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stage 4 sonovial sarcoma
My 15 year old grandson has been diagnosed with stage 4 sonovial sarcoma. The tumor is in his calf and there are lesions on the lungs. Has anyone had this and survived?
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Daughter 21 Years Spindal Cell
My daughter has high grade Myofibroblastic lesion on the skull base at the Occipital bone. Has gone through 30 days of IMRT, the good news is it is localized and has not spread, next on the agenda is Chemo 4 treatments every 3/4 days with Iformasod ( spelled it wrong) every 21-28 days she will get another treatment. New…
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21 year old son with rhabdomyo sarcoma diagnosed July 2009
Hi, In July 2009, my 21 year old son was diagnosed with rhabdomyo sarcoma- embroynal in the neck region. He has been through 2 sessions of VAC a standard treatment for this cancer, but met with little success. He will begin a more agressive form of chemo therapy this week. Looking for other adults who have had this form of…
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Soft Tissue Sarcoma
Hello, I am a 21 year old who was diagnosed with a soft tissue sarcoma cancer at the age of 19. I would tell you what it is called but I don't know how to spell it. I had to go through radiation and chemotherapy, plus 2 hip replacements and still can't walk. I have been in remision for 1 year and 2 months. I would really…
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Liposarcoma at 85 years old
My husband's grandmother was just diagnosed with Liposarcoma just above her right elbow. She had surgeryto remove what we believed to be a benign cyst but ended up being malignant. We just went to the Oncologist for a consult and was told that given her age and the size of the tumor radiation would be her best option. She…
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soft tissue sarcoma-Feb.4,2009
My husband was recently diagnosed with soft tissue sarcoma in his right arm above his elbow. Has anyone dealt with this type of cancer? Surgery for it? Side effects from radiation? I'd appreciate all responses because I'm a nervous wreck over it. Thanks, yellowbutterfly
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sarcoma & lymphedema
my daughter had a liposarcoma removed from thigh , along with the femor muscle in sept. 2003. she has been in extreme pain ever since. burning, numbing, stabbing pain. now has lymphedema. dr.s have tried everything they know. 2 PT also. the last one specializes in lymphedema, but is at her witts end. she cannot get the…
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Soft Tissue Sarcoma Treatment
My mom was diagnosed in Feb. w/Soft tissue sarcoma (specifically PNET). The tumor is primarily involving the gluteus medius muscle. The tumor has displaced the gluteus maximus posteriorly and it may also involve the gluteus minimus and pyriformis muscles to a lesser extent. What does all this mean? Well, she has a softball…
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Desmoid Tumor and another surgery...
I am 37 years old and I am facing my third surgery in 18 months,for reoccuring desmoid tumors. I had the first one removed from my abdominal wall along with partial ribs, and the second time I had 2 areas removed, one on my hip and one close to my kidney - Now it is coming back on my hip and growning into my pelvic area.…
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Cancer tattoo
I'd like to get a tattoo to honor my battle with cancer. Any sugestions as to what it could be?
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Embryonal Rhabdomyosarcoma of neck
Is there anyone who has this aggressive embryonal rhabdomyosarcoma of head and neck? Any opinion about possible radical neck surgery surgery for treatment of this?? Have had chemo, radiation and another chemo. Have referral to MD Anderson but so did IKE. Is there anyone in this world with this also. I have met no one as I…
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Fibro-Sarcoma
Hi, I'm a 49 yr old male diagnosed with a fibro-sarcoma tumor in my sinus (under my left eye). I'm from the Boston area so I had surgery at Mass Eye and Ear last Nov. I then had 6 weeks of radiation which consisted of a morning Photon treatment and a afternoon Proton treatment at Harvard University. The surgery removed my…
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niece's sarcoma shrinking no chemo for 3 months
hi, my 9 yr. old niece has sarcoma. started in her thigh then moved to her lungs and brain and possibly her back. she has had chemo but is not currently on it because of recent diagnosis. she has had sarcoma removed from her thigh and one from her brain. too many in her lungs to surgically remove and now there are 2 more…
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Has anyone been told MRI showed benign tumor but biopsy turned out to be cancer?
I met with the orthopedic oncology surgeon yesterday and we reviewed my MRI..I am breathing a big sigh of relief in that he feels by just viewing the MRI my tumor looks benign (lipoma) however he will be removing next week to biopsy and rule out liposarcoma. Since there is no guarantee of a diagnosis until it goes to…
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To do chemo, or not to do chemo?
I was diagnosed with soft-tissue sarcoma in March, 2009, and had surgery to remove an aggressive, high grade tumor from my thigh, in April. I will begin radiation on Monday for 36 sessions. The recurrence rate is 50/50. If the cancer spreads, it will go to my lungs. I have been given the option of doing chemo for four…
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Liposarcoma of the neck
Anybody out there that has/had liposarcoma of the neck?? I was diagnosed April of 09, i went through 2 surgeries before we knew it was cancer. the 3rd sugery was for resection which included skin and muscle so there was a skin graft as well. Since June 30 (date of surgery #3) i have been recovering from that surgery. There…
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post radiation pain
I've gone through radiation (surgery to remove liposarcoma in right thigh) and ther burns have healed but have major pain now near my incison. Has anyone out there experienced this? If so, what can be done about it
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Gleevec experience wanted for DFSP
Has anyone out there had a regiment of Gleevec to curtail a DFSP mass? I know it is rather rare as surgery (wide local or MMS-Moh's) is generally first used. Gleevec is then used for metastatic or recurrent DFSP, but also at first, for UNRESECTABLE DFSP. In case someone has a very tricky location of the tumor, Gleevec is…
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questions to ask oncologic ortho surgeon?
I have now been referred to an oncologic orthop. surgeon for removal and biopsy of the tumor in my arm. What questions are important to ask the surgeon? I have an HMO and my options for a specialist are limited, I want to make sure I have found the right one... Also, what can be expected from such surgery? Is it outpatient?
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Does low grade mean less chance of metastasizing?
Or does this matter at all in terms of the chance the cancer will spread?
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what to expect w/ biopsy "surgery"??
As mentioned in my previous posts I will be meeting w/ an ocologic orthopedic surgeoen to discuss removal of my tumor for biopsy. Additionally, it's starting to cause pain in my arm. I've been told they will remove the entire tumor and surrounding healthy tissue. Is this typically an outpatient/in patient procedure for…
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16cm X 12cm Mass
In 2006 I underwent a laparoscopy for a 4cm X 7cm complex pelvic mass and was told that there was no mass only complex scar tissue and something that I was probably born with. I began experiencing LLQ pain and went to my physician and was send for an ultrasound on 04/17/09 which revealed a 16cm x 12cm mass in the right…
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question on new blood vessels forming and swelling
Hello everyone. Has anyone noticed new formation of blood vessels near their tumors or swelling? The fancy term is angiogenesis. In my case, I noticed a lot of blood vessels at the surface of my skin. I am usually a nurse's worst nightmare. I have horrible tiny veins that hide and blow and oftentimes, I have needed flight…
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Treatment WITHOUT chemo and radiation
My mother just had her left leg amputated (mid-thigh) this past Monday. Within a week, she had gone to the doctor complaining of arthritis and expecting a knee replacement, only to find she had a horrible sarcoma wrapped around her knee. Amputation was the only option to save her life. She is not a candidate for chemo…
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DFSP
I've just been diagnosed with DFSP through a resection of a tumor located on my right hip. I'm 19 years old and a cancer survivor of a rare brain tumor which is now in remission. My next step is to have the MOHS surgery in about 1-2 months to let the initial surgery heal. Can anyone give me any information about their…
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Spindle cell sarcoma of an extremity.
I just hit the 10 month aniversary of the surgery to remove a softball sized tumor from my leg. It was a limb salvage surgery. I am now having an MRI reviewed to see if it has spread...in the same leg or to my back. Has anyone else been throught this? It is so rare, especially for someone my age-44!
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recently diagnosed synovial sarcoma
I was diagnosed a few weeks ago after having the tumor taken out of my left upper arm. Now they want to go back in and get more tissue to see if the cancer spread. Before they even find that out they want to start me on chemo. Has anyone else done this,is this normal? I just dont want to put my body through that…
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dfsp information dermato fibrosarcoma protuberans
i was diagnosed with dfsp on late November 2008 after three surgeries we achieve negative margins. we went with wide excision surgery i just had a skin graph a few days back and now i am in the hospital recovering. the skin graph hurt the most out of the other 3 surgeries combine. i know that there is not alot of…
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Enlarged node in pelvic area
I had my CT scan yesterday and have an enlarged node in my pelvic area. I have high grade uterine leiomyosarcoma and have been in remission. Has anyone had an enlarged node?? What is the process for this? Thanks Tammy
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myxoid liposarcoma of left thigh
My husband was diagnosed with a myxoid liposarcoma in his left thigh in late July. When it was noticed by us it was the size of a walnut, that was in the beginning of July. By the time he had the biopsy it was the size of a large softball. He underwent 28 radiation treatments. It did not work. The tumor grew during…