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daughter w/myxoid liposarcoma
You all have probably heard these stories a million times. I am, basically, the momma trying to cope. In this instance. My 12 year old daughter was finally diagnosed and had surgery on Oct. 1st of this year. It took them 2 months to decide it was this type of cancer. This is all very new to me. I am scared, worried and all…
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Survey
Hey everyone, my name is Paul Hogan and I am currently a psychology student at the California State University in Fresno. I am currently conducting research on the life outlooks of cancer survivors. If you could spare 10 minutes of your time to take a survey, I would greatly appreciate it. I myself am a past cancer…
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I have had Ewings for 8 years
I was just wondering if anyone else is a survivor of Ewings and has had a recurrence. I would like to talk about your treatments and how it affected your life. I currently am on a clinical trial with amazing results and would like to share it to others and possibly help out someone.
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Synovial Sarcoma
Hi there, My names steve I live in Australia and my brother has recently been diagnosed with Synovial Sarcoma in his left knee. I am trying to start an encouragement circle and was wondering if you would like to participate. If you have survived cancer, particularly synovial sarcoma, please take a few minutes to document…
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Recovering from High Grade MyxoFirbo Sarcoma in my shoulder, question about exhaustion
Hi, I had a lemon sized (high grade) myxofibro sarcoma removed from my right shoulder last April, with a wide excision. I had 6 weeks of radiation afterwards. Now, I am having 3 month checks of my lungs and arms. My radiation ended the first week of July, and I had severe burns under my arm where the lymph nodes had been…
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In memory of...
I am a survivor of sarcoma. Today, a close family friend was laid to rest from colon cancer. He fought to the end and never gave up hope for a cure. It reminded me of how we can never stop fighting no matter the outcome. Our battle inevitably impacts others around us.
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question???
Hello, My husband was 1st diagnosed with a low grade 10 lb liposarcoma in 1987. He had a reccurrance that was overlooked by his doctor for 5 years (the doctor never looked at the MRI results). He has had major surgeries in 2005 and 2007 to remove recurrent tumors with a change in stage and grade. It is now a…
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Myxoid Liposarcoma Tests???
I had surgery two weeks ago and diagnosed with myxoid liposarcoma up to margins (gross of tumor). The orthopedic surgeon said that this is because the tumor was deep within my muscle and the muscle they removed with the tumor contracts into the tumor when cut, contaminating the muscle. Either way, he is sending me for 6…
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Worried about a lump...suggestions?
I recently went to a general surgeon to have a lump looked at on my lower back. The lump is hard and feels about the size of an earaser head on the end of a pencil. I was refered to him by my gp, who thought the lump was a lipoma. The surgeon didn't agree with that and ordered an MRI. He said the results were clear and…
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osteosarcoma
My daughters boyfriend was diagnosed with osteosarcoma 18 months ago. He had his right arm aputated and went through months of chemo. Chemo ended last March (2007). A small spot was found on his lungs in June, which they removed. He was just in for scans and 4 spots were found on the lungs 2 in each lung. He is back in the…
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osteogenicsarcoma
I am two years off treatment.I will be turning 18 in three weeks.I am looking for others who are on or off treatment as well.I would like to talk with others who have had osteo. runner4life
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Natural or Chemo
Natural or Chemo Two questions I ask...which strategies or paths to take...? 1) What foods (like fruit or veggies) help to prevent the return of sarcoma? 2) What Chemo treatment works best to prevent sarcoma from returning? I know that there are variables with each path, but I just wanted to get from the group what has…
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suport groups
I am having a had time finding any support groups in my area (sunbury pa) if someone could help me that would be wounderful.
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neurofibrosarcoma
Hi i have a neurfibrosarcoma and i was looking for someone to talk to who can share in my expercience thanks ALana
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Anybody know how long it would be for someone getting 5 rounds of Chemo?
Hi. I have a loved one with synovial sarcoma and she has had her surgey and has done 2 weeks of radiation and still has 4 weeks left. Next she will be doing 5 rounds of chemo whats the length of this 5 months?? i dont know anybody please tell me. Thank-You.
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recommend surgeon
Hi everybody, My husband was just diagnosed with rt. thigh liposarcoma a huge size(15 cm)which seems to be well differentiated. We'd like to know your recommendations and personal experience re best surgeon and oncologist to go to. Thank you, Daniela
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Sarcoma and sports balls / apples
My father has been diagnosed with a pleomorphic rhabdomyosarcoma on his right outside thigh, in the same place he has been rubbing apples (coated in pesticides) against like a sports ball. I would be very interested to hear of other people with various forms of sarcoma, who may have some pesticide link. That is who rub…
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Pleomorphic Liposarcoma
My husband who is now 64 yrs. was first diagnosed with 'pleomorphic liposarcoma' cancer in December 2003. He had it on his upper right back near the arm pit. He first noticed a very small lump on his back in Sept 2003. The VA doctor kept saying it was only a fatty tumor and do not worry about it. Well it kept growing and…
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Unspecified Cancer
Dear all, A close friend has just been diagnosed with cancer in her arm. Her doc.s tell her it's stage 4, but say they can't tell what type it is - is this usual? I had hodgkin's last year. It was very important in the treatment to know exactly what type it was. Is this not the case for other cancers? Also, regardless of…
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malignant fibrous histocytoma
I have been diagnosed with Stage II MFH. The tumor was in my leg. I am having a second surgery this month to clear margins. The Doctor also told me he can not rule out that a second lump, this one in my hand, may also be a sarcoma, and he will remove this as well. Both lumps appeared at about the same time (around 18…
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Radiation Induced Soft Tissue Sarcoma Help
Has anyone successfully treated this monster? If so, where did you go? I had Hodgkins 24 years ago and the Sarcoma grew in my chest wall. I had a 10 hr surgery 1 yr ago and have been recovering however the Sarcoma is now in my lung and possibly pancreas and ischium.
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Ewings Sarcoma
I was 13 years old when I was diagnosed with E.Sarcoma. I am now in remission...oh yeah, and I'm only 16. I never see people as young as me on these sites. I feel kinda stupid. So, if anyone wants to talk, please reply. Thanks.
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radiation
I was just told I have to do 7 weeks of radiation for a synovial sarcoma. Tumor removed Nov. 22. Is this normal?? Seems like a long time.
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Osteosarcoma
Hello, my name is Neysi Salazar i am from Nicaragua, my best friend has cancer, he was diagnosed 3 years ago, the drs cut out his left leg now he has methatasis is his right lung... his family is really poor and he need treatmeant, i am writting here cause i really need u to help me... pls answer me... u can call me at…
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metal rod in femor
has anyone had to have a titanium rod inserted in femor bome after having a liposarcoma removed and radiation therapy? my daughter has been advised to have this procedure done. i have yet to find anyone else that has had this done because the rads made her bone brittle and dr. says she could shatter her leg in several…
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mandy's surgery
mandy had the surgery to have the titanium rod inserted into her femor bone the 27th. it is to reinforce the bone because of the intense radiation therapy she received after the liposarcoma was removed last year. she had a cold that day so the anethesiologist would not give her a general and opted for an epideral instead,…
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surgery 10-27
my daughter had a liposarcoma removed 9-2003 now will be having a titanium rod and pins inserted into femor bone that was weakened by 35 weeks radiation. the surgery is scheduled 10-27.keep her in your thoughts please. dyana
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Support Group in Alabama
Fellow survivers here who live in or near Alabama, who would like to start a support group in North Alabama Please email me at krp@hiwaay.net My name is Kevin.
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ex abusing 3 yr old w brain cancer
I need your help. I have a three year old son with brain cancer (clear cell sarcoma) and a family law judge that has given his abusive father unsupervised visitation with him in the hospital which resulted in the father emotionally the child during visits. The judge has confirmed that the father has engaged in domestic…
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Ewing's sarcoma recurrence
Is anyone out there that has had Ewing's and has had it come back? I had chemo to shrink the mass I had on my scapula. Then I had surgery. After surgery, I had chemo once again. Finally, I had a stem cell transplant. I went for my first checkup after the stem cell transplant and found out that the cancer is back. I don't…