new treatment

rockchicksurvivor
rockchicksurvivor CSN Member Posts: 45
in Ovarian Cancer #1
I am getting ready to fight my 3rd battle with this awful disease that just snuck up on me again when my ca125 was 22 almost 2 months ago and now I have ascites and a golfball side tumor in my left side. I am very scared and hope the new clinical trial they put me on will work. One of the drugs will be cytoxan I think along with another drug specifically for brac1 positive ovc.They say it has a good response and I pray it works for me. I am in pain, cant eat much and I am very fatigued. I stayed in the hospital for 3 days and had tests and lots of bloodwork. wishing everyone well. will let you know more later.

Comments

  • kayandok
    kayandok CSN Member Posts: 1,202 Member
    #2
    Hi Donna,
    so sorry to hear about this. You were doing so well! Keep us posted when you get the test results.
    Hugs,
    kathleen
  • antcat
    antcat CSN Member Posts: 270
    #3
    Question about your treatment and trial
    Hi, Am so sorry you're fighting your 3rd battle. I'm also fighting my 3rd. Could you please let me know what stage you are and where you are getting the trial and how many prior chemos you've had. The reason why I'm asking is I recently had a discussion with my oncologist about a trial and he more or less told me because I've had prior chemo I wasn't eligible (even though I read the exclusion requirements and I didn't see where it said that). I mean, why would a person want to go on a trial, if standard chemo was working. Anyway, I would appreciate it if you could let me know this information. I think I know the trial you're going on and my gyn/onc told me a few months ago it is a good one. I am sorry you're in so much pain. I know what that feels like because I experienced pain also and I am also fatigued. Anyway, I wish you luck and any info you can give me will be appreciated.

    Thanks.
  • VickiReed
    VickiReed CSN Member Posts: 66
    #4
    prayers
    Praying for you to be pain free and a for this treatment to work for you!
    XXXX
    Vicki
  • Unknown
    Unknown
    #5
    VickiReed said:

    prayers
    Praying for you to be pain free and a for this treatment to work for you!
    XXXX
    Vicki

    This comment has been removed by the Moderator
  • azgrandma
    azgrandma CSN Member Posts: 609 Member
    #6
    unknown said:

    This comment has been removed by the Moderator

    I am sorry to hear this
    I am truly soorry to hear this news. This horrid disease I hope they will find a cure soon.
    I am praying for you hon
    Hugs Lynda
  • Mwee
    Mwee CSN Member Posts: 1,338 Member
    #7
    Dear Donna
    Sorry to hear you are back to war. Wishing YOU well also and I hope this new drug will kick butt.
    (((HUGS))) Maria
  • vj1
    vj1 CSN Member Posts: 150
    #8
    Mwee said:

    Dear Donna
    Sorry to hear you are back to war. Wishing YOU well also and I hope this new drug will kick butt.
    (((HUGS))) Maria

    Donna
    Sorry to read your update. You still sound strong; try to stay positive. A lot of us are sending all good thoughts your way. Keep us in touch.

    Verna
  • AussieMaddie
    AussieMaddie CSN Member Posts: 345 Member
    #9
    Meeting for the first time. Better it were in Hawaii!
    Hi,
    I just wanted add my own wishes for your 3rd battle and send hugs
    (((( ))))
    AussieMaddie
  • childofthestars
    childofthestars CSN Member Posts: 251 Member
    #10
    So sorry your having to go
    So sorry your having to go thru treatment for a 3rd time. I'm wishing you all the best. Please keep us updated. I'm BRCA1 too.
    ((Hugs))
    Michelle x
  • djinco
    djinco CSN Member Posts: 87
    #11
    Thinking of you...
    Wow, not such good news, but I know with God's help this trial will soon pass. Please keep us up to date on your progress. We are here for you.

    Love you,
    Betty
  • zinaida
    zinaida CSN Member Posts: 221
    #12
    Sorry dear! Please put on
    Sorry dear! Please put on big Girl pans and fight! I hope trial will do the job. I read a lot good about thi trial. Good Luck to you. I am also on my third battle and scared. (((HUGS))), Zina
  • Cafewoman53
    Cafewoman53 CSN Member Posts: 735 Member
    #13
    I'm sorry you are fighting again
    Stay strong , you knocked it down before and you will do it again. I see my future in your and many others posts about reoccurances and I hope I can face them with your stregnth. Why are you in pain? That is one thing they can deal with and should. Shopping Kharma fought long and hard and I believe she was successful as long as she was because she made sure she had something to control the pain.
    Sorry but pain control is a pet peeve of mine I have chronic pain seperate from ovca and I just hate to hear that someone is in pain !
    Good Luck !
    Colleen
  • Tina Brown
    Tina Brown CSN Member Posts: 1,036 Member
    #14
    Hello Donna
    Sorry to hear you are in pain. I never realised they can talyor treatment for people who are BRCA +. I am BRCA 2+ so I will remember this next time I need treatment. Just rest up and take it easy, listen to your body as it knows what it needs to fight and get better. Wishing you all the best & keep us posted.
    Tina xx
  • clamryn
    clamryn CSN Member Posts: 508
    #15
    Don't want to hear this
    I am praying for you. Praying for the pain to go away and for this trial to work for you. Fight as hard as you can.

    ((((hugs))))
    Linda
  • jbeans888
    jbeans888 CSN Member Posts: 313
    #16
    I am so sorry you you have
    I am so sorry you you have to go thru this again. I hope it works for you. Good luck with your next battle teal sister. Keep us posted.
  • poopergirl14052
    poopergirl14052 CSN Member Posts: 1,183 Member
    #17
    jbeans888 said:

    I am so sorry you you have
    I am so sorry you you have to go thru this again. I hope it works for you. Good luck with your next battle teal sister. Keep us posted.

    Donna you will be ned
    very soon. I am sure of it. Keep the faith..val

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