A daughter looking for helps

lovelifeforever
lovelifeforever Member Posts: 11
edited March 2014 in Sarcoma #1
My mom was diagnosed with Spindle cell Sarcoma in the upper part of her left lung on Dec 2009 and had a surgery to remove the whloe left part on feb 2010. 3 months after her surgery she had her first CT scan and the result shows that there are new lesions appeared on her right lung and pancreas. The doc suggested for the chemo treament but he is not sure if it works. I am so worry about this agreesive treament and the side effect for my mom's body. She is 50 years old and I dont know whether her body can affort that. The worse thing is that recently my mom's right hand began to inflexible and it comes right now all fingers of her right hand can not move at all. So we did MR this week and the result shows the tumor has spreaded to her brain. The doctor now sugguests to the radiotherapy for the brain tumor.

All my families against to any chem or radio treaments right now. They dont want my mom suffer any pain anymore. But as a daughter, I dont want to give up, i want to do anything i can to help my mom. So i am here asking for any of your suggestions and recommend treaments.

Looking forward to any helps and resources. You can also contact me by ven_622@hotmail.com

Good luck to you all.

Comments

  • laladot
    laladot Member Posts: 1
    #2
    Your mother
    I must first say I feel all your pain and frustration. I just lost my mother to osteosarcoma and I still wonder if I did enough for her. I am not an expert on either treatment for your mother, but I would try and contact a specialist first and ask their opinion. Memorial Sloan Kettering Cancer Center in New York is an excellent place to start. My mother's oncologist there was Mary Louise Kohen. But there are several sarcoma specialist you can be referred to and they all confer together. But no matter what, you must know sarcomas are difficult to treat. It was so hard on me when they told me it had again spread and that there were no more treatments. I felt there had to be more I could do, but there wasn't. My heart truly goes out to you and your mother at this time. I am so sorry. I am here to vent and if you want to vent to me or talk please feel free, I'm hoping I can heal my heart here.
  • Mitchelle
    Mitchelle Member Posts: 2
    #3
    laladot said:

    Your mother
    I must first say I feel all your pain and frustration. I just lost my mother to osteosarcoma and I still wonder if I did enough for her. I am not an expert on either treatment for your mother, but I would try and contact a specialist first and ask their opinion. Memorial Sloan Kettering Cancer Center in New York is an excellent place to start. My mother's oncologist there was Mary Louise Kohen. But there are several sarcoma specialist you can be referred to and they all confer together. But no matter what, you must know sarcomas are difficult to treat. It was so hard on me when they told me it had again spread and that there were no more treatments. I felt there had to be more I could do, but there wasn't. My heart truly goes out to you and your mother at this time. I am so sorry. I am here to vent and if you want to vent to me or talk please feel free, I'm hoping I can heal my heart here.

    my sister
    Hi -

    I read your post and my heart ached. My sister was just diagnosed with spindle cell sarcoma. She has not yet started treatment but will most likely this week. It is stage IV, as it is near her kidney and a couple of small spots on her lungs. She also has a spot in her leg. I am wondering how much time she has left? And whether these treatments, which sound so severe are event worth trying?

    Any thoughts would be appreciated. I am devastated.
  • lovelifeforever
    lovelifeforever Member Posts: 11
    #4
    laladot said:

    Your mother
    I must first say I feel all your pain and frustration. I just lost my mother to osteosarcoma and I still wonder if I did enough for her. I am not an expert on either treatment for your mother, but I would try and contact a specialist first and ask their opinion. Memorial Sloan Kettering Cancer Center in New York is an excellent place to start. My mother's oncologist there was Mary Louise Kohen. But there are several sarcoma specialist you can be referred to and they all confer together. But no matter what, you must know sarcomas are difficult to treat. It was so hard on me when they told me it had again spread and that there were no more treatments. I felt there had to be more I could do, but there wasn't. My heart truly goes out to you and your mother at this time. I am so sorry. I am here to vent and if you want to vent to me or talk please feel free, I'm hoping I can heal my heart here.

    to laladot: ur mom will be with u forever
    I am so sorry to hear that and I believe your mother will be at somewhere watching u and blessing u.

    Thank you so much for your help. As daughters we often blame ourselves if we have done enough for our mom when sth terrible happen to them. But you don't have to do that anymore, your mom will be proud of you cuz u r spreading her love right now.

    I will really appreciate if there are any treatment suggestions from the US specialists. Cuz we are in china and I can hardly get any specific information for this kind of rare cancer. My mom now has Brain metastasis, and the dor suggests we begin with the whole brain radiotherapy and along with the systemic chemotherapy with Avastin. I am so anxious and worry right now, I dont know if this is the best for my mom. But what I will do is to try my best to support her no matter what will happen.

    Looking forward to hear from u again. Be strong my sister.

    Liz
  • lovelifeforever
    lovelifeforever Member Posts: 11
    #5
    Mitchelle said:

    my sister
    Hi -

    I read your post and my heart ached. My sister was just diagnosed with spindle cell sarcoma. She has not yet started treatment but will most likely this week. It is stage IV, as it is near her kidney and a couple of small spots on her lungs. She also has a spot in her leg. I am wondering how much time she has left? And whether these treatments, which sound so severe are event worth trying?

    Any thoughts would be appreciated. I am devastated.

    to mitchelle
    Yes, this kind of cancer is very dreadful and quick. But what we should do is never give up, give ur sister encouragements and a big smile everyday. Ask suggestions from her attending doctor and discuss with ur families.

    Ur support is very important to her right now, so be strong. Wish u good luck.

    Liz

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