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No more Dr visits
Hi All, I am sitting here having a quiet and very tired moment to myself. I sent the family out to a restaurant for dinner, we are having a heat wave, the first one of the summer. So no one wanted to cook. I thought I would let you know about this morning at the ortho dr. I was given a new injection into my knee but was…
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Dealing with bumps along the road
Last Tuesday, I had to cut off work abruptly due to headaches, vertigo and hot flashes. Since then they don't seem to go away easily. Had some good hours though. I am sure stress has to do with this because I had many tests this week in order to be ready by Tuesday for 1st chemo. Two days ago, I had port planted in - what…
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prednisone
i am on my 4th day of prednisone and one more to go. wow what horrible headaches i have gotten from this. anyone else have this problem? my dr. did give me a headache script thankgoodness.
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Trying to be strong
Hi All, I hope all of you had a lovely weekend. I managed to get through mine with out to many fears and tears. I do wonder what is next. I'll be thinking only good thoughts for those of you starting treatment this week. And for those who are in the middle of it, stay strong and positive. Lisha
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Zevalin treatment
Hello Hilde and Edwin and All on the board, It was good hearing from you Hilde(private message) and Edwin I am glad to see you are still here! How are you Edwin? Have you began treatment yet? I seem to recall reading a while back that you had began a treatment and if so I hope it is working for you. Hilde, I would like to…
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How are you doing tonight LIZ?
Hi Liz, Well...tomorrow is your "BIG" day! I hope you are trying to stay peaceful tonight. If you start to feel antsy or fretful tonight just get on here and talk about it...or e-mail me at reidst@charter.net. I'll be checking in all evening in case you need to talk. Hopefully you will go to sleep early and get a good…
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House cleaning party...I survived!
Wow...what a great day...great lunch, and great bunch of friends!!! The house cleaning part went real fast and from noon on we just ate lunch, played music, even danced some disco steps to the Bee Gee's... well...we sorta danced... we laughed our butts off trying to remember how to to do the bump and the hustle...ha! (that…
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Have not seen donald here
Hi Everyone: I am wondering about donald51, I am wondering how he is doing? I am fairly well. Have many problems but am dealing with this. I just still wonder about the treatment. I did the zevalin. I would love to hear from him and how he is doing. I hope you all are doing well. I go back to the Oncologist Sept. 1st. Then…
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COMPLETE REMISSION - PRAISE THE LORD!
Hi Everyone, Great news, had a CT last week and after six R-CVP treatments I am in CR! I am so thankful and can hardly believe it. However, I will have to do some further treatments to try and prolong remission. I had pretty much decided to do the Zevalin, when my doctor threw me a curve and said there was a new study…
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NHL FOLLICULLAR AT 60
Anybody out there diagnosed with follicular around 60 years of age. If yes how are things going for you? It is a scary time no doubt about it.Mine is stage 4 and will be starting r-chop soon.
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angioimmunoblastic non hodgkins lymphoma
My wife is in stage III B angioimmunoblastic non hodgkins lymphoma. She has had two chop chemo treatments. Wednesday she had a pet scan done. While she was having this done I was told by her doctor that she probably has 1 or 2 years to live. Friday they called with the pet scan results and said there were no signs of…
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WBC's and Treatment
Hey There, Can anyone tell me what their WBC's, especially Absolute Neutraphils were when your onc ordered anything to boost them? My Absolute Neutra count is 0.53; my onc likes it to be above 0.50; WBC's are 1.7 (last lab they were above 4.0). Next Wed, I have R-CHOP #4. I'm wondering if she's working conservatively.…
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How to announce my condition to others and deal with work
Hey, I finally got meet with the onc - I have stage IV Cluster B Hodgkins, have something outside my lungs and in my right pelvis and tailbone so will have bone marrow to check that out. Nevertheless, I will start chemo in 2 weeks. Will have shunt planted next Wed. Now I wonder - how to tell co-workers (already told my…
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Chemo training today
Hi all, Just got back from chemo training and it was just great! Learned so much and I'm alot more comfortable about starting treatment. I got to see the Mediport that will be implanted and learned all about it. Looks like a purple beetle bug with a long tail. It will go in the left side of my chest...not the right side.…
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Starting Treatment on Monday
Went to my doc today and we finally have a treatment plan. Just Rituxen every Monday for four weeks. I'm very fortunate that I don't yet need chemo. I have marginal zone in my lymph nodes and bone marrow and because I have symptoms she decided to treat, but only with Rituxen for now. We'll see how this works. I'm pretty…
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Tomorrow morning
Bright and early I am off to the hospital for my Pet/ct. I am sure that all will work out, no mix ups like Tuesday. It really is a mixture of emotions for me. I don't want them to find any cancer, but at the same time, I do want them to have the answers to my symptoms. Not knowing is impossible. All of my symptoms are so…
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blood work
Hi guy's, weekly blood work today, I'm feeling horrible like usual at this time, I'm a little nervous about my red cells, I just do not want to turn anemic, bad enough my white counts are always below one! Having trouble breathing and getting dizzy, which are all signs off low red blood counts..... hey what can you do…
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Time to start treatment...UGH!
Hi all, What a morning! Went to my cancer doctor this morning and she felt a new lump on the right side of my groin. She also said the tumors in my neck have gotten larger and the lymph nodes under each arm feel swollen. I asked if she wanted to do a ct-scan to confirm and she said it wasn't needed...she could feel the…
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Lingering chemo effects
My apologies if this has been addressed in a previous thread. I did a quick search but didn't see answers to my specific question. My 46yo husband just finished up 12 rounds of ABVD on June 30. By way of background, he was diagnosed with Stage IIB Hodgkin's at the end of December (right before Christmas). He began chemo…
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Pet/ct update
Hi All, Today was the day of my scan. But, it did not happen. Was at the hospital for 2 hours trying to sort out a mix up. There was a mixup with the orders from the Dr. The ct part of the scan was to be with contrast, but it was not written correctly in the orders. So now I have to go back on Thursday and do this again.…
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Monday morning sun
Hi all, Today is the first day in many weeks that we have sunshine in the morning. I hope that this is a positive sign of things to come. Our summer has been cool with morning overcast. Already August and today looks like it might be summer. Tomorrow is pet scan day and I am feeling scared. I know many of you have felt the…
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How did round one go Tom?
Hi Tom...(TCvine).. Just checking in to see how your first infusion went yesterday. Keeping good thoughts that all is good.I start my first round next Thursday the 26th. Sue
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Giving up/Staying Strong
Found out last night my Aunt just found out her cancer is back...again. Still Colon cancer, now in her bladder. ****. This is her third time around and her daughter told me she's tired of fighting it, I can relate it's my 3rd time too. This stuff just stinks. Then I come home from work today to news there is something…
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Good laugh
Well, after feeling so down and then feeling much better, I made the angel food cake. I was feeling so happy about it. Timer goes off, cake is done. Looks wonderful smells great ! Angel food cake must hang upside down till it is cool. Took it out of the oven, hung it upside down on an old wine bottle. I then went upstairs…
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Movers and Shakers !!!
This made me smile. Last night when the cake was baking, my daughter sent us a text message. She was out to dinner with my son in law and 13 year old grandson. The granddaughters stayed home. They wanted a quiet meal. So they went to this little Japanese sushi restaurant. They were sitting at the sushi bar enjoying their…
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Attention merrywinner;
Hi I was looking for that post to John giving such a good explanation of how the Zevalin works. Went back through older files, but can't locate it. Could you tell me where it is. Looking forward to hearing how your appointment goes August 27. Britta
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Weekend blues
Hi all, I was hoping you might have some thoughts about getting through the weekend. I find my husband watching me all the time. He says that I am scaring him. Tues will be here soon and the start of more to come. I know you have all gone through this, but I find some days harder and today is one of those days. We went out…
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Any news yet John?
Hi John... Been thinking about your scan results...did you hear anything yet today? We are headed out this evening to a vigil service for a dear friend of ours who passed away suddenly on Sunday. It really caught me off guard and it's been hard for me to wrap my head around his death. He didn't have any major health issues…
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Pet/ct Moving along
Now I have a date set for the pet/ct, this coming tuesday. The nurse told me nothing to eat for 8 hrs. I thought it was only 6 hrs. I am so hopeful that this will be bring some answers. I am trying to remain calm. but find it harder every day. Not sleeping enough and not eating enough. I've been trying some of your helpful…
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Power Drink
I know most everyone has their own power food to help them with their hard times during treatment. I am sure they work for you or you wouldn't be using them. I have found the one that works for me is Ensure. It has all the nutrients required for the day in 3 cans. I never thought I would drink the stuff because I always…