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Molecular Profiling
Hi ladies, just got results of a molecular profiling done on my tumors. Please check out the Clearity Foundation for details if you are interested. What your insurance doesn't cover, they will make up for you. It might be a worth while venture. I'm still trying to understand all the results but it should help with knowing…
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Karen and Linn
Hi Ladies, I thought I'd start a new thread, it will be easier than zipping all the way down my no remission thread. Linn, I'm so sorry about your news regarding the lymph node, as you know I'm also staged 4 with lymph node involvement. Has your oncologist mentioned topotecan? I was on it for 10 months. Is he considering…
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No remission after all
Hi ladies, I saw my oncologist this morning, and although he was pleased with the CT scan report, he said I'm not in remission, and the cancer is still active. He based this on my CA125 going up for the past three months. Obviously it was not what I wanted, or expected to hear and I was very disappointed. He gave 3…
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New to this board and terrified
Hello! My family doctor had me take both a pelvic ultrasound and that led to a CT and Xray after that. She referred me to my gynecologist/oncologist who was my surgeon as well. I was told that I had a huge cyst that was pressing against all of my organs and my ribs. He told me that it was an 80% chance that is was not…
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confused about makeup
Hi. Let me start with my story, trying to be brief. I'm 47 and was diagnosed in Oct. with OvCa stage III C. I went to urgent care with somewhat bad pains in left side, thinking possibly appendicitis. I've never been in the hospital and never even had a blood test. Had been thinking that should start going to have me blood…
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ionized calcium
Good Afternoon Girls! My onc/gyn just called me with the results of several blood work tests. All was fairly normal (have not had CA125 yet, next month) except she said my ionized calcium is elevated and wanted to know if my bones ache. Well, yes! They have ached ever since chemo. She had ordered me a bone scan last…
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Gemzar Not Working
Well, my ca 125 has jumped from 50 in March to 241 last week. I had four treatments of Gemzar and my counts kept going up. That was my 3rd line treatment so far. My Onc said that we will stop the Gemzar and do a PET scan. I never had one before only the ct scans. He said if there is a tumor that he is considering doing…
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Finding the answer
Hello to all - The cause to the rise in my CA-125 level may be close to being found (I hope). I have an appointment with a urologist on Thursday. There is a spot on my bladder that is suspect, and there is possible invasion to my bladder. I will post when I know more. Love you all, Sue
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Reporting in
I am feeling much better and have this to report: The loose bowels and huge amount of gas I had was due to lactose intolerance. I was craving milk products and it just occurred to me one day that maybe I had developed that during this many antibiotics....so having some lactase enzyme on hand, I tried it and had IMMEDIATE…
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BRCA 1 and Ovarian cancer
Hi- I posted on breast cancer discussion board too...not sure where this belongs! I am a 50 year old surviving 1 year from stage 4 ovarian cancer. Recently, I was tested for the BRCA 1 & 2 gene. I am positive for BRCA 1. Both my oncologist and internist want me to begin tamoxifen. Unfortuantely, I am one of those patients…
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How to use this board
Does anybody know how to arrange all the posting topics in chronolical order starting from the most recent to the oldest? Thanks.
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venting I think?
before my diagnosis and surgery I boarded horses at my house for the last 9 years, and I have barn kittys that I adore, and a few pet geese and two dogs. oh yeah and the biggest gernsey steer you have ever seen in your life he is 9 and I have had him since he was 3 days old he thinks he is a horse. anyway needless to say…
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Fluid on lungs
Hello, I believe I read a post sometime ago about fluid on the lungs. Is this something that can happen with ovarian cancer? I just had a chest x-ray to try and find why I have a recurring pain on my right side and a hazy area showed up. I have to have a CT scan of the chest now, and one of the possibilities the…
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Are there any long survivors of stage III out there?
I need some hope. My Mom is stage IIIB dx in Oct 2005, in remission at the moment. I pray every day that the cancer doesn`t come back., that God let her be one of lucky ones to live a long life so that she can enjoy her coming grandson. Anyone that can share something or giving me some hope. I there anything that you…
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Doubts on Ovarian cancer relapse test
Hi Ladies, This is an interesting article...regarding CA125 testing every 3 months or sooner. http://www.nytimes.com/2009/06/01/health/research/01cancer.html?_r=1&scp=2&sq=ovarian cancer&st=cse ((HUGS)) Joan
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Profile page
After trying for a month, me and my chemo diminished brain finally figured out how to find, and fill out my profile page. That's my accomplishment for today! Jane
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Please see posting On no remission after all
Sorry ladies should of put a new post for what I said please read it though and I will stay in touch Love hugs and many Prayers to all Sandy
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Finally some good news to share
Good morning, Yes, I finally have some good news to share with you, I picked up my CT scan report and after 10 months of Topotecan chemo, my pelvis, abdomen and lymph nodes are stable with no sign of cancer. I guess that means that I'm in a remission, but I'll meet with my oncologist Monday and go over the report with him.…
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My Mommy is gone...
I'm so so shocked, sad, tired and frustrated. My Mommy passed away this Monday morning after almost 3 months of the bowel obstruction which made her spend 18 days on the hospital and the rest at home. She ended with a multiple organ failure. Thank the Lord I was with her almost all Sunday and until her last breath at 11:15…
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Thank you for your welcome
Hi ladies, I wasn't on the board yesterday, too much going on here and I'll write about that later. I want to thank all of you for your warm welcome, it means so much to me to have found this board and, as ladyjogger Terry says, the "awesome" group of ladies who post here. There's something special about you, and it warms…
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New Member
Hi Ladies, I'm a new member to this board, I need your support and help as I go throught this horrible journey, with all of you. I was diagnosed in 2007 and have pretty much been on chemo since then, with only a 3-4 month remission, Optimal debulking surgery, I was staged 4B, grade 3 epithelial OVCA which had metastasized…
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Hi ladies
My daughter-in-law found this site and told me about it. I'm so glad to have contact with other women with the same cancer. I wasn't diagnosed until I was a stage 4. I wish I would have been more persistant with my doctor. I look forward to communicating with all of you and getting and giving support.
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Waiting game
Hi Everyone, I just saw my gyn/onc since I'm back home. He and the doctor in Florida agree the cancer is back, but nothing showed up definitively on the CT scan in April. So, I have the choice to start chemo now based on the CA125 reading or wait. I'm going to wait and see him again in the middle of July after another CT…
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My Wish Came True
Hi Ladies. Had some major computer trouble the last few weeks. A virus blew out my keyboard of all things. So all I could do was read the boards and not reply. But I just got a new keyboard yesterday and now I'm back online. I had a very wonderful thing happen to me last weekend. As I had posted before my big wish for this…
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Anomalous behavior prior to diagnosis
My aunt recently passed away due to complications from ovarian cancer, but a short while before she was diagnosed with it, she had suddenly started drawing the coolest pictures. This from a woman who, in fifty years, had hardly ever picked up a pencil to write, let alone draw. I was wondering if others had noticed…
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Are any of you ladies from wny or nwpa?
Just wondered.
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CA125 up again
Hi ladies, Today I saw my oncologist for my pre chemo meeting, he told me that my CA125 has gone up for the 3rd straight month. He feels that the Topo has stopped working the way it had, and it's time to switch to a new chemo combination of Gemzar and Avastin. I'll be having a CT scan on May 26th, but he said that even if…
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Living with Cancer?
Hello, My mom was recently diagnosed with ovarian cancer 2 months back. She has since undergone 3 chemos and the doctors are suggesting an operation to remove her ovaries, uterus and fallopian tubes next week. Her CA 125 was 1150 before her chemotherapy began and it is now down to 13.5. The oncologist said that she has…
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First Round of Chemo behind me
I had my first round of chemo this week. What a week it's been. I was supposed to have taxol on Monday through my ip port and it went okay. Had a reaction to the benadryl-restless feeling-but they counteracted with meds. Then I had sharp back pains and arm pains with the chemo, but they handled that well also. Tuesday-I…
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Farah Fawcett
Hi Ladies, Tonight on NBC TV they're showing a documentary of Farah Fawcett's journey with her cancer. I hope I got this right from the reports, but she went to Germany to have a treatment where the chemo was delivered through an artery, to the cancerous organ and directly received the chemo drug. The person reporting said…