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Ovarian Cancer

Take a break from thoughts of cancer and chemo
Thought I'd share this short youtube video of 2 little brothers, Charlie and Harry. Poor Harry experiences the full spectrum of human emotion in about 56 seconds while his baby brother sits on his lap: playful joy, pain, fear, panic then back to happiness and joy.…
anyone's CA125 flatten out on weekly taxol?
My CA125 only dropped 1/2 point this past week, according to this morning's pre-chemo labs. The last time I took weekly taxol, my CA125 flattened out after 6 rounds in the mid-40's and stayed there for 4 more rounds, and yet I got a clear CT/PET after 10 rounds of the weekly taxol and I took a 4 month chemo break. But…
Ahcc anyone tried it
my white count took another dive this week, i heard ahcc is suppose to bring it up, anyone every try it
Any question, fluid buildup
Good morning to everyone and all you "Teal Warriers". I have put a few questions on the discussion board and have received great feedback. I am due to have my surgery on 8/24, complete hyterectomy and omentum removal, my pelvic mass is 12cm appx. size is a volleyball, and irregualr in shape. I am going to an…
I am really worried
Just needed to talk about this to people who understand. Maybe I am completely off the wall and imagining it but my stomach is bloated. I used to get IBS way before I was diagnosed with cancer. Recently I have changed my diet as I am trying to lose weight and I am having IBS symptoms (well I think it is that) At the end of…
Notes from 2010 Alliance Conference
NOTES FROM 2010 ALLIANCE CONFERENCE DR. BARBARA GOFF - DIRECTOR , DIVISION OF GYN/ONC U. OF WASHINGTON,SCHOOL OF MEDICINE DR. MICHAEL SEIDEN, PRESIDENT AND CEO FOX CHASE CANCER CENTER,PHILADELPHIA, PA. DR. DEBORAH ARMSTRONG, ASSOC. PROF. OF ONCOLOGY, GYNECOLOGY AND OBSTETRICS JOHNS HOPKINS, BALTIMORE, MD DR. GOFF 10% of…
update: chemo options/clincial trial
I met with a senior gyn oncologist on Friday. I can't remember everything he said but I left his office feeling good. Not as worried as I have been recently. He said I shouldn't be too concerned about going into remission. He seemed as if going into remission was no big deal. I didn't think to ask if he was acting that way…
Local NOCC Meet Up Today
I attended my local chapter of the NOCC (National Ovarian Cancer Coalition) this AM and was very happy to make the acquaintance of a nine year, stage IIIc survivor and a seven year survivor (also IIIc). The nine year survivor has received five courses of chemo but she looks great and is currently in remission (again). The…
PPC & Diet
Hey, anybody have any recommendations for nutritional changes that support staying healthy after PPC diagnosis? Just came across somebody who recommended coenzyme, bovine cartilage and wheat grass. Doesn't sound good, but wondering if anyone has done this or something else to hopefully stave off recurrence? thanks McE
Linda Dorian
Hey Ladies, I managed to talk to Linda Dorian in a hospital in Ontario today. She told me to tell you guys that she is still fighting and Meghan is with her father. She ask me to call her back tonight. Paula
Good News!
After experiencing come cramping and pain on my left side, my oncologist ordered a CT scan...thankfully, there were no signs of cancer! In addition, my CA125 has been holding between 13-15 since February. The anxiety I experienced while waiting for my results was crazy... it just shouldn't have to be this way. It has been…
I know just how this guy feels...
In whatever kind of a “race” life may be, I have very abruptly become a finalist. That's from a Christopher Hitchens essay about his Cancer diagnosis. Hitchens goes on to say: The oncology bargain is that, in return for at least the chance of a few more useful years, you agree to submit to chemotherapy and then, if you are…
CA125
I was diagnosed a year ago this May with stage 3 ovarian cancer. I have been reading many posts on the discussion board and see that many have had original ca125 at 1000 and way above. Mine was at 111 before surgery and then down to 7.2 and I have been holding at 5.2. pet/negative and I feel great. Has anyone else ever had…
Clinical trial presentation
A transcript of the presentation made at the OCNA conference has been posted on OCNA's web site. The presentation was on the topic of clinical trials from the patient's perspective. Here's the tiny url for accessing it: http://tinyurl.com/2862kfl Carlene
Update on my book on cancer
Border's Bookstore has accepted my new book "Hope For Tomorrow", my booksigning will be Saturday August 7-2010 at 1 pm until 3 pm. IF you would like to order the book you may call them at 480-833-2244 to place your order. All proceeds will go to "Face In The Mirror". This organization helpes Women, Men and Children going…
Blood came up some
my white count came up from 1.0 to 1.3 so this is a good week
Question about chemo
Hi I have had two rounds of chemo the first was cisplatin then the next week taxol and carboplatin which i will get on a monthly basis. My question is will the treatments get progressively harder? I was pretty much not feeling well for a week but then feeling pretty good. I just would like to know what to expect I forgot…
NEW RESEARCH RESULTS: Trabectedin Plus Doxil in Relapsed Ovarian Cancer
These research posts are technical and hard to understand, but I post them because they do suggest options worth mentioning to your oncologists. Translation of some of the abbreviations they use in cancer research: OS = overall survival PFS = progression free survival (either on or off treatment, not necessarily remission)…
Still nervous, but have some positive news
My mom was diagnosed with Stage III/IV Ovarian Cancer on May 4th. The reason its split, is because there were signs pointing to both...Anyway when she was first diagnosed she had a CA549 now it is CA129. I'm not exactly sure what that means, but I hear it's good. Life has pretty much been going on normal since she has…
To all my friends... fr.Barbara Strange
Hello, ladies. I'm back. I'm sorry I have been absent so long, but I started work again last year and I had trouble getting back in the groove. My Ca-15 is at 26 so I am getting chemo every 3 weeks. I was taken off in Feb, but it started creeping up so my Dr. started me back when it got to 34. She says when it drops down…
Very sad news
Hi , I would like to thank you all for your kinds words and information. As you know my mum was admitted to hospital on 26th June because of breathing difficulties and two weeks after that she was diagnoised with ovarian cancer, its with a broken heart to say that my mum passed away 30th July. She was an amazinly strong…
New to the group and cancer
Hi everyone, Im new to the group and found out today that I have Ovarian cancer, and I go to the OB/GYN onocologist on Monday 7/26. I had a Pap smaer, ultrasound, chest x-ray, and contrast ct. My chest x-ray was clear, the CT showed mass 9.6cm High, 8.6 cm wide, and 4.3 cm deep. Ca 125 came in at 125 lab says 0-20 is…
rising ca125
Hi, I just got the news that my ca125 has doubled since the last one and I am very scared, frustrated etc!! I have been going through my 2nd battle for 8 months now and dont know what is going on or what will happen next until I see my doctor next month I guess. I hope for the best and just want to be NED again! hugs to all
Clinical Trial
Hi I have just been told that I have several small nodules that require further treatment - too small for surgery - and my oncologist has given me information about a trial with Carbo/taxane with weekly farletuzumab (MORab). I would like to know if anyone else on this board has heard/had this treatment. My CA125 is within…
?
So, I know I'll regret this posting tomorrow when I wake up and feel better but... my CA125 is 14 and my CTscan is clear.....so..... Why can't I stop crying tonight? Thank you for at least reading this. I'm sure I'll be totally embarrassed tomorrow that I posted this, but I knew that you guys would "get it" even though my…
Support Connection, Inc
Support Connection Inc. is a not-for-profit organization offering free and confidential support services to people affected by ovarian and breast cancer. Once a month, Support Connection offers an ongoing free telephone support group for women living with ovarian cancer. Like all of our support groups, it is facilitated by…
Primary peritoneal cancer vs. ovarian cancer
I am confused and frustrated with where to find information about primary peritoneal cancer. My mother was been diagnosed with stage 4 peritoneal cancer in Feb. of this year. When her onocologist talks to her he refers to her cancer as peritoneal cancer, while others refer to it as ovarian cancer. I read they are…
New Caregiver
My dear wife of 28 years was diagnosed with stage IV ovarian cancer in March of this year. Her stomach was extremely distended due to the ascites. This was the first clue she was sick. She is 53 years old and a mother of three adult children. Oncologist surgeon decided to go with three initial rounds of chemo…
Just wondering and scared, what next ?
All of you woman are so very strong and couragious, I read what you say and how you support one another and you are all amazing. I went to my GYN/onocologist on Monday 7/26 my sugery is scheduled for 8/24 to remove the volleyball size pelvic mass via a hystorectomy, (SP?) my chest x-ray clear, my ct didnt show "Much" (I…
Fungus
Good Morning!! Seriously looking into Fungus as my next research topic! Will let you know what I find. Already very interesting. Living for Eternity, Libby Did I not see somewhere that one of us was on an antifungal medication or am I losing it??

Ovarian Cancer

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