thanks second treatment

vinny59
vinny59 Member Posts: 1,036 Member
edited March 2014 in Lymphoma (Hodgkin and Non-Hodgkin) #1
Thanks for all the words of support, the way I'am looking at this, is I got 25% of my treatments done and in the bag, I go tomorrow for the dreaded Neulasta shot, I'm beginning to feel that shot wrecks me more then the Chemo...hahahahahaha This compared to my last treatment for cancer which was head and neck is a lot better for me, mainly cause I'm not losing the weight and I have an appetite so far, I know things can change on a dime so time will tell. God Bless everyone and keep fighting the good fight!!!!! Vinny

Comments

  • COBRA666
    COBRA666 Member Posts: 2,401 Member
    #2
    second treatment.
    Vinny, I hope you don't have any problem with the neulastra. I have really been fortunate with the one I had. No pain or after effects. The chemo kicked my butt as you know. I go next week for my blood test to see if I am ready for round 2 or not. John
  • vinny59
    vinny59 Member Posts: 1,036 Member
    #3
    COBRA666 said:

    second treatment.
    Vinny, I hope you don't have any problem with the neulastra. I have really been fortunate with the one I had. No pain or after effects. The chemo kicked my butt as you know. I go next week for my blood test to see if I am ready for round 2 or not. John

    second treatment
    Its three am still can't sleep I don't know why. Anyway good luck with your blood test, you will do great, I have I good feeling, the neulastra must be helping you with your counts, good luck bro I will be praying for you! Vinny
  • dixiegirl
    dixiegirl Member Posts: 1,043 Member
    #4
    vinny59 said:

    second treatment
    Its three am still can't sleep I don't know why. Anyway good luck with your blood test, you will do great, I have I good feeling, the neulastra must be helping you with your counts, good luck bro I will be praying for you! Vinny

    3 Am
    Hey Vinnie

    It's the prednisone high. I used to be up all night watching movies for the first 3 days of treatments....I am normally in bed by 9.

    Hope you got some sleep last night, or rather this morning that is :)

    Take care,

    Beth
  • COBRA666
    COBRA666 Member Posts: 2,401 Member
    #5
    dixiegirl said:

    3 Am
    Hey Vinnie

    It's the prednisone high. I used to be up all night watching movies for the first 3 days of treatments....I am normally in bed by 9.

    Hope you got some sleep last night, or rather this morning that is :)

    Take care,

    Beth

    PREDNISONE
    Beth, yes that prednisone is something else. I was up and down all night for 2-3 days when on it. I am 16 days out of 1st round and the good days are pretty regular but still not 100%. I had blood counts done about a week ago due to lower back pain. Had to rule out the kidneys. Blood counts were good,but still not feel 100%. I wonder why? Is the chemo still working and destroying the cells. Any idea how long the chemo works doing its job? John
  • COBRA666
    COBRA666 Member Posts: 2,401 Member
    #6
    vinny59 said:

    second treatment
    Its three am still can't sleep I don't know why. Anyway good luck with your blood test, you will do great, I have I good feeling, the neulastra must be helping you with your counts, good luck bro I will be praying for you! Vinny

    SECOND TREATMENT
    Vinny, Prednisone can really play with you,did the same with me except I kept getting up all hours of the night. Lasted about 3 days and nights. Just wondering how the second round is going so far. I have seen where some people say the next day is pretty rough for them. I know we are all different, but some of the effects are about the same. My rounds are 3 weeks apart and 6 total treatments. I did notice my hair does come out when I run my fingers thru it, but not that bad yet. The good days are getting better, but not 100%. I assume its the treatment still doing its job, but do not know for certain. Take it easy and don't overdo anything. John
  • vinny59
    vinny59 Member Posts: 1,036 Member
    #7
    COBRA666 said:

    SECOND TREATMENT
    Vinny, Prednisone can really play with you,did the same with me except I kept getting up all hours of the night. Lasted about 3 days and nights. Just wondering how the second round is going so far. I have seen where some people say the next day is pretty rough for them. I know we are all different, but some of the effects are about the same. My rounds are 3 weeks apart and 6 total treatments. I did notice my hair does come out when I run my fingers thru it, but not that bad yet. The good days are getting better, but not 100%. I assume its the treatment still doing its job, but do not know for certain. Take it easy and don't overdo anything. John

    second
    Hey John,had my shot today, the second round was much better than the first, was out of there by three, better then 4:30, I do feel sick to my stomach this time, the Zofran is helping. Just bite the bullet and shave your head! hahahahahaha....Wish I could sleep can't, its only going to get worse because of the dam steriods I started taking again. I will not over do anything thing this time, keep in touch. Vinny
  • vinny59
    vinny59 Member Posts: 1,036 Member
    #8
    dixiegirl said:

    3 Am
    Hey Vinnie

    It's the prednisone high. I used to be up all night watching movies for the first 3 days of treatments....I am normally in bed by 9.

    Hope you got some sleep last night, or rather this morning that is :)

    Take care,

    Beth

    3 am
    no sleep yet, but I keep trying Beth hahahaha
  • kayebadoe
    kayebadoe Member Posts: 81
    #9
    vinny59 said:

    second
    Hey John,had my shot today, the second round was much better than the first, was out of there by three, better then 4:30, I do feel sick to my stomach this time, the Zofran is helping. Just bite the bullet and shave your head! hahahahahaha....Wish I could sleep can't, its only going to get worse because of the dam steriods I started taking again. I will not over do anything thing this time, keep in touch. Vinny

    Second
    I had my third yesterday. The lower back pain is from the Neulasta. Most of the blood cells are made in the hips. So thats what the pain is . I am tired, but still trying to do my regular activities (not exercise!) Haven't had any tummy problems but getting sleep is another story. I was up working at my sewing machine at 4:30 this morning.I haven't even napped.
  • vinny59
    vinny59 Member Posts: 1,036 Member
    #10
    kayebadoe said:

    Second
    I had my third yesterday. The lower back pain is from the Neulasta. Most of the blood cells are made in the hips. So thats what the pain is . I am tired, but still trying to do my regular activities (not exercise!) Haven't had any tummy problems but getting sleep is another story. I was up working at my sewing machine at 4:30 this morning.I haven't even napped.

    second
    Three down 5 to go!!!!!! way to go, sleeping is a problem!!! just think of everything you can get done!!!! hahahahaha I really feel lousy in the stomach, taking Zofran..... if the cycle is right again I will start feeling really bad on Monday..... Oh the joys of Chemo!
  • dixiegirl
    dixiegirl Member Posts: 1,043 Member
    #11
    vinny59 said:

    second
    Three down 5 to go!!!!!! way to go, sleeping is a problem!!! just think of everything you can get done!!!! hahahahaha I really feel lousy in the stomach, taking Zofran..... if the cycle is right again I will start feeling really bad on Monday..... Oh the joys of Chemo!

    Zofran
    Vinny,

    Sorry your stomach doesn't feel too good. Zofran worked really good for me. They also gave me compazine but it didn't work near as well as zofran did. Maybe if you call your chemo nurse and ask if there is something else that would work better for you?

    I feel for you, no sleep really sucks. Try taking benedryl, my onc let me take it for sleeping. Also acupuncture helped with my ability to sleep.

    Take care,

    Beth
  • Long Dawg
    Long Dawg Member Posts: 9
    #12
    vinny59 said:

    second
    Three down 5 to go!!!!!! way to go, sleeping is a problem!!! just think of everything you can get done!!!! hahahahaha I really feel lousy in the stomach, taking Zofran..... if the cycle is right again I will start feeling really bad on Monday..... Oh the joys of Chemo!

    Hang in there buddy.
    I just
    Hang in there buddy.
    I just had my second treatment yesterday, feeling low energy but still eating. Like you said the worst is yet to come but on the other side 2 down 4 to go.
    Hey Vinny what type of music do you like, I love to talk music.
    Steve
  • COBRA666
    COBRA666 Member Posts: 2,401 Member
    #13
    vinny59 said:

    second
    Three down 5 to go!!!!!! way to go, sleeping is a problem!!! just think of everything you can get done!!!! hahahahaha I really feel lousy in the stomach, taking Zofran..... if the cycle is right again I will start feeling really bad on Monday..... Oh the joys of Chemo!

    SECOND TREATMENT
    VINNY, we are thinking of you. Hope you don't have to much problems with the 3rd treatment. I will be going back this Tuesday for my 2nd round of r-cvp. Really not looking forward to it, but what can you do. Keep us posted and do the best you can. John
  • COBRA666
    COBRA666 Member Posts: 2,401 Member
    #14
    vinny59 said:

    second
    Three down 5 to go!!!!!! way to go, sleeping is a problem!!! just think of everything you can get done!!!! hahahahaha I really feel lousy in the stomach, taking Zofran..... if the cycle is right again I will start feeling really bad on Monday..... Oh the joys of Chemo!

    SECOND TREATMENT
    .
  • vinny59
    vinny59 Member Posts: 1,036 Member
    #15
    Long Dawg said:

    Hang in there buddy.
    I just
    Hang in there buddy.
    I just had my second treatment yesterday, feeling low energy but still eating. Like you said the worst is yet to come but on the other side 2 down 4 to go.
    Hey Vinny what type of music do you like, I love to talk music.
    Steve

    music
    I really like about everything, The Foo Fighters, to Dave Matthews, to Kenny Wayne Sheppard, Cold Play, Lenny Kravitz, and Trace Adkins to name a few.... I got about 100 tabs of different songs that I mess with. I have trouble of course with all the solo's just find it hard to get, only been playing about a year, but I love it!!!!!!!!!!!!!! You????
  • vinny59
    vinny59 Member Posts: 1,036 Member
    #16
    COBRA666 said:

    SECOND TREATMENT
    VINNY, we are thinking of you. Hope you don't have to much problems with the 3rd treatment. I will be going back this Tuesday for my 2nd round of r-cvp. Really not looking forward to it, but what can you do. Keep us posted and do the best you can. John

    second
    Thanks a lot John, keep fighting the good fight, it will all be over before we know it!!!! sounds good don't it!!!! hahahahahaha
  • vinny59
    vinny59 Member Posts: 1,036 Member
    #17
    dixiegirl said:

    Zofran
    Vinny,

    Sorry your stomach doesn't feel too good. Zofran worked really good for me. They also gave me compazine but it didn't work near as well as zofran did. Maybe if you call your chemo nurse and ask if there is something else that would work better for you?

    I feel for you, no sleep really sucks. Try taking benedryl, my onc let me take it for sleeping. Also acupuncture helped with my ability to sleep.

    Take care,

    Beth

    zofran
    Thanks Beth, my wife suggested the benedryl too..... I just can't see acupuncture as many times as we get poked with needles in a week!!! LOL
  • dixiegirl
    dixiegirl Member Posts: 1,043 Member
    #18
    vinny59 said:

    zofran
    Thanks Beth, my wife suggested the benedryl too..... I just can't see acupuncture as many times as we get poked with needles in a week!!! LOL

    Needles
    At least the acupuncture needles are painless....seriously they are so small you don't even feel them. You lay on a table in a dimmed room listening to very soft music and sleep or lay quiet for about 10-15 minutes and that's it. The needles barely even go under the surface. The benefit is great.

    Vinnie, I would take 2 hydrocodone, 2 benedryl, and one cyclobenzaprine (muscle relaxer) in order to sleep. I tried asking my onc for sleep aids and he told me what I was taking was good. Ask for sleep aids, your body needs it to heal.

    Take care!
  • COBRA666
    COBRA666 Member Posts: 2,401 Member
    #19
    vinny59 said:

    second
    Thanks a lot John, keep fighting the good fight, it will all be over before we know it!!!! sounds good don't it!!!! hahahahahaha

    SECOND TREATMENT
    Vinny, How are you doing today after the last treatment. Probably feeling tired and worn out I guess. Just checking to see how you are making out. Just take it easy, you don't want to use up all your energy overdoing anything. John
  • vinny59
    vinny59 Member Posts: 1,036 Member
    #20
    COBRA666 said:

    SECOND TREATMENT
    Vinny, How are you doing today after the last treatment. Probably feeling tired and worn out I guess. Just checking to see how you are making out. Just take it easy, you don't want to use up all your energy overdoing anything. John

    second
    Hey John, feeling alright, still sick to the stomach, I'm just waiting to see how I feel the next few days, Wednesday I get my blood work done, and probably another belly shot.....

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