New Here

TracieK
TracieK Member Posts: 45
edited March 2014 in Ovarian Cancer #1
Hello. My name is Tracie and I am a new member here. I am 43 years old, and was diagnosed on January 7th, 2008 with stage 3b ovarian. I have since gone through surgery (which just left behind microscopic bits and a few seedlings on my diaphragm) and intraperitoneal chemo. I had my 3 month after chemo check-up on sepember 4th. When I had my peritoneal port removed, my CA125 was 40. At my follow up it was 18 and my gyne-onc found nothing on exam. I now have another 3 months to enjoy the days. I have read many posts on this site and have included you all in my daily prayers. It is so nice to have found a place where we all can support each other.

Comments

  • BonnieR
    BonnieR Member Posts: 1,526 Member
    #2
    Congats on the great check up
    Hi Tracie, welcome to the group that we wish didn't have to exist but are soooo grateful it is here. Sounds like you are doing well ~ considering the journey you are on ~ so congratulations and God Bless. Bonnie
  • Lauracec
    Lauracec Member Posts: 101
    #3
    HI Tracie, my name is Laura.
    HI Tracie, my name is Laura. I am fairly new here too. I am also 43 and had my big surgery at the end of may so still doing the chemo. I am 3c. they had to leave a peice about 5 centimeters that is tangled in my liver arteries. so hoping it will shrink with chemo. had a ct scan after 3 chemos and it hadn.t shrunk but nothing grew and it got rid of the fluid so I guess that chemo is doing something. my ca 125 was only 47 b-4 surgery and now it is down to 9. I have seen alot of encourageing things on this site and it is helping me alot. enjoy your next 3 months and god bless you with lots more after that. Laura
  • floridajo
    floridajo Member Posts: 480
    #4
    Welcome
    Hi Tracie and welcome to the club no one wants to belong to!! You'll find all sorts of support,love and advice on here. I was diagnosed almost 4 years ago and will be starting chemo for my 3rd recurrence this week. This disease can be so tough at times but it can also be dealt with as a chronic disease...so don't ever give up hope or believe some of the hype you read. ((((hugz)))~~~Joanne
  • Susan523
    Susan523 Member Posts: 231 Member
    #5
    Sorry you're here....
    I'm sorry you were also diagnosed with OVCA. But as the others have said, you will find lots of love, prayers, and support here. I just don't think to check in here as often as I should!

    Wishing you all the best~

    ~Susan xoxo
  • terrypaci
    terrypaci Member Posts: 15
    #6
    1st Timer Myself
    Hi, I am also 43 this is my 1st time on this site and the 1st time i have had cancer, I just got done with my 6th treatment of the standard chemo and will continue with the trial drug i am starting the 7th trial treatment next week and I will only have to go to the hospital 1x every 3 weeks, I had my follow up scan today as well so I will find out if I have the same reults as the last scan which revealed no tumors at all. My Dr. was able to remove everything from me it had spread to my diaphram, now the worst thing I have to deal with is the Hot Flashes and night sweats. If you ever want to chat or have any questions please feel free to email me or send me an Instant message on yahoo my email is terry.paci@yahoo.com same as my IM. look forward to hearing from you soon and good luck we all need to stick together and support each other every step of the way.
  • Lauracec
    Lauracec Member Posts: 101
    #7
    terrypaci said:

    1st Timer Myself
    Hi, I am also 43 this is my 1st time on this site and the 1st time i have had cancer, I just got done with my 6th treatment of the standard chemo and will continue with the trial drug i am starting the 7th trial treatment next week and I will only have to go to the hospital 1x every 3 weeks, I had my follow up scan today as well so I will find out if I have the same reults as the last scan which revealed no tumors at all. My Dr. was able to remove everything from me it had spread to my diaphram, now the worst thing I have to deal with is the Hot Flashes and night sweats. If you ever want to chat or have any questions please feel free to email me or send me an Instant message on yahoo my email is terry.paci@yahoo.com same as my IM. look forward to hearing from you soon and good luck we all need to stick together and support each other every step of the way.

    what trial are you on?
    Hi terry, it sounds like you got diagnosed close to the same time as me. I,m going in for my 6th carbo/taxol next tuesday and then if ct scan looks good I will continue on the trial. I am on the avastin trial. are you on that one or another? also what stage are you? as far as the hot flashes go what seems to work for me is I drink 9-12 glasses of water a day and on days when I don't get enough water they seem to be more intense. plus I also only can sleep with a sheet on now and I use to love haveing big comforters on me but I think those days are gone for a while. MY e-mail if anyone wants is lcc2cec@yahoo.com. you are right I think it realy helps to have the support of others going through the same thing. Laura
  • ggggsister
    ggggsister Member Posts: 38
    #8
    new
    Hi Tracie, This IS a great group. I don't know why docs don't give out this website along with their diagnoses. My sister, who is the one who has cancer, will have her port removed at the end of October. Her CA-125 spiked to 71 and doc thinks removal of port will bring numbers back down. Sounds as if that was the case with you. Congratulations. Since I'm new to all of this, I was wondering if you could tell me why you have "another 3 months to enjoy." What will happen at the end of the 3 months? I too pray for all of these women, and now, you, too.

    Gail
  • TracieK
    TracieK Member Posts: 45
    #9
    ggggsister said:

    new
    Hi Tracie, This IS a great group. I don't know why docs don't give out this website along with their diagnoses. My sister, who is the one who has cancer, will have her port removed at the end of October. Her CA-125 spiked to 71 and doc thinks removal of port will bring numbers back down. Sounds as if that was the case with you. Congratulations. Since I'm new to all of this, I was wondering if you could tell me why you have "another 3 months to enjoy." What will happen at the end of the 3 months? I too pray for all of these women, and now, you, too.

    Gail

    ggggsister, I have 3 month check-ups WOOHOO!
    Thanks for the replies.I have to be checked every 3 months for now. So I look forward to getting those Dr. appointments behind me then I get back to enjoying my days. I have to say those check-ups can be pretty stressful, and it is like a vacation when you leave the office and know things are going back to the same daily routine again. My numbers came down when my port came out. Just remember, it is the whole picture---The numbers, exams and scans.

    Praying for all!
    Tracie
  • Unknown
    Unknown
    #10
    terrypaci said:

    1st Timer Myself
    Hi, I am also 43 this is my 1st time on this site and the 1st time i have had cancer, I just got done with my 6th treatment of the standard chemo and will continue with the trial drug i am starting the 7th trial treatment next week and I will only have to go to the hospital 1x every 3 weeks, I had my follow up scan today as well so I will find out if I have the same reults as the last scan which revealed no tumors at all. My Dr. was able to remove everything from me it had spread to my diaphram, now the worst thing I have to deal with is the Hot Flashes and night sweats. If you ever want to chat or have any questions please feel free to email me or send me an Instant message on yahoo my email is terry.paci@yahoo.com same as my IM. look forward to hearing from you soon and good luck we all need to stick together and support each other every step of the way.

    This comment has been removed by the Moderator
  • karlln46
    karlln46 Member Posts: 4
    #11
    Cancer on the diaphram
    My mom has been battling this relentless disease for 4 years now. When she had her initial surgeries the Dr. said she left a small amount of the cancer on the diaphram but that the chemo would take care of it. After her initial treatments she was in remission. Then at her second checkup it had returned. She has had several different chemos and numerous cat scans. She had a cat scan right before her bowel obstruction that showed no tumors 5 days later she was in the hospital. I have read a lot of your postings and have noticed that your cancers had spread to the diaphram and the Dr. didn't remove it. Were any of you given the option to have it removed? I read that removing the cancer from the diaphram, having installations of chemo into the peritineal cavity as well as intra venus chemo has a better success rate. Anyone else hear the same or otherwise?
  • terrypaci
    terrypaci Member Posts: 15
    #12
    karlln46 said:

    Cancer on the diaphram
    My mom has been battling this relentless disease for 4 years now. When she had her initial surgeries the Dr. said she left a small amount of the cancer on the diaphram but that the chemo would take care of it. After her initial treatments she was in remission. Then at her second checkup it had returned. She has had several different chemos and numerous cat scans. She had a cat scan right before her bowel obstruction that showed no tumors 5 days later she was in the hospital. I have read a lot of your postings and have noticed that your cancers had spread to the diaphram and the Dr. didn't remove it. Were any of you given the option to have it removed? I read that removing the cancer from the diaphram, having installations of chemo into the peritineal cavity as well as intra venus chemo has a better success rate. Anyone else hear the same or otherwise?

    cancer on diaphram
    first off how old is your mom, that is the most important question only because I am 43 and my Dr told me and my family the older you are the harder it is to remove all the tumors, he had to cut me from just above the pubic area all the way to the diaphram i also had to have a bowel resection, along with a part of my large intestine removed, my omentum had to be completely removed as well he removed 10-15 lbs of tumors out of my body,and told me and my family that the only reason they dont remove the tumors in older woman is because it flakes off to easy and settles in other areas, when your younger it is a solid mass that is easily removed. although i still have the cancer flakes in my blood that is why they suggest chemo to kill the flakes so they dont make a home somewhere else. I've just completed my 6th round of chemo which is all the Dr told me i had to have i am currently taking the clinical trial drug avastin which i was also taking with the regular treatments now i am on the avastin alone because it kills only the cancer cells.

    I hope that i have helped with some of your questions i can only tell you what my Dr told me so i do hope that it helped. good luck with your mother and i will put you in my prayers.
  • umaof6
    umaof6 Member Posts: 25
    #13
    Yippee!!!
    Thank God for his goodness. I am new here also. When I was going through treatment, it required so much energy to think I didn't get on my computer very often. I was diagnosed Sept. 14,2007. I went through six treatments of carbo/taxol. I had my last treatment Jan.21, of this year. At my check up Sept. 8 of this year, things were all good. My ca125 is down to eight!! My next onc ck up is january of 2009. That will be a four month intravel instead of three. I feel fantastic and I am now able to put my energy in things other than the cancer. I wish I had found this site sooner. God Bless all of you out there who are dealing with this disease in one way or another. In Christ, Carol
  • ggggsister
    ggggsister Member Posts: 38
    #14
    umaof6 said:

    Yippee!!!
    Thank God for his goodness. I am new here also. When I was going through treatment, it required so much energy to think I didn't get on my computer very often. I was diagnosed Sept. 14,2007. I went through six treatments of carbo/taxol. I had my last treatment Jan.21, of this year. At my check up Sept. 8 of this year, things were all good. My ca125 is down to eight!! My next onc ck up is january of 2009. That will be a four month intravel instead of three. I feel fantastic and I am now able to put my energy in things other than the cancer. I wish I had found this site sooner. God Bless all of you out there who are dealing with this disease in one way or another. In Christ, Carol

    Congratulations!
    Yippee, indeed! I'll be thinking good thoughts for you, too, as well as all the other women!

    Hugs,
    Gail

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