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Living With Hodgkin's

tootybell
tootybell CSN Member Posts: 1
edited March 2014 in Lymphoma (Hodgkin and Non-Hodgkin) #1
Hi, my name is Trisha and I currently have Hodgkin's Disease. I have had about 5 rounds of chemo, a bone marrow transplant, and some radiation, but to no avail the treatments did not work even though Hodgkin's is one of the most curable cancers there is. I have got to the point that the doctors have no more solutions or treatments for me. It is now completely left in the hands of God. I would really like to hear from any of you that is currently coping with this disease or anyone who has had Hodgkin's. Your reply would really be appreciated! Thanks.
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Comments

  • dpomroy
    dpomroy CSN Member Posts: 135 *
    #2
    Trisha,
    When my family found out I had Hodgkins, my nurse mother and sister-in-law about jumped up and down they were so glad that it was Hodgkins. I, like you, expected that I would fall into the "good side" of the statistics and be cured by now. I went through 16 ABVD treatments and 5 weeks of radiation but my Hodgkins never really went away. I have just had my first ICE treatment and am hoping that this cocktail is the ticket to a cord stem cell transplant soon. I keep wondering how I could be so "unlucky" with regards to the statistics. If we hang in there long enough, will they be able to find a cure? If it helps to have someone to talk to, I'm here!
    Deb
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  • peepa
    peepa CSN Member Posts: 4
    #3
    I am sorry that you can't find anything to treat your cancer. Have you thought about trying visualization? I'm reading this book called " Love, Medicine, and Miracles" by Bernie Siegel. He discusses cases in which patients have healed themselves of cancer by imagining that their bodies are fighting the cancer.
    I also have Hodgkin's, so I imagine that my cancer is being eaten up by thousands of little Pacmen. My doctor thinks that I am helping the chemo along. I hope everything works out for you, and I will pray for you...
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  • adcox
    adcox CSN Member Posts: 3
    #4
    Trisha,

    Most important is to stay positive. I had Hodgkins also but they only gave me a 20% survival rate. And now I have been cancer free for 7 years. I never gave up. Keep the faith Trisha.
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  • j_mia
    j_mia CSN Member Posts: 3
    #5
    don't ever let it get you down. a strong will and good attitude will get you through. I know it is hard sometimes but there is hope. I am in my second year of remission. someday you will be too.
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  • cathyward
    cathyward CSN Member Posts: 1
    #6
    dpomroy said:

    Trisha,
    When my family found out I had Hodgkins, my nurse mother and sister-in-law about jumped up and down they were so glad that it was Hodgkins. I, like you, expected that I would fall into the "good side" of the statistics and be cured by now. I went through 16 ABVD treatments and 5 weeks of radiation but my Hodgkins never really went away. I have just had my first ICE treatment and am hoping that this cocktail is the ticket to a cord stem cell transplant soon. I keep wondering how I could be so "unlucky" with regards to the statistics. If we hang in there long enough, will they be able to find a cure? If it helps to have someone to talk to, I'm here!
    Deb

    hi trisha,my names cathrine and im 19 yrs old.when i first found a lump in my neck the doctors was treating me for swollen gland...5 months after they transfered me to a throat specialist,i had a biopsy and on the 10/10/01 i found out i had hodgkins disease, the next step was tho see if the cancer had spread else where.luckily it had only spread to my chest, after a few operation i began treatment(ABVD)...6 months down the line i had a scan and the doctors told me i had the all clear,me and my family was over the moon,my next appointment was to have my groshong line took out.That was when i found out the doctors had made a mistake the cancer was still there, i felt so angry and cheated, i thought i couldnt take any more chemotherepy but another 4 was required... i kept my chin up and told my self i was going to win this battle. 2 months on and im free of cancer and now in remission...i surpose the moral of my story is keep on fighting and never ever give up. i really wish you the best of look luv from cathy....if u ever want to chat to me just email me on cathrine.ward@talk21.com take care.x x x
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  • dawnmpm
    dawnmpm CSN Member Posts: 3
    #7
    Hi Trisha, my name is Dawn. I have been dealing with this since 1995. Had ABVD, MOPP, ICE, Gemzar, radiation, my own stem cell transplant and most recently a donor BMT. I am semi stable, but everyday there is more and more research all around the country. I hope you are in a support group, they really help me. Just never give up, you are very strong to have come this far.
    Keep your chin up. :-)
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  • trouter68
    trouter68 CSN Member Posts: 1
    #8
    Hi Trisha responding to your post in away makes me feel like I may have counted. I was diagnosed level 3b sept 19 of last year. I have not utilized these sites due to various reasons. But I am very fortunate. I took the stafford 5 program. And thus so far have made it. In the beginning I always said "in spite of myself I will live". I have a cat scan the 17th of this month. The program was experimental, but I try an stay ignorant as much as possible. That allows me to stay positive, malignancy is not an option. I didn't know that word 120 days ago. But I do know courage, determination, strong will, amongst a list that could go on and on. I am 34, father of a 15 yr old daughter. I guess what I am saying is you count. Keep your chin up, be stubborn and thank the doctors an nurses for doing their job.
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  • mommy1st
    mommy1st CSN Member Posts: 2
    #9
    cathyward said:

    hi trisha,my names cathrine and im 19 yrs old.when i first found a lump in my neck the doctors was treating me for swollen gland...5 months after they transfered me to a throat specialist,i had a biopsy and on the 10/10/01 i found out i had hodgkins disease, the next step was tho see if the cancer had spread else where.luckily it had only spread to my chest, after a few operation i began treatment(ABVD)...6 months down the line i had a scan and the doctors told me i had the all clear,me and my family was over the moon,my next appointment was to have my groshong line took out.That was when i found out the doctors had made a mistake the cancer was still there, i felt so angry and cheated, i thought i couldnt take any more chemotherepy but another 4 was required... i kept my chin up and told my self i was going to win this battle. 2 months on and im free of cancer and now in remission...i surpose the moral of my story is keep on fighting and never ever give up. i really wish you the best of look luv from cathy....if u ever want to chat to me just email me on cathrine.ward@talk21.com take care.x x x

    Hi, I was just wondering if you thought about or looked into legal matters concerning the delay of treatment by your original physicians. I had a similar experience with my primary doctor and then ENT (Throat DR). It wasn't until an outside Dr. came into the picture that my 1st X-ray was done. The rest happened quickly after that( diagnosis, treatment, etc.) Anyway, the reason I ask about the legal matter, is because my friends and family want me to bring legal issues against my 1st Dr.s for delaying treatment for approx. 5 months,,, and advise?
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