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What options with so many choices
Dear Kathleen, I found your comments to interesting to be buried amongst the posts. I think this is a topic so many can relate to. I hope you dont' mind I have copied a bit of it here so those that don't go back to long long posts will have a chance to read it too. This is what our Kathleen had to share: "Having so many…
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remission
Hello Ladies, I have a question about remission. What determines the start of remission? Is it the first clear scan, the end of a cycle of chemo, the good CA125? I am considered in remission now, but 'am doing a maintenance chemo, so not sure if that "counts."(???) When remission is mentioned, there seems to be a…
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sad and anxious abour cancer
I am full of sadness, anxiety and lots of crying. I have finished my chemo and am back at work part time, but i feel so crappy. i am afraid of the future and so sad that I have cancer. Family is far away and I am looking for support wherever i can
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Port Numbing Cream & Blood Tests & Gemzar
Hello friends, Although I have had a port for almost 3 years now, I only recently was given the "Numbing Cream" (Lidocaine/Prilocaine) to use before treatments or flushes to numb the area before they insert the thumb-tack sized needle! Well, the reason I'm writing, is to tell you all that this cream works GREAT FOR BLOOD…
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CA125 up again
Hi Ladies, Yesterday morning my oncologist called, my CA125 is up from 17.3 to 28. I know it's still withing normal range, but he's concerned because it's the 4th month it has gone up, and it's always been a good marker for me. I'll be seeing him Monday to discuss a new plan. I haven't had chemo for a month, because my May…
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The Wait
In that 'wait' mode after the pelvic ultrasound which confirmed a node in my right ovary. It's very small so there is no diagnosis of what it is, have to wait for the gyno to come back from her holidays for the final verdict on our next move. The appt. is July 10th so not too far away but the waits always seem so much…
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SCARIED OF SURGURY
PLEASE LET ME KNOW WHAT TO EXPERT FROM SURGERY IS IT VERY PAINFULL RECOVERY TIME SCARIED TO DEATH
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What happens now?
My step mother had surgery today for an intestinal blockage. In February 2008, she was diagnosed with ovarian cancer, had surgery and finished Chemo in August 2008. About a month ago, she went into the hospital with severe stomach pain and vomiting. The doctor that did her original surgery, did all kinds of tests and said…
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Bowl Obstruction and Ostomy Bag for Mom
My Mom got Ovarian Cancer diag in Feb 08 Stage 3C. Stopped Chemo Sept 08. Got Rhumatoid Arthritis from Chemo in Sept 08 very bad. Feb got Pnumonia from it. From March 09 to June 09 we were in out and of hopsital 4 times just saying that her pain, vomitting and abdominal swelling was from slow bowels due to low dose pain…
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Pet/Ct/ Scan Update + Radiation
Hi, well I got the results of my pet/ct scan. There are no signs of cancer, just the same tumor on my vaginal cuff. It grew 1/2 inch since March. My onc. is suggesting radiation for this because that's all that showed up. I know Linda has had radiation. Has anyone else? I would be getting it every day. I don’t know for how…
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CA 125 Levels for Stage IV Ovarian Cancer
I'm new to this board as my wife was recently diagnosed with stage IV ovarian cancer. She is 32 years old and had de-bulking surgery (complete hysterectomy and re-sectioned colon) 6 weeks ago. She had undergone her first treatment of Taxol/Carbo and is doing a stage III trial of Avastin (double blind study but has a 75%…
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Missed Periods?
Has anyone experienced missed periods after chemotherapy? I completed the BEP (bleomycin, etoposide, cysplatinum)in November and have not had my period since! I know that I am not pregnant, I'm not having hotflashes or any other signs of premenopause. I was just wondering if anyone else has experienced this. I am still…
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Short remission update
Hi, everyone. I thought a new thread might be better, easier to read. I met with my doc yesterday. The good news, very good, is that the CT scan showed no definable tumors, so no surgery will be needed. There was some thickening of the bladder wall, noted as probable cancer and consistent with my symptoms. My doc thinks…
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appt with associate
Hi Ladies, I saw my oncologist's associate this morning, and I'm glad I did because I got a new perspective. He said that any infection or inflammation in the body could affect the CA125 level. Therefore the biopsies and pink discharge after the vaginal biopsies, may possibly be the reason for the 6 point rise in the past…
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May need to have my right ovary removed for biopsy? Anyone know how that surgery goes and length of
Just wondering about what I might expect if I have to do the removal as the title of this post shows. Any experience with this type of surgery would be appreciated for my info. Not sure if the omentum will be biopsied too or not. Thanks. Blueroses.
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Bonnie R
Bonnie is in the hospital and asks for prayer to bring down this fever like we did before. Come on you Teal Prayer Warriors, join me in a weekend fest of prayer for Bonnie.. Saundra
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LUNG NODULE
Hello, Ladies: Just want to get some feedback from all of you, although I know nothing is 100%. Just got my CT scan report. It mentions a 3mm nodule in the lower lobe of the left lung. And it says 'to repeat CT scan in 6 months'. It also says it's 'changed' since my 10/28/07 CT scan. I just pulled my report from then and…
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new member
I just joined this network today, hoping I could connect with others who are going through similar treatment and concerns. I am a 7 year breast cancer survivor, and was diagnosed with stage 3c ovarian cancer this April. I just had the first round of 2 day chemo in Middletown NY. I was wondering if anyone in this network…
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pain question
Ladies, I have a question about pain. Pain and Nausea are what sent me to the dr.in the first place and after I was daignosed with vag. wall cancer, the pain medicine the dr. gave me hydrocodone-apap 10-325 2 every 4 hours as needed worked for the most part. However, since I started radiation 2 days ago it really isn't…
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Counselor
I was diagnosed fall last year. Had surgery and finished my last chemo at the end of April. I have been feeling pretty well physically, but my emotions have been haywire lately. I'm not one to take anti-depressants. I have been taking Ativan to help me sleep. Even it doesn't seem to be helping lately. I've been considering…
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ginger for nausea
Hi everyone, I just heard a news report that stated that ginger caps (with real ginger) taken 3 days before chemo can bring down nausea. I have extreme nausea after cisplatin/gemzar for 4 days, throwing up every two hours. The steriods and anti-nausea don't seem to work and I have tried alternates for both of those. (One…
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inflamed granulation tissue
Good morning ladies, In April I saw my GYN and he thought he saw abnormal tissue in my vagina, and was concerned it might be a spread of my OVCA. He took biopsies and thankfully the report came back as inflamed granulation tissue. Since then I've had a pinkish discharge, I'm seeing him next week and will discuss how he can…
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New Diagnosis....fear is Overwhelming
I am looking for some help with how to overcome my gigantic fear of all of this. I was diagnosed May 2008 with endometerial cancer. My oncologist told me that a hysterectomy would be all that was necessary. So, though the diagnosis scared me, it was a relief that that would be the end of it. I have been having alot of…
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Good to be home
You each continue to WOW me :-) Thank you Saundra for posting an update, how thoughtful. It just shows how each one here is ready to go into battle for each other ~ and we all know how much prayer battle works. ♥ I am so grateful to be home. All of the tests aren't in but they really believe it is probably tumor fevers,…
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Spread to lung?
Hi, I can't stop crying. The doctor finally called, and they are going to do a procedure to determine if the fluid on my lung could indicate the cancer has spread there. I can't even have the procedure until next Wednesday. We're supposed to go to my daughter's for supper tonight, but I'm not sure I can face my…
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Info That May Help You / Trial Drug Pill
Hi Ladies, I will let you know whats happening and how this trial works that may benefit someone else out there. I have been draining cancer fluid off causing low sodium and low blood pressure so I am taking sodium cholride tabs. When I get it up hopefully this week I will go to IU for the trial. My Liver and kidneys are…
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Radio show on new OV CA study
Hi everyone! I haven't posted here in a long time, but when I came across this I thought you might be interested. It's a radio show on a new Ovarian Cancer study. You can ask questions, or just listen (in real time or after the fact). The show is tomorrow afternoon. You can get the details at:…
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On to something else
God's morning to all! I haven't posted for a bit and thought I should maybe update you all. Although I have posted replies to others ☺ I know a few of you read my caringbridge page so you already know my doc is working on getting a different drug approved. With medicare as primary it is more difficult to get treatments…
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Short remission
Hi to all. Just wanted to let you know - after less than 6 months in remission, I'm back to CT scans and figuring out what to do next. Just before my last regular Dr.'s appointment, I began having symptoms, and well, you know that we're very good at knowing when "it" is back. My CA125 went from 40 to 70. I just had the CT…
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OHIOGIRL
Hello, I am posting in behalf of OHIOGIRL, an ovarian survivor who has been active here at csn for several years. Her son wanted me to let all her friends here know that Marie is in the hospital in her last days or possibly hours. They are keeping her comfortable. She has let it be known for some time that she is ready to…