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Lymphoma (Hodgkin and Non-Hodgkin)

Hodgkins Cases in the Fox valley of NW suburbs near Chicago Illinois
Would like to research Hodgkins cases reported/treated in the Northwest Suburbs of Chicago. We are finding what we think is an abnormal number of cases and would like to investigate. Please e-mail me back with any info.
neupogen
I tried taking a shot, and then two hours after its administration I passed out and fell down the stairs. There is a twenty minute period in which my mother told me that I was awake and talking afterward, but I have no recollection of that time. It's very rare, but you can have weird side effects from neupogen.
Radiation
I am a 22 year old Hodgkin's survivor who just finished my last chemo treatment of ABVD January 11, 2002. I was a Stage II with a mediastinal mass. Every doctor has suggested radiation, but one did not. I opted to go with not having radiation. Is there anyone out there who has had chemo only?
Neup - no problem
Hi, Thanks to everyone who gave me input and advice, especially about neupogen. I tried it again this week and have had no problems. My onc isn't sure why I had a bad experience the first time I took it, but I'm fine now, so on with the show!
low back pain with NHL
Hi, I'm new to the group and am wondering if anyone else has experienced debilitating low back pain with NHL. My primary sites have been on my aorta and after treatment I had a 21 month remission, then it appeared in my paratoid gland. Again I underwent treatment and after a 6 month remission I again got it in the other…
Cancer level?
I recently read someone message about their cancer level. I'm wondering, how can one tell what level they are/were at? With out asking the doctor. This person did a few chemo treatments and more radiation treatment. Is this the way to determan one's level? I did 16 chemo's (3 bags, 1 injection, every 2 weeks) and 19…
need to start treatment
i forgot to mention i have sll/marginal zone which is not curable by standard treatments
need to start treatment
hi, i was diagnosed with nhl about a year ago through a routine mamogram...i had absoluely no symptoms...i went to mamorial sloan kettering and was told to get periodic ct scans and checkups and wait a while to start treatment since there is no cure for this tpe and they like to delay treatment untio there are symptons…
Hodgkin's Survivor
Hi Trisha, Don't you EVER give up!!! I hd Hodgkin's in 1993 (stage 3A), and again in 1994 (stage 5B). In November of 1994, I had an autologous BMT. High dose chemo for two days, and then lay in a bed for three weeks in isolation. Couldn't see my kids because they had colds. I never gave up. Three months after my transplant…
NHL - coming to the end of treatment
I have NHL - Large B Cell, diffuse. I have had 6 rounds of Rituxan/CHOP chemo, and am down to my last 5 rounds of radiation. I am anxious to know that the cancer is gone but know I have to wait until June to go for the scans. It's so reassuring to read messages from people who are years into remission. How did you handle…
Thyroid Problem???
I am in remission for Hodgkins Disease and one of the many side effects that my doctor mentioned is a Thyroid problem. I was wondering if anyone out there has this? I am curious because for the past several days my face has been rather puffy, I've been very tired. I was wondering if anyone had any of these symptoms as…
On the dopwn side
Down to last treatment at months end.Cell type was an inbetween large and small,somewhat unique, so I am told.Bone marrow to follow to varify gone.Cure looks good
recovery process
I am curious to see if any of the survivors of lymphoma are or have had problems with energy loss, fatigue, numbness or breathing problems as a result of your chemotherapy treatments. I am a mother of 3, 37 years of age and finished my chemotherapy in the end of November, 2001. I am still having problems with fatigue and…
recient diagnosis
If you check back here I can be reached on ICQ at #706341, and roadrunner0342,on Yahoo messenge. My E-Mail is roadrunner0342@yahoo.com or roadrunner42@lcia.com. I have had this deasiese for over twelve years and will be happy to talk to you.
oophoropexy?
I had a oophoropexy prior to my radiation treatment to preserve fertility. I'm curious if anyone else went through this? If so, what are the long term outcomes?
Mini-Allogeneic Transplant
I was diagosned with Hodgkin's Lymphoma in July 1999 and have under went a Stem Cell Transplant in April of 2000. I was in remission for almost a year, but the cancer is back. I am now getting ready for another transplant, but this time it's a Mini Allogeneic Transplant. I was wondering if anyone here had any information…
hodgkins recurrence survivor
I have survived adult hodgkins twice now--have been in remission for three years and suddenly find myself scared to death it is returning-
Just diagnosed - starting Stamford 5
I have just been diagnosed with Hodgkins and am starting a new treatment called the "Stamford 5" on Monday. Has anyone else had this? Can anyone tell me what to expect? If you would like to email, my email address is LianeMJ@aol.com
Changes in Taste
I had my last chemotherapy treatment on October 3. My taste, which went "off" during treatment has not yet returned to normal. How long does it take for taste to come back? I'm living primarily on angel hair pasta, Cream of Rice cereal, and hot dogs with sauerkraut. Not what I call a balanced diet. Can't taste salt, and…
hello!
hi everyone. I am new to the group also, just wanted to introduce myself. I just finished treatment last week, but they have not declared me in remission yet. I am 19 years old and I am happy to be able to "discuss" with everyone
Kidney Problem
Hello all, I am happy to have found you. Diagnosed in 1977 stage 2B, in remission in 1988 after MOPP and radiation treatments. Long term side effects: thyroid knocked out of whack and taking synthroid, susceptibility to flu, leaking heart valve and hole in the pericardium (sp?) the sac that holds the heart.., pre-mature…
Migranes
My husband Todd had a Lumbar Puncture Last Monday and has been having Migranes since. He has tried alot but nothing seems to work and we have to get on a airplane as if that isn't bad enough. If anyone has any suggestions please write back!! Ange
intercourse after transplant
I am looking for info on increasing my level of secretions (I am a 31 year old female). In 1997 I had a peripheral stem cell transplant and since have not had a normal flow of secretions making it difficult to make love--it feels as if I am a virgin all over again. I met with my ob/gyn and am taking lo-ovral but I am still…
Hepatosplentic T-Cell--me too
I too was diagnosed with Hepatosplentic T-cell lymphoma and would love to chat with you. Will try to email again, but it didn't work last time.
new to the forum
Hello. I am a 19 year old Hodgkin's survivor--I just found this website. My one year of remission anniversary is March 27th. I just wanted to join the forum and support anyone who needs someone to talk to who has been there and came through it. I'm not sure what else to post, so, if anyone wants or needs to talk, feel free…
Recovery after surgery
I ahd my lower lobe of my left lung removed in April of this year. The surgeon said it would take 4-6 weeks to get over the pain from the surgery. It's approaching 3 months and I'm still in a lot of pain! Anyone out there with similar lobectomy procedure who can agree/disagree with recover time period? Also interested to…
CNS lymphoma
My mother has CNS lymphoma and I would really like to talk with someone about this type of cancer. Please e-mail me at dnslmodro@stargate.net
Thank you!
What a wonderful world. I joined this site almost a year ago, just after it was started and am able to visit on a limited baisis. Each time I log in I am amazed at the number of "chemosabes" I have here on this site! I just spent nearly an hour reading, through misty eyes, the postings and can't help but think how much I…
No Subject
Rory I also have suffered from constriction of my esophagus and have nad to have it dialated several times.
The Wellness Community
If you are luck enough to be near a Wellness Community I suggest that you go. I did not know how far up de Nile river I was when I walked through the door. They made all the difference in my mental health. If you have any questions about them let me know. With love and wellness.

Lymphoma (Hodgkin and Non-Hodgkin)

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