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Recently Diagnosed
Hi Ladies, My name is Denise and I got recently diagnosed with endometrial cancer. My oncologist said it's in the early stage, however has not assigned a stage yet. As you all are aware I am extremely scared and concerned. I am 32 years old, I do not have any children. There are days that I say its fine I will be okay with…
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A way to avoid losing hair with chemo
I talked to an old friend of mine last night, one who'd had breast cancer 19 years ago. She'd had chemo back then, and she expressed her desire not to lose her hair from it with the nurse at her first chemo appointment. The nurse suggested she try an ice cap during chemo. My friend had this cold, heavy ice cap placed on…
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fluid draing into abdomen
Hello Ladies, I had a complete hysterectomy and 8 lymph nodes removed on 9/2/14 due to stage 1B uterine cancer. Two weeks after my surgery I started to have fluid drain into my abdomen. As of today I have had 7 Paracentesis drains and 1 Thoracentesis when the fluid soaked into my lungs. I spent 5 days in the hospital when…
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Happy Chanukah!
Just got the best Chanukah gift I could ever dream of - a perfectly clear ct-scan! This marks a 46 month remission from stage 4B grade 3 UPSC. Diagnosed September 2010, cancer was found all over the pelvic area and in all 40 lymph nodes tested. C hanukah is a holiday of miracles and this is my personal miracle that I wish…
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It's back...UPSC
Good evening ladies, 3 years ago [11/11] I was diagnosed with Stage VI b UPSC. After surgery I went through 6 rounds of carbo/taxol. That held me for 9 - 10 months with the help of megestrol. My CA125 then spiked up to 365. I returned to the same chemo cocktail for another 6 rounds and then started on tamoxifen. After…
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A Very Merry Christmas to Me
I had my gyn/onc appointment yesterday to give me the results from my recent CT scan and CA-125. My doctor had been waiting for the mass in my paracolic gutter to grow big enough to find when he had to go in to remove it surgically. The mass was found in late May in a CT scan ordered by my family physician's office when I…
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2 Years Clear!
Hi Everyone! I have not posted in awhile, but I continue to lurk & read new stories & updates on an almost daily basis.. I wanted to let everyone know I just cleared my 2 year check-up. My official surgery date was 1/28/13, but I now graduate to the twice yearly appointments. I remember joining this group in late 2012 & so…
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Endometrial polyp
Hi All, This is my first post in this board, I'm already a member of kidney cancer board, diagnosed four months ago, had the surgery and now everything is fine. my question is about my new uterus ultrasound report which indicated one 10*7.8 mm polyp in my endometrial. and endometrial has heterogeneous echo. endometrial…
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Has anybody heard this: Ovarian vs UPSC
I belong to this group and two other Facebook groups for Uterine Cancer. I think it was on one of the Facebook posts that someone said that "they" (not sure who 'they' are) are beginning to think that UPSC is really a form of Ovarian cancer. Has anyone heard this? I'm just curious to see if any of you have ever heard it.…
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Metric
How big is 0.6 x 0.5 x 0.4 ? This is the size of the node on my thyroid they are watching. Said it was too small to even needle biospy. It sounds big enough to me if this is in American inches. Metric, I have no idea! Thanks, Debrajo
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How Were You Diagnosed
I'm a 3 1/2 year breast cancer survivor. Lumpectomy, lymph node surgery, radiation, Tomaxafen and Arimidex. Both drugs caused big changes in my "female area" and I no longer take them. Been 3 months. I've had countless sonograms and 3 D&C's due to thickening in 3 years and polyps removed. After 15 months with no period and…
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Thanksgiving
Have a very blessed and happy thanksgiving to all on these boards. May God bring you peace and comfort on this day. Trish
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Hey Everyone
Been up for over 36 hours, been to Houston, on a friday, in the rain, and I'm pooped! Just letting you all know I had my 4 1/2 year check up today. Ca125 went from from 15.8 to 15.0, weight came down seven pounds{ugh!}. heart is ok, but the valve is closing again, but it and the lung and thyroid nodes are on wait and see…
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Treatment with SBRT - Stereotactic Body Radiation Therapy started
I had my first two SBRT completed. I laid in my mold and got positioned " just right". They used the marks on my body to line me up. I had my arms raised above my head. They put the brace on my stomach to keep the diaphragm from moving too much. They put the rubber band in my feet again. I had to lie still. At least they…
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Just wondering how many women with UPSC have had mets to the intestinal tract.
When I was more active on the boards, it seemed that the most likely places for mets were, the liver, the nodes in the neck, the brain, and the breast. I can't remember if there were any colon cancer mets. Anybody know anything about that. And how the heck are you all doing? My best to you, Claudia
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Newbie Here - Endometriod adenocarcinoma
Hello. I am 52 years old, had a dnc and hysto something or other and was diagnosed with endometriod adenocarcinoma grade 1/2 on September 16. I was referred to a gyn/onc but my appointment is not until October 14th. I'm am just a bit shy of completely freaking out. I go from being someone in denial land about having…
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Desperately need information, whether bad or good.
Hello. My Mom (70 yrs. old) was recently diagnosed with uterine cancer by having a D and C. She has already had a total hysterectomy and fallopian tubes, lymph nodes etc. were all removed Oct. 6, 2014. She was told it was clear cell cancer, Grade 3A. If she was told what stage, I am unaware. Can anyone tell me what this…
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Lymphocele
UPSC - Stage 1.A I got the results of my CT scan and there is no evidence of disease! I do have a cystic mass that is a possible lymphocele. It is 5.1 cm. This is a complication from my hysterectomy when I had 23 nodes removed. i will be having a pelvic and a transvaginal ultrasound on Monday. Has anyone had this happen?…
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New here, post hysterectomy
Hi, I'm Crystal. I'm 37 and live just north of Pittsburgh PA. I was having severe bleeding that was requiring me to get iron infusions and blood transfusions. I've inly been sick since June, 2013. I went for my yearly exam in August and my doc immediately ordered an ultrasound and d&c. The d&c results came back as Cancer…
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Happy end but maybe hysterectomy in the near future
I had D&C last for a week ago and I got the results of the biopsies. There was no cancer. I’ll be operated later, the polyps must be removed. The doctor told that it could be removal of the polyps or removal of the uterus. Because I already have my children and I’ve passed menopause, I would like to get rid of both the…
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New to forum, 9 months into diagnosis
Hi All, I am new to this forum. I was diagnosed in February 2014 with endometrial cancer. I was only 36 and wanted to preserve my fertility, so I opted for progesterone therapy. My therapy is going well and my last biopsy was good. But I wanted to know if anyone else on the forum is undergoing progesterone therapy instead…
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i too am newly diagnosed with Uterine (Endometrial) cancer
I just got my biopsy back and it is Grade 1 adenocarcinoma uterine. i've got a call to the GYN ONC doc office, they should return the call tomorrow to see me. plan of course is a hysterectomy. this is all very nerve wracking. I can't sleep or eat. Anyway i am glad I found this site. thanks Sandy e
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A "YAY" moment today.
Hi all, Just wanted to give you an update. The last time I wrote I was on a pretty emotional roller coaster and not feeling good blah, blah, blah. I went on anti-depressants (low dose they gave me for my hot flashes) probably three weeks ago (I think). Well, monday I felt like I was catching cold for a 2nd time in two…
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Procedure for inserting gold fiducial markers prior to CyberKnife
Hello ladies. I promised I tell you all about the procedure to insert the gold markers into my tumour prior to the CyberKnife radiotherapy treatments. I got back from The Royal Marsden Hospital in London (very famous cancer hospital here in England) yesterday evening. Initially we were going to stay up there the night…
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I am not asking for money - I am hoping to meet some of the great ladies from this board
Ladies, I hope I will get to meet some of you at the National Race to End Women's Cancer. I know I met one lady at the course the day before the race, and I think I missed meeting ccfighter because I didn't get my email in time! :( If any of you are going to be in Washington, DC on Sunday, November 2 (it is daylight…
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Hmmm?
Hi all, I am 52 and never had a paps come back abnormal - most recent was in dec 2013. I went to the dr for hormone replacement therapy (HRT) because of vaginal dryness during sex. She obliged and I went on my merry way. I wore the patch religiously and it worked great. After about a month I started bleeding after not…
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Good News - Still NED Over Three and a Half Years from Diagnosis of UPSC!
Hi Everyone: Just wanted to e-mail to share my good news. I just saw my oncologist this morning and I received good news. My exam went very well and I am still with NO Evidence of Disease. I was diagnosed with UPSC - Clinically Stage 1 in February of 2011. I went through the standard six rounds of carboplatin/taxol and 3…
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We have to get the conversation going
American Idol Season 7 contestant and plus-size model Joanne Borgella has died from a rare form of cancer. The Long Island, New York, native was 32 and had been battling endometrial cancer, which she revealed in a video a year ago had "spread to her chest." The news of her death was confirmed by her family on her Facebook…
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How do I get my picture to post?
I was going to ask the support team on their board but after reading it, it doesn't sound like they want questions like this. I have tried to post my picture like some of you ladies, but mine didn't work. So, would someone please post me some instructions so my picture will start appearing? Also, does anyone on this board…
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Uterine carcinosarcoma, MMMT, survivors ...I would like to from you
* View * Edit Sun, 06/22/2014 - 3:23pm — nolib1966 I am 66 years old. In September of 2013 I started bleeding, after not having a period since 1998. I went to my famiIy doctor and she did a pap test. The test came back negetive but she wanted a biopsy done by a gynecologist. The biopsy came back negetive, but the…