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Lymphoma (Hodgkin and Non-Hodgkin)

"metabolic damage"
I think you suspicions are correct. I have always been very active and work out and run all the time but my weights keeps going up. I finished my 6 months of ABVD and radiation in the last few monts and have been getting heavier. I suspect that all this **** they pumped into us messed up our metabolism. I am going to make…
to give u hope
No need to respond to this message..just want to share the good news. My 43 year-old niece was diagnosed with NH lymphoma (stage3)last July, and she just found out she's cancer-free. I got diagnosed with breast cancer Feb.,2003. We're both survivors!!!!!! Godd luck to all of you. Sue
Thank you
Thank you all for the encouragement. We will never give up. We live in southern california, and next week we have an appointment with City of Hope. One more question, Did anyone have headaches after radiation treatment was over?
question on vitamins, yoga, and the such....
I am 25. Completed 7 ABVD treatments and have 5 more to go. I am only now starting to feel more run down and was wondering if any of you take any supplements or vitamins to help you along the way. also I was looking into yoga classes, any thoughts on that helping??
I'm scared
I'm 36. I had hodgkins when i was 21, had chemo & rad. Then at age 26 I had a recurrence, had a bone marrow transplant. I'm scared because I've been having sweats lately and I wish I didn't panic everytime I don't feel well. I am going to go see my doctor but I worry about being told I have it "again". I have really sore…
Hodgkin's Survivor
Hi there! My name is Michelle. I was treated for Hodgkings from age 13 to 14, I received MOPP & ABVD. (ABVD was really awful & made me quite ill) Anyway, I'm now 26 & have been cured for over 12 years now & would like to connect with fellow Hodgkins survivors, or those who are newly diagnosed. I'm new to this site & I…
Thyroid
Hi, Sounds like we were on a similar schedule. I was diagnosed in August 2000 with 2B HD, had the night sweats, etc. It came back and I underwent a stem cell transplant last August. Because of the radiation to the neck and chest, my thyroid has since been slowly shutting down. Weight gain is one of the symptoms that the…
Diagnosed yesterday
Hi, I'm 24 years old and was diagnosed with HD yesterday. My staging isn't complete. I'm having a PET scan and CT scan next week to determine exactly what stage. My doctor has mentioned the Stanford V or ABVD treatment. I would love any thoughts or insights you have about either treatment. Thanks, Ilaina
Radiation longterm affects
I was wondering if anyone has had any experience with loss of saliva production due to radiation therapy? If so, what have you done about it? Or, has it really affected how you taste foods, and your breath? If anyone can help, please let me know!
First chemo treatment - is this normal?
Hi, I just had my first ABVD treatment yesterday. I was extremely scared and worried about all the side-effects. The treatment went smoothly and I began waiting for the sickness or effects to come. However, I still feel normal the day after treatment. I feel like the chemo isn't doing its job if I'm not getting any…
23-year-old survivor
I recently found out that I'm in remission. I was diagnosed last August, since then I've completed ABVD and radiation. I'd love to hear from anyone around my age who is or has been treated for this disease.
What happens after treatment
Hey guys. I was diagnosed with stage4 Hodgkins disease two years ago. I am now in my second year of remission, but I feel worse mentally then when I was treated. Throughout my entire treatment of chemo and radiation it was so hard to see my family cry. I decided to be strong and positive so there pain could be eased. Now…
I am a survivor, now what
Hi everyone: I was diagnosed with Non-Hodgkin's Lymphoma in September of 2000. I was sick six months prior to my diagnoses. However, my symptoms mirrored typical food allergies and I was sent to an allergist and put on Predisone several times. Finally, a third trip to my regular MD resulted in her insisting that I see…
Lymphoma and Infections
I am basically a care provider for my father who has Large B-cell Diffuse, and is being treated aggressively with CHOP and Rituxan. HOwever, I seems to have caught a cold. Do anyone have any suggestions on how I can minimize the chances of my dad getting infection from me, and me still being able to do stuff for him, e.g.,…
Children's wigs
Have a 4 1/2 year-old niece with Non-Hodgkin's Lymphoma. She's had 3 haircuts shorter and shorter to hide the baldness but eventually she will go completely bald and will be that way for over 2 years until she finishes chemo and recovers from it. I've heard of an organization that makes wigs for children and it's something…
Husband has Hodgkins
My husband was diagnosed with Hodgkins Aug 2002. He has completed 12 ABVD treatments, but the latest Pet scan shows activity in a gland that did not show activity before. He is considered unconfirmed remission. I am very worried that the treatments did not work since nodes in chest shrunk a little, but not to normal size.…
HIV
Is there anyone out there battling NHL and HIV? I have just finished treatment after 6 sessions of CHOP, a bunch of Rituxins, and a series of spinal taps. Scans are clear - all the disease is gone! But I'd really like to be in touch with others who have this double challenge. jsb
peripheral neuropathy
My husband is 14 months post stem cell transplant and suffers terribly from peripheral neuropathy in his feet. He has tried many medications, including Neurontin, but they do not seem to help. Is there anyone else out there who suffers from this side effect from chemotherapy? He becomes very fatigued from coping with the…
31 year old w/ T Cell Lymphoma
Hi there my fiance is also 31 years old and was diagnosed 12-11-02 with tcell lymphoma, he had 2 tumors, one in his chest, and one in his neck. He received CHOP (6 rounds) and was "cured"...both tumors were 100% gone. Now he is back in the hospital, (May 4) and we found out the lymphoma has spread to the lining in his…
Lymphoma & Nutrition
Hi, My husband was diagnosed with Stage 3 grade A Non-Hodgin's Lymphoma. He is feeling great. I have done lots of reading about cottage cheese and flax oil blended together with fruit and another long time survivor has a web site and will send you some really excellent information. For example: 1. ADEQUATE QUALITY…
CAAT
Hi everyone! As a public service announcement I want to let you all know about the promising cancer treatment called Controlled Amino Acid Therapy (CAAT). I have been volunteering there for 3 years and have seen and heard of many patients responding. I have even answered the phone and spoken to oncologists requesting our…
what does the stage mean?
hi, I'm new to this. Would just like to ask what does the stages mean in hodgkins diagnosis. Is stage 4 the most serious stage? what stage would be the terminal stage? Jaye
light in the tunnel appeared
Thank you all for all of your support, here is an update on my son. After fighting hodgkins since Feb. 2002, my son has just completed his radiation treatments. He is now living in a sober living home and in about 8 weeks will undergo a pet test and a ct scan to see if the cancer is still there. He doesn't seem as angry…
Hepatospenic periferal T-cell lymphoma
Hi,my name is Karen and I'm new to this. I found out I had this rare diease is feb.2002.I had 3 weeks of CHOP and found out it wasn't working. Then I tried Campath 1H(36 times).It work for a while,then I found out the cancer had spread to my lungs. I was admitted to the hospital once a month for 5 days of ESHAP.I did this…
hodgkin's disease survivor
Just a note to all of those who have been submitting notes of encouragement to this page. Thanks. I just "subscribed" and thus I will be able to share some of my experiences and hear the experiences of others. I look forward to talking with some of you out there in cyber-land. Jen (Hodgkin's survivor...diagnosed 1994)
Info on Scripps Clinic?
I am 32yrs old and was diagnosed with NHL in April. I'm searching for the right treatment for me and hoping to find someone that has had treatment done at Scripps Clinic in CA.
My Leukemia, Lymphoma, and HD Web Site
Hi Everyone, My name is Michael and I am a leukemia survivor. Was diagnosed with acute lymphoblastic leukemia Pre-B cell when I was 21. I am 29 now, and have been in remission for about 7 years. Actually, yesterday was my 8 year anniversary of my diagnosis!! 8 years, yeah! Anyway, I just want to let you all know about my…
5 times with lymphoma
Hi Everyone, I was wondering if anyone can help me figure all this out or has been though any similar experiences. My father has lymphoma... it started out a few years ago. Chemo and remission. Then it was back, and they did a bone marrow transplant. As he was recovering, they found it in his spine. He cannot walk and is…
resistant NHL
My husband was diagnosed last Aug, a week after we bought a house. The onc sounded positive and said he'd be staged, treated, and monitored. During the first week he was hospitalized with a chest tube, chemo started and I got another oncologist. He has gone through CHOP, and the tumor still did not shrink significantly. We…
nhl reoccurence
i have an instance of reoccurence of nhl w/back pain radi, got rid of that then a little leg paralisiys some tumors on the lower spinal nerves more radi it seems to be diong the job.

Lymphoma (Hodgkin and Non-Hodgkin)

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