression coming on. I mean-- I've never been diagnosed with clinical depression, but I imagine this is what it feels like. I have so…
Gastritis
Has anyone here had a TAH robotic and developed gastritis years later. I has my surgery 11/11, had lymph nodes removed, were neg, I was stage 1a, UPSC, had chemo and internal radiation. Been to so many doctors, I cant eat anything raw, meaning fruits and vegetable , no beef pork, just fish or chicken. now I'm gluten free…
Stage 4 carcinosarcoma of uterus (lung mets) still cancer free
To all uterine cancer survivors and those undergoing treatment I will share my story. I have been hesitant because I wonder if someone with cancer ever really feels "out of the woods," but here goes: Age 42 (2007), three teenage girls, divorced. Had some abnormal bleeding that I thought was a birth control pill mix up, but…
1
1
Has anybody of You been totally without symptoms but surprisingly been diagnosed with uterine cancer
It’s , anyway, good to be asymptomatic but it is insidious. I got the alarming ultrasound pictures by a routine visit to my gynecologist in the beginning of June. I do not know anything more yet, I must wait for the diagnosis. The inoffice biopsy test couldn’t be done because of a tight cervix and I’ll have my D&C on the…
Dilation and curettage when cervix is tight
Has anyone of You been in a situation that D&C has not been possible to perform? I’ll have D&C on the next Monday. The endorette was not done because my cervix was tight. I have got all my children by cesarean section. I’ve heard of cases that somebody had been awakened from her narcosis and heard that D&C had failed…
I’m European, with the benefits and problems of our public health system
I do not know very much about the US health care system but I suppose You mostly have private insurances. That is not usual in Scandinavia. We have high taxes and quite a good public health care with small cost to the patient. But our system has the problem of long queues even if the referral to the hospital is urgent. But…
New here so hello to all of you! Have a question
I am 49 years old. I had an endometrial ablation about 5 yrs ago for heavy periods. I went to my primary DR bc I was having right shoulder pain and right lung pain (right chest area). He ended up just giving me my routine yearly blood work and an X-ray of the shoulder and chest X-ray, all was fine except my Sed rate was…
Returning to the discussion board…feeling frustrated with my doctors!
It's been quite a few months since I've posted anything on the discussion...or even looked at the board! I stopped reading posts because some got a little depressing and some were just too overwhelming...and then I was just so disillusioned by my doctor that I kind of went into a "denial" phase! In January 2012 I was…
Fosomax
OK ladies, give me the pros and cons{know everyone is different}, but I think I'd rather break a hip than get jaw necrosis! And how big is 0.6cm? Thanks all, Debra
My beautiful mum has cancer & I'm scared....
Dear all you very brave ladies, Mums story.... June 2013 discovered an absess in her bowel due diverticulitis on scanning they found a malignant (stage 1a grade 3) endometrial polyp, which resulted in a total hysterectomy. The histology came back all clear. in Jan 2014 she was put in a waiting list for a bowel op and temp…
Has anyone ever had swollen feet?
I am a little scared because my right foot and ankle is very swollen.. and I am gaining weight after being done with chemo for 2 months now.. has anyone had this problem??
OK, officially freaking out!
MD Anderson sent my message to my onc about the node. They have me set up for 6 appointments June 13, June 26. Want bloodwork ASAP! Damn! I'm ok with the testing, but the two week wait ain't gonna cut it! Husband stoic. kids big-eyed, my mother bawling that I may be sick and she'll have to go into a home, ect! How likely…
New Ill-Defined Mass
I've had some minor pinching abdominal pain on my left side. I had been drinking a lot of raspberry lemonade up to a couple of months ago and thought the abdominal pain and worsened reflux was because of that. I thought I either gave myself something like gastritis or an ulcer, plus had my reflux, which I'm already on…

Uterine/Endometrial Cancer

Discussion List

Discussion Boards