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DermatoFibroSarcoma
I was diagnosed with DFS in June of 2010. I had a small nodule on my left cheek/hip area. My dr. told me she didn't think it was anything to worry about so therefor I didnt. I noticed when swimsuit season came along you could see the nodule and me the person I am decided it was time to visit a dermatologist. This took…
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Spindle Cell Sarcoma in Abdominal Cavity
Hello, Everyone! We are waiting for a second opinion from the Mayo Clinic, but it seems that I have a fist-sized spindle cell sarcoma next to (attached to?) my stomach. Anyone else familiar with spindle cell sarcoma?
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Angiosarcoma of the Breast post Radiation
Please let us know if you are out there surviving a diagnosis of Angiosarcoma of the breast..
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retroperitneal liposarcoma
my wife who had problems going to the bathroom felt something hard on the right side of her abdomen, and it was wd liposarcoma, they removed a huge tumor and just about the 5 year mark, she felt it again, and it was not as big this time, and another surgery with no follow up treatment, then after 7 and a half year later,…
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breast cancer that is metastasis to soft tissue sarcoma
Hello Every one! my mother got diagnosed with breast cancer 2yrs ago. she went through radiation followed by Mastectomy and chemo. However, now her cancer is back and her doctor thinks it is soft tissue sarcoma. the sarcoma is spread almost all over her body and we are very much so worried for her life. If anybody is going…
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Cachexia - starvation due to cancer
has anyone delt with cachexia, http://en.wikipedia.org/wiki/Cachexia, and has something useful to share about it. How often does a cancer completely starve a person. It's horrible to watch, but something my Mother is experiencing. What can be done?
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Surgery
I go for surgery tomorrow. I was diagnosed on May 5, 2011 with fibrosarcoma. The surgical team is going to create negative margins. What I want to hear post op is "we got it all"! The ride has been interesting. I went to have a cyst removed form my right hip on April 8th, 2011. The surgen didn't like the way the cyst…
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High Fevers unknown cause
42 year old osteosarcoma survivor who last had chemo February 7th of this year started to running high fever last Wednesday. He was running 103.2 and 103.4 so he arrived at the ER where he was now running 104 and had the shakes. Numerous cultures had been done but they are all coming back negative. Doctors are trump…
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nephrostomy tube
Is anyone living with a nephrostomy tube long term? I have to have it changed every 3-4 months. I just wanted to meet someone that has had one for years and done well. Thanks Becky.
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24yr survivor
I am a 24 yr survivor from a Sarcoma. My cancer have been in remission since 1986 but the amount of Chemotherapy and Radiation l took was extensive and it cause me to have alot of female problems that still today i am still dealing with. Recovering from a surgery now that cause them to take out my only ovary and now I cant…
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metastizing to the lung
I had a high grade, large mixed sarcoma removed from my left thigh in Oct. 2008. I had 32 radiation treatments. I have had clear check ups until yesterday when tumors showed up in my left lung. I will see a surgeon on Thursday but wondered what treatments have been used for this. I am 65 but in very good health. My doc…
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angiosarcoma
I have been a lurker on this web site for a long time and I am seeing that our numbers are growing. I had angiosarcoma of the breast due to radiation 5 years ago.I had a masdectomy in April 2006 At this time I have had 2 surgeries since Sept 2010. This cancer has returned and is becoming more aggressive. My Dr. is not…
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Pleomorphic Liposarcoma Metastasis
My husband is 40 years old. He was diagnosed in 2008 with pleomorphic Liposarcoma. He has had several surgeries, radation and chemo. He currently has metastasis to the lungs, liver and ribs. I am looking for anyone else out there that is dealing with liposarcoma metastasis or has dealt with. I am aware that my husband's…
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synovial sarcoma on right lung
Hi folks. I have a synovial sarcoma tumor on my right lung. I have been through 6 sessions of 5-day treatments of chemo. The tumor did not shrink but did deaden out from the inside, but the overall size did not shrink. I go for surgery on April 26th to have at least part of my right lung removed (it is possible they will…
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Hello all..nervous as all get out here
I have enough information to be dangerous. Paramedic, RN student. 911 operator. Had a bakers cyst last yr which showed no tear on MRI, burst, fluid went into calf and I was good for another yr. Came back....new MRI..and I have a new friend. As any growth over 5cm is suspicious for malignancy, *I* am going to get a second…
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Dermatofibrosarcoma protuberans surgery
Hi! I am scheduled to have surgery for Dermatofibrosarcoma protuberans tomorrow(4/11/11). It will be a little less than a month after me telling my general doctor about having a bump on my rib cage right side. I was very blessed with a doctor with the ambition to find out what the bump was. she removed it on march 14 and…
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Throat cancer
I am a 71 year old guy who has been smoking a pack of cigarettes a day for 60 years... I was always athletic & VERY active.. strong...worked hard..then on my 65th birthday I had a heart attack..stens were inserted...plavix blood thinner.. so I retired.. sat on my can...watching TV...recently I began feeling VERY weak..…
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Soft Tissue Sarcoma
Hi, I'm a 39 year old male that has been recently diagnosed with a Mailgnant Peripheral Nerve Sheath Tumor. It is a form of Soft Tissue Sarcoma. The tumor was removed a few months ago, and now I am in Radiation treatment. I Thankfully, it appears although the tumor was high-grade aggressive, it has not spread. After…
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Inoperable Sarcoma in chest wall.
Hello, I am 25, I was diagnosed with a large synovial sarcoma in the pleura of my right lung in December. I had to give birth to my first child the next day so I could start treatment. Unfortunately due to a past operation on my lung the cancer is inoperable and due to the size of the tumour it's unlikely chemotherapy…
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Chondrosarcoma
Hi all. I am new to this website although I'm not new to having cancer! I was told I had cancer in 2001. The past ten years have been very crazy. I have had six surgeries and three years of chemo. The Chondrosarcoma start out as a lump on my right shoulder blade. In 2001 I had my first surgery to remove the timer that was…
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Medical Marijuana
I have not seen a post about this after doing a search so I wanted to bring it up. I was 19 yrs old when I was diagnosed with Rhabdomyosarcoma and now I am cancer free at age 33! DON'T EVER TAKE ANYTHING FOR GRANTED! My story: I was diagnosed with paratesticular Rhabdomyosarcoma when I was 19 yrs old. I went through 4…
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Leiomyosrcoma
Hi, I was diagnosed Dec.1,1999 with uterine leiomyosarcoma.The cancer had mestasized to my spine and my lungs. If anyone has this and would like to talk please let me know how to get in touch..Take care and God Bless!
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Liposarcoma on MRI in Virginia
My mother has always had these "fatty tumors" her entire life. They pop up, she'd have them removed, later on another would pop up, the cycle continued. None of which have been cancerous. They've been removed and they've all been benign. In June of 2010, she had a golf ball size tumor on her right hip/thigh area confirmed…
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Starting a family after...
I am two-time survivor of Alveolar Rhabdomayosarcoma. My first diagnosis was when I was 19, and my most recent was just over two years ago, at the age of 24. When I was initially diagnosed I was extremely concerned about possible fertility issues resulting from treatment. My oncologist assured me things should be okay.…
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Ewing's Sarcoma/PNET (Soft Tissue/Retroperitoneal Cavity)
Hello all, I've mainly been a lurker of the forum since my Fiance' Jenn was diagnosed back in October 2009 with Ewing's Sarcoma/PNET. A little background on what has happen over the course of the last year and a half...... Jenn was given a very poor chance of survival from her initial oncologist as well as surgeon back in…
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Osteosarcoma
I am a 39 year old woman who was recently diagnosed with small cell surfaced based osteosarcoma in my left distal femur. I am being treated in Denver by Dr. Hinshaw with Adriamyacin pump for 3 days then Cysplatin fed through a cathedar line to the tumor site where they place high doses. I have gone through two rounds of…
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angiosarcoma
I have been a lurker on this web site for a long time and I am seeing that our numbers are growing. I had angiosarcoma of the breast due to radiation 5 years ago.I had a masdectomy in April 2006 At this time I have had 2 surgeries since Sept 2010. This cancer has returned and is becoming more aggressive. My Dr. is not…
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angiosarcoma mastectomy
Question to any Angiosarcoma of Breast survivors- Had mastectomy 2 months ago - All was good for 6 weeks -chest wall and incision looked good. 7th week out - Had new lesion - bruising on chest wall - all around incision. Have had 5 punch biopsies - all clear ... Has anyone experienced these symptoms? Doctors do not know…
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help me support her
I can barely see the words as I type this...crying makes them blurry. My best friend was diagnosed with fibrosarcoma in her right femur almost a year ago. She started chemo and before she really got going with it her femur broke and was replaced. Then she continued on with her chemo treatments. Everything looked very…
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Anyone familiar with Johns Hopkins treatment?
I'm looking at heading out to JHU's Sarcoma Center for possible treatment if my mass returns as a liposarcoma. They seem to have a great team with 3 orthopedic oncologists, and a plethora of other specialists. I was just wondering if anyone's had good or bad experiences with them. Thanks.