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MPNST & NF - Any long-term survivors?
Every bit of news I get about this terrible cancer is bad. Has anyone with NF survived an MPNST for more than 5 years? My son had a very aggressive 11.5 cm tumor removed from his pelvis. They are going to re-scan his lung today to find out if a spot they found is a met. I am so scared! Please, if anyone has had a good…
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My Angel - Fighting Leiomyosarcoma
My wife Robin whom is 40yrs old has stage 4 Leiomyosarcoma. In 2005 she had a tumor in her leg and a knee replacement was conducted at the University Of Birmingham. She was given Radiation as a percaution measure. It returned in the jaw bone, lung, and verta-brea in 2008. She now has LMS in her lung, spine and liver. Even…
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Liposarcoma in left thigh
I am 55, I have clean homes & offices for over 30 years. I also do Property Preservation. I first went in in 1990 to get a tumor removed from my thigh, then again in 2005, and the the most recent operation was August 2010. I was told on the first two they were just fatty cells tumors, Now they believe I was misdiagnoise. I…
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Osteosarcoma on the zygomatic (cheek bone)
I was diagnosed almost 2 years ago. I was sent to UNMC to a specialist and had surgery in Feb. of 2009. My cheek bone was removed and rebuilt with one of my ribs. I had wonderful surgeons and my followup and care has been exceptional.
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Very interested to read stories of uterine tumour>>mets: Positive experiences
Hello folks! My story, still ongoing:- 2008 Hysterectomy for fybroids. Lab report showed stage 1 Leiomyosarcoma. Referral to Oncologist, he recommended Chemotherapy (Adriamycin)although the PET scan was clear, he indicated there was a strong possibilty the cancer was spreading into the blood. After 6 cycles, I had a CT…
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foot
has anyone had a tumor in the foot. Esp. on bottom of foot near heel?
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Spindle Cell Sarcoma in brain
A friend of mine was diagnosed with spindle cell sarcoma in the lungs 2 years ago. He underwent aggressive chemotherapy and ended up having surgery last spring. A couple of weeks ago, he was pronounced cancer free. A week ago, he was seeming confused and complaining of headaches. Docs did a brain scan and he has 4 lesions…
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PLEASE! ANXIETY RIDDEN!
JUST BEEN REFFERED TO AN ORTHOPAEDIC ONCOLOGIST ABOUT "SOFT TISSUE MASS" FOUND ABOVE LEFT ANKLE ON SHIN. MRI Dr. read it to be "most likely" benign. But he referred me to a ortho-surgeon for removal. Only to have this specialist send me to ANOTHER speacialist...ORTHOPAEDIC ONCOLOGIST> Does this mean he saw some cancer on…
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Newly Diagnosed Synovial Sarcoma
Hi, I just wanted to reach out and join this message board as the ACS seems to have some great people involved in their programs. I recently stayed at the Hope Lodge in NYC, and man, what a great program they have there! I was diagnosed with a high grade monophasic synovial sarcoma in my right calf on October 27, 2010. It…
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dealing with recurrecnce
I have just had routine scans which showed 3 tiny spots on my right lower lung. I had 4 rounds of chemo which ended in frb/09 surgey on my other lung and 35 rads to the primary site. All scans were clear in feb and july. I have done it all and it still came back. I will start chemo again in 1 week. I am scared,angry…
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Stomach Pains
My mom is taking an oral chemo pill for her cancer. She has a type of sarcoma cancer. The pill is really upsetting her stomach which in turn does not allow her to eat. Is there anything that some of you have tried that eases this pain and allows you to eat? Anything would be helpful.
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osteosarcoma with multiple lung mets on both lungs
My 38yr old friend was diagnosed with osteo sarcoma in the mouth (very rare),with multiple lung mets in both lungs 2wks ago.the consultants told her basically thats it she is looking at paliative.apart from weight loss she looks her normal self,fit and healthy looking.and in no need of the morphine that she was given.as…
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Myxoid Liposarcoma
Hi, I just joined so I'm new to all of this. I think I might have Liposarcoma. All the doctors that I've met with are not 100% sure as to what they are treating. But after reading more this seems more like what I have. I had Melanoma 7 years ago. Then I found a lump on my right thigh this past summer. My main doctor said…
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Surgery advice
My husband has a high grade sarcoma in his shin.. They said liposarcoma originally, but the specialist said the cells could not be identified ( it is pleomorphic- that's allwe know). Anyway he has undergone rads and is going in for wide excision on Wednesday the 1st at Roswell Park in Buffalo. I was just wondering if…
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post under dealing w ressurace
My wife and I are having too make some life decisions for our granddaughter asap. Can anyone help w some suggestions. Please read post.
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exchange of experience
Hello, i've been with sarcoma of the soft tissue for 6 years ( it spreads in the lungs and now is in the lungs). i had 6 chemiotherapies in 2005 which turned out to be unsuccesful.Since october 2005 i am taking "Varumin". I eliminated from my diet the red meat and all kind of proccessed food, started drinking some good…
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Stories needed for arm sarcomas
I am just doing what the breast cancer board is good at doing and that is posting a new thread because jumping around get confusing. I am looking for any information on sarcomas especially but interested in any of the arm bicept area. I am interested to hear about the symptoms, the diagnosis before truly knew it was cancer…
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Liposarcoma
Thank you in advance for all. I am a 42 years old woman and started to feel a lump on my upper right thigh about three weeks ago. It has tripled in size since then and became painful. Not only to the touch, but also throughout my entire leg and lower back. It's obviously affecting the nerves and surrounding tissues. I had…
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hi grade spindle cell adenosarcoma:
Hi, My name is jerri and I have been treated at local hospitals and have had 5 metastases.I have had 5 surgeries, much chemo, radiation and brachytherapy. I am just now doing adriamyacin and ifofsimide after my 5th surgery 2 months ago. I have another tumor growing in same spot as they just took off, from my ct we just…
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MYXOID LIPOSARCOMA
ARE THERE ANY SURVIVORS OF MYXOID LIPOSARCOMA? ON TUESDAY I GO FOR A BONE TEST?! AFTER MY LAST SURGERY I STOPPED ASKING QUESTIONS, I'M SCARED, HAVE TWO BEAUTIFUL NIECES AND A BLIND MOM WHOM NEED ME. I AM VERY EASY TO TALK TO AND I'M JUST TRYING TO BREAK OUT OF MY SHELL AND LEARN ABOUT CANCER. SOMETIMES I GET CAUGHT UP IN…
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DFSP
I have DFSP that has grown inward on my cheek instead of outward and my doctor says this is very rare. It is large and was not all removed during a biopsy and I am facing further surgery and am in search of the right doctor to do this. Does anyone have any suggestions?
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myxofibrosarcoma
My son has high grade myxofibrosarcoma stage 3 on his left thigh. It grew through chemo and radiation, he is scheduled to have his left leg amputated on September 22 2010.
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Dermatofibrosarcoma Protuberans
HOw many people had their surgeries done by Dermatologists and how many by Oncologists? This seems inconsistent and confusing. Anyone have personal info on mets to the lungs?
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DFSP Mets to Lungs
My mom was diagnosed with a DFSP back in August of 2007. She since had 5 surgeries. One included a muscle flap and skin graft. The most recent surgery was in March '10 to remove three large lumps that appeared in the original location, which is the front of her lower leg. She is now going to have surgery to remove a growth…
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Is there ANYONE with ABDOMINAL SARCOMA?
I'm a 29 year old 2 time survivor of abdominal Leiomyosarcoma and GIST tumor. Also had a small cholangiocarcinoma. Can't seem to find ANYONE close to my age with similar diagnosis. It's primarily uterine Leiomyosarcoma I have come across. I underwent a whipple surgery to remove the tumor. Lately I have been feeling very…
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Myxoid RoundCell Liposarcoma
I am new just dx'd August 28th. It is located in the right upper thigh. I have been referred to a surgeon experienced in soft tissue sarcomas and have had more MRI, and CAT yesterday Sept. I am awaiting results from the scans. I also had casting and tats done yesterday I am so scared I can hardly type and this is my first…
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Would like to talk or hear anything positive about surviving ewing
My son (8 yrs ) was dx Feb 2010. He is two treatments away from finishing protocol . Chemo (doxo, vincristin, cyclo, ifos & etop) surgery , radiation ( 10 rnds) . I have been by him and telling he is the strongest , he will beat it , he is exceptional ... Well he is he's been through so much and hardly complained. He's…
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lung sarcoma
I am 23 months into it so far. I am now 51 years old. Had my left lung removed sept. 2008. completed six months of in patient chemo. I am feeling great, other than some shortness of breath. I was diagnosed by my family doctor on aug 5 2008 on a routine physical. He found a large tumor in my left lung. Aug 7 I was at the…
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MRI done again
Well I have found out some things since getting news on MRI I had though it didn't include the lump on my arm that is most concerning to me. But the MRI of my shoulder shows it has horrid deteriation and no wonder having problems. Surgery is the only thing that will help me I was told. Though I lost it when had MRI because…
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Anyone have a child with DFSP? Have you radiated?
My 9 year old son had a nickle sized bump on the top of his foot for only about 2 months when we had it removed (took me that long to get him an appointment). They determined it was dfsp, and admitted him 3 days later to do a wide local resection. They removed the skin and tissue on the entire top of his foot, from the…