-
Side Effects
I'm a health psychology graduate student researcher looking at cancer treatments. I was curious if anyone could attest to a phenomenon known as a "signal effect" where individuals undergoing cancer treatments view side effects as a signal that the treament is working. basically, has anyone had the experience that side…
-
Newly Diagnosed
Help! I need to find best treatment. I live in the Minneapolis/St Paul area. I haven't even found an oncologist yet, I just found out yesterday. I'm male, 38 yo, married, with two beautiful little girls. Does anyone have any suggestions? We're scared, and worried about everything. Has anyone had better luck with going with…
-
Hello, anyone out there???
Hi, I'm 28 years old and was diagnosed with Indolent B-Cell NHL back in June 2000. I was relatively symptom free until last winter when my right lung filled with fluid. At that time I went through 6 rounds of chemo (CVP). I have been feeling better although can't help worrying about some sort of reoccurance. A lot of…
-
Going on 2 Years surviving
I'm a 17 year old girl, living in a small town in Michigan, I turned 15 on October 24th, 1999 and I expected it to be just another year. That was until November 5th, when I was diagnoised with Stage 2 A, Hodgkins Lymphoma. I was a odd case, my blood counts wern't abnormal, and I didn't FEEL sick. I just had a mass on my…
-
for vets of FMR
Hi, Has anyone with low grade b-cell lymphoma been treated with fludarabine/mitoxantrone/rituxan protocol? How effective a remission? Side effects profile? How did you tolerate it? I am scheduled to start this treatment soon, so any information would be greatly appreciated. Thank you in advance. Rich
-
Living With Hodgkin's
Hi, my name is Trisha and I currently have Hodgkin's Disease. I have had about 5 rounds of chemo, a bone marrow transplant, and some radiation, but to no avail the treatments did not work even though Hodgkin's is one of the most curable cancers there is. I have got to the point that the doctors have no more solutions or…
-
BEACOPP
Hello everyone. This is my first time on this site. I'm a 22 year old Hodgkin's survivor. I was diagnosed 4 days before my 21st birthday. I went through 6 months of chemo, and my last round was a year ago this month. When I was diagnosed I was in stage 4B. They said that radiation would do nothing, and there was a good…
-
Supercuts do the really support cancer?
Hi my name is Sandy Martinez. I was diagnosed with NH Lymphoma Stage 4 in April 2002. I am the mother of 3 and married to a wonderful husband. At the time of diagnosis I was a long time employee of Supercuts, a so called supporter of The Cure for Cancer. I was off originally due to a prior knee injury and discovered a…
-
New Nodes- Like Hodgkins but Not?
Has anyone experienced a new cluster of inflamed but benign nodes? I am 24 and had Hodgkins seven years ago and it was treated locally with radiation. I developed several new nodes this fall in a different area, and they were biopsied. After a month of tests on the biopsy sample, my docs determined the nodes to be "cousins…
-
33 weeks pregnant diagnosed with HD
Hi, new to the board. I was 33 weeks pregnant with my third baby (children ages 5 & 3) when I was diagnosed with HD, December of 2002. They took my baby a month early so I could start my treatments as soon as possible. I was stage 2B. Fortunately I had some really really awesome doctors. They moved quickly to diagnose and…
-
Light The Night Walk
Hello, for those of you interested please check out www.lightthenight.org for information on a walk in your area to raise money for the Lymphoma and Leukemia Society.
-
I am new here. I know someone who has NHL and they just had a relapse. I am the caregiver and I wond
The NHL patient is living everyday as their last, taking drugs, and is in isolation from me. I do not take drugs and I want to help this individual. What should I do? The will not let me talk with their doctor; instead they will me what the doctor tells them.
-
aggressive, high-grade NHL and transplant
My husband, 49 years old, was dx with aggressive, high-grade stage 1 NHL last summer. He presented with pain in the left lower back and it became increasingly severe over a 3 week period. At first they thought muscle problem (we play a lot of tennis and had just returned from a vacation) then kidney stone, but a CT scan…
-
here we go again
Hi, I am new to this..I am a twenty year survivor with hodgekins disease, I had 21/2 years of treatment.My Dad was diagnosed with breast 3 years later. Jump to the present, He now has bone, liver, and lung, I have been watching him fight this battle for 2 years, needless to say it has made old issue of my own surface, fear…
-
24 years and surviving
I'm 24 years old and I was diagnosed with Hodgkins when I was 19years old. I survived my Grandad, Grandma and 2 close friends. My one friend and I were diagnosed around the same time. She had lung cancer, beat it and then a year later it came back and spread to her brain. Just as I was getting better she was facing being…
-
EFFECTS OF CHEMO
I AM 32YRS OLD AND A SURVIVOR OF TESTICULAR AND LYMPH NODE CANCER.MY BATHROOM CLOSET IS FULL OF COMPAZINE MEGACE ETC ETC YOU NAME IT IGOT IT ON THE SHELF.THE SICKNESS FROM THE CHEMO IS UNDESCRIBABLE ,NONE OF THE MEDICATION IN PILL FORM WORKED FOR ME . IFOUND THAT COMPAZINE AND [KYTREL]THROUGH AN IV WORKED IN THE HOSPITAL…
-
dealing with death
My father has just passed away, I dont know how to handle this, he was just 59, and honestly, I thought he would pull through this. I am far from my family and would like any support or advice on how to deal with this tremendous loss. Thanks
-
Bodies - a short film
I am writing and will soon be directing a short film entitled "Bodies" which is an adaptation from a short story published in The New Yorker Magazine (Sept. 30th issue). The main character is in the "wait and see" stage after 10 rounds of chemo for Stage III Hodgkin's lymphoma. I am writing for two reasons. First, I would…
-
I'm 19 and just found out...
Hi I'm 19 and just found out I have some type of hodgkin's Disease and it's in stage 3A. I don't even know why I am posting a message. I don't know what good this will do. But I start Chemo this Tues and I'm scared. I am a 19 year old guy with cancer...heh that's not supposed to happen. Anyways if anyone has anything to…
-
Bodies - a short film
I am writing and will soon be directing a short film entitled "Bodies" which is an adaptation from a short story published in The New Yorker Magazine (Sept. 30th issue). The main character is in the "wait and see" stage after 10 rounds of chemo for Stage III Hodgkin's lymphoma. I am writing for two reasons. First, I would…
-
a play on words
My husband has been diagnoised with mantle cell lymphoma. He will be starting treatments soon and I need your help. I want to get him an I.D. bracelet made with one word or starting letters of a sentence, that when he looks at it, it will help him to remember to be strong and believe in god and himself. I can only have up…
-
lymphomatoid granulomastosis
is there anybody online who has been diagnosed with this disease?
-
Help eliminate cancer
I am looking for people in the Los Angeles area interested in supporting ACS in a Relay for Life event. I am a recent survivor looking for others to join me in the fight. email me at CelebrateLife@sbcglobal.net
-
Help eliminate cancer
I am looking for people in the Los Angeles area interested in supporting ACS in a Relay for Life event. I am a recent survivor looking for others to join me in the fight.
-
Hello, New here and wonder what our future holds
Hello everyone. I want to first say that I am in awe of you all. I read your stories about your triumps and struggles and find them very inspiring. Congratulations to each of you for your success in beating this horrible thing, and I pray for you and others still going through that the rest of the treatment will be swift…
-
Post-Hodgkin's Pulmonary Fibrosis and severe weight loss
Has anyone experienced irreversible lung damage (Pulmonary Fibrosis) from ABVD/MOPPs? Also, has anyone lost up to 1/3 of their body weight from treatment and not be able to gain it back even years after treatment? Doctors have been baffled for 12 years now...
-
CNS Lymphoma
Hi. I am new here. I was just diahgnosed with CNS Lymphoma on Jan 14. I had a craniotomy and have no hair, much, at this time. It is hard to find information on this type of cancer on the net. If anyone else has this or more information sites, please let me know. Thanks.
-
NHL ~~low grade
Hi, I'm new here.I was diagnosed with low grade NHL in August,1998. I was so happy just before that diagnosis, because I was just about to celebrate my 9th year being breast cancer free. The news was devastating to say the least. I would like to chat with others who have NHL. I have survived once and I will survive again,…
-
I need your help...
Hi, my name is Leah and Im 17. In 1997 my stepdad was diagnosed w/Non Hodgkins Lymphoma. He was in very bad shape when he was diagnosed. They found tumors, and inflamed lymphnodes in his neck, his groin, under his arms, and in his spleen. He went through many ,any treatments, and we tried everything . But eventually the…
-
coping with cancer
I am 22, married with a one-year old daughter, who was diagnosed in march with Hodgkin's disease. I have been so busy going through treatments, I haven't had time to let everything sink in until now. I am having a hard time coping with life now and knowing how to feel like myself again.