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More questions
Hi ladies! You all are so helpful and I love reading all of your advice. I have another question about my mom. She has had her colostomy for about 2 weeks now and she is so depressed and overwhelmed by it. I know it is a big adjustment, but she is just totally upset and depressed and I dont know how to help her. She is…
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Newbie, question about low blood count
Hi, my name is Patty, and I am writing on behalf of my best friend of 50 yrs. She was dx this past March, with Stage 4, a very aggresive form. I have been reading these boards to educate myself, so I can understand what she is going through. She had debulking surgery followed by chemo, she is in a trial using carbo and…
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Did you shave your head?
As I have mentioned before, I still have about 20-25 per cent of my hair. I had it cut very short before I started chemo and even though it is super thin and I have some spots that are totally "naked", I have not shaved it. Is that something I should re-think? Would it be better for it to all grow back in at the same time?…
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5 out of 6 treatments down and a heart-to-heart with my doctor
Today was #5 of my initial Carbo/Taxol treatments (totaling 6 sessions). My last CA125 was 19 (from a pre-surgery high of 4,000). I have had minimal side effects. My doctor is pleased. I am ecstatic. Dr M seemed in an especially good mood today (I was reading on my e-Reader when he walked in and we talked about the…
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picture update
Hi Ladies Well I thought I would update my picture that would include the love of my life, Meghan. Here we are, and now you can see how beautiful my little baby girl is. I am feeling a bit better today and got out for lunch with a dear old friend and we are then going to see Avatar tonight, which I am looking forward to, I…
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leesag
Good Morning, I have been trying to talk to you for a couple of days, but I am so busy studying for nursing prep review classes, I can't find the time to get on the computer to say much. Are you going to Mercy Hospital? I am pretty sure that Dr. Dwight Um is the doctor that checked on me during rounds every morning,…
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Alimpta
Has anyone ever been on Alimpta? Do any of you know anything about this drug? I think it has been used for lung cancer. I haven't been able to find out very much information about it, but my doctor says that there has been some success with it's use on ovarian cancer. Thanks............with love and hugs, MM
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LeesaG
Hi Leesa, In a previous post you mentioned your kids and how to tell them. How old are your kids? I have 3 kids. My younger two are 6 and 4. The social worker at my cancer center gave me a book about talking to kids about cancer. It is called "In Mommys Garden" The author is Neyal J. Ammary. The concept is easy to…
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changing chemo
I did have my app't this afternoon. I will stay on Gemzar and since I was allergic to Cisplatin, I will have Carboplatin again. Treatment 6A will be Monday if counts are up (Gem/Carbo) and then 2 weeks later just Gemzar and then repeat but don't know for how long since I am slightly behind! Was suppose to be done this…
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All these chemos
I have been reading our recent posts. It really amazes me how so many of you can have chemo all the time on time and it has not really affected the counts too much. You ladies must have strong insides!! ☺ I just got back my blood work today and see that my CA125 has gone from 12.2 (November 30) to 28. Will see my doctor…
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tumor marker up and reaction to Carbo
Thought all going well again, spoke too soon. Had my 4th gemzar/carbo on Mon. After carbo got going my through started to feel like a big clog in in, port felt a little odd, then palms started to itch. Finally decided wasn't just me and to mention to nurse. They all came to check, checked my vitals, all fine. Onc dr came…
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Confused: PPC or Ovarian?
Hi all, You may remember me from the recent posting about the CT scan. I saw my GYN today and now I'm even more confused. He tells me that, yes, I have cancer, but he doesn't think the ovaries are the primary site. He seems to think it's Peritoneal Cancer. He presented that as though it were a positive, but the little bit…
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My experts
I'm calling all of my experts......what a great resource of you I have! My marker has been going up for six weeks (three tests), and today I hear that it has dropped just ONE point. Based on the drop, I will get my treatment of Cisplatin/Gemzar tomorrow. Is anyone as surprised as I am????? What do all of you experts think?…
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How do you deal with weird looks? Self esteem help please!
Hi Everyone. My name is danielle. I am 25 years old. I have stage four ovarian cancer, and am undergoing aggressive chemotherapy and radiation therapy. Have been dealing with cancer for about 5 years now. It spread to my stomach, lungs and brain. So its been pretty rough. I am having a big problem. Right now I am having a…
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Recurrence confirmed
Well, I definitely have a recurrence and will go back on chemo -- doxil and carbo. I have to have a new port put in because the last one got infected. I also have to have my heart checked before I go on the doxil. I guess that's routine. I took a day off work to get my head back on straight. I know so many of you ladies…
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A Quotation for the day
Quotation: "May today there be peace within you. May you trust that you are exactly where you are meant to be. May you not forget the infinite possibilities that are born of faith in yourself and others. May you use the gifts that you have received, and pass on the love that has been given to you. May you be content with…
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port removal
I have just reached the one year date of remission from IVA cervical ca. Yesterday my oncologist scheduled to have my port removed 12/21. I fear that this is too soon. Has anyone had their port removed so soon?
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CA-125 dropping with chemo but NOT MUCH; does that mean it's no longer working?
My CA-125 was 54.9 from my labs drawn before Monday's chemo. I am getting a weekly 1/3 dose of single-agent taxol for my 1st recurrance of UPSC (similar in prognosis and treatment as ovarian papillary serous cancer); and am 6 weeks into it. My CA-125 spiked to 155 when I had my monitoring check-up in November and following…
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Had CT Scan suggesting cancer...looking for hope
Hi, I've not been officially diagnosed yet, but I had a CT Scan today and my doctor called me within two hours. Apparently the CT scan indicated "carcinomatosis" and "probable metastic ovarian cancer." All routine blood work was completely normal. I had a transvaginal ultrasound and will see my GYN on Monday. Any…
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Question
Hi! My sister has ovarian cancer and we recently found out she has brain tumors and that its also in her blood. We are waiting to go on thursday to find out her treatment plan but I am confused. I hope this isnt a stupid question but Are they going to give her chemo for just ovarian cancer, or chemo medicines for the brain…
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Hey there, Bonnie
Hi Bonnie and All, Thanks for thinking of me Bonnie. I did recently post a few times and did a "shout-out" to you on Dorion's subject of "Calling All Angels." Congratulations again for having the blood counts to qualify for your recent chemotherapy treatment! That was such great news! As you probably have seen, Hissy_Fitz…
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Doxil scare
Just got back from the hospital this am after having my first doxil infusion. (The procedure here in Japan is that with any first time chemo you have to go overnight.) Had a bit of a scare. After 20 minutes of the doxil drip, I began to get chest pains. At first I thought it was my imagination, but it continued to get…
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anyone on pazopanib trial for ovca
I would really like to talk to anyone who is on pazopanib trial for ovca. I have been on the trial since August and would love to talk to anyone else who is on the trial.
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New News
Okay, ladies, I have not posted on this board for awhile because I really did not think I could add too much to what everyone else was going through in terms of advice. So many have had it so much harder than me, that I often felt guilty that you went through things that I did not have to. I've been a lurker. I say prayers…
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"The Bald Headed Blues".....
Hilarious! http://www.youtube.com/watch?v=sNaW6FyiJRI
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calling all Angels
Well here I am again, more scared then ever before. Hearing the words "your cancer is very active" has put a massive hole in my heart I can't tell you how aweful I feel. I feel hopeless yet trying real hard to get back my mojo, that kick **** attitude that I've had for two years. Yet I can't stop crying, thinking morbid…
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May I suggest?
I check people's "about" page if I am unfamiliar with their name/story. It frustrates me sometimes to find that there is none, or that the information is obviously ver outdated. Then I thought.........how current is my own? It wasn't. So I updated it. May I suggest that everyone do the same? It just takes a few minutes and…
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Stress
We had discussed the relation of stress and cancer on another topic. I thought I should start a new discussion on this topic because it seems to be an interesting topic. We were discussing how many people had ADDITIONAL stress before their cancer diagnosis. I know everyone has stress in their lives, but it seems that there…
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Update
I figured while I'm on the computer I should give you an update on my sister. If you recall, she had had a hysterectomy, but they left her ovaries, one year after having breast cancer. Now her CA-125 count is rising. Apparently her count was in the teens, but has risen to 45. Her ultrasounds looked good- very good news,…
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question for MK-4 Dani
Hi, I was looking at your profile. We have alot in common and are about the same age. How old is your daughter? I've been looking to connect with other Moms with young kids. Please email if you'd like to chat. nkavleski@aol.com Thanks! Nancy