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Posting questions
Does anyone have the time & patience to answer my questions on how to post. This is the first board I have been on . I don't know where to go for answers. Thanks, MC
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Cancer & Exercise
I joined this year & am still learning about posting. I was diagnosed March 2008 with Stage IV Ovarian Cancer. I had 3 treatments of Carboplatin & Taxol, surgery July 2008 & 3 more treatments of Carboplatin & Taxol. Still have progression of disease. Three cycles of Doxil - still progression of disease. Tried hormonal…
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UNofficial results of my CT/PET scan: DRUM ROLL>>>>>>>>>
My DIL is a CT-scan technician at the same place where I got my CT/Pet scan yesterday and was able to get the inside scoop from the radiologist that read my scan, and ...…DRUM ROLL,,,,, MY PET/CT from yesterday WAS GOOD!!!! The radiologist told my DIL that NOTHING had uptake on the PET (NOTHING LIT UP!!) The enlarged node…
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update on my mama and lots of questions
Hi ladies! I have not been on here for a very long time, but I am just wondering if anyone has had a situation like this. Let me refresh my moms story as its been a while. My mom was diagnosed this past march with stage 4 ovca that had metastasized into her liver and throughout her abdomen. She was extremely ill and they…
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Neulasta shot
Have any of you heard from your docs that neulasta is possibly a carcinogen? My sister was going to get her first shot last week until the doc told her that it can cause cancer! That was choice one, the other choice was a blood transfusion. My sister's opting for the transfusion. This all sounds scary for her and for all…
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I am new here
New her and new with ovarian cancer would like to make friends
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Results at the half way stage :)
Thought I'd post my latest news. I am about half way through my treatment. I've had a CT scan and just received my 4th infusion of carbo/taxol. My CT scan shows that the thickening of my peritoneum has reduced (maybe you know it better as the omentum)and my left lung is still fluid free (which is fantastic news for me) My…
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No chemo next week
I saw my oncologist and he agreed that we should postpone the scheduled chemo next week. He now thinks that I should not have had the treatment earlier this month. He said "go on the cruise, as scheduled and have a good time". My CA125 stayed at 158 as it was in Dec. and we both suspect that it is the bowel diverticulitis…
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post hysterectomy- fluid build up
Hi There, I have a question for my mom- she had her hysterectomy/debulking about 2 weeks ago and has a lot of fluid coming out vaginally. She goes through about 3 pads in one hour in the morning but then it tapers off by afternoon. There is light blood but mostly fluid. We got really concerned since she was swelling up so…
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Pain in stomach and back from ovarian cancer
I had surgery nov 16 and am half done with chemo I have had almost a constant bladder infection , have been on antibiotics since nov. My urine the last two times has come back no infection, onocologist says to check ith primary doctor, primary doctor says get off meds for infection. They put a stint in my uretha , could…
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Did I wait too long?
Good evening, On January 20, 2010 I will be having a hysterectomy for possible endometriosis and fibroids. I decided to have a gyn/oncologist do the surgery since I have a history of cancer on my mother's side of the family. My grandmother died of stomach cancer, my aunt died of ovarian cancer, my uncle has been recently…
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Being bald
As you will notice from my new photograph that all of my hair has now gone due to the Taxol part of my chemo regine.This picture was taken at Christmas & I am "glammed up" for dinner at a hotel. I have gotton used to my lovely wig whichnis black and long & looks just like my real hair :) but I find when I am out (and I…
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FYI - FDA Announces new safety plan for anemia drugs
Found this information today on FDA approval of new safety plan for drugs such as Epogen, Procrit and Aranesp. Here is some of the info: Many cancer patients take ESAs or receive blood transfusions to reduce the effects of chemotherapy induced anemia. Recent studies have shown tumor growth or increased mortality in some…
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2nd time around
Hi Everyone, My name is Cat and I just found this web site. I was diagnosed with stage IIII OV cancer last April. I had the complete hysterectomy and most of the omentum removed. I went through 6 rounds of carbo and toxil chemo every 3 weeks and did well. My markers started out at 2300 and went down to 184 when I finished…
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Need some advice and info
Hi Ladies, Quick question, may not be a quick answer. I'll ask this one thing and then hopefully I can put this damn obstruction topic on the back burner for a while and give it a rest. I've been out since yesterday as you know, and I had a lot of work to do here. One thing is that I have to give myself needles every 8…
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new thread, "here's what they told me" GOING HOME!
Hello my Darlings Well I read the last of the postings on "here's what they told me" yes I always celebrate when I fart. I had a small poop and while doing so I'm texting my ex husband to tell him...lol...while on the toilet. We take all these things for granted and don't realilze what a pleasure these things are til we…
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new here
Hello everyone, I'm new to this board. I was diagnosed with stage 3C ovarian cancer in April 2009. I'm only 31 years old--was 30 when diagnosed. I would love to chat with someone my age who is going thru this. Blessings to all of you brave ladies! ~Natalie
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New Chemo
My Dr put me on Gemzar in Nov 2009, Had three rounds and then a CT Scan. The Gemzar was not working. She changed me to TOPOTECAN. I was wondering if anyone has been on Topotecan and the side effects. Dinora
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Today was not a good day...
Hi to all. Today was a day for the birds... I went to visit Mom at the hospital. When I got there, I saw all of the nurses scurrying around the nurse's station and they kept saying my Mom's room number-I knew something was wrong... I went into her room and she was hooked up to pure oxygen and pale as a ghost. She said that…
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More Chemo
It's been almost 10 1/2 years for me since first diagnosis. Was cancer free 7 1/2 years and then had recurrences in 2007, 2008, and again in 2009. Finished 6 rounds of gemzar and cysplatin. CT scan still showed some small lesions. Continued on with 2 treatments of Carboplatin and Gemzar. CT scan shows lesions are getting…
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Mom's 2nd Round of Chemo - Very Sick
My Mom started her 2nd round of chemo last Tuesday with a 6 hour chemo treatment with Carboplatin and Taxol. She tolerated the chemo fairly well during her first 3 treatments. This 4th treatment has made her very very sick for 3 days in a row. I know this is probably normal, but she had been doing so well. She is just…
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Here's what they told me
Hi Ladies Well I'm in the hospital right now and just finished seeing the doctor who wanted me to be admitted. I had to rush to the computer to retell what was just said so I don't forget any details. Now I guess I should be so freaked out right now but I'll reserve that reaction until I hear from you guys. I have an…
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Thank You all!
As you may have guessed, I'm writing this from a hospital bed full of tubes, IVs and a leaky OncQ pump (whatever that is.) The surgery went as well as expected. Twosuprprises, a small spot on the bowel and a small spot on the bladder. Hence, I'm nPO and going home with a catheter. Probably won't be home until Monday or…
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I hate cancer.........
I have been trying to have two root canals done since November. The day before my appointment, I have a CBC done to check my white/red counts. My Gyn/Onc has ruled that I can only have the dental work done if they are 1.5 and 10, respectively. Thus far, no go. My last numbers (yesterday) were .07 (white cells) and 9.2…
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recurrence
After a year cancer free, my cancer is back. I went from a CA125 of 18 to 101. My doctor ordered a CT scan which was completely normal, but the CA125 went up to 175. I start chemo again on Friday. I will get a regime of CarboP and Gemzar this time. He said that I will not lose my hair! Don't quite know how that is. The…
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Here for my mom
My mom found out she had ovarian cancer a couple of weeks ago. She had her first surgery today. They said that they were able to remove 95% of the cancer. They removed her uterus, ovaries, omentum, and part of her colon. There is come cancer still on her pelvic area and diaphram. The liver was fine, the lymph nodes were…
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For LeesaG and Hubby... and anyone else who can post well wishes:)
Just taking a moment to let you know that I'm thinking about you and I know in my heart that everything went well! Mr. Leesa G, thank you so very much for keeping us in the loop. My prayers are with you also. Please visit us here often, we love to chat! Leesa, I know you will be home soon enough to start posting to us…
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No chemo again!
Good Morning Ladies! And it has been good. Was at church this morning counting the offering with another volunteer. So obviously I am not at West Penn Medical Short Stay getting my treatments!! Went to lab yesterday before church and had CBC and platelets were still too low. At 85,000 (last Tuesday 80,000) I cannot have…
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Need a little pep talk
Hello everyone. I want to start off by saying that I have read a lot of the posts on here and I am deeply inspired by the strength and courage.... this will be a long post so my apologies in advance. My mother was just diagnosed with Stage IV ovarian cancer and I am petrified.. I just don't know where to begin. Her 57th…
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Obstructions
Hi, Lately since I have been on this site, it seems to be a huge number of ovarian cancer survivors who have developed intestinal/bowel obstructions. I am just beginning to see the depths of this ugly disease and how it affects more than just having a hysterectomy. It has been three years for me since my diagnosis and my…