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Lymphoma (Hodgkin and Non-Hodgkin)

I am a survivor, now what
Hi everyone: I was diagnosed with Non-Hodgkin's Lymphoma in September of 2000. I was sick six months prior to my diagnoses. However, my symptoms mirrored typical food allergies and I was sent to an allergist and put on Predisone several times. Finally, a third trip to my regular MD resulted in her insisting that I see…
Lymphoma and Infections
I am basically a care provider for my father who has Large B-cell Diffuse, and is being treated aggressively with CHOP and Rituxan. HOwever, I seems to have caught a cold. Do anyone have any suggestions on how I can minimize the chances of my dad getting infection from me, and me still being able to do stuff for him, e.g.,…
Children's wigs
Have a 4 1/2 year-old niece with Non-Hodgkin's Lymphoma. She's had 3 haircuts shorter and shorter to hide the baldness but eventually she will go completely bald and will be that way for over 2 years until she finishes chemo and recovers from it. I've heard of an organization that makes wigs for children and it's something…
Husband has Hodgkins
My husband was diagnosed with Hodgkins Aug 2002. He has completed 12 ABVD treatments, but the latest Pet scan shows activity in a gland that did not show activity before. He is considered unconfirmed remission. I am very worried that the treatments did not work since nodes in chest shrunk a little, but not to normal size.…
HIV
Is there anyone out there battling NHL and HIV? I have just finished treatment after 6 sessions of CHOP, a bunch of Rituxins, and a series of spinal taps. Scans are clear - all the disease is gone! But I'd really like to be in touch with others who have this double challenge. jsb
peripheral neuropathy
My husband is 14 months post stem cell transplant and suffers terribly from peripheral neuropathy in his feet. He has tried many medications, including Neurontin, but they do not seem to help. Is there anyone else out there who suffers from this side effect from chemotherapy? He becomes very fatigued from coping with the…
31 year old w/ T Cell Lymphoma
Hi there my fiance is also 31 years old and was diagnosed 12-11-02 with tcell lymphoma, he had 2 tumors, one in his chest, and one in his neck. He received CHOP (6 rounds) and was "cured"...both tumors were 100% gone. Now he is back in the hospital, (May 4) and we found out the lymphoma has spread to the lining in his…
Lymphoma & Nutrition
Hi, My husband was diagnosed with Stage 3 grade A Non-Hodgin's Lymphoma. He is feeling great. I have done lots of reading about cottage cheese and flax oil blended together with fruit and another long time survivor has a web site and will send you some really excellent information. For example: 1. ADEQUATE QUALITY…
CAAT
Hi everyone! As a public service announcement I want to let you all know about the promising cancer treatment called Controlled Amino Acid Therapy (CAAT). I have been volunteering there for 3 years and have seen and heard of many patients responding. I have even answered the phone and spoken to oncologists requesting our…
what does the stage mean?
hi, I'm new to this. Would just like to ask what does the stages mean in hodgkins diagnosis. Is stage 4 the most serious stage? what stage would be the terminal stage? Jaye
light in the tunnel appeared
Thank you all for all of your support, here is an update on my son. After fighting hodgkins since Feb. 2002, my son has just completed his radiation treatments. He is now living in a sober living home and in about 8 weeks will undergo a pet test and a ct scan to see if the cancer is still there. He doesn't seem as angry…
Hepatospenic periferal T-cell lymphoma
Hi,my name is Karen and I'm new to this. I found out I had this rare diease is feb.2002.I had 3 weeks of CHOP and found out it wasn't working. Then I tried Campath 1H(36 times).It work for a while,then I found out the cancer had spread to my lungs. I was admitted to the hospital once a month for 5 days of ESHAP.I did this…
hodgkin's disease survivor
Just a note to all of those who have been submitting notes of encouragement to this page. Thanks. I just "subscribed" and thus I will be able to share some of my experiences and hear the experiences of others. I look forward to talking with some of you out there in cyber-land. Jen (Hodgkin's survivor...diagnosed 1994)
Info on Scripps Clinic?
I am 32yrs old and was diagnosed with NHL in April. I'm searching for the right treatment for me and hoping to find someone that has had treatment done at Scripps Clinic in CA.
My Leukemia, Lymphoma, and HD Web Site
Hi Everyone, My name is Michael and I am a leukemia survivor. Was diagnosed with acute lymphoblastic leukemia Pre-B cell when I was 21. I am 29 now, and have been in remission for about 7 years. Actually, yesterday was my 8 year anniversary of my diagnosis!! 8 years, yeah! Anyway, I just want to let you all know about my…
5 times with lymphoma
Hi Everyone, I was wondering if anyone can help me figure all this out or has been though any similar experiences. My father has lymphoma... it started out a few years ago. Chemo and remission. Then it was back, and they did a bone marrow transplant. As he was recovering, they found it in his spine. He cannot walk and is…
resistant NHL
My husband was diagnosed last Aug, a week after we bought a house. The onc sounded positive and said he'd be staged, treated, and monitored. During the first week he was hospitalized with a chest tube, chemo started and I got another oncologist. He has gone through CHOP, and the tumor still did not shrink significantly. We…
nhl reoccurence
i have an instance of reoccurence of nhl w/back pain radi, got rid of that then a little leg paralisiys some tumors on the lower spinal nerves more radi it seems to be diong the job.
There is light at the end of the tunnel
For those of you undergoing treatments right now for NHL, it can get better. I just celebrated my 8th anniversary of my autologous bone marrow treatment. Yes, I have some residuals but I focus on the positives of life and refuse to dwell on my *problems*. I was diagnosed in 1994 with stage 4 T-Cell lymphoma. Spent a month…
Radiation
my son is 25 years old and was diagnoised in Jan 2002, with hodgkins, he was in stage v, after 6 months of ABVD, he was in remission, but then two months later the cancer was back, In march 11, 2003, he indured a stem cell rescue but the cancer was still there, in May 2003 he started 25 treatments of radiation so far he…
Tips for treatment
Hello Brethren Blood Cancer People, My name is Michael, and I am a survivor of ALL - acute lymphoblastic leukemia. It isnt the very same as HD, but many similarities. I was diagnosed at 21 yrs. I am now 29 years old and have been in remission for almost 7 years. In fact, this June 6th will be my 8th anniversary of my…
Losing my hair...
I'm 25 recently diagnosed with Hodgkins disease, I had my first round of chemotherapy 17 days ago and just yesterday experienced my hair beginning to fall out, more like thinning than clumps. I am stage IIA recieving ABVD. Did others experience hair loss, was it all your hair or just thinning. how long will it thin before…
CNS Lymphoma--long-term cognitive losses
My mom (only 54 years old) has Primary Central Nervous System Lymphoma. She has undergone various chemo treatments for over three years. Now, there is no sign of the tumor, but she is suffering great losses due to the treatment. In the last 6 months my mom's congnitive abilities have drastically declined. She has…
NHL survivor question
Hi, can anyone answer these questions? I know that John Cullen (professional hockey player) and LaShawn Johnson (professional football player) both were diagnosed with NHL and went through treatments then returned to their sports career. Do you know the types of NHL that they had? Also, Jimmy Carter's press secretary…
new diagnosis mom NHL
76 yr old mom progressed to spine and in bone any thing they can do? She was rushed today to hospital She cannot get out of bed?
Need Non-Hodgkin's Survivors
I was diagnosed with Stage IVA follicular large/small cell NHL which JUST started to spread to my intestines when we found it. I just finished chemo (CHOP & Rituxan) and have some MRIs next week and a trip to the doc on Thurs. There may be radiation involved, I'm not sure. I'll find out Thurs. I need info from NHL…
Someone please talk to me!
I was newly diagnosed with low grade NHL (Stage III) on Jan 7, 2003. I must admit that I have had a difficult time dealing with my questions, confusion, fear and anger about my diagnosis. Thank God, I have the most wonderful husband, family and friends by my side, but I find it more healing at times to chat with other NHL…
NEW CANCER SURVIVOR'S NETWORK!
Hi everybody, my name is Connor. I am a cancer survivor of 5 years. Throughout these past 5 years I have been devoted to helping the cause for a cure. I have participated in the Penn State Dance Marathon, a year-long money raising event for kids with cancer, and other cancer related activities. Now, I am trying to start a…
I Need to Know....
My best friend was diagnosed with NHL in 1989, has had many relapses, had an autologus BMT in 1995, clean for 3 years, then more replases. In Jan 2003 she was diagnosed with acute myloblastic leukemia. she was in the hospital for 7 weeks, had 2 chemo blasts, bone marrow shows remission now. However, chemo caused kidney…
NHL Stage 4 but not bulky
I was diagnosed 11/18/02 with SLL and I start the 5th of 6th treatments of Rituxan/Fludarabine in May. Lymphoma was found in 40% of my bone marrow and in my colon. Had a biopsy after 3rd treatment and there were no signs of it in my bone marrow and the lymphoma cells in my colon have "improved". Side effects have been…

Lymphoma (Hodgkin and Non-Hodgkin)

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