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New and confused (response)
If three drs. have conferred that you have lymphoma--you need to formulate a plan of attack and get started. You can get info from the ACS also the Leukemia and lymphoma socity, and the LRFA. The LRFA has great books on treatment and new clinical trials. Since you are new to lymphoma, I would check into it and discuss…
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Itching like crazy
Hi, I've done 6 different regimes of chemo and immunotherapy and have had rashes each time. Chemo always stops them. Also, talk to the doctor--I used 2 prescriptions--one was periactin and I forget the other. Cortisone creams sometime help and Gold Bond over the counter gives some relief. Definitely work with a dr. I had…
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Hi, Im new and confused.
HI my name is Aly, Im 20 years old and live in Canada. Im not sure if this is the right place for me yet... I have Lupus and recently was told that my chest CT scan showed residual tissue in my mediatinum. Added to the fact that I have abnormally high wbc since November, and a blood smear showed abnormal lymphocytes. the…
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Finished treatment
Hi, I am new to the board. Just joined today. I am a 13 year survivor of large cell diffuse Non-Hodgkins Lymphoma. I had chemo, radiation and finally a bone marrow transplant in May of 1990. PLT I know all the aches, pains, weakness and sickness. However, let me assure there is life after cancer. I am 62 years old now and…
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Itching like crazy.....HELP!
Hi, my father is in stage 3 of lymphoma. His major syptom when the cancer is active is terrible itchiness. He has tried many, manhy different medications, but none of them has helped. He's tried allergy medicines, bath remedies, and the many medicines prescribed by his doctors. Anyone have a suggestion?
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Looking for Information
I have thyroid cancer, my sister was just diagnosed with lymphoma, not sure what kind yet. I have pretty much dealt with my diagnosis, 1/98. But I am not sure of the logistics for lymphoma. I would appreciate any information that I can get. Thanks in advance
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Hyper C-VAD
Just curious if anyone has had this type of treatment? I am having it next week and curious as to what to expect.
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rituximab and bexxar
you guys should be getting pretargeted radioimmuntherapy with monoclonal Abs. It is the cutting edge-less toxic and works better than conventional treatment.
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mediastinal mass
Has anyone else had this type of large b-cell lymphoma. How have things gone for you?
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Waiting for final scans
I have finished Chop, Rituxan, and radiation and am now waiting to have the scans to tell if I am without cancer. Wondering what the next course might be if I am not and how to get back into "regular" life if I am.
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LYNPHOMA Non-Hodgkin of the nose NK/ T phenotype
URGENT REQUEST FOR HELP: My name is KUMI - I live in Hong Kong and am suffering from LYNPHOMA Non-Hodgkin of the nose NK/ T phenotype Can anyone provide me with information quickly on this kind of cancer? I need information on resolved cases. My email is: maukumi@cpcs.net Thank you for any assistance
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Large cell Lymphoma...finished treatment...but, ouch!
I am a 50 year old female athlete who completed 6 cycles of CHOP chemotherapy and 3 1/2 weeks of radiation for a lymphoma in my abdomen on March 13th...it is taking me longer than i like :) to get back to feeling good!...i have developed aches throughtout my body...and i feel "brittle"...am wondering if anyone else shares…
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Stem Cell Transplant Experience
Hello Everyone. I was diagnosed in late 98 with Non-Hodgkins Lymphoma. After 8 cycles of CHOP, they decided to do a Autologous Stem Cell transplant. Unfortunately, after a year, my cancer had returned. Actually, now I have Hodgkins Disease. But if anyone is curious about or has to go through the transplant procedure and…
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done for a year
Hi, I've been done with chemo and radiation for a year now. Found a lump on my face shaving one morning. Had surgery, chemo, radiation. Not an expert on anything , but here to talk if i'm needed...Mongo
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chemotherapy side effects
Dear Kay, I am a physician who was diagnosed with follicular, Non-Hodgkins lymphoma about 2 years ago. I too have gone through the CHOP chemotherapy and all the horofic side effects that accompany these treatments. In fact after my very first treatment I became so ill with nausea and vomiting for nearly 72 hours that I…
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New to board, but have ?
I'm not new to my Non-Hodgkins Lymphoma (about a year and a half). Just new to to site. I have finished my radiation for a growth on my back, and undergone treatment for the lymphocites in my stomach, so everything should be great right?!? I am having trouble setting up my appointment for my review EDG. In addition to just…
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fatigue after radiation
if anyone still had fatigue 2 yrs after radiation for hodgkins please let me know,
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Newly diagnosed
Just found out I have lymphoma,do staging ext week.I'm a nurse but being on this end is totally different.Any help or ideas would be greatly appreciated..
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CNS lymphoma
My mother has been diagnosed with CNS lymphoma. I am really interested in talking with someone who has this type of cancer. Please e-mail me at dnslmodro@stargate.net
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effects of chemo
I was diagnosed with Anaplastic Lymphoma in Aug,2000. I will have my 2nd round of chemo on Mon, Oct 30. I have vomited quite a few times, and have lost tons of wt. I am a male,64 yrs old, avid jogger for 30 yrs,5'9", and now only weigh 120 lbs-used to be 155 earlier this year. I'm taking Compazine, which helps sometime,…
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1 year in Remission
I just had my 1 year check up yesterday, and everything looks good. I will know more about the bloodwork in 1 week. I really feel like its going to be alright, because I feel great!
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12 Years in Remission
I was diagnosed in 1988 with Stage 4B Hodgkins Disease that had spread to just about everywhere in my body including my bone marrow. I went through 3 MOPP and 9 ABVD treatments of Chemotherapy. It took 18 months to complete all the treatments because of the normal low blood counts and I had shingles and a bad reaction to…
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endless journey
i've been dealing with hodgkin's for 4 years now. i just need to find someone to talk to. i've been looking and couldn't find anybody to talk to. if you know of anyone let me know. thank you, kat5
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HELP
Can Hodgkin's Disease result from the type of chemo used for ovarian cancer?
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23yr old Hodgkins and happy to help
Hi Everyone, my name is Katie. I was diagnosed with Hodgkins disease last year at 22yrs old, right after graduating from college. I was stage 2B, and had a large mediastinal mass that qualified for bulky disease. I was given 12 ABVD treatments and 4 weeks of radiation therapy and just finished treatment last week (Yay!). I…
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I'm 17 with Hodgkins
Hi- I'm Erin, and I have hodgkins. I've had it for about 5 months now, and am very eager to talk to others with Hodgkins. I've had a rather rough time with chemo, and wouldn't mind taling to some people who truly understand what I'm going through. If you's like to talk, send me an e-mail or reply. Thanx! -Erin
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Recovery After Stem Cell Transplant
My husband had an autologous transplant six months ago and his counts haven't come back up. I was wondering if anybody else had this problem or know anything about it.
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Mini Allogeneic BMT...
Has anyone ever gone through a Mini Allogeneic BMT? I will be in April, and was hoping someone could give me some info on it. I did some research but I like to hear from people who may have expierenced it. I'm 28 yr old, female, & having already undergone an Autologous Stem Cell. Thanks!!
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chat time??
Anyone in this group interested in an attempt to schedule a group chat time. I am new to this group but definitely understand what everyone seems to be feeling. Seems like if we got together and live chat it could help everyone involved!
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New Member,,
Hi,, I am new,,,have NHL, just starting to learn more about it all... been reading email,, you all share, thanks that really helps me,, I have all these feelings,, it will help to share with another NHL PERSON,,, write , I need to build a network of great friends to share with,, Goodchatt.