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Various immunoassay methods for CA 125
Good Morning, Ladies, I have had three CA-125 immunoassay tests done and each one used a different method to obtain the results. It is confusing and frustration because I don't think these various methods for assessing the CA-125 can be compared with one another. My first CA-125 test was done in November, 2013,…
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Very Scared High White Cells
Dear All, I always read Uterine board from 2009. I never replied due to lack of knowldge. My mother was diagnoised stage 3c and grade 1 in may 2009. she had 6 rounds of chemo and surgery. She was fine till May 14 when they found recurrence in her right lung. luckily she had only 1 spot which they resected. She has gain…
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Brachytherapy - Long-Term Side Effect
Hi All: I have just encountered one of the long-term side effects of brachytherapy. I had surgery yesterday for a placement of a ureter stent. At first, I thought it was due to the soft tissue mass that I have wherein my left ureter passes through it. However, after surgery yesterday, my urologist indicated that she feels…
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Vanderbilt doing new drug treatment
My sister-in-law, Kelly, has carcinoma sarcoma of the uterus stage four. She has METS in her lungs, stomach and colon, she is still doing very well. While she was in Nashville at the conference she met a doctor who knew that a doctor at Vanderbilt was doing some experimental drugs. She got in touch with Dr. Todd Bauer at…
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Wigs and what to do with them when done.
My aunt passed away in April of this year. My cousin is trying to find out what she can do with the wigs my aunt accumulated. Is there a place that will be able to pass them on to someone else who needs them from chemo.? I suggested she contact Gilda's Club. Any other suggestions? Would appreciate any thoughts. My aunt…
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Radiation Tx change
I have had a hysterectomy and the 6 chemo treatments. 9 of the planned 25 internal radiation treatments are done. Until today I expected to have 3 internal ones. I was staged w Endometrial Adenocarcinoma stage 3C grade 2. However, today my external radiation Dr told me that he and the internal specialist have talked. They…
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Father's age may be relevant
Hi, Ladies, I read this a while back and wanted to share it with you. My father was 35-years-old when I came to be. TUESDAY, April 8, 2014 (HealthDay News) -- A father's age at the time of his daughter's birth may affect her risk for breast, ovarian and endometrial cancer in adulthood, a new study suggests. Researchers…
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Missing Jan, Jazzy
Hope you are okay.
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Gastropareisis from chemo
I had TAH 11/8/11. Had lymph nodes removed by my para aortic, I have been fine, now since April of this year problems with gastritis and pain and couldn't eat anything rough, just a bland diet. Well I had a test called gastric emptying test, you eat eggs with a nuclear tracer on it, and every hr for 4 they monitor where…
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my 47 year old friend found a lump in her belly
Regular check up dr. found this tumor in the belly, said it is outside of the uterus. Going for advice from gyn/onc. Any info would be appreciated.
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National Women's survivors Convention
Just checking in, I am in Nashville at the NationalWomen's Survivors Convention With my SIL, Kelly. Kelly was told 3 weeks ago that the cancer has spread to lungs, colon and stomach . Even with this diagnosis she has continued to work out with trainer (last thing I would do even if I had 3 years to live), has flown to…
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Peritoneal Spread of Endometrial Adenocarcinoma : Advice Needed
I am posting on behalf of my sister. Brief History My sister had Fibroids, during laproscopic surgery the frozen sample indicated malignancy and the surgeon removed and cleaned the entire Uterine Vault. (Complete Histerectomy) but did not examine the lymph nodes. The biopsy indicated Stage T3B Nx Mx. We underwent…
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Cards
Hi all, I have been trying to find boxes of cards to send to people who have/had cancer for encouragement and that have some humor. I found that the cards I liked the best were the one's that made me laugh. I enjoyed the more serious one's but laughing was better for me. Does anyone know a store or a website that sells…
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I need advice please!
Hello. just a little refresher before I explain. I was supposed to have readical hyst last Monday for cerv & endometrial cancer. My Gyn/onc came in last minute to say he was switching surgery to a conization & that my initial DX of malignancy from my regular GYN could be wrong & that mass found on CT is prob just fibroids.…
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Interesting doctor's appointment today
I had my lab and CAT scan last week. Today the doctor gave me the results. My CA 125 went from 1441 to 1582. That is not too big of a rise for me in 8 weeks. My CAT scan showed only one lymph node in the right mediastinal area near the trachea that had grown from 2.8 X 2.2cm to 4.1 X 3.6cm. And that was the only lymph node…
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Meaning of CIN, VIN & VAIN
Hi all! I was floored to find out that this type of pre cancer existed. Here is my understanding of them: CIN is Cervical Intraepithelial Neoplasia, VAIN is Vaginal Intraepithelial Neoplasia, & VIN is Vulvar Intraepithelial Neoplasia and all are graded as I, II, III with III the most severe and considered adenocarcinoma in…
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Insomnia
Has anyone had insomnia while in chemo treatment? Sometimes I only sleep 2-4 hours a night. I'm trying melatonin. Statred with 5 mg which did nothing so I increased it to 10 mg. Sometimes it helps; sometimes not. I don't want to take anything like Ambian.
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Endometrial & Cervical Adenocarcinoma DX
I finally heard back today. DXd with Uterine & Cervical CA + VIN III, VAIN III & CIN III. He said the uterine ca invaded my cervix. I'm relieved I finally know vs waiting for the results. The doc said to not worry about the VIN, CIN & VAIN right now bc he just wants to focus on the uterine & cervical ca for now (one step…
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CT Scan Today
My mom is having a CT scan today to see if the second regimen of chemo is working. I just wanted to post so she could get as many prayers/good vibes/positive energy as possible! Thanks guys!
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Here's whats been happening - my little ramble
Hi All: I hope everyone is enjoying the summer (or winter depending where your locaton is). As you may know, I have been experiencing many different types of symptoms. The past several months, I went on a quest to find out exacty what is going on with me. Here's a brief (hopefully) outline of what's been going on:…
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Every woman should know
I just read an article in the July issue of Prevention entitled When Cutting Edge Kills. I'm sorry, I don't know how to create a link but if you google the title, it comes up on line. We cancer survivors need to help educate our sisters about this procedure. I know many women on this site were unaware they had cancer until…
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Told no cancer but questions about Postmenopausal women
I am 60 years old and have been in menopause since I had chemo for breast cancer over 11 years ago. I recently had spotting and pelvic pressure. I saw my gynecologist and she did a very painful uterine biopsy in her office and sent me for ultrasounds the following week. The biopsy came back as insufficient tissue. The…
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Uterine Carcinosarcoma
Hi - I am new to the boards. My mom was recently diagnosed with Uterine Carcinosarcoma Stage 3. She had a hysterectomy in November 2013 and started carbo/taxol chemo in early 2014. CT scans showed a golf ball size tumor and small nodules on her lungs, so her cancer is considered Platinum resistant and she is now on a…
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I'm Baaaccckkk
Hello All, Have been running some things down, and the latest is this lab result from my PAP. And I have NEVER before had an abnormal PAP. Got no follow up call from my GYN, and to top that, the info says no follow up needed, I Don't Think so! So, I'm here for a 'what this means' from you all's experience....and yes, I am…
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How long time did You need to wait for the diagnosis and treatment?
How long time did You need to wait for the diagnosis and treatment? I Did You feel nervous? I went to my gynegologist for a couple of weeks ago and she took ultrasound and told that there was endometrial hyperplacia that maybe could be cancer. The endometrium was 15 millimeter tjock. She sent an urgent referral to a…
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Any Uterine Carcinomasarcoma with Brain Mets survivors?
I'm writing for my sister il, diagnosed September 2012 urterine carcinomasarcoma (MMMT). Stage 3C, complete hysterectomy 6 rounds of carbo/taxol, no radiation. Diagnosed 1/5/14 with 2 brain mets, she had surgery and has had 1 treatment with cyber Knife and will have 3 more treatments this week. Kelly is doing great but we…
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Hair!
Good Morning Ladies, When I came to work today with my wig on my coworkers asked me about how my hair is growing. They have not seen my hair since about three weeks ago before I left for a trip. Well, I showed them and they thought that I looked "cool" and convinced me that I don't have to wear my wig anymore. Not certain…
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kkstek Karen please
I am curious to know if you eventually tried the Alpha Lipoic Acid for your neuropathy? On reading about it I note that it is also supposed to have a positive effect with regard to cancer. 600 mg a day seems to be the maximum toleration without side effects. I am going to give it a go...nothing venture!!! Will start on 300…
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Serous Uterine Cancer and Severe Small Fiber Neuropathy - New Member
Hello everyone. My name is Debi and I just found this site last night :) Stayed up half the night reading posts. I wish i had known this site existed a year ago. I sure could have used some guidance and still need do. Here's my (long) story: First I'd like to say I live in a very small down about 45 min south of Atlanta. I…
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Private Message Spam
Hello everyone, Some of you know that we have had previous problems with a particularly tenacious scammer named sarah, and unfortunately she has struck again. While we have security measures in place, we can't prevent all spam. We are currently working on measures to try and block this kind of private message spamming. If…