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Doxil
Hi, I just saw my Dr. today. I've had 8 rounds of cabo/taxol and my ca-125 is 56. My Dr. wants me to start on Doxil. CT-Scan is clear.I thought he would give me a break and just watch me but he wants me to start it at the end of the month. I just had my last Chemo Sept. 8th. Has anyone done back to back chemos. I'm so…
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Clinical trial for vaccine
Hi everyone! I have been approached by my Drs office about participating in a clinical research trial for a vaccine for ovarian cancer! I evidently fit the criteria for the research at this time ( I am in remission & have had chemo in the last 2 mo.)...I don't know anything else about it at this time, as my oncology nurse…
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How do you get into the chat room
Hi i cant seem to get into the chat room,Can you help me,i tryed to hit chat on the left side of the under member directory and all it says is webmaster and i hit that and nothing happens.Thanks for your help.Mary
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Shout Out
My dear Teal Warriors, I had my check-up on Monday and still dancing with NED. I did learn something: the cancer survivor clock starts the day of dx. I thought it was a day of the last chemo. So I am a a 13 month OVCA survivor. I want to thank everyone of all the prayers and AWESOME advice and laughs I have received over…
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Oh For The Love Of Lady Gaga...
Okay, I know we're suppossed to be possitive, And I really really hate bringing my personal situations but, Honestly, I have absolutely NO ONE to turn to but you lovely ladies... So here is goes. I gave Hawaii A chance and came in with a really possitive attitude, but every night my dad picks a fight or makes me feel so…
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Surgery
Hi Everyone, My Mom is having surgery tomorrow morning at 8:00 a.m. She has to be at the juravinski cancer clinic for 6. I thought she would be an emotional basketcase tonight but she was surprisingly calm and animated. I pray that everything goes well for her. I am a little frightened because I have read and heard a few…
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Bonnie Update from today
Thursday, September 2, 2010 7:29 AM, CDT I realized, after a couple emails, I did not share with you what the Dr said was happening with my leg. I am bleeding inside and that is causing the swelling and pain. Did ice it to help stop the bleeding, but it is still painful and swollen. I was thinking, by today, it would be…
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Remembering a Lady with Grace and Courage
Forgive me if i seem out of place but im a male. Ive been in this particular board before to attmept to support and provide information on ovarian cancer months ago but left after realizing it may have been inappropriate for me to enter this specific cancer room. Being a two time cancer survivor myself and having…
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CARING BRIDGE UPDATE FROM BONNIE
Thought I would share this with all of you. As always, we're thinking of you, Bonnie, and extending lots of hugs and prayers! Monika Just a quick update ~ notice I didn't say brief. Heheheheehe! The nurse was out and drew labs, figured my platelets were low they are five now. Anyway tomorrow Josh is taking me to get…
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wattups!
I just found out about this site..and by accident. anyway, I'm 28 and 3c ovarian. I wanted to plop my blog addy on here...because maybe it might help someone else laugh about their spot in life right now. Cuz, Canser sucks. Dont' we all know. But I don't think it has to be ugly, too. heh. http://lifewithgertrude.com also,…
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Bonnie Update
Tuesday, August 17, 2010 7:48 PM, CDT Sorry there haven't been updates but I have been waiting to see what is going on. Her temp seemed like it broke late yesterday and she thought she would maybe go home tomorrow. This evening it has started to spike again. They are treating her with antibiotics and fluids but they have…
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Big week
Hello. Writing to ask your prayers and thoughts for my wife Linda. Today she's having a colonoscopy, which is admittedly long overdue, but now related to making sure there is no intrusion of cancer from a tumor, most likely a product of her 5 -year history of ovarian cancer. The tumor is bumping up against the colon I…
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When to return to Dr
I have ovarian cancer stage 3. I had surgery & they couldn'd remove anything because it too extensive & I wanted a quality of life. Then I started with the 6 chemo treatments , I did very well my last CA 125 was 29, the cat scan showing my tumor was reduced. that was the last of July. I know my tests results because my…
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Where does one find where there are studies on PARP inhibitors
Does anyone know where there are any PARP inhibitors studies?
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updates and good news
Hello Ladies, Prior to my surgery on 8/24 I had written in a few times about my worries and concerns and always recevied support and honest heartfult responses. Im writing today for 2 reasons, one to document my surgery results and two to provide support and say "Thank You". On 8/24 I had my surgery for a mass in my pelvic…
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Long-Term disability denied - Q about paps
I am so angry I could spit! My long-term disability was denied due to the insurance company's contention that an abnormal pap indicates a pre-existing condition to ovarian cancer! My research says there is no conection, as does my Ob/Gyn and Oncologist. Do any of you have any knowledge that disputes this?
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What happens after all the cemo is over,and your in remission
My name is Mary,I am 53,I am in remission,i have pram any pertinal cancer.Augest7,2007,had chemo therapy till Feb.2008. 2009 colon cancer,chemo therapy end of 2009.Now what?I just don't know what i feel. I'm not the person,wife,mother,daughter or sister,I was told that after 56 months,I have a 20% chance i could live…
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Back from vaca
Hi ladies, i just returned home from a great vaca, and although I have checked in a bit, I did take a of vaca from the boards. Had a lot of family time, and enjoyed the cooler temps of the Northwest. I went back to see my doc yesterday, had labs, will have a CT tomorrow, and probably back on chemo next week. It will be the…
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Going in for surgery
I went monday to get my stent taken out and was told it has been in way too long and may now be stuck or calcified, so Guess what I have to go in and be put to sleep and get it taken out, if it is stuck they will replace the stent. If you all can pray that it is not stuck and that it comes out very easily it will be…
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good advice
Hi, I just want to say thanks for the good advice. I have just returned home from the lab. Had a ca 125 test. I called my dr and they faxed it right over to the lab. Got in the car , they took the blood , now I wait. Any idea on how long the wait for results is. Just wondering. Thanks for the advice..
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Ca going up
does anyone know if it is normal for ca to go up one point? mine was at 7 now it is at 8
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Still good....
I finished my initial chemo seven months ago and today my CA125 was 6.9, so I'm a happy camper. Carlene
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Meghan
For those of you who haven't followed Meghan's posts on Face Book, she is now in Hawaii with her dad. She seems to be doing okay, something I am profoundly grateful for. There are few things more heartbreaking than a motherless child.
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Post Chemo "Stuff"
Hello, I am having a very difficult time right now and was wondering if anyone else has experienced similar feelings. I am 53 and was diagnosed with stage 2c August 2009, had a hysterectomy, and chemo treatments which ended January 7, 2010. So far so good, all of my ca125 tests show NED. I am sooo blessed with that. That…
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Vomitting
My Mom has stage 3/4 cancer. She started chemo June 22, then July 12, then August 5th, surgery is scheduled for Sept 3rd. CA 125 counts are as follows 14,300, then 8,600 after first chemo, 6,800 after second and no results yet from 3rd treatment. My question is this. Mom has hardly been sick to her stomach at all but this…
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petscan
Hi I recently had my first petscan and was wondering if anyone has ever had anything light up that was not cancer? I am now back on carboplatin/taxotere due what was seen on the scan! I knew something was up by the way I had/have been feeling. I hope I can beat this again cause going from the chemo I was just on for 8…
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Venting and raving....a combination of too much 'Net surfing and another OVCA obit in this morning's
From the British Journal of Medicine, 2003: The goal of second-line therapy in ovarian cancer is essentially palliative, and therefore factors such as patient convenience and comfort, toxicity profile and cost are primary concerns in drug selection in this setting (Gadducci et al, 2001). Accordingly, health-related quality…
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Anyone travel for 2nd opinions before treatment decisions?
I got the results of Thursdays CA125 and CT/Pet scan yesterday. The GOOD news is that the cancer has not spread outside of the same 2 lymph nodes it's been in for the past 6 months. The BAD news is that the 2 nodes are BIGGER and lit up BRIGHTER (an SUV of 17 for the one under my arm!) and that the weekly taxol is…
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Treatment is hard
I had a rough time with my last round of chemo. I felt sick since second infusion and after the third infusion I basically could not get out of bed. I called my doctor after four days in bed and when she saw what shape I was in she sent me to the ER across the street. After the usual barrage of tests I was admitted. I…
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swelling in leg and ankle and numbness in bottom of feet but sometimes have severe pain in legs and
Does anyone have those symptoms after chemo?