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looking for others with Spindell cell soft tissue sarcoma !
Hello My name is Mari. My sister Anita who is only 28 yrs old has been diagnosed with 4th Stage Soft Tissue Sarcoma Cancer it started as a small pea size blemish on her knee and was called a "spindle cell tumor" it spread to her calf, up her thigh and into her back now in her thoracic and lumbar as well as metastasized…
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Spindle Cell Sarcoma
I am 18 years old and about a week ago I got what I had been told was a small cyst removed from my left shoulder. Today the surgeon told me it was a malignant spindle cell tumor but only about 2.5cm big. He refered me to a surgical oncologist and told me that the outlook should be pretty good since the tumore was so small.…
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cancer treatment centers of america
anyone have experience with these hospitals
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Symptoms and how much Pain
I have been looking for answers on this lump in my upper arm that is seen on MRI but they do not know what it is. I have allot of pain now as this lump grows now and is causing my physical problems using hand arm and shoulder now and getting worse. I have had a lump that grew before in arm pit and that did exactly the same…
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Mike Leo, a good friend of my daughters passes away
http://www.strikeoutsarcoma.com/link.html Sharing with fellow sarcoma patients.
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Synovial Sarcoma of the Left Foot
I was just diagnosed with synovial sarcoma last week on my left foot. It probably has been growing there underneath for a long time, however, it has grown very fast lately and now I am looking a removing my foot to keep it from spreading. The doctor, who is an awesome specialist at the cancer center at IUPUI, said that it…
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Metastisized Synovial Sarcoma, pain and depression.
I was diagnosed in late 2006 six months after I found a lump on my inner thigh. I had surgery in January 2010 to remove a tumor that originated from that original tumor. I underwent chemo and radiation for the first tumor--that was 11 cm when removed. I had no additional treatment for the lung tumor other than removal. The…
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Retroperitoneal Spindle Cell Sarcoma
Tuesday 20th July 2010 Hi. I was recently diagnosed with Retroperitoneal Spindle Cell Sarcoma (February 2010). One lagre tumour was removed by surgery. I subsequently had chemo-therapy (doxorubicin), but a CT scan showed that 2 new tumours have appeared. I am now receiving a different form of chemo, and may have further…
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there must be new info on breast angiosarcoma
after dealing with this cancer for the last 3 mos. and still no new info. on it. even my oncologist doesn't know. how can this be. this cancer is caused by radiation to the breast, secondary breast angiosarcoma. with all the emphasis on BC, why are drs. so slow in bringing this cancer to our attention. is there anyone, who…
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WD Liposarcoma - Radiation or not..
Radiation or not.... My mother (67) had a liposarcom in her thigh 3 years ago..it was surgically removed It was WD - well-differentiated Now it is back again in the same location... It was surgically removed again... Should we do post-op radiation?? What are the chances of a WD liposarcom turning into a DD liposarcoma? We…
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A daughter looking for helps
My mom was diagnosed with Spindle cell Sarcoma in the upper part of her left lung on Dec 2009 and had a surgery to remove the whloe left part on feb 2010. 3 months after her surgery she had her first CT scan and the result shows that there are new lesions appeared on her right lung and pancreas. The doc suggested for the…
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Interferon therapy
My husband has been diagnosed with angiosarcoma. The area is on his face and too large for surgery. The cancer has not spread from the original location under his eye. He is being given only interferon therapy. Has anyone had any experience with this drug?
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Liver angiosarcoma
I have just been diagnosed with angiosarcoma of the liver and begin chemotherapy with Taxol next week. I am very freaked out, depressed and scared. It is such a rare cancer. I am just about to turn 50 and have always been in excellent health until this hit me out of the blue. I have not read any hopeful statistics on this…
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husband is in surgery
My husband is currently in surgery..... he is having a cancerous tumor the size of a football removed as I type. Lots of complications could occur, or everything could turn out ok. It has been a long process with tests, scans, chemo and radiation. I am very nervous!!!
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Doxil to treat Post Radiation Angiosarcoma
Would like to hear from anyone who has been treated with Doxil for post radiation angiosarcoma.
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Periosteal Osteosarcoma in Mississippi
In April of 2005, I was diagnosed with a periosteal osteosarcoma of a rib. I had two ribs removed at M. D. Anderson in Houston, Texas, and it was determined that there was 6 mm invasion of the bone marrow. Since that time, I had extensive chemo at M. D. Anderson. In 2006, it returned as a lesion on my scalp and in 2008, I…
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LUMPS
BC survivor of 14 years after aggessive cancer and treatment. Had benign lumps less than one year in healthy breast since opted for mastectomy but had treatment on cancer before to remove second breast. 14 years later found a very small lump then second lump grew right by small lump in a few weeks and still growing. I am…
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Rhabdomyo sarcoma - pleomorph
My boyfriend Ivan is just 37 years old. He was diagnosed with 'Rhabdomyo sarcoma - pleomorph' in November 2009. The cancer started in his right leg. The size is just like a boll size. Cancer spread to his lungs. He had 3 different type of cameos but did not work. He has pain on his chest now and also having breading…
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HELP
Hi, I am very scared after reading posts and diagnosing myself through Google.. I have two pea sized lumps under my skin (one is smaller that that) on front of my upper leg about right in the middle. You can't see the lumps but feel them when i rub into my leg. I have a derm appt tomorrow but when I google this is comes up…
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Support
My fiancee, age 43, almost a year ago was diagnosed with an "undifferentiated sarcoma/carcinoma" of the left thigh. At the time, small nodules were present on hish CT/PET scans which the MDs at the first hospital we went to said "not to worry about". We worried and decided to go to Pennsylvania Hospital to a Sarcoma expert…
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Radiation pain after 2 yrs
I am in remission after having liposarcoma. I underwent chemo, radiation, surgery and have been cancer free since my therapy ending in Jan/08. I go every 3-6 months for MRI and CT checks.I am wondering if anyone else is having pain from the radiation treatment(even years later)? My thigh is still hard as a rock and still…
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Stage 4 Spindle Cell Sarcoma
Hi there, I wonder if anyone can help me. My Dad about four months ago had terrible pain in his shoulder - after many tests they eventually diagnosed spindle cell sarcoma. They also noticed 2 spots on his lungs. Originally they were going to try three rounds of chemo to shrink it and then remove mass and replace shoulder…
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What can nurses do to better help you?
I am an RN student and I would like to know what the nurses who care for you could do to better help you? I'm anxious to get your feedback! Please reply!
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Diagnosed plasmacytoma, second opinion is "most probably" osteosarcoma
Hello, I was diagnosed with "well defined plasmacytoma" a week a go. That was the biopsy's result in a private clinic here in Portugal. The doctors told me they suspected of osteosarcoma, but were "happy" to tell me that that wasn't the case (I did x-ray, pelvic, abdominal and toraxic CAT scans, bone scan, blood tests and…
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Statistics
I was just wondering if anyone keeps any statitstics on Ewing's Sarcoma and the survival rate. I am 36, and currently going through my 3rd recurrence with the disease, meaning I have had it a total of 4 times now. It would be interesting for me to talk to people who have had similar life experiences as myself, or to be…
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newly diagnosed with fibrosarcoma
Hi everybody, I have been diagnosed with a form of sarcoma called fibrosarcoma located in my right palm (yes,I'm right-handed). I just finished my first week of 6 weeks of radiation therapy. I have a strong faith in God, so that helps me tremendously. I was just wondering if anyone had any tips or anything else I may need…
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Ewings Sarcoma - in chemo - does someone understand??
Well, I was diagnosed with Ewings Sarcoma in June 09. I'm in chemo now. I took to the first 6 rounds (orange stuff on a pump) really well with very little issues. Now I'm on a new kind & I hurt. I ache and I'm tired. My husband and I have had problems long before I got sick. But me getting sick has amplified everything.…
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Resources?
I'm not a survivor yet but I plan on it. I'm not even sure what kind of cancer I've been diagnosed with. I know it's something like Liposarcoma. It's amazing for me to realize how little I know About something that has been growing in my own body. Im really not to scared maybe I haven't realized the severity of the…
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Can anyone share stories about their surgery? I am going in next week for a synovial sarcoma on my
They will be doing a wide excisional biopsy. They don't even know for sure that it is a sarcoma but they said it is most likley. Said they will take some of my muscle. Anyone experience surgery on their calf and how did that go?
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TH-302 Anyone with experience with this drug?
Doctor is suggesting this clinical survey drug be used along with the normal treatment.