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dealing with loss
I recently lost my father to non hodgkins lymphoma. Although we knew this cancer would get the better of him (he had other health issues) we never expected it to happen so quickly. One week he was doing very well and the next, he passed away. I live in Italy and was not able to arrive in time to see him one last time. He…
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Hodgkin's Survivor
Hi, i'm a 26 year old Hodgkin's survivor! My story is long and complicated :) I have posted it on my personal web page here at the CSN. Basically I was diagnosed when my first daughter was 2 months old. I'd been having symptoms for 9 months. I was in the late stages. (someone asked a staging question before) my doctor…
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Relay for Life
We just had the Relay for Life in our town. What a great therapy for Cancer Survivors! I put my team together for last year's Relay, after going through treatment for my Hodgkin's. Last year my team made $2400... this year, we made $5775.00!!! The whole event for Traverse City, Michigan raised $166,000.00 for the American…
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Statistics
Does anyone have or know where to find the survivor statistics for NHL? If so please post information. Thanks!
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Survivor of NHL
Doctor said that I was terminal but its been 4 1/2 years and I am now in remission.! Don't give up hope. I'd love to hear from anyone going to their own trial and tribulations. My treatments consisted of CHOP (8 cycles), Dice (4 cycles), Rituxan (8 treatments), and several other combinations of drugs.
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In remission as of May 11, 2002
Hi, my name is Michele, 31 years of age, mother of a 22 month old boy, and I had non-hodgkins lymphoma, stage 1, diagnosed in November 2000. I had three chemotherapy treatments (CHOP) and 20 treatments of radiation. Before this all happened, I was a pretty healthy person, except when I returned home from my honeymoon in…
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Wondering about Radiation
My name is Holly and I have Non-Hodgkins Lymphma, of the agressive, diffuse large B cell type. I'm attending college right now, and somehow made it through even with the chemotherapy treatments. Right now, I'm unbelievably tired! I need to take 2 summer courses in order to start my nursing classes in the fall, but I am…
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1 Year Post Treatment Survivor
In January 2000, my own business was slow so I was working part-time as a furniture stripper in my friend's antique restoration shop. By February, a lump had appeared on my waistline and it made fastening my belt a little bit uncomfortable. My doctor said to observe it for a few weeks. In march, he sent me to a surgeon,…
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Hodgkins Cases in the Fox valley of NW suburbs near Chicago Illinois
Would like to research Hodgkins cases reported/treated in the Northwest Suburbs of Chicago. We are finding what we think is an abnormal number of cases and would like to investigate. Please e-mail me back with any info.
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neupogen
I tried taking a shot, and then two hours after its administration I passed out and fell down the stairs. There is a twenty minute period in which my mother told me that I was awake and talking afterward, but I have no recollection of that time. It's very rare, but you can have weird side effects from neupogen.
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Radiation
I am a 22 year old Hodgkin's survivor who just finished my last chemo treatment of ABVD January 11, 2002. I was a Stage II with a mediastinal mass. Every doctor has suggested radiation, but one did not. I opted to go with not having radiation. Is there anyone out there who has had chemo only?
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Neup - no problem
Hi, Thanks to everyone who gave me input and advice, especially about neupogen. I tried it again this week and have had no problems. My onc isn't sure why I had a bad experience the first time I took it, but I'm fine now, so on with the show!
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low back pain with NHL
Hi, I'm new to the group and am wondering if anyone else has experienced debilitating low back pain with NHL. My primary sites have been on my aorta and after treatment I had a 21 month remission, then it appeared in my paratoid gland. Again I underwent treatment and after a 6 month remission I again got it in the other…
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Cancer level?
I recently read someone message about their cancer level. I'm wondering, how can one tell what level they are/were at? With out asking the doctor. This person did a few chemo treatments and more radiation treatment. Is this the way to determan one's level? I did 16 chemo's (3 bags, 1 injection, every 2 weeks) and 19…
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need to start treatment
i forgot to mention i have sll/marginal zone which is not curable by standard treatments
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need to start treatment
hi, i was diagnosed with nhl about a year ago through a routine mamogram...i had absoluely no symptoms...i went to mamorial sloan kettering and was told to get periodic ct scans and checkups and wait a while to start treatment since there is no cure for this tpe and they like to delay treatment untio there are symptons…
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Hodgkin's Survivor
Hi Trisha, Don't you EVER give up!!! I hd Hodgkin's in 1993 (stage 3A), and again in 1994 (stage 5B). In November of 1994, I had an autologous BMT. High dose chemo for two days, and then lay in a bed for three weeks in isolation. Couldn't see my kids because they had colds. I never gave up. Three months after my transplant…
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NHL - coming to the end of treatment
I have NHL - Large B Cell, diffuse. I have had 6 rounds of Rituxan/CHOP chemo, and am down to my last 5 rounds of radiation. I am anxious to know that the cancer is gone but know I have to wait until June to go for the scans. It's so reassuring to read messages from people who are years into remission. How did you handle…
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Thyroid Problem???
I am in remission for Hodgkins Disease and one of the many side effects that my doctor mentioned is a Thyroid problem. I was wondering if anyone out there has this? I am curious because for the past several days my face has been rather puffy, I've been very tired. I was wondering if anyone had any of these symptoms as…
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On the dopwn side
Down to last treatment at months end.Cell type was an inbetween large and small,somewhat unique, so I am told.Bone marrow to follow to varify gone.Cure looks good
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recovery process
I am curious to see if any of the survivors of lymphoma are or have had problems with energy loss, fatigue, numbness or breathing problems as a result of your chemotherapy treatments. I am a mother of 3, 37 years of age and finished my chemotherapy in the end of November, 2001. I am still having problems with fatigue and…
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recient diagnosis
If you check back here I can be reached on ICQ at #706341, and roadrunner0342,on Yahoo messenge. My E-Mail is roadrunner0342@yahoo.com or roadrunner42@lcia.com. I have had this deasiese for over twelve years and will be happy to talk to you.
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oophoropexy?
I had a oophoropexy prior to my radiation treatment to preserve fertility. I'm curious if anyone else went through this? If so, what are the long term outcomes?
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Mini-Allogeneic Transplant
I was diagosned with Hodgkin's Lymphoma in July 1999 and have under went a Stem Cell Transplant in April of 2000. I was in remission for almost a year, but the cancer is back. I am now getting ready for another transplant, but this time it's a Mini Allogeneic Transplant. I was wondering if anyone here had any information…
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hodgkins recurrence survivor
I have survived adult hodgkins twice now--have been in remission for three years and suddenly find myself scared to death it is returning-
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Just diagnosed - starting Stamford 5
I have just been diagnosed with Hodgkins and am starting a new treatment called the "Stamford 5" on Monday. Has anyone else had this? Can anyone tell me what to expect? If you would like to email, my email address is LianeMJ@aol.com
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Changes in Taste
I had my last chemotherapy treatment on October 3. My taste, which went "off" during treatment has not yet returned to normal. How long does it take for taste to come back? I'm living primarily on angel hair pasta, Cream of Rice cereal, and hot dogs with sauerkraut. Not what I call a balanced diet. Can't taste salt, and…
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hello!
hi everyone. I am new to the group also, just wanted to introduce myself. I just finished treatment last week, but they have not declared me in remission yet. I am 19 years old and I am happy to be able to "discuss" with everyone
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Kidney Problem
Hello all, I am happy to have found you. Diagnosed in 1977 stage 2B, in remission in 1988 after MOPP and radiation treatments. Long term side effects: thyroid knocked out of whack and taking synthroid, susceptibility to flu, leaking heart valve and hole in the pericardium (sp?) the sac that holds the heart.., pre-mature…
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Migranes
My husband Todd had a Lumbar Puncture Last Monday and has been having Migranes since. He has tried alot but nothing seems to work and we have to get on a airplane as if that isn't bad enough. If anyone has any suggestions please write back!! Ange