Please remember that these discussion boards are a public forum, which means open to the public (i.e. non-CSN members) and the content can be found via internet search engines. Members are strongly advised not to share personal identifiers such as real names, email address, telephone number, street address, etc. This information can be used to identify you and link you to the content you provide. Other areas of CSN are restricted to members only and cannot be found by search engines.

Ovarian Cancer

updates and good news
Hello Ladies, Prior to my surgery on 8/24 I had written in a few times about my worries and concerns and always recevied support and honest heartfult responses. Im writing today for 2 reasons, one to document my surgery results and two to provide support and say "Thank You". On 8/24 I had my surgery for a mass in my pelvic…
Long-Term disability denied - Q about paps
I am so angry I could spit! My long-term disability was denied due to the insurance company's contention that an abnormal pap indicates a pre-existing condition to ovarian cancer! My research says there is no conection, as does my Ob/Gyn and Oncologist. Do any of you have any knowledge that disputes this?
What happens after all the cemo is over,and your in remission
My name is Mary,I am 53,I am in remission,i have pram any pertinal cancer.Augest7,2007,had chemo therapy till Feb.2008. 2009 colon cancer,chemo therapy end of 2009.Now what?I just don't know what i feel. I'm not the person,wife,mother,daughter or sister,I was told that after 56 months,I have a 20% chance i could live…
Back from vaca
Hi ladies, i just returned home from a great vaca, and although I have checked in a bit, I did take a of vaca from the boards. Had a lot of family time, and enjoyed the cooler temps of the Northwest. I went back to see my doc yesterday, had labs, will have a CT tomorrow, and probably back on chemo next week. It will be the…
Going in for surgery
I went monday to get my stent taken out and was told it has been in way too long and may now be stuck or calcified, so Guess what I have to go in and be put to sleep and get it taken out, if it is stuck they will replace the stent. If you all can pray that it is not stuck and that it comes out very easily it will be…
good advice
Hi, I just want to say thanks for the good advice. I have just returned home from the lab. Had a ca 125 test. I called my dr and they faxed it right over to the lab. Got in the car , they took the blood , now I wait. Any idea on how long the wait for results is. Just wondering. Thanks for the advice..
Ca going up
does anyone know if it is normal for ca to go up one point? mine was at 7 now it is at 8
Still good....
I finished my initial chemo seven months ago and today my CA125 was 6.9, so I'm a happy camper. Carlene
Meghan
For those of you who haven't followed Meghan's posts on Face Book, she is now in Hawaii with her dad. She seems to be doing okay, something I am profoundly grateful for. There are few things more heartbreaking than a motherless child.
Post Chemo "Stuff"
Hello, I am having a very difficult time right now and was wondering if anyone else has experienced similar feelings. I am 53 and was diagnosed with stage 2c August 2009, had a hysterectomy, and chemo treatments which ended January 7, 2010. So far so good, all of my ca125 tests show NED. I am sooo blessed with that. That…
Vomitting
My Mom has stage 3/4 cancer. She started chemo June 22, then July 12, then August 5th, surgery is scheduled for Sept 3rd. CA 125 counts are as follows 14,300, then 8,600 after first chemo, 6,800 after second and no results yet from 3rd treatment. My question is this. Mom has hardly been sick to her stomach at all but this…
petscan
Hi I recently had my first petscan and was wondering if anyone has ever had anything light up that was not cancer? I am now back on carboplatin/taxotere due what was seen on the scan! I knew something was up by the way I had/have been feeling. I hope I can beat this again cause going from the chemo I was just on for 8…
Venting and raving....a combination of too much 'Net surfing and another OVCA obit in this morning's
From the British Journal of Medicine, 2003: The goal of second-line therapy in ovarian cancer is essentially palliative, and therefore factors such as patient convenience and comfort, toxicity profile and cost are primary concerns in drug selection in this setting (Gadducci et al, 2001). Accordingly, health-related quality…
Anyone travel for 2nd opinions before treatment decisions?
I got the results of Thursdays CA125 and CT/Pet scan yesterday. The GOOD news is that the cancer has not spread outside of the same 2 lymph nodes it's been in for the past 6 months. The BAD news is that the 2 nodes are BIGGER and lit up BRIGHTER (an SUV of 17 for the one under my arm!) and that the weekly taxol is…
Treatment is hard
I had a rough time with my last round of chemo. I felt sick since second infusion and after the third infusion I basically could not get out of bed. I called my doctor after four days in bed and when she saw what shape I was in she sent me to the ER across the street. After the usual barrage of tests I was admitted. I…
swelling in leg and ankle and numbness in bottom of feet but sometimes have severe pain in legs and
Does anyone have those symptoms after chemo?
Swimming with cancer thoughts
Hi, I am new to this board. I have been in the thyroid and lymphoma ones. I need some advice . My summer started off with a elevated tumor marker for thyroid ca, I have had one recurrence with mets, already. While waiting for various tests to arranged, I had to have an emergency ct scan. From there I was told I needed a…
Topotecan
Hello Ladies, I do not post very often, but I do check in all of the time for the very helpful information you all provide as well as the wonderful and inspiring words of courage and hope. I finished my chemo in January and so far so good. But, my question is - has anyone had any experience with Topotecan? I have a friend…
Methods of taking supplements with NG tube?
Hello, Short version, my mother was diagnosed a year ago. She had surgery, some complications and two kinds of chemo over the past year. Due to the toll the Chemo and other garbage has taken on her she is in a very sick spot. She was home and doing well 2 weeks ago until a blockage occurred causing her to have to be on a…
IP chemo
Well, here I am at Hotel Sutter General for my overnight IP chemo. They are progressively getting rougher (this is my 4th IP round) and I am not looking forward to the next ten or so days. I mean I am grateful that I am able to do the IP, but even more grateful that it is my last cycle, but yuck... I'll get PETon sept 1st.…
Rising CA 125
Hiya everyone. Just been for my 5 month post chemo check up. My previous CA 125 was 34 but it has risen to 71. I was soooo upset and disappointed. I was feeling so well. All other blood markers are good (liver, kidney etc) and I have no sign of any ascites. My docs don't want to see me again for another 2 months and have…
Another funny....
This was posted on Inspire.com by a lady in Australia. She gave this letter to her doctor just prior to her surgery. You have to admire her sense of humor. Dear Professor Michael & Team, Having perused your very impressive C.V’s I reckon you are more than up to the job, however I thought it prudent to put forward a few…
The death of my mother
Todays date: August 21, 2010 My mother was born April 19th 1954 in Damascus, Syria. She met my father in Syria in 1976. He was a Swedish military officer working in the Middle East for the UN. They had a classic "love at first sight" moment. My father went back to Sweden but they kept in touch. My mother joined a group of…
A Poignant Thought
From the Inspire board: The ovaries that have led me to this dismal point in my life are the very things that gave me the best blessings of it as well.....
Mostly Read Now
God's morning to all! I come here each day and read the boards or most days, but don't post to much anymore. You all continue to be an inspiration to me and each other, to all the newbies I say Live Your Life to the Fullest, try not to focus on every pain or bump in numbers (believe I know that is easier said then done). I…
Has anyone taken Taxol?
Hi, I was diagnosed with stage iv ovarian cancer more than 2 years ago. My number when I started treatment was over 3,000. After a hysterectomy and chemo my ca 125 went down drastically. The Dr. has changed my chemo several times as after taking one such as Doxil, Gemsar, Carbo, etc. I get terrible side effects. My ct…
An incompetant doctor
Not sure if I have shared this with you all, but I went to see my GP (primary care doctor) with 4 minor issues. The people in my health practice know me very well and also knew and respected my late mother. Whenever I go in they always ask how I am and always fit me in for short notice appointments. So I am very happy with…
Your laugh for the day....
From one of America's truly great women.....Maxine MY LIVING WILL Last night, my husband and I were sitting in the living room and I said to him, 'I never want to live in a vegetative state, dependent on some machine and fluids from a bottle. If that ever happens, just pull the plug.' He got up, unplugged the Computer, and…
traveling while on chemo and white blood counts are low.
Angela had her first chemo on Aug. 19th and will have another on Oct 16. She is scheduled to travel to Anderson from Sacramento for a second oponion. The two hospitals will be working together on Angela's treatment. I am fearful of her flying when her white blood count is at the lowest? What is ya'll's experience with this.
Getting nervous
went in to get my stent taken out htis morning, was told it could be done in the doctors office, well the stent has been in way too long and now I have to go to the hospital and be put to sleep to have it taken out. I hate to be put to sleep, so getting nervous about this

Ovarian Cancer

Discussion List

Discussion Boards