The Cancer Survivors Network (CSN) is a peer support community for cancer patients, survivors, caregivers, families, and friends! CSN is a safe place to connect with others who share your interests and experiences.

Thank you for being a part of the Cancer Survivor Network community. Survivors and caregivers like you have played a unique role in fostering an online environment that encourages connection among those needing support, community, and education. On May 28, the Network will be discontinued. More details are available here . If you have any questions, contact CSNSupportTeam@cancer.org. Thanks again for the support you’ve provided each other over the years. We remain committed to supporting you in other ways throughout your cancer journey.

New Nodes- Like Hodgkins but Not?

vighe
vighe CSN Member Posts: 1
edited March 2014 in Lymphoma (Hodgkin and Non-Hodgkin) #1
Has anyone experienced a new cluster of inflamed but benign nodes?
I am 24 and had Hodgkins seven years ago and it was treated locally with radiation. I developed several new nodes this fall in a different area, and they were biopsied. After a month of tests on the biopsy sample, my docs determined the nodes to be "cousins of Hodgkins," but not true Hodgkins.
This experience has left me very wary of my docs, and also nervous as my nodes continue to fluctuate in size and tenderness.
I would really appreciate hearing if anyone has experienced the same thing. Thanks.
Like Care

Comments

  • dpomroy
    dpomroy CSN Member Posts: 135 *
    #2
    Wow, that would make me nervous too! I have had "spots" that they kept watching; some that ended up needing more treatment and later some that just went away on their own. Are you comfortable with getting a second opinion from another doctor? If it would ease your uncertainty it would be worth it.
    Like Care

Discussion Boards