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Sarcoma

Spindel Cell Sarcoma...HELP!!!
My brother has been diagnosed with Spindle Cell Sarcoma last week. The future looks bleek. He has 3 kids and is the greatest guy. He just finished 3 days of chemo to slow process. Any info, anything..would be appreciated. E-mail at TAS44@aol.com Thank-you!!
angiosarcoma due to radiation?
My mom has been recently diagnosed with angiosarcoma of the breast grade 2/3, possibly due to the radiation she received on that breast for a ductal carcinoma. She had a lumpectomy followed by radiation in 2004 august. We are worried about her prognosis based on what I read on the web - it pretty much looks like the end in…
Severe Fatigue in Angiosarcoma Survivor
I am a 3 year survivor of angiosarcoma. I am experiencing severe fatigue, dizziness, shortness of breath and other symptoms. Does anyone out there have any information on this? This is not related to meds or treatments. It is not fibromyalgia, lupus, or any other common ailment. I have been to many doctors and they are…
Information about Fibromyxoid sarcoma
Hello, I was just diagnosed with this form of cancer, I am a 60 year old woman and have hardly ever been sick a day in my life. I have my first appt. with a specialist on the 27th of this month. I am a bit nervous and apprehensive. Mine is in my left thigh so far. What can I expect at my first specialist appt? Wow, what a…
retroperitoneal liposarcoma
My husband was diagnosed with a retroperitoneal liposarcoma and had it surgically removed on November 18th. It was low grade, stage 1. He is now beginning his 3rd week of radiation therapy. Is there anyone out there who has had this type of cancer and had radiation therapy? Has anyone had a successful treatment for their…
Malignant Spindle Cell Tumor
I recently went to the doctor to have a bump on my left foot checked out. The bump was on the right side of my big toe joint. I have had bump for approx. 5 years. The doctor did an MRI, which confirmed that it was a tumor. The first diagnosis was a Giant Cell Tumor. I had the tumor removed and my hospital stated that it…
I know this is not the right network for this discussion but I am really upset..
Hi, To everyone who will hear me out. My mom was a tough lady who went through 9 months of pure living hell.. She went downhill fast she had spindle cell sarcoma. a 25 pound tumor removed from her stomach. the doctors said she would survive she only lived 15 more weeks because the cancer consumed her and she died of…
Osteogenic Sarcoma of lower Left fibula - to amputate or reconstruct lower leg
I need to make the decision relative to amputation or reconstruction of bottom section of the left fibula. I am 66 years old and need to talk to people who have gone through either procedure. Amputation recovery is about 3 weeks, then I would need a prosthesis -- next to zero recurrence of cancer re amputation expected.…
stage 4 sonovial sarcoma
My 15 year old grandson has been diagnosed with stage 4 sonovial sarcoma. The tumor is in his calf and there are lesions on the lungs. Has anyone had this and survived?
Daughter 21 Years Spindal Cell
My daughter has high grade Myofibroblastic lesion on the skull base at the Occipital bone. Has gone through 30 days of IMRT, the good news is it is localized and has not spread, next on the agenda is Chemo 4 treatments every 3/4 days with Iformasod ( spelled it wrong) every 21-28 days she will get another treatment. New…
21 year old son with rhabdomyo sarcoma diagnosed July 2009
Hi, In July 2009, my 21 year old son was diagnosed with rhabdomyo sarcoma- embroynal in the neck region. He has been through 2 sessions of VAC a standard treatment for this cancer, but met with little success. He will begin a more agressive form of chemo therapy this week. Looking for other adults who have had this form of…
Soft Tissue Sarcoma
Hello, I am a 21 year old who was diagnosed with a soft tissue sarcoma cancer at the age of 19. I would tell you what it is called but I don't know how to spell it. I had to go through radiation and chemotherapy, plus 2 hip replacements and still can't walk. I have been in remision for 1 year and 2 months. I would really…
Liposarcoma at 85 years old
My husband's grandmother was just diagnosed with Liposarcoma just above her right elbow. She had surgeryto remove what we believed to be a benign cyst but ended up being malignant. We just went to the Oncologist for a consult and was told that given her age and the size of the tumor radiation would be her best option. She…
soft tissue sarcoma-Feb.4,2009
My husband was recently diagnosed with soft tissue sarcoma in his right arm above his elbow. Has anyone dealt with this type of cancer? Surgery for it? Side effects from radiation? I'd appreciate all responses because I'm a nervous wreck over it. Thanks, yellowbutterfly
sarcoma & lymphedema
my daughter had a liposarcoma removed from thigh , along with the femor muscle in sept. 2003. she has been in extreme pain ever since. burning, numbing, stabbing pain. now has lymphedema. dr.s have tried everything they know. 2 PT also. the last one specializes in lymphedema, but is at her witts end. she cannot get the…
Soft Tissue Sarcoma Treatment
My mom was diagnosed in Feb. w/Soft tissue sarcoma (specifically PNET). The tumor is primarily involving the gluteus medius muscle. The tumor has displaced the gluteus maximus posteriorly and it may also involve the gluteus minimus and pyriformis muscles to a lesser extent. What does all this mean? Well, she has a softball…
Desmoid Tumor and another surgery...
I am 37 years old and I am facing my third surgery in 18 months,for reoccuring desmoid tumors. I had the first one removed from my abdominal wall along with partial ribs, and the second time I had 2 areas removed, one on my hip and one close to my kidney - Now it is coming back on my hip and growning into my pelvic area.…
Cancer tattoo
I'd like to get a tattoo to honor my battle with cancer. Any sugestions as to what it could be?
Embryonal Rhabdomyosarcoma of neck
Is there anyone who has this aggressive embryonal rhabdomyosarcoma of head and neck? Any opinion about possible radical neck surgery surgery for treatment of this?? Have had chemo, radiation and another chemo. Have referral to MD Anderson but so did IKE. Is there anyone in this world with this also. I have met no one as I…
Fibro-Sarcoma
Hi, I'm a 49 yr old male diagnosed with a fibro-sarcoma tumor in my sinus (under my left eye). I'm from the Boston area so I had surgery at Mass Eye and Ear last Nov. I then had 6 weeks of radiation which consisted of a morning Photon treatment and a afternoon Proton treatment at Harvard University. The surgery removed my…
niece's sarcoma shrinking no chemo for 3 months
hi, my 9 yr. old niece has sarcoma. started in her thigh then moved to her lungs and brain and possibly her back. she has had chemo but is not currently on it because of recent diagnosis. she has had sarcoma removed from her thigh and one from her brain. too many in her lungs to surgically remove and now there are 2 more…
Has anyone been told MRI showed benign tumor but biopsy turned out to be cancer?
I met with the orthopedic oncology surgeon yesterday and we reviewed my MRI..I am breathing a big sigh of relief in that he feels by just viewing the MRI my tumor looks benign (lipoma) however he will be removing next week to biopsy and rule out liposarcoma. Since there is no guarantee of a diagnosis until it goes to…
To do chemo, or not to do chemo?
I was diagnosed with soft-tissue sarcoma in March, 2009, and had surgery to remove an aggressive, high grade tumor from my thigh, in April. I will begin radiation on Monday for 36 sessions. The recurrence rate is 50/50. If the cancer spreads, it will go to my lungs. I have been given the option of doing chemo for four…
Liposarcoma of the neck
Anybody out there that has/had liposarcoma of the neck?? I was diagnosed April of 09, i went through 2 surgeries before we knew it was cancer. the 3rd sugery was for resection which included skin and muscle so there was a skin graft as well. Since June 30 (date of surgery #3) i have been recovering from that surgery. There…
post radiation pain
I've gone through radiation (surgery to remove liposarcoma in right thigh) and ther burns have healed but have major pain now near my incison. Has anyone out there experienced this? If so, what can be done about it
Gleevec experience wanted for DFSP
Has anyone out there had a regiment of Gleevec to curtail a DFSP mass? I know it is rather rare as surgery (wide local or MMS-Moh's) is generally first used. Gleevec is then used for metastatic or recurrent DFSP, but also at first, for UNRESECTABLE DFSP. In case someone has a very tricky location of the tumor, Gleevec is…
questions to ask oncologic ortho surgeon?
I have now been referred to an oncologic orthop. surgeon for removal and biopsy of the tumor in my arm. What questions are important to ask the surgeon? I have an HMO and my options for a specialist are limited, I want to make sure I have found the right one... Also, what can be expected from such surgery? Is it outpatient?
Does low grade mean less chance of metastasizing?
Or does this matter at all in terms of the chance the cancer will spread?
what to expect w/ biopsy "surgery"??
As mentioned in my previous posts I will be meeting w/ an ocologic orthopedic surgeoen to discuss removal of my tumor for biopsy. Additionally, it's starting to cause pain in my arm. I've been told they will remove the entire tumor and surrounding healthy tissue. Is this typically an outpatient/in patient procedure for…
16cm X 12cm Mass
In 2006 I underwent a laparoscopy for a 4cm X 7cm complex pelvic mass and was told that there was no mass only complex scar tissue and something that I was probably born with. I began experiencing LLQ pain and went to my physician and was send for an ultrasound on 04/17/09 which revealed a 16cm x 12cm mass in the right…

Sarcoma

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