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Lymphoma (Hodgkin and Non-Hodgkin)

There is light at the end of the tunnel
For those of you undergoing treatments right now for NHL, it can get better. I just celebrated my 8th anniversary of my autologous bone marrow treatment. Yes, I have some residuals but I focus on the positives of life and refuse to dwell on my *problems*. I was diagnosed in 1994 with stage 4 T-Cell lymphoma. Spent a month…
Radiation
my son is 25 years old and was diagnoised in Jan 2002, with hodgkins, he was in stage v, after 6 months of ABVD, he was in remission, but then two months later the cancer was back, In march 11, 2003, he indured a stem cell rescue but the cancer was still there, in May 2003 he started 25 treatments of radiation so far he…
Tips for treatment
Hello Brethren Blood Cancer People, My name is Michael, and I am a survivor of ALL - acute lymphoblastic leukemia. It isnt the very same as HD, but many similarities. I was diagnosed at 21 yrs. I am now 29 years old and have been in remission for almost 7 years. In fact, this June 6th will be my 8th anniversary of my…
Losing my hair...
I'm 25 recently diagnosed with Hodgkins disease, I had my first round of chemotherapy 17 days ago and just yesterday experienced my hair beginning to fall out, more like thinning than clumps. I am stage IIA recieving ABVD. Did others experience hair loss, was it all your hair or just thinning. how long will it thin before…
CNS Lymphoma--long-term cognitive losses
My mom (only 54 years old) has Primary Central Nervous System Lymphoma. She has undergone various chemo treatments for over three years. Now, there is no sign of the tumor, but she is suffering great losses due to the treatment. In the last 6 months my mom's congnitive abilities have drastically declined. She has…
NHL survivor question
Hi, can anyone answer these questions? I know that John Cullen (professional hockey player) and LaShawn Johnson (professional football player) both were diagnosed with NHL and went through treatments then returned to their sports career. Do you know the types of NHL that they had? Also, Jimmy Carter's press secretary…
new diagnosis mom NHL
76 yr old mom progressed to spine and in bone any thing they can do? She was rushed today to hospital She cannot get out of bed?
Need Non-Hodgkin's Survivors
I was diagnosed with Stage IVA follicular large/small cell NHL which JUST started to spread to my intestines when we found it. I just finished chemo (CHOP & Rituxan) and have some MRIs next week and a trip to the doc on Thurs. There may be radiation involved, I'm not sure. I'll find out Thurs. I need info from NHL…
Someone please talk to me!
I was newly diagnosed with low grade NHL (Stage III) on Jan 7, 2003. I must admit that I have had a difficult time dealing with my questions, confusion, fear and anger about my diagnosis. Thank God, I have the most wonderful husband, family and friends by my side, but I find it more healing at times to chat with other NHL…
NEW CANCER SURVIVOR'S NETWORK!
Hi everybody, my name is Connor. I am a cancer survivor of 5 years. Throughout these past 5 years I have been devoted to helping the cause for a cure. I have participated in the Penn State Dance Marathon, a year-long money raising event for kids with cancer, and other cancer related activities. Now, I am trying to start a…
I Need to Know....
My best friend was diagnosed with NHL in 1989, has had many relapses, had an autologus BMT in 1995, clean for 3 years, then more replases. In Jan 2003 she was diagnosed with acute myloblastic leukemia. she was in the hospital for 7 weeks, had 2 chemo blasts, bone marrow shows remission now. However, chemo caused kidney…
NHL Stage 4 but not bulky
I was diagnosed 11/18/02 with SLL and I start the 5th of 6th treatments of Rituxan/Fludarabine in May. Lymphoma was found in 40% of my bone marrow and in my colon. Had a biopsy after 3rd treatment and there were no signs of it in my bone marrow and the lymphoma cells in my colon have "improved". Side effects have been…
HD survivor w/ questions
I am a survivor of HD that has been in remission for 6 years now. I was diagnosed in 94' with stage IV Hodgkin's, went through six monthes of ABVD chemo and have been relatively healthy since. I admire all you so much for continuing to fight and live with this disease. My question is this: Any of you who are in remission,…
Stem Cell Transplants
My husband was just rediagnosed with Hodgkins after 2 years. Doctors are recommending a stem cell transplant. I have seen the definitions of both the Autologous and Allogeneic Transplants. Can anyone tell me the advantages of each? We also have my 2 year old son's Umbillical Cord Stem Cells but have been told that they are…
Stem Cell Transplant Treatment Centers
My husband was diagnosed in April 2001. After Stanford V, Radiation and a Spleenectomy, he was in remission. We just heard last week that it is back and they are recommending a Autologous Stem Cell Transplant. Has anyone shopped around at different treatment centers? And if so, who do you recommend?
In remission 28 years!
Hi there, I am now 45 years old. I was diagnosed with Hodgkins at age 8, after a 10 year battle I beat it (with radiation). They tried some chemos at the time but honestly didn't know what worked. So needless to say I went through a lot of various treatments and testing. Would love to hear from others with similar…
Babies post HD?
Hi! I am 28, new to the site, and will be in remission for 5 years next week(!) from stage 1A Hodgkins. I was treated with radiation for 8 weeks to my neck, mantle, and abdomen, but sparing the pelvis. My husband and I have been trying to conceive our first baby for about 8 months, and am wondering if there are any stories…
EPOCH Treatment for NHL
Has anyone been part of a clinical trial for NHL patients and treated w/EPOCH (as opposed to the more traditional - CHOP)? I need your feedback. Thank you.
New to CSN
Hi I am from Monterey County, California and I am a survivor of Hodgkins Disease that I had twice and a bone marrow transplant using my own bone marrow. I was 16 when I was first diagnosed and I am 24 now and will be 7yrs remission May 28,2003 I was treated at Lucille Salter Packered Children's Hospital at Stanford. I am a…
Hodgkins
A discussion
CAT SCANS..an important question
I'm battling breast cancer, but the question is for my niece who has lymphoma. She went through 8 doses of chemo, then was hopitalized for a week because of a fever. She just had a CAT scan and there were three spots showing in her neck, abdomen, and groin areas. The doctor is puzzled and he's going to wait another 2…
Remission...how long will it last?
Hi, My name is Jake. I had Hodgkins 2a. I went through 12 Chemos and 4 weeks of raditaion. I was 17 when diagnosed, Now I am 18 years old. I have been in remisson for about 4 months. When I was told by the doctor that the lump on my neck was cancer, it had little effect on me. What got me was watching my mom cry in the…
hodgkin's survivor
hi everybody, I'm Erin, I'm new here so I thought I'd tell everyone a little about myself. I'm 17 right now, I'll be 18 in Sept. I was diagnosed when I was 14 years old (8th grade). I had three intense rounds of chemo therapy and 14 radiation treatments. I was pretty lucky considering my entire therapy only lasted a little…
Stem Cell Transplant
My Husband Todd is going to have a stem cell transplant within the next couple of months and we have to go to MD Anderson in Texas. I was just wondering if anybody has had this done or knows anything about it. If you could please write back. Thanks Ange
non hodgkins' lymphoma
I am a cancer survivor of l0 years of non hodgkins lymphoma. Is there anyone out there that continues after all that time to be frightened of their annnual cat scans or do you still have them. My messenteric lymph nodes have enlarged since the remission but they remain negative. I am very lucky to have survived for so long…
2 yrs and still sick
Hi everyone, I am new to this site. I just celebrated my 2 years yesterday of my last chemo - CVP/R. I am still sick. I fight EVERYDAY with nausea, fatigue and loss of appatite. Is anyone else having this problem. I go every 3 months for testing. The last (30 days ago) showed good blood but am loosing weight agian. I…
new to discussion
Hi, my name is Tasha. I am 23 years old and have been in remission for almost 4 years. I am currently going through my annual tests and check-ups. I am just looking for a group of people to talk with that have been through the things I have and can really understand what I am talking about. I hope to talk to some of you in…
newly diagnosed
Hi. I am so happy I have found this site and can read the experiences others have had. I was diagnosed with HD during the first week of March. I have a mediastinal mass that they say is pretty big. I was diagnosed stage IIb. I had drenching night sweats for about 2 months before being diagnosed. I visited my ob thinking I…
chemo induced early menopause?
Hi, my name is Dawn and I am new here. I am 35 and have been battling HD since '95. Have had ABVD, MOPP, ICE, Gemzar, radiation, my own stem cell transplant and most recently a donor BMT. All of the treatments have put me into early menopause. How do you deal with that? Do you have any symptoms? What HRT, if any, should I…
I'm Getting There!!
Hi, I'm a 20 year old that was diagnosed with Hodgkin's at the age of 11. I'm over halfway through remission and going strong! If anyone would like to talk and swap stories, or even has any questions at all let me know. I'd love to chat. Keep smiling!

Lymphoma (Hodgkin and Non-Hodgkin)

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