-
HD survivor w/ questions
I am a survivor of HD that has been in remission for 6 years now. I was diagnosed in 94' with stage IV Hodgkin's, went through six monthes of ABVD chemo and have been relatively healthy since. I admire all you so much for continuing to fight and live with this disease. My question is this: Any of you who are in remission,…
-
Stem Cell Transplants
My husband was just rediagnosed with Hodgkins after 2 years. Doctors are recommending a stem cell transplant. I have seen the definitions of both the Autologous and Allogeneic Transplants. Can anyone tell me the advantages of each? We also have my 2 year old son's Umbillical Cord Stem Cells but have been told that they are…
-
Stem Cell Transplant Treatment Centers
My husband was diagnosed in April 2001. After Stanford V, Radiation and a Spleenectomy, he was in remission. We just heard last week that it is back and they are recommending a Autologous Stem Cell Transplant. Has anyone shopped around at different treatment centers? And if so, who do you recommend?
-
In remission 28 years!
Hi there, I am now 45 years old. I was diagnosed with Hodgkins at age 8, after a 10 year battle I beat it (with radiation). They tried some chemos at the time but honestly didn't know what worked. So needless to say I went through a lot of various treatments and testing. Would love to hear from others with similar…
-
Babies post HD?
Hi! I am 28, new to the site, and will be in remission for 5 years next week(!) from stage 1A Hodgkins. I was treated with radiation for 8 weeks to my neck, mantle, and abdomen, but sparing the pelvis. My husband and I have been trying to conceive our first baby for about 8 months, and am wondering if there are any stories…
-
EPOCH Treatment for NHL
Has anyone been part of a clinical trial for NHL patients and treated w/EPOCH (as opposed to the more traditional - CHOP)? I need your feedback. Thank you.
-
New to CSN
Hi I am from Monterey County, California and I am a survivor of Hodgkins Disease that I had twice and a bone marrow transplant using my own bone marrow. I was 16 when I was first diagnosed and I am 24 now and will be 7yrs remission May 28,2003 I was treated at Lucille Salter Packered Children's Hospital at Stanford. I am a…
-
Hodgkins
A discussion
-
CAT SCANS..an important question
I'm battling breast cancer, but the question is for my niece who has lymphoma. She went through 8 doses of chemo, then was hopitalized for a week because of a fever. She just had a CAT scan and there were three spots showing in her neck, abdomen, and groin areas. The doctor is puzzled and he's going to wait another 2…
-
Remission...how long will it last?
Hi, My name is Jake. I had Hodgkins 2a. I went through 12 Chemos and 4 weeks of raditaion. I was 17 when diagnosed, Now I am 18 years old. I have been in remisson for about 4 months. When I was told by the doctor that the lump on my neck was cancer, it had little effect on me. What got me was watching my mom cry in the…
-
hodgkin's survivor
hi everybody, I'm Erin, I'm new here so I thought I'd tell everyone a little about myself. I'm 17 right now, I'll be 18 in Sept. I was diagnosed when I was 14 years old (8th grade). I had three intense rounds of chemo therapy and 14 radiation treatments. I was pretty lucky considering my entire therapy only lasted a little…
-
Stem Cell Transplant
My Husband Todd is going to have a stem cell transplant within the next couple of months and we have to go to MD Anderson in Texas. I was just wondering if anybody has had this done or knows anything about it. If you could please write back. Thanks Ange
-
non hodgkins' lymphoma
I am a cancer survivor of l0 years of non hodgkins lymphoma. Is there anyone out there that continues after all that time to be frightened of their annnual cat scans or do you still have them. My messenteric lymph nodes have enlarged since the remission but they remain negative. I am very lucky to have survived for so long…
-
2 yrs and still sick
Hi everyone, I am new to this site. I just celebrated my 2 years yesterday of my last chemo - CVP/R. I am still sick. I fight EVERYDAY with nausea, fatigue and loss of appatite. Is anyone else having this problem. I go every 3 months for testing. The last (30 days ago) showed good blood but am loosing weight agian. I…
-
new to discussion
Hi, my name is Tasha. I am 23 years old and have been in remission for almost 4 years. I am currently going through my annual tests and check-ups. I am just looking for a group of people to talk with that have been through the things I have and can really understand what I am talking about. I hope to talk to some of you in…
-
newly diagnosed
Hi. I am so happy I have found this site and can read the experiences others have had. I was diagnosed with HD during the first week of March. I have a mediastinal mass that they say is pretty big. I was diagnosed stage IIb. I had drenching night sweats for about 2 months before being diagnosed. I visited my ob thinking I…
-
chemo induced early menopause?
Hi, my name is Dawn and I am new here. I am 35 and have been battling HD since '95. Have had ABVD, MOPP, ICE, Gemzar, radiation, my own stem cell transplant and most recently a donor BMT. All of the treatments have put me into early menopause. How do you deal with that? Do you have any symptoms? What HRT, if any, should I…
-
I'm Getting There!!
Hi, I'm a 20 year old that was diagnosed with Hodgkin's at the age of 11. I'm over halfway through remission and going strong! If anyone would like to talk and swap stories, or even has any questions at all let me know. I'd love to chat. Keep smiling!
-
Side Effects
I'm a health psychology graduate student researcher looking at cancer treatments. I was curious if anyone could attest to a phenomenon known as a "signal effect" where individuals undergoing cancer treatments view side effects as a signal that the treament is working. basically, has anyone had the experience that side…
-
Newly Diagnosed
Help! I need to find best treatment. I live in the Minneapolis/St Paul area. I haven't even found an oncologist yet, I just found out yesterday. I'm male, 38 yo, married, with two beautiful little girls. Does anyone have any suggestions? We're scared, and worried about everything. Has anyone had better luck with going with…
-
Hello, anyone out there???
Hi, I'm 28 years old and was diagnosed with Indolent B-Cell NHL back in June 2000. I was relatively symptom free until last winter when my right lung filled with fluid. At that time I went through 6 rounds of chemo (CVP). I have been feeling better although can't help worrying about some sort of reoccurance. A lot of…
-
Going on 2 Years surviving
I'm a 17 year old girl, living in a small town in Michigan, I turned 15 on October 24th, 1999 and I expected it to be just another year. That was until November 5th, when I was diagnoised with Stage 2 A, Hodgkins Lymphoma. I was a odd case, my blood counts wern't abnormal, and I didn't FEEL sick. I just had a mass on my…
-
for vets of FMR
Hi, Has anyone with low grade b-cell lymphoma been treated with fludarabine/mitoxantrone/rituxan protocol? How effective a remission? Side effects profile? How did you tolerate it? I am scheduled to start this treatment soon, so any information would be greatly appreciated. Thank you in advance. Rich
-
Living With Hodgkin's
Hi, my name is Trisha and I currently have Hodgkin's Disease. I have had about 5 rounds of chemo, a bone marrow transplant, and some radiation, but to no avail the treatments did not work even though Hodgkin's is one of the most curable cancers there is. I have got to the point that the doctors have no more solutions or…
-
BEACOPP
Hello everyone. This is my first time on this site. I'm a 22 year old Hodgkin's survivor. I was diagnosed 4 days before my 21st birthday. I went through 6 months of chemo, and my last round was a year ago this month. When I was diagnosed I was in stage 4B. They said that radiation would do nothing, and there was a good…
-
Supercuts do the really support cancer?
Hi my name is Sandy Martinez. I was diagnosed with NH Lymphoma Stage 4 in April 2002. I am the mother of 3 and married to a wonderful husband. At the time of diagnosis I was a long time employee of Supercuts, a so called supporter of The Cure for Cancer. I was off originally due to a prior knee injury and discovered a…
-
New Nodes- Like Hodgkins but Not?
Has anyone experienced a new cluster of inflamed but benign nodes? I am 24 and had Hodgkins seven years ago and it was treated locally with radiation. I developed several new nodes this fall in a different area, and they were biopsied. After a month of tests on the biopsy sample, my docs determined the nodes to be "cousins…
-
33 weeks pregnant diagnosed with HD
Hi, new to the board. I was 33 weeks pregnant with my third baby (children ages 5 & 3) when I was diagnosed with HD, December of 2002. They took my baby a month early so I could start my treatments as soon as possible. I was stage 2B. Fortunately I had some really really awesome doctors. They moved quickly to diagnose and…
-
Light The Night Walk
Hello, for those of you interested please check out www.lightthenight.org for information on a walk in your area to raise money for the Lymphoma and Leukemia Society.
-
I am new here. I know someone who has NHL and they just had a relapse. I am the caregiver and I wond
The NHL patient is living everyday as their last, taking drugs, and is in isolation from me. I do not take drugs and I want to help this individual. What should I do? The will not let me talk with their doctor; instead they will me what the doctor tells them.