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LAUNCH OF MILITARY CANCER SURVIVORS' DISCUSSION
After a little cajolling, I have convinced the CSN that there is a need for a discussion for military cancer survivors. The purpose of this discussion is to give military folks a safe place to go and ask questions about treatment, administrative issues, performance evaluations, etc. that are unique to military cancer…
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LAUNCH OF THE MILITARY CANCER SURVIVOR'S DISCUSSION
After a little cajolling, I have convinced the CSN that there is a need for a discussion for military cancer survivors. The purpose of this discussion is to give military folks a safe place to go and ask questions about treatment, administrative issues, performance evaluations, etc. that are unique to military cancer…
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LPDD vs. TCRBCL
I was diagnosed about 2 years ago with either Lymphocyte Predominance Hodgkin's Disease OR with a T-Cell Rich B-Cell (Non-Hodgkin's) lymphoma. Apparently, this is a rare combination. I was treated with 6 cycles of CHOP under the theory that the more aggressive form was the one to treat.. CT scans every 90 days since the…
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Chemo effects/detoxifying???
I'm 1/2 way through my chemo-CHOP- and it's every 3 weeks. I find it increasingly difficult to deal with, possibly psychologically more than physically, but physically I feel awful for increasingly longer periods. Is there anything I can eat/ drink/do that will help alleviate some of the misery? Thanks!
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trying to inspire...
Hey folks. This isn't a message asking questions or looking for support and i feel kinda bad about it because everyone needs help and i wish i could provide it to all of you... i'm a 2 time cancer survivor and i've been trying to inspire people around the world. it's my calling in life i believe. i honestly do. i was once…
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very tired of drs and test.
3/20/03 was the start of another health problem for my daughter. with a bone growth problem both knees/legs - drs & three surgeries since age 2. now at the age of 15 she should be done with drs and enjoy life; she started the spring off with stage 3 hodgkins, neck,chest,spleen. and so the battle began. now after cheom/raid…
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bummed
I recently was told I'm in complete remission. I'm very excited to have my life back- in fact since the cancer I even got married but for some reason I've been feeling so depressed. I went through this before and have since started taking antidepressents, I've felt pretty good since then until lately. I know that this is…
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There is a light at the end of the tunnel
I am a 23 year old college student. I was diagnosed with Hodgkin's disease (stage 2B extra nodal) immediately following my Freshman year, during which I apparenly had the disease. I left school for a year to undergo Chemo (ABVD), 12 cycles. During this time I managed to carry 21 credits over 2 semesters at a local college…
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my own research
Hello Everyone! I am doing my own amateur *research* on the types of medicines and chemotherapy people have had or are currently taking. If you wouldn't mind giving me the names and even the dosage, but I will settle for just names of meds, I would really appreciate it! Please dont worry about spelling :-) You can email me…
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Just wanted to vent
My name is Doreen, I was diagnosed with Hodgkin's Lymphoma in March of 2001. I had been recently married to a wonderful man and knew that we could get through anything. I went through 12 sessions of ABVD, got extremely sick and of course lost my hair and stayed in bed pretty much all the time. After it was all said and…
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I think it's back and I am terrified!
Hi all, I haven't posted on here...I could give you a range of excuses, but none really matter. I am a 24-year-old mom of two beautiful children and full time merchandiser and mystery shopper. My husband and I live with his parents in Oklahoma. I have been having some problems lately. I have had hot flashes/night sweats,…
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Allo man
thank you for your advice, My son is 25 years old he has a 6 year old son, he is doing everything to stay alive for his son. My son name is Danny. At a time like this you don't know if you are making the right choices, alternative, or more chemo that could kill him. The doctor said that a bone marrow transplant is out of…
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Final results
Today we went to the Doctor to find out the results from the PET test and the CT scan, The doctor had bad news, He said that the test showed that the lungs lit up and they found a new tumor in his abdomen. My son was diagnosed on Feb. 2002, and after going through ABVD chemo for six months, and then a stem cell rescue on…
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Alternative treatment
the Biopsy confirmed that my son still has cancer, the doctors say that he has a moderate aggressive hodgkins, after discussing all of the options(few), my son has decied to undergo more chemo, they hope to put him into remission where more options will be open to him. He only has a 5% chance of cure. We were thinking of…
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POST-TREATMENT AND NERVOUS
I was diagnosed with stage4A Hodgkins last September when I was three months pregnant. I went through six months of ABVD chemo for the remainder of my pregnancy and finally had a beautiful bouncing baby girl in February. I had six weeks off and finished with two more months of treatment and finally finished in May. My CAT…
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not the only one
finally-I'm not the only one! I finished 6 months of ABVD in Feb. 2003 and 1 month of radiation and I also keep gaining weight. I've gained 40lbs since I was diagnosed last August. I'm happy the cancer is gone but when is the weight gain going to stop, I feel like its out of control. I see my dr. tomorrow-I'm afarid to…
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After Treatment?
Hello, my name is Alison and I just found out today that my cancer is gone! I am very happy but I was not expecting to still be exhausted since I finished chemo in Nov and radiation in Dec. I have radiation pneumonitis which is a real pain because I am always short of breath and worn out. Now my heart always feels like it…
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follicular lymphoma
My Mom is 75 undergoing chemo for the first time.She has follicular lymphoma and her doc says there's no remission but that people can live for many years while dealing with this type.I believe it's stage III .Do any people in their 70s have any encouraging stories they can share? Thanks.
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"metabolic damage"
I think you suspicions are correct. I have always been very active and work out and run all the time but my weights keeps going up. I finished my 6 months of ABVD and radiation in the last few monts and have been getting heavier. I suspect that all this **** they pumped into us messed up our metabolism. I am going to make…
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to give u hope
No need to respond to this message..just want to share the good news. My 43 year-old niece was diagnosed with NH lymphoma (stage3)last July, and she just found out she's cancer-free. I got diagnosed with breast cancer Feb.,2003. We're both survivors!!!!!! Godd luck to all of you. Sue
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Thank you
Thank you all for the encouragement. We will never give up. We live in southern california, and next week we have an appointment with City of Hope. One more question, Did anyone have headaches after radiation treatment was over?
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question on vitamins, yoga, and the such....
I am 25. Completed 7 ABVD treatments and have 5 more to go. I am only now starting to feel more run down and was wondering if any of you take any supplements or vitamins to help you along the way. also I was looking into yoga classes, any thoughts on that helping??
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I'm scared
I'm 36. I had hodgkins when i was 21, had chemo & rad. Then at age 26 I had a recurrence, had a bone marrow transplant. I'm scared because I've been having sweats lately and I wish I didn't panic everytime I don't feel well. I am going to go see my doctor but I worry about being told I have it "again". I have really sore…
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Hodgkin's Survivor
Hi there! My name is Michelle. I was treated for Hodgkings from age 13 to 14, I received MOPP & ABVD. (ABVD was really awful & made me quite ill) Anyway, I'm now 26 & have been cured for over 12 years now & would like to connect with fellow Hodgkins survivors, or those who are newly diagnosed. I'm new to this site & I…
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Thyroid
Hi, Sounds like we were on a similar schedule. I was diagnosed in August 2000 with 2B HD, had the night sweats, etc. It came back and I underwent a stem cell transplant last August. Because of the radiation to the neck and chest, my thyroid has since been slowly shutting down. Weight gain is one of the symptoms that the…
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Diagnosed yesterday
Hi, I'm 24 years old and was diagnosed with HD yesterday. My staging isn't complete. I'm having a PET scan and CT scan next week to determine exactly what stage. My doctor has mentioned the Stanford V or ABVD treatment. I would love any thoughts or insights you have about either treatment. Thanks, Ilaina
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Radiation longterm affects
I was wondering if anyone has had any experience with loss of saliva production due to radiation therapy? If so, what have you done about it? Or, has it really affected how you taste foods, and your breath? If anyone can help, please let me know!
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First chemo treatment - is this normal?
Hi, I just had my first ABVD treatment yesterday. I was extremely scared and worried about all the side-effects. The treatment went smoothly and I began waiting for the sickness or effects to come. However, I still feel normal the day after treatment. I feel like the chemo isn't doing its job if I'm not getting any…
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23-year-old survivor
I recently found out that I'm in remission. I was diagnosed last August, since then I've completed ABVD and radiation. I'd love to hear from anyone around my age who is or has been treated for this disease.
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What happens after treatment
Hey guys. I was diagnosed with stage4 Hodgkins disease two years ago. I am now in my second year of remission, but I feel worse mentally then when I was treated. Throughout my entire treatment of chemo and radiation it was so hard to see my family cry. I decided to be strong and positive so there pain could be eased. Now…