Please remember that these discussion boards are a public forum, which means open to the public (i.e. non-CSN members) and the content can be found via internet search engines. Members are strongly advised not to share personal identifiers such as real names, email address, telephone number, street address, etc. This information can be used to identify you and link you to the content you provide. Other areas of CSN are restricted to members only and cannot be found by search engines.

Sarcoma

question on new blood vessels forming and swelling
Hello everyone. Has anyone noticed new formation of blood vessels near their tumors or swelling? The fancy term is angiogenesis. In my case, I noticed a lot of blood vessels at the surface of my skin. I am usually a nurse's worst nightmare. I have horrible tiny veins that hide and blow and oftentimes, I have needed flight…
Treatment WITHOUT chemo and radiation
My mother just had her left leg amputated (mid-thigh) this past Monday. Within a week, she had gone to the doctor complaining of arthritis and expecting a knee replacement, only to find she had a horrible sarcoma wrapped around her knee. Amputation was the only option to save her life. She is not a candidate for chemo…
DFSP
I've just been diagnosed with DFSP through a resection of a tumor located on my right hip. I'm 19 years old and a cancer survivor of a rare brain tumor which is now in remission. My next step is to have the MOHS surgery in about 1-2 months to let the initial surgery heal. Can anyone give me any information about their…
Spindle cell sarcoma of an extremity.
I just hit the 10 month aniversary of the surgery to remove a softball sized tumor from my leg. It was a limb salvage surgery. I am now having an MRI reviewed to see if it has spread...in the same leg or to my back. Has anyone else been throught this? It is so rare, especially for someone my age-44!
recently diagnosed synovial sarcoma
I was diagnosed a few weeks ago after having the tumor taken out of my left upper arm. Now they want to go back in and get more tissue to see if the cancer spread. Before they even find that out they want to start me on chemo. Has anyone else done this,is this normal? I just dont want to put my body through that…
dfsp information dermato fibrosarcoma protuberans
i was diagnosed with dfsp on late November 2008 after three surgeries we achieve negative margins. we went with wide excision surgery i just had a skin graph a few days back and now i am in the hospital recovering. the skin graph hurt the most out of the other 3 surgeries combine. i know that there is not alot of…
Enlarged node in pelvic area
I had my CT scan yesterday and have an enlarged node in my pelvic area. I have high grade uterine leiomyosarcoma and have been in remission. Has anyone had an enlarged node?? What is the process for this? Thanks Tammy
myxoid liposarcoma of left thigh
My husband was diagnosed with a myxoid liposarcoma in his left thigh in late July. When it was noticed by us it was the size of a walnut, that was in the beginning of July. By the time he had the biopsy it was the size of a large softball. He underwent 28 radiation treatments. It did not work. The tumor grew during…
daughter w/myxoid liposarcoma
You all have probably heard these stories a million times. I am, basically, the momma trying to cope. In this instance. My 12 year old daughter was finally diagnosed and had surgery on Oct. 1st of this year. It took them 2 months to decide it was this type of cancer. This is all very new to me. I am scared, worried and all…
Survey
Hey everyone, my name is Paul Hogan and I am currently a psychology student at the California State University in Fresno. I am currently conducting research on the life outlooks of cancer survivors. If you could spare 10 minutes of your time to take a survey, I would greatly appreciate it. I myself am a past cancer…
I have had Ewings for 8 years
I was just wondering if anyone else is a survivor of Ewings and has had a recurrence. I would like to talk about your treatments and how it affected your life. I currently am on a clinical trial with amazing results and would like to share it to others and possibly help out someone.
Synovial Sarcoma
Hi there, My names steve I live in Australia and my brother has recently been diagnosed with Synovial Sarcoma in his left knee. I am trying to start an encouragement circle and was wondering if you would like to participate. If you have survived cancer, particularly synovial sarcoma, please take a few minutes to document…
Recovering from High Grade MyxoFirbo Sarcoma in my shoulder, question about exhaustion
Hi, I had a lemon sized (high grade) myxofibro sarcoma removed from my right shoulder last April, with a wide excision. I had 6 weeks of radiation afterwards. Now, I am having 3 month checks of my lungs and arms. My radiation ended the first week of July, and I had severe burns under my arm where the lymph nodes had been…
In memory of...
I am a survivor of sarcoma. Today, a close family friend was laid to rest from colon cancer. He fought to the end and never gave up hope for a cure. It reminded me of how we can never stop fighting no matter the outcome. Our battle inevitably impacts others around us.
question???
Hello, My husband was 1st diagnosed with a low grade 10 lb liposarcoma in 1987. He had a reccurrance that was overlooked by his doctor for 5 years (the doctor never looked at the MRI results). He has had major surgeries in 2005 and 2007 to remove recurrent tumors with a change in stage and grade. It is now a…
Myxoid Liposarcoma Tests???
I had surgery two weeks ago and diagnosed with myxoid liposarcoma up to margins (gross of tumor). The orthopedic surgeon said that this is because the tumor was deep within my muscle and the muscle they removed with the tumor contracts into the tumor when cut, contaminating the muscle. Either way, he is sending me for 6…
Worried about a lump...suggestions?
I recently went to a general surgeon to have a lump looked at on my lower back. The lump is hard and feels about the size of an earaser head on the end of a pencil. I was refered to him by my gp, who thought the lump was a lipoma. The surgeon didn't agree with that and ordered an MRI. He said the results were clear and…
osteosarcoma
My daughters boyfriend was diagnosed with osteosarcoma 18 months ago. He had his right arm aputated and went through months of chemo. Chemo ended last March (2007). A small spot was found on his lungs in June, which they removed. He was just in for scans and 4 spots were found on the lungs 2 in each lung. He is back in the…
osteogenicsarcoma
I am two years off treatment.I will be turning 18 in three weeks.I am looking for others who are on or off treatment as well.I would like to talk with others who have had osteo. runner4life
Natural or Chemo
Natural or Chemo Two questions I ask...which strategies or paths to take...? 1) What foods (like fruit or veggies) help to prevent the return of sarcoma? 2) What Chemo treatment works best to prevent sarcoma from returning? I know that there are variables with each path, but I just wanted to get from the group what has…
suport groups
I am having a had time finding any support groups in my area (sunbury pa) if someone could help me that would be wounderful.
neurofibrosarcoma
Hi i have a neurfibrosarcoma and i was looking for someone to talk to who can share in my expercience thanks ALana
Anybody know how long it would be for someone getting 5 rounds of Chemo?
Hi. I have a loved one with synovial sarcoma and she has had her surgey and has done 2 weeks of radiation and still has 4 weeks left. Next she will be doing 5 rounds of chemo whats the length of this 5 months?? i dont know anybody please tell me. Thank-You.
recommend surgeon
Hi everybody, My husband was just diagnosed with rt. thigh liposarcoma a huge size(15 cm)which seems to be well differentiated. We'd like to know your recommendations and personal experience re best surgeon and oncologist to go to. Thank you, Daniela
Sarcoma and sports balls / apples
My father has been diagnosed with a pleomorphic rhabdomyosarcoma on his right outside thigh, in the same place he has been rubbing apples (coated in pesticides) against like a sports ball. I would be very interested to hear of other people with various forms of sarcoma, who may have some pesticide link. That is who rub…
Pleomorphic Liposarcoma
My husband who is now 64 yrs. was first diagnosed with 'pleomorphic liposarcoma' cancer in December 2003. He had it on his upper right back near the arm pit. He first noticed a very small lump on his back in Sept 2003. The VA doctor kept saying it was only a fatty tumor and do not worry about it. Well it kept growing and…
Unspecified Cancer
Dear all, A close friend has just been diagnosed with cancer in her arm. Her doc.s tell her it's stage 4, but say they can't tell what type it is - is this usual? I had hodgkin's last year. It was very important in the treatment to know exactly what type it was. Is this not the case for other cancers? Also, regardless of…
malignant fibrous histocytoma
I have been diagnosed with Stage II MFH. The tumor was in my leg. I am having a second surgery this month to clear margins. The Doctor also told me he can not rule out that a second lump, this one in my hand, may also be a sarcoma, and he will remove this as well. Both lumps appeared at about the same time (around 18…
Radiation Induced Soft Tissue Sarcoma Help
Has anyone successfully treated this monster? If so, where did you go? I had Hodgkins 24 years ago and the Sarcoma grew in my chest wall. I had a 10 hr surgery 1 yr ago and have been recovering however the Sarcoma is now in my lung and possibly pancreas and ischium.
Ewings Sarcoma
I was 13 years old when I was diagnosed with E.Sarcoma. I am now in remission...oh yeah, and I'm only 16. I never see people as young as me on these sites. I feel kinda stupid. So, if anyone wants to talk, please reply. Thanks.

Sarcoma

Discussion List

Discussion Boards