Please remember that these discussion boards are a public forum, which means open to the public (i.e. non-CSN members) and the content can be found via internet search engines. Members are strongly advised not to share personal identifiers such as real names, email address, telephone number, street address, etc. This information can be used to identify you and link you to the content you provide. Other areas of CSN are restricted to members only and cannot be found by search engines.

Sarcoma

Dermatofibrosarcoma Protuberans
HOw many people had their surgeries done by Dermatologists and how many by Oncologists? This seems inconsistent and confusing. Anyone have personal info on mets to the lungs?
DFSP Mets to Lungs
My mom was diagnosed with a DFSP back in August of 2007. She since had 5 surgeries. One included a muscle flap and skin graft. The most recent surgery was in March '10 to remove three large lumps that appeared in the original location, which is the front of her lower leg. She is now going to have surgery to remove a growth…
Is there ANYONE with ABDOMINAL SARCOMA?
I'm a 29 year old 2 time survivor of abdominal Leiomyosarcoma and GIST tumor. Also had a small cholangiocarcinoma. Can't seem to find ANYONE close to my age with similar diagnosis. It's primarily uterine Leiomyosarcoma I have come across. I underwent a whipple surgery to remove the tumor. Lately I have been feeling very…
Myxoid RoundCell Liposarcoma
I am new just dx'd August 28th. It is located in the right upper thigh. I have been referred to a surgeon experienced in soft tissue sarcomas and have had more MRI, and CAT yesterday Sept. I am awaiting results from the scans. I also had casting and tats done yesterday I am so scared I can hardly type and this is my first…
Would like to talk or hear anything positive about surviving ewing
My son (8 yrs ) was dx Feb 2010. He is two treatments away from finishing protocol . Chemo (doxo, vincristin, cyclo, ifos & etop) surgery , radiation ( 10 rnds) . I have been by him and telling he is the strongest , he will beat it , he is exceptional ... Well he is he's been through so much and hardly complained. He's…
lung sarcoma
I am 23 months into it so far. I am now 51 years old. Had my left lung removed sept. 2008. completed six months of in patient chemo. I am feeling great, other than some shortness of breath. I was diagnosed by my family doctor on aug 5 2008 on a routine physical. He found a large tumor in my left lung. Aug 7 I was at the…
MRI done again
Well I have found out some things since getting news on MRI I had though it didn't include the lump on my arm that is most concerning to me. But the MRI of my shoulder shows it has horrid deteriation and no wonder having problems. Surgery is the only thing that will help me I was told. Though I lost it when had MRI because…
Anyone have a child with DFSP? Have you radiated?
My 9 year old son had a nickle sized bump on the top of his foot for only about 2 months when we had it removed (took me that long to get him an appointment). They determined it was dfsp, and admitted him 3 days later to do a wide local resection. They removed the skin and tissue on the entire top of his foot, from the…
looking for others with Spindell cell soft tissue sarcoma !
Hello My name is Mari. My sister Anita who is only 28 yrs old has been diagnosed with 4th Stage Soft Tissue Sarcoma Cancer it started as a small pea size blemish on her knee and was called a "spindle cell tumor" it spread to her calf, up her thigh and into her back now in her thoracic and lumbar as well as metastasized…
Spindle Cell Sarcoma
I am 18 years old and about a week ago I got what I had been told was a small cyst removed from my left shoulder. Today the surgeon told me it was a malignant spindle cell tumor but only about 2.5cm big. He refered me to a surgical oncologist and told me that the outlook should be pretty good since the tumore was so small.…
cancer treatment centers of america
anyone have experience with these hospitals
Symptoms and how much Pain
I have been looking for answers on this lump in my upper arm that is seen on MRI but they do not know what it is. I have allot of pain now as this lump grows now and is causing my physical problems using hand arm and shoulder now and getting worse. I have had a lump that grew before in arm pit and that did exactly the same…
Mike Leo, a good friend of my daughters passes away
http://www.strikeoutsarcoma.com/link.html Sharing with fellow sarcoma patients.
Synovial Sarcoma of the Left Foot
I was just diagnosed with synovial sarcoma last week on my left foot. It probably has been growing there underneath for a long time, however, it has grown very fast lately and now I am looking a removing my foot to keep it from spreading. The doctor, who is an awesome specialist at the cancer center at IUPUI, said that it…
Metastisized Synovial Sarcoma, pain and depression.
I was diagnosed in late 2006 six months after I found a lump on my inner thigh. I had surgery in January 2010 to remove a tumor that originated from that original tumor. I underwent chemo and radiation for the first tumor--that was 11 cm when removed. I had no additional treatment for the lung tumor other than removal. The…
Retroperitoneal Spindle Cell Sarcoma
Tuesday 20th July 2010 Hi. I was recently diagnosed with Retroperitoneal Spindle Cell Sarcoma (February 2010). One lagre tumour was removed by surgery. I subsequently had chemo-therapy (doxorubicin), but a CT scan showed that 2 new tumours have appeared. I am now receiving a different form of chemo, and may have further…
there must be new info on breast angiosarcoma
after dealing with this cancer for the last 3 mos. and still no new info. on it. even my oncologist doesn't know. how can this be. this cancer is caused by radiation to the breast, secondary breast angiosarcoma. with all the emphasis on BC, why are drs. so slow in bringing this cancer to our attention. is there anyone, who…
WD Liposarcoma - Radiation or not..
Radiation or not.... My mother (67) had a liposarcom in her thigh 3 years ago..it was surgically removed It was WD - well-differentiated Now it is back again in the same location... It was surgically removed again... Should we do post-op radiation?? What are the chances of a WD liposarcom turning into a DD liposarcoma? We…
A daughter looking for helps
My mom was diagnosed with Spindle cell Sarcoma in the upper part of her left lung on Dec 2009 and had a surgery to remove the whloe left part on feb 2010. 3 months after her surgery she had her first CT scan and the result shows that there are new lesions appeared on her right lung and pancreas. The doc suggested for the…
Interferon therapy
My husband has been diagnosed with angiosarcoma. The area is on his face and too large for surgery. The cancer has not spread from the original location under his eye. He is being given only interferon therapy. Has anyone had any experience with this drug?
Liver angiosarcoma
I have just been diagnosed with angiosarcoma of the liver and begin chemotherapy with Taxol next week. I am very freaked out, depressed and scared. It is such a rare cancer. I am just about to turn 50 and have always been in excellent health until this hit me out of the blue. I have not read any hopeful statistics on this…
husband is in surgery
My husband is currently in surgery..... he is having a cancerous tumor the size of a football removed as I type. Lots of complications could occur, or everything could turn out ok. It has been a long process with tests, scans, chemo and radiation. I am very nervous!!!
Doxil to treat Post Radiation Angiosarcoma
Would like to hear from anyone who has been treated with Doxil for post radiation angiosarcoma.
Periosteal Osteosarcoma in Mississippi
In April of 2005, I was diagnosed with a periosteal osteosarcoma of a rib. I had two ribs removed at M. D. Anderson in Houston, Texas, and it was determined that there was 6 mm invasion of the bone marrow. Since that time, I had extensive chemo at M. D. Anderson. In 2006, it returned as a lesion on my scalp and in 2008, I…
LUMPS
BC survivor of 14 years after aggessive cancer and treatment. Had benign lumps less than one year in healthy breast since opted for mastectomy but had treatment on cancer before to remove second breast. 14 years later found a very small lump then second lump grew right by small lump in a few weeks and still growing. I am…
Rhabdomyo sarcoma - pleomorph‏
My boyfriend Ivan is just 37 years old. He was diagnosed with 'Rhabdomyo sarcoma - pleomorph‏' in November 2009. The cancer started in his right leg. The size is just like a boll size. Cancer spread to his lungs. He had 3 different type of cameos but did not work. He has pain on his chest now and also having breading…
HELP
Hi, I am very scared after reading posts and diagnosing myself through Google.. I have two pea sized lumps under my skin (one is smaller that that) on front of my upper leg about right in the middle. You can't see the lumps but feel them when i rub into my leg. I have a derm appt tomorrow but when I google this is comes up…
Support
My fiancee, age 43, almost a year ago was diagnosed with an "undifferentiated sarcoma/carcinoma" of the left thigh. At the time, small nodules were present on hish CT/PET scans which the MDs at the first hospital we went to said "not to worry about". We worried and decided to go to Pennsylvania Hospital to a Sarcoma expert…
Radiation pain after 2 yrs
I am in remission after having liposarcoma. I underwent chemo, radiation, surgery and have been cancer free since my therapy ending in Jan/08. I go every 3-6 months for MRI and CT checks.I am wondering if anyone else is having pain from the radiation treatment(even years later)? My thigh is still hard as a rock and still…
Stage 4 Spindle Cell Sarcoma
Hi there, I wonder if anyone can help me. My Dad about four months ago had terrible pain in his shoulder - after many tests they eventually diagnosed spindle cell sarcoma. They also noticed 2 spots on his lungs. Originally they were going to try three rounds of chemo to shrink it and then remove mass and replace shoulder…

Sarcoma

Discussion List

Discussion Boards