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What can nurses do to better help you?
I am an RN student and I would like to know what the nurses who care for you could do to better help you? I'm anxious to get your feedback! Please reply!
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Diagnosed plasmacytoma, second opinion is "most probably" osteosarcoma
Hello, I was diagnosed with "well defined plasmacytoma" a week a go. That was the biopsy's result in a private clinic here in Portugal. The doctors told me they suspected of osteosarcoma, but were "happy" to tell me that that wasn't the case (I did x-ray, pelvic, abdominal and toraxic CAT scans, bone scan, blood tests and…
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Statistics
I was just wondering if anyone keeps any statitstics on Ewing's Sarcoma and the survival rate. I am 36, and currently going through my 3rd recurrence with the disease, meaning I have had it a total of 4 times now. It would be interesting for me to talk to people who have had similar life experiences as myself, or to be…
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newly diagnosed with fibrosarcoma
Hi everybody, I have been diagnosed with a form of sarcoma called fibrosarcoma located in my right palm (yes,I'm right-handed). I just finished my first week of 6 weeks of radiation therapy. I have a strong faith in God, so that helps me tremendously. I was just wondering if anyone had any tips or anything else I may need…
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Ewings Sarcoma - in chemo - does someone understand??
Well, I was diagnosed with Ewings Sarcoma in June 09. I'm in chemo now. I took to the first 6 rounds (orange stuff on a pump) really well with very little issues. Now I'm on a new kind & I hurt. I ache and I'm tired. My husband and I have had problems long before I got sick. But me getting sick has amplified everything.…
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Resources?
I'm not a survivor yet but I plan on it. I'm not even sure what kind of cancer I've been diagnosed with. I know it's something like Liposarcoma. It's amazing for me to realize how little I know About something that has been growing in my own body. Im really not to scared maybe I haven't realized the severity of the…
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Can anyone share stories about their surgery? I am going in next week for a synovial sarcoma on my
They will be doing a wide excisional biopsy. They don't even know for sure that it is a sarcoma but they said it is most likley. Said they will take some of my muscle. Anyone experience surgery on their calf and how did that go?
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TH-302 Anyone with experience with this drug?
Doctor is suggesting this clinical survey drug be used along with the normal treatment.
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Sarcoma under shoulder muscle?
My brother was recently diagnosed with Sarcoma. He lives in another state so we don't talk much and see each other rarely. He hasn't told me what type of sarcoma it is. All I know is that he had a tennis ball sized tumor under a muscle around his shoulder area. He went to the doctor because of extreme chronic pain in his…
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Sarcoma under shoulder muscle?
My brother was recently diagnosed with Sarcoma. He lives in another state so we don't talk much and see each other rarely. He hasn't told me what type of sarcoma it is. All I know is that he had a tennis ball sized tumor under a muscle around his shoulder area. He went to the doctor because of extreme chronic pain in his…
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Malignant Fibrous Sarcoma
Diagnosed 2008 Malignant Fibrous Sarcoma in my leg bone. Had surgery took out bone and replaced with endo prosthesis (prosthesis within my leg), from knee down to ankle. Had very strong chemo for 11mths. Cancer came back in lungs within 6mths. March 2009 was given 6mths to live, Drs could do nothing more for me. Now March…
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vitamin D 3
Is anyone currently taking vitamin d3? I have read it is a good supplement to use in the prevention and treatment of cancer. I was wondering if sarcoma, especially angiosarcoma, was one of the cancers sensitive to it.
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Chondrasarcoma Treatment
I was diagnosed with Chondrasarcoma in Sept of 09 and had a 5 inch section of my upper humerus removed and had a 7 inch bone from my leg (fibula)graphed in place. Just wondering if anyone else has had a similar procedure and what were the results?
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lms found in my moms thigh
Hi to all here. We are trying to get a dr that can advise my moms oncologist on best treatment for this cancer. My parents are in South Louisiana. I am trying to find a specialist but the closest I have found is in Houston. Part of the problem is she is on medicaid and medicare, medicaid does not cover in other states. She…
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I had Radiation to my head and now I need cataract surgery. Scared I won't heal anyone have any info
I had rhabdomyosarcoma when I was ten and received the max amt of rads to my head and neck area. Due to that I have to be really carefull about any head or neck injuries bC they say they may not heal properly or at all. Due to the chemo and or radiation I have had cataracts since I was ten. They have increasing gotten…
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Stage 4 sonovial sarcoma
My 15 year old grandson was diagnosed with Synovial Sarcoma last Nov. The tumor in his leg was removed and he had radiation as a follow up and for the nits in both lungs... 10 if I remember correctly. His 6 month follow up shows cancer in both lungs. I'm wondering if anyone has lived with this diagnosis? He's my heart.
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CHONDOROSARCOMA ASSOCIATED WITH BRAIN TUMOR
One of my close relative who is suffering from CHODROSARCOMA of 6th rib ( was declared in the month of september 2009) and accordingly "CYBERKNIFE TREATMENT" was advised and 5 sessions of CYBERKNIFE was completed after fedicuals implanting and after complition of 5 sessions of CYBERKNIFE, 3 sessions of chemo therapy was…
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Skin Changes
I'm making this post for anyone who is going through radiation therapy and experiencing skin changes such as reddness, dryness, itching and discoloration. I have a surgical scar where they are doing radiation and it is so dry that it is cracking and it HURTS. I have found Aquaphor (cream) helpful. Right now I'm…
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MPNST
I had a MPNST, I was wondering if there was anyone else on this board who had this. My surgery was 28 hours long. Its been 1 year since my surgery, I still have really bad back pain from the spinal fushions they needed to put in, they also they also needed to cut 50 percent of my muscels and nerves in my left leg.I was…
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liposarcoma
Posting here for people who have gone thru this for hopefully some insight. Im in a hospital now that doesnt specialize in treating sarcoma but the only cancer center in the area. In the hospital mostly due to pain and size makings walking difficult. Surgeon, radiology, radiation oncology etc basically the whole "team"…
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Question about Fibrosarcoma
I found out in 2007 that I had soft tissue sarcoma in shoulder area. I went through chemo and then had the tumor (high grade) removed from my shoulder area. Then i went through radiation. One year after being "clean" i had a CT scan and they found nodes in my lungs. I was told at that time I could die in 3 months to a…
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Osteosarcoma in right lung, 47 years old woman, no metastasis
My wife was diagnosed with high-grade malignant osteosarcoma 5 weeks ago. The tumor is located in the right lung, and it is so big that it is occupying practically the entire lung. Thanks God, MRI of the abdomen was done and no metastasis were found. She has lost a lot of weight, has persistent cough, has short breathing,…
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what symptoms did you have
i know that everyone is differnt when it comes to symptoms. im just curious if anyone else experienced the same things as me. i just woke up one morning feeling like i had broken my tailbone and within a months time i could barely walk. even now with lyrica for pain and a fibrosarcoma on my sciatic nerve i still feel…
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MPNST treatments ?
I am a 34 yo male in South Florida. I had 5 malignant peripheral nerve sheath tumors removed from my lower abdominal and pelvic area about 2 months ago.1 was the size of a basketball and the others 3-5 centimeters. Since then have been to the university of Miami and had the pathology redone and have seen a doctor that is (…
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leiomyosarcoma
hi yall, my name is kay. i was just diagnosed in november with lms. i am so scared from everything i read about it. would appreciate a note back. would like to know how fast it comes back if it does or maybe how long you have survived. also does anybody know anything about the md anderson clinic in houston??????? or the…
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Metastasis Synovial Sarcoma to Both Lungs
My father was diagnosed with synovial sarcoma at the right side of his abdomen about 2 and a half years ago. He underwent surgery to remove the tumor plus radiation. 2 years later, the tumor returned to the same location and it grew from the right side and extended to the back. The tumor encased part of this spine causing…
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Thank you God!
Hi guys! I joined this group just recently after I found out that my mom might have soft tissue sarcoma. When my mom had found a 4cm tumor on her back, she went to her primary doctor to get it checked out. After two MRI scans, her primary doctor told her that it might be a soft tissue sarcoma. When she found out, she…
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retroperitoneal area liposarcoma
Good day all.. I had my first experience with a well-differentiated liposarcoma in my retroperitoneal area in September 2006. This bugger took the better part of 8 hours to remove . My doctor was a uroligest who performed a fantasyic job removing the toumor wirh out damaging the package or any internal organs. My recovery…
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DRMSC VS Ewing's
First please allow me introduce myself. My name is Bill and I reside in Sacramento, California. My Fiance' of 6+ years Jennifer has recently (within the past 3 months) been diagnosed with a soft tissue Sarcoma within her abdominal cavity. The tumor itself prior to her first round of P6 protocol chemo was roughly…
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Spindel Cell Sarcoma...HELP!!!
My brother has been diagnosed with Spindle Cell Sarcoma last week. The future looks bleek. He has 3 kids and is the greatest guy. He just finished 3 days of chemo to slow process. Any info, anything..would be appreciated. E-mail at TAS44@aol.com Thank-you!!