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New News
Okay, ladies, I have not posted on this board for awhile because I really did not think I could add too much to what everyone else was going through in terms of advice. So many have had it so much harder than me, that I often felt guilty that you went through things that I did not have to. I've been a lurker. I say prayers…
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"The Bald Headed Blues".....
Hilarious! http://www.youtube.com/watch?v=sNaW6FyiJRI
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calling all Angels
Well here I am again, more scared then ever before. Hearing the words "your cancer is very active" has put a massive hole in my heart I can't tell you how aweful I feel. I feel hopeless yet trying real hard to get back my mojo, that kick **** attitude that I've had for two years. Yet I can't stop crying, thinking morbid…
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May I suggest?
I check people's "about" page if I am unfamiliar with their name/story. It frustrates me sometimes to find that there is none, or that the information is obviously ver outdated. Then I thought.........how current is my own? It wasn't. So I updated it. May I suggest that everyone do the same? It just takes a few minutes and…
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Stress
We had discussed the relation of stress and cancer on another topic. I thought I should start a new discussion on this topic because it seems to be an interesting topic. We were discussing how many people had ADDITIONAL stress before their cancer diagnosis. I know everyone has stress in their lives, but it seems that there…
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Update
I figured while I'm on the computer I should give you an update on my sister. If you recall, she had had a hysterectomy, but they left her ovaries, one year after having breast cancer. Now her CA-125 count is rising. Apparently her count was in the teens, but has risen to 45. Her ultrasounds looked good- very good news,…
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question for MK-4 Dani
Hi, I was looking at your profile. We have alot in common and are about the same age. How old is your daughter? I've been looking to connect with other Moms with young kids. Please email if you'd like to chat. nkavleski@aol.com Thanks! Nancy
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Frustrated vent....
Once again I have had to put off the two root canals that I have been planning since November. My temporary crown came off yesterday, to boot. Last week my numbers (red and white counts) were good, but I went in this morning, just to double check them, before my scheduled appointment (tomorrow). My white count had actually…
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Whoo Hoo!!!!!!!
Had my blood work done this AM and my CA125 is...........(drumroll, please).............. NINETEEN. I was totally prepared for it to be elevated, as I have a UTI, so this was a very pleasant surprise. For anyone who'd like to compare, here is my CA125 history: Pre-surgery - 4,000 (although a bowel obstruction likely…
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Mom's chemo started Friday....learning to navigate this crazy world.
I know this is a discussion board focuses on Ovarian cancer; however, there were no sections for Peritoneal cancer and it's my understanding both are treated similarly. My mom was diagnosed with Stage 3 cancer two weeks ago. Her first chemo treatment was friday - seven hours in that chair!! Yersterday was good - spent time…
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Cancer diets...
I have heard everything, from "Cancer feeds on acid; don't eat citrus fruit", to "Cancer feeds on sugar; don't eat sweets", and even, "Asparagus will cure/prevent Cancer". My doctor tells his patients to eat whatever you want, but if your hemaglobin is low, you need to take a multi-vitamin with iron and eat liver. If you…
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Chemo experience yesterday
Good Morning Ladies, Yesterday I had my 10th chemo treatment (2 weeks late). Had my Gemzar and was 5 minutes into Cisplatin when I started having chest pains. Called nurse and she stopped the drip and took blood pressure, oxygen level and temp. Long story short, I ended up vomiting, pressure went down, EKG was good, heart…
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CA-125 count jumped from 15 to 37.
Hey everyone and Happy New Year! January was my 2-month lab visit. After the lab I found my ca-125 went from 15 to 37! The past 6-months every 2 months my counts would go up about 2 points, but now... I had my cat-scan on January 8, 2010 and will find out the results on Tuesday. I am so scared because back in Nov., my last…
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Bluerose?
Hi, Has anyone heard from Bluerose, it's been quite a while since she's posted. I hope things are going well with her. Jane
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pain in the middle of my back
Hi ladies, I am due for my 5th doxil Thursday, CA125 is at 132 a few weeks ago. I have this pain right smack in the center of my back that is getting worse every day. After a good night's rest, it actually seems worse. Very strange. At first I thought it was the way I slept or lack of excercise, but now am wondering if it…
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Navelbine/Gemzar Combination
Hi, I have Stage IV Peritoneal Carcinomatosis, which is treated the same as ovarian cancer. Just had fluid siphoned out of my abdomen, but it keeps on building up so that I am bloated and uncomfortable all the time. First had Taxol infusions, then went on Arimidex and then on Aromasin, which wasn't working. Now my…
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my ramble on "chronic disease"
Hi everyone, I was dx June of 07 and am coming up this June on being a three year survivor of OvCA 3C. I did have a glorious 8 month NED but now am in the stage they have coined, "treating as a chronic disease". I'm on third line chemo, doxil coming up on 5th cycle. CA125 is holding now for three months at 132. Now if you…
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Cleaning for a reason
I checked this website and it looks like it would be a big help if it's available in your area. Kathryn Cleaning for a Reason If you know any woman currently undergoing Chemo, please pass the word to her that there is a cleaning service that provides FREE housecleaning - 1 time per month for 4 months while she is in…
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cisplatin, etoposide, bleomycin
has anyone been on therapy with any of these drugs, i keep reading the forums but it seems as if no on has been on the same chemo therapy as i just got done with.i am 25 years old and i was diagnosed with stage 3 ovarian back in november i had a sertoli-leydig cell tumor about 12 cm on my right ovary. apparently it is a…
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It's me Linda starting new thread
You guys are the sweetest bunch I've ever met in my entire life. Carolyn, I am so happy that you got to go home. And before you wonderful ladies start feeling really bad for me I got good news, they got sick of watching me pout and they are going to let me out of here tomorrow for 5 hours!!!! I am so happy! See there…
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Mom just diagnosed with ovarian and uterine cancer
My mother was just given the news yesterday that she has ovarian and uterine cancer and this is the most difficult thing to deal with. I really appreciate a website like this where I can hear of others that are going through the same thing. She has to have surgery on Monday where she will have a hysterectomy and they think…
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Calcified Spots in Ovarie
Has anyone had or heard of having calcified spots on the ovarie? Mom died of Ovarian cancer at 89 Yrs. old. Does this mean anything? Had a blood test yesterday and had a vag. ultrasound last week for a check-up because of Mother having O. cancer. Did some reading yesterday and the second sentence said a possibility of…
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Possible Recurrence
I've been having some symptoms like before when I was diagnosed with IIIC Serous Papillary Adenocarcinoma with Psammoma Bodies in Nov 08. I saw my onoclogist yesterday and she felt something and my CA-125 is up, so next Wednesday I have scans again. This was my second 3-month check-up since chemo, so just a six-month…
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Small & shrivelled
My sister got a phone call from her Dr. to give her the results of her ultrasound. She said that her ovaries were small and shrivelled.No sign of any tumors or anything in the abdominal area.My sister said she never thought she'd be so happy to hear that a part of her was "small and shrivelled"!!!haha If you recall, my…
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Sinus infection
Ladies, Have any of you had a severe sinus infection (no fever) and been on the Z-pac and Mucinex during chemo and neumega and neulasta shots? Just curious................ Thanks, Libby ☺☺☺☺
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3 cycles down
Just an update. After the Doxil/trial drug not working for me, actually raising my CA125, was switched to gemzar/carbo. Have both Day 1, then gemzar Day 6 and off Day 15 week. Glad off the Doxil as my hands had started peeling even though was using the Udder Smooth they said to use, they look fine now. Sides not bad with…
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Gemzar is my next chemo.
Hi Ladies, Monday I'll be starting Gemzar, it will be my third chemo drug after carbo/taxol then Topotecan. I will be getting it alone, we decided to hold Avastin for future use, because the CT scan showed a few pelvic cancerous lymph nodes, but thankfully no spread to other organs at this time. Due to lymphedema, my right…
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chemo working agani
God's mornign to all... just wanted to say after 3 times of a rise in my ca125 the 4th check had it dropping. The carbo is working and I am in the hospital finishing up with the 3rd dose by noon today. Just wanted to share as one never knows what or when a drug well work. I have made it 7 years and most of it on chemo, it…
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Treatment in China Using Gene Therapy, Hyperthermia, CIK, Endostar and TCM
My mother, who has Stage 3C Ovarian Cancer went to China in late 2009 to receive the new gene therapy treatment using Gendicine, Hyperthermia, as well as Endostar, CIK and TCM treatments in combination. She has had two major surgeries to remove parts of the bowel over the past 2 years, as the cancer had spread, and after…
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I miss my mama
Since my mom passed on December 7th of OVCA... I have been trying to hold up as best as I can. I am in between a move, actually today is my moving day at 10 am. I will be moving out of the apartment that my mom and I shared for over 4 years. I have been suffering alone, because I have to live alone.. until today. I came…