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How many cycles of CHOP did you have?
Hi Everyone! I am 24, and was dx with agressive, large B cell diffused NHL at the end of last year. After 4 cycles, I had the full round of tests, and to my surprise, the tests showed that I was in remission. My doctor advised to have 2 additional rounds of chemo even after these tests were clear. After 6 rounds, I'm very…
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Reoccurance
I'm 22 female with Hodgkins and finished my ABVD last November. Now I'm starting to itch again in the same way I did before I was diagnosed. I know this can be a seriouse and underestimated sign. I just had a CT scan and will find out what it shows on Monday but I have a question. How often does Hodgkins come back? Has…
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pregnant with non hotckins
im 24 years old and i was just diagnosed with non hodgkins b cell lymphoma. is there anyone else out there who was pregnant with this cancer? if so how did everything turn out?
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mydad
my dad has stage IIA non-bulky - nod. sclerosis, He is going to have his 3rd chemo treatment, he has to go the full six months of chemo, I thought with early stage fewer cycles were prescribed. My dad is age 70 and he was never sick a day in his life, he said he never felt so good in his life, he's a very positive person…
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How cautious do you have to be with NHL stage 4
Hi. My dad has NHL Stage 4 large Bcell lymphoma. He has had only one treatment, but says that his energy level is going up, and b/c he is a work-a-holic, he wants to start roaming around again, like going to the store, off to pay bills, bank, etc. But, I'm a little concerned b/c his WBC are like 1,700...and normal I think…
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Support
I am a 21 year old girl and I have Stage 2B Hodgkin's. I have had 6 rounds of chemo so far and have anywhere between 4 and 6 to go..that is depending on test results at the end of February. I am responding well to the medicine, so the prognosis looks good. But I am just sooo afraid of what lies ahead. I can tell that I…
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14 year's in remission
Hi, I was 17 the first time I had Hodgkins Disease. Treated w/radiation and had a reoccurance 2 years later then hit it with ABVD chemo. It've been in remission for 14 years. It's been good, had some problems with the thyroid from the radioation and can't have kids but It's worth it to be alive. I think my life has turned…
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Stay Positive
I was diagnosed in June of 2001 with NHL.I went through chop,and had the BMT done.I was down to 134 lbs,I now weigh 190 lbs.I have had 5 cat scans since treatment and the Dr has told me everything is fine.I still get stinkin thinkin at times any little ache upsets me.I just take it a day at a time stay positive and pray to…
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NHL
MY HUSBAND IS 48. WEE FIRT LEANED HE HAD NHL IN JANUARY 2000. IN 2001 HE WENT THROUGH THE CHOPP TREATMENT. NEVER REALLY GOT IN TO REMISSION JUST SLOWED THE CANCER DOWN. THE DOCTOR GANE HIM 2 TO EIGHT YEARS. SINCE HE NEVER GOT IN TO REMISSION WE HAVE NEVER ASK WHAT THE FUTURE HOLDS. HE WORK VERY HARD AND PLAYS JUST AS HARD.…
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NHL / Ritixan for maintenance after remission??? anyone with results please!
I have low-grade , stage 1 NHL . At age 39 I was in waitful watching for 6 months. Dr recommended rituxan to put in remission for 4-5 years. well, it lasted 6 months before I went into emergency chemo / chop therapy for 8 treatments. After a pet and cat scan , results showed completely resolved / remission. Went to Dr…
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my son with HD
My son was diagnosed with HD stage 2 October of 2002. He was 18 years old had just started his freshman year of college. He finished his 6 months of chemo in March 2003. He went through everything incredibly well. He always tried to have a positive outlook and was always acting more concerned about others rather than…
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I survived so can you!
I had Hodkins 26 years ago, I only had 4 weeks to live by the time I was properly diagnosed. with all the treatments, my humor and postive thinking I'm here at the age of 49 to help give support. you all can do it, it's a cureable cancer.
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just a few questions
hi all new here.29 year old male who has almost made it 5 years since treatments end and i have a few questions that i was hoping someone could help with.first off my dr was a jerk and i never was told what stage i was in but had 6 months worth of abvd.does the type of treatment they give help tell the severity and if so…
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surviving
Hello, I am a 25 year survivor of Hodgkins. when i was first diagnosed my son was 3 weeks old and there had been effective treatments for only one year! i was sure i was going to die and never see my son grow up. he is now 25 and a fine young man. one of the things i found most helpful was a book called "getting well…
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Stage 4 low-grade non-hodgkin's lymphoma
I am new at this all my resuls came in last week. I sure would like to hear from someone with the same. I am so scared, I have 2 children and I am on the watch and wait. I go for a bone marrow biopsy tommorow. I go back to the dr. Aug 1st, 2002. Someone out there please help me the do's and don't's on nutrician and…
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has anyone had a stem cell transplant?
after many rounds of chemo including chop and four rounds of rutuxin i didnt go into complete remission and now the doctors want me to have a stem cell transplant with full body radiation at fred hutchison medical center. i have to live in seattle in an apartment for up to three months after the initial hospital stay (3…
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Large Diffuse b-cell & over 60
Does anyone know of patients over 60, who have CHOP-R and radiation....and have been in remission for more than 2 years? Is this a bleak hope....or are there survivors out there? Thanks for any replies!
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relapse after stem cell
my mother has follicular large cell (stage 3) non-hodgkins lymphoma. She has a complete response to CHOP chemo, then relapse only 1 year later. She now needs treatment. Her doctors disagree about her next treatment -- one says chemo with rituxan, and the other stem cell. I'm looking for some statistics. Does anyone know…
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Itching and High Sed Rate
Hi, I have a very good friend who has been in remission from Hodgkin's for 4 years now - but in the last month or so he has had severe itching all over his body - and just an all over body pain. He went to his Oncologist for an exam - they did blood work and found that his Sed Rate was high - but told him not to worry -…
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Radiation nerve damage
Was diagnosed with lymphoma of the bone in my left tibia 9 months ago. Had 4 chemo sessions and 14 radiation treatments, ending 01/21/03. Have had pain and swelling ever since in my leg and foot. The foot pain is becoming crippling - the foot is numb on the outside but painfull in bed at night and hurts to walk on it…
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mantel cell lymphina
iam a 5 year from transplant and would like to talk to anyone about the side effects and the quality u have
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Scholarship
I was wondering if there were any scholarships for Lymphoma survivors that I could apply for, for college?
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Fear of recurrence
Hi everyone, I'm new to this so please bear with me. I'm 23 and a 2 year survivor of Hodgkin's. I've recently become more and more fearful of a recurrence. Intellectually it seems counterintuitive to be more scared the further out from the cancer I get, but yet this fear seems to be growing. I guess part of it is the…
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Looking for support
Hi! My name is Rebecca and Im 23 years old. I was diagnosed with Hodgkins in August as a stage 1b I believe (I was told I am between a stage I and II). I never had any symptoms, I had an x-ray due to a chest cold and it was found. Im suprised to see I have few true friends through this because most dont talk to me anymore.…
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HD Support
Hello, I'm 33 and I was diagnosed in June of this year with HD Stage II. I'm coming up on chemo #9 (out of 12) next week. I'd like to chat with other HD survivors/folks that are going through the same thing. I have a great/supportive husband and a beautiful 3 yr old daughter. But I am starting to feel like no one truly…
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itch
Does anyone out there know if a recurrence of the itch equals a recurrence of the Hodgkins? I am 12 months beyond ABVD chemo and radiation. Many symptoms/pains/fever have been ongoing since chemo, but now the itch is back. I'm very nervous that it means what it did the first time. This is an "itch" that resembles mosqitoe…
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What else can be done??? Non-Hodgkins (Diffuse Large B-cell high bulk Lymphoma)
Hello, I am trying to find out what else we can do. My friend has now been given only a few weeks. His history is below: On November 13, 2002 he was diagnosed with Diffuse Large B-cell high bulk Lymphoma. He had a large number of tumors in his chest, stomach, spleen, and down his backbone. He started chemo a week later. >…
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error in diagnosis
my wife was diagnosed with low grade non-hodgekins lymphoma two months ago and began a treatement regemin. She had been experiencing shortness of breath and the doctor said it is likely anemia, however when she got a chest xray it was apparent that one lung was alomst completely full of liquid...the doctor said she must…
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Test
Hi, This message is for Sarah M. I am having a hard time e-mailing you back and I would love to talk to you more about the testing and what some of the possibilities are of what it could be. I went to the oncologist today and she is talking with a neorologist to see what she thinks. I would like to have some information…
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Fish test
My sister is still waiting for a final diagnosis. Lymphoma is suspected but leukemia has not been ruled out. Can someone explain in layman's terms what a "fish test" is and what information that will provide that the other bone marrow tests did not.....why does this have to take so long....she was hospitalized on New Years…