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Lymphoma (Hodgkin and Non-Hodgkin)

How to announce my condition to others and deal with work
Hey, I finally got meet with the onc - I have stage IV Cluster B Hodgkins, have something outside my lungs and in my right pelvis and tailbone so will have bone marrow to check that out. Nevertheless, I will start chemo in 2 weeks. Will have shunt planted next Wed. Now I wonder - how to tell co-workers (already told my…
Chemo training today
Hi all, Just got back from chemo training and it was just great! Learned so much and I'm alot more comfortable about starting treatment. I got to see the Mediport that will be implanted and learned all about it. Looks like a purple beetle bug with a long tail. It will go in the left side of my chest...not the right side.…
Starting Treatment on Monday
Went to my doc today and we finally have a treatment plan. Just Rituxen every Monday for four weeks. I'm very fortunate that I don't yet need chemo. I have marginal zone in my lymph nodes and bone marrow and because I have symptoms she decided to treat, but only with Rituxen for now. We'll see how this works. I'm pretty…
Tomorrow morning
Bright and early I am off to the hospital for my Pet/ct. I am sure that all will work out, no mix ups like Tuesday. It really is a mixture of emotions for me. I don't want them to find any cancer, but at the same time, I do want them to have the answers to my symptoms. Not knowing is impossible. All of my symptoms are so…
blood work
Hi guy's, weekly blood work today, I'm feeling horrible like usual at this time, I'm a little nervous about my red cells, I just do not want to turn anemic, bad enough my white counts are always below one! Having trouble breathing and getting dizzy, which are all signs off low red blood counts..... hey what can you do…
Time to start treatment...UGH!
Hi all, What a morning! Went to my cancer doctor this morning and she felt a new lump on the right side of my groin. She also said the tumors in my neck have gotten larger and the lymph nodes under each arm feel swollen. I asked if she wanted to do a ct-scan to confirm and she said it wasn't needed...she could feel the…
Lingering chemo effects
My apologies if this has been addressed in a previous thread. I did a quick search but didn't see answers to my specific question. My 46yo husband just finished up 12 rounds of ABVD on June 30. By way of background, he was diagnosed with Stage IIB Hodgkin's at the end of December (right before Christmas). He began chemo…
Pet/ct update
Hi All, Today was the day of my scan. But, it did not happen. Was at the hospital for 2 hours trying to sort out a mix up. There was a mixup with the orders from the Dr. The ct part of the scan was to be with contrast, but it was not written correctly in the orders. So now I have to go back on Thursday and do this again.…
Monday morning sun
Hi all, Today is the first day in many weeks that we have sunshine in the morning. I hope that this is a positive sign of things to come. Our summer has been cool with morning overcast. Already August and today looks like it might be summer. Tomorrow is pet scan day and I am feeling scared. I know many of you have felt the…
How did round one go Tom?
Hi Tom...(TCvine).. Just checking in to see how your first infusion went yesterday. Keeping good thoughts that all is good.I start my first round next Thursday the 26th. Sue
Giving up/Staying Strong
Found out last night my Aunt just found out her cancer is back...again. Still Colon cancer, now in her bladder. ****. This is her third time around and her daughter told me she's tired of fighting it, I can relate it's my 3rd time too. This stuff just stinks. Then I come home from work today to news there is something…
Good laugh
Well, after feeling so down and then feeling much better, I made the angel food cake. I was feeling so happy about it. Timer goes off, cake is done. Looks wonderful smells great ! Angel food cake must hang upside down till it is cool. Took it out of the oven, hung it upside down on an old wine bottle. I then went upstairs…
Movers and Shakers !!!
This made me smile. Last night when the cake was baking, my daughter sent us a text message. She was out to dinner with my son in law and 13 year old grandson. The granddaughters stayed home. They wanted a quiet meal. So they went to this little Japanese sushi restaurant. They were sitting at the sushi bar enjoying their…
Attention merrywinner;
Hi I was looking for that post to John giving such a good explanation of how the Zevalin works. Went back through older files, but can't locate it. Could you tell me where it is. Looking forward to hearing how your appointment goes August 27. Britta
Weekend blues
Hi all, I was hoping you might have some thoughts about getting through the weekend. I find my husband watching me all the time. He says that I am scaring him. Tues will be here soon and the start of more to come. I know you have all gone through this, but I find some days harder and today is one of those days. We went out…
Any news yet John?
Hi John... Been thinking about your scan results...did you hear anything yet today? We are headed out this evening to a vigil service for a dear friend of ours who passed away suddenly on Sunday. It really caught me off guard and it's been hard for me to wrap my head around his death. He didn't have any major health issues…
Pet/ct Moving along
Now I have a date set for the pet/ct, this coming tuesday. The nurse told me nothing to eat for 8 hrs. I thought it was only 6 hrs. I am so hopeful that this will be bring some answers. I am trying to remain calm. but find it harder every day. Not sleeping enough and not eating enough. I've been trying some of your helpful…
Power Drink
I know most everyone has their own power food to help them with their hard times during treatment. I am sure they work for you or you wouldn't be using them. I have found the one that works for me is Ensure. It has all the nutrients required for the day in 3 cans. I never thought I would drink the stuff because I always…
5th Treatment
Good Morning everyone, getting ready to go for my 5th treatment, wow, time sure flys by when your having fun!!!!! LMAO!
2 different cancers ???
Still waiting for the pet/ct. Should be early next week. My pcp is now on board with thinking that symptoms look like lymphoma. I have received some blood results. My tumor marker for thyroid ca is elevated. So, this most likely means that I have some thyroid ca cells somewhere inside me. I have no thyroid and have had…
Upcoming CT Scan
Well I'm 5 1/2 months out of chemo, RCHOP, and 4 1/2 months since my last scan. My Onc wanted to wait until Sept to do my next scan. I wasn't comfortable waiting that long so I'm having my CTs this Friday. So now I'm getting nervous and wondering why I do this to my self. Last time we went 6 months I had my recurrance so…
Chemo, Camo and hair
So this thursday I get my 5th treatment, almost done. I have to say this has been a battle. Lets face it we are in a war! So that brings me to camo, I always wear it on chemo day and I wear it quite often. It reminds me that I am fighting for my life, we all are. Oh and my hair is growing, in fact now it itches and sticks…
Run Around
Hi All, Well I talked to the lady in hematology at the center today, she basicly told me that she could not help. So, I pushed and she sent my labs reports etc. to a different lady who works for the lymphoma Drs.( I thought she had already done that) The new lady called me and left a message. She said that I need a biospy…
pain medication that works
I haven't been online recently with any questions. But, each day I read the posts. After reading the posts, I say a prayer for each and everyone that submittedd the post. On one of the posts i read, someone posted a pain medication that really works. I tried finding the post, but was unsuccessful. At this time I have no…
free time stress time
Hi, just thought I would express myself. My daughter and two granddaughters just left. Now it is quiet with just me and my husband. How do you keep the stress and worry away at the quiet times.I really don't sleep well these days, mostly stay up very late, 1 or 2 in the am. My brain starts to think and then I get tense.…
Not Today!
Hi all... It just hit me earlier this morning that today was the day I was suppose to start chemo, before we decided to do the wait and watch routine. I don't know what got into me, but as soon as I remembered I decided I needed to do something constructive to celebrate my chemo reprieve...soooo...I washed all the windows…
more waiting
Just had a call from the cancer center. I sent over my labs and ct reports also a list of my symptoms. The gal said she will have the Docs look it over and then figure out if I need a hematologist or a lymphoma Doc. She said she will get back to me tomorrow. It's always TOMORROW. I'll keep you posted...
Connected to cancer
Hi All Just want to say that I find your courage, your bravery, your honesty, your kindness, your words, so inspiring. Thank you all ....
Blood Pressure before diagnosis
Hi, I was wondering if anyone had issues with high to very high blood pressure before you were diagnosed. I have been having trouble with high blood pressure for about six months. one time it sent me into a hypertensive crisis with an ambulance ride to the ER. It is now under control with meds. Just wondering if anyone had…
Vinny, Where you be man?????
Haven't heard from you in a while. Just wondering how things are going. Hope things are getting better for you. John

Lymphoma (Hodgkin and Non-Hodgkin)

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