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Great news!
Hi Everyone, I'm home from my surgery, and everything went great! My cyst turned out to be just that. Apparantly my original surgeon (not a gyno onc.)missed a piece of my ovary when he removed the cancer. My body decided that it didn't like that piece and sealed it off in a cyst. My new surgeon (who is a gyno onc - thanks…
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Genetic Counselor
Update................. Finally I met with a genetic counselor. My sister who is also BRACA 2 went with me. It was a very informative appointment. Since we both have had hysterectomies (mine b/c of the cancer and Karen by choice) our percentage has dropped from 87% to 40% of getting breast cancer because of the mutation.…
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Hello
Hello all. So nice to find a support group online. I'm making my way around so I hope I post in the correct places! I have OVCA and have just finished #5 carbo/tax but will begin something new on Monday as this last is not working to keep the fluid out of my lungs. We shall see. I am hopeful. My gratitude? I have…
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A Difficult Question
Hello Ladies, I just read a disturbing post on another forum. The poster says,"All of us at stage 3 or 4 are going to die eventually from this disease." I am not a big statistics fan, but I thought there were a few lucky ones who were acually cured, not just surviving from one chemo to the next. I don't mean to be…
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Any one use alimpta?
I will be starting on Monday to use alimpta. Comments, discussion? I'd love to hear your thoughts.
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Out of hospital
I came home yesterday, Not well, but no worse either. Medicare days, I expect. Will see my gyn/onc on Wed. Then the surgeon again on Thurs. On oral antibiotics until then. I am taking it easy. Won't post much I reckon...Saundra
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for B.Strange
Email me at reinierconst@aol.com. I have something to tell you..I did not know how else to get hold of you. Thanks. Smiles RASUNSHINE
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good news about my mom!
hi ladies-just wanted to share some good news about my mom who was diagnosed with stage 4 metastasized to her liver on mar. 24 (my birthday )-:) she has finished her first round of carbo/taxol and her ca125 went from 4000 to 302! i almost fell off my chair! she is feeling pretty good except for constipation issues. not…
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Profile page
Hi, I don't want to seem dopey already, but how do I fill out my profile page? Jane
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Nexavar arrived, gemzar administered
Sorry I am so slow at sharing ~ the nexavar arrived at my door Monday morning, so far so good. It upsets your stomach a little bit after you have taken it but goes away. I have been putting the Eucerin creme on my feet since friday, have instant ocean and epsom salts for soaks. The gemzar went fine, and got a neuprogen…
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Dr Appt today
It's me again :-) I already know my ca125 is up and now today go to the clinic and see what doc thinks. I had a ct-scan so we will have them results too. I think he will want to switch chemos but I need to take at least a month off so I can fix a tooth that is giving me pain. On the nexavar no surgery or dental work so I…
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Happy Mother's Day
To all of my fellow Warriors who also happen to be mothers. My sincere hope is that this Mother's Day brings you much love and happiness. As mothers,we realize that every day is Mother's Day but just on this Sunday I hope your children remind you just how special you are. You are strong, loving and very deserving of all…
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Platelet count down
I went for my Last chemo today. My blood work was fine, except my PTL (platelet) is 106 and should be between 150-400. Next to my result of 106 there are initials in bold prink URI. I thought that mean upper respiratory infection. So I was wondering if it means I am more susceptible to catching something. Should I self…
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One More Time.
One more time! I have one more chemo on Wednesday the 6th. I was hoping the last one was it, but it was number 5. Dr wants me to have 6. I pray this is the last one I will ever had, if it is God's will. Please pray I don't have any side effects- I've not had any to speak of until the last one. Then everything liquid tastes…
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Hello I'm new to the CSN. I'm so tired all the time.
I had Ovarian Cancer July 2004. Had complete hysterectomy followed by chemo. I went back to work, but last November I couldn't handle it anymore and quit work. I was sick all the time and the fatigue was/is unbearable. My blood work always comes back normal. I thought I might have Chronic Fatigue Syndrome until I recently…
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Has anyone ever had swollen feet?
I'm curious if anyone here has had swollen feet after chemo? I am getting scared and wonder if I should go to the ER .. my right foot looks like it is going to explode and I've gain over 20 lbs. in 3 months. My last chemo was 2 months ago. Has anyone had this problem? :(
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Were you able to return to work while receiving chemotherapy?
As soon as I became somewhat coherent after my surgery in March I asked my oncologist about return to work. Although my job is mentally taxing, there is no real physical energy drain. I was told that, depending on how I respond to the first carboplatin/taxol treatment, I could probably return at least part-time. Reading…
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Saundra has diviculitis
God's morning to all! I got an email for Joe ~ Sandy's hubby and she has been in the hospital with diviculitis. I think she may be out today or at least very soon. Just wanted to let you all know as she is seldom missing from the board and knew you'd want to say an extra prayer for her. Saundra we miss you and pray you are…
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Good News
Good Morning Ladies, I know this is not about our topic, but wanted to share my good news. We had our first granddaughter born yesterday. Rylee Rae is 6 pounds and 8 ounces and 19 inches long. This is our son and his wife's first. They are the ones who lost twins last May. I praise the Lord to be here for another…
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Anti-depressants
Hi all. What anti-depressants have you found to be particularly effective that don't turn you into a total zombie? Thanks to all, Kevin I may need one for myself too!!!!
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Senna S Question
Just wondering why the senna-s or and other similar projects are empty on the shelves. Monika I read your note about it but thought, no we have it. Then yesterday we stopped at walmart and the shelves are empty. I googled the question but found nothing. Just curious and hoping it is only temporary.
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Limbo
Hello to everyone, I haven't posted my situation in a while because I'm still in limbo-land; my oncologist is monitoring my CA-125 (which is still hovering in the 50's), and I was told there's a 4 cm spot on soft tissue behind by bladder that appears to be thickening, and they'll be watching that for changes. In the…
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I'm afraid I need some professional help right now
Good morning fellow warriors! I am six weeks post chemo and doing pretty well physically. I am a little worried about my emotional state, however. I almost feel quilty saying this because I am stage 1 ovarian and my prognosis looks very good. My CT Scan was clear and my CA125 is good. If all this is true then why do I find…
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Colleen Hugs
Hi Colleen, I know tomorrow is your surgery date ~ so sending extra prayers your way. I still plan on stopping Thursday to say hello while I am in clinic. If you can please post an update as I know many of the women here will be waiting to hear. Hugs ♥ Prayers Bonnie
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CT scan results
Hello ladies, I finally heard about my CT scan from last Monday. There is an "area of concern", something that wasn't there on the last scan. But my Wisconsin oncologist said it would be OK for me to continue with our current plans; going to Washington D.C., then flying to Wisconsin. I will be seeing him at the end of May…
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Results of PET Scan
Well it looks like I am not in remission anymore. The PET scan confirmed that the enlarged para aortic lymph nodes are cancerous. The scan does not show any other areas of concern. I had a new CA-125 done as well and it has increased from 79 to over 200 in one month. My CA-125 was 4500 when initially diagnosed so I'm…
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JUst FYI It Maybe Another Med
I had fluid in my tummy so took water pills "blood pressure" and lasix. Helped some but ended having stomach drained with them taking out 3 1/2 liters of fluid. Wow did I feel better after that. But then they told me to continue pills because as some know fluid can build up again. I kept getting weaker in legs and arms. So…
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OVCA Survivors Course
This past Saturday I went with two other women from my support group to an OVCA Survivors Course presented by the Gynecologic Cancer Foundation. It was a free, all-day event in Cleveland, and they hold them in different cities throughout the year (they did mention one coming up in Las Vegas). One had been planned in…
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Could it be ovarian cancer?
I have had fibroid tumors for the past 10 years and recurring cysts on my ovaries from time to time. But for the past 2 1/2 years I have had nagging pain in my left abdomen that goes and comes. I would go to the gyn and they have prescribed stool softners on at least 3 different occassions thinking its a colon problem. I…
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Metastatic Recurrent Ovarian Cancer
Regarding my mother-in-law. June 08 found Ovarian Cancer, surgery, chemo until November. Pronounced Cancer free in December 08. Jan 09 tests show 2 new tumors in pelvic region, Mar 09 tests show spots/nodules/lesions on lung, kidney, liver. April 09 Gallbladder surgery couldnt wait because she was so sick....during that…