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Earthquake
Hi All, Well about an hour we had an earthquake. There was a very loud boom followed by the house shaking really hard. Lola was barking and I thought of you guys. I know we were just taking about earthquakes, and now we have one 3.8 mag on the anniversary date of the historic San francisco 1906 earthquake. A little bit to…
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Beth
Hi Beth, I just read your message to Lisha on another thred and it made me so sad for you. Don't you have someone to come and stay with you next week when your husband works out of town? Three straight days of chemo and as bad as it makes you feel, you really need someone to help out with the puppy and most of all keep an…
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everything hurts
Hi all, Just got back from a walk aroung the park with Lola. Everything hurts. I find it harder and harder to move. This is not good. Still having weird feelings in my hands. I think that tomorrow i will call the dr and get some advice. This really stinks. Do you ever have the feeling that something is wrong. Well that is…
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Ramping up
I am doing ok, but why is it when I actually am starting to feel better physically the emotional part of me that is dreading chemo this next week is ramping up? I have hit a couple times this week at work that I am just too darned uncomfortable with the scarf so I take it off. It seems odd that I am able to do that so…
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No sleep
Hi all, I am sure that you all are snug in your beds, sleeping like regular folks do. Me, I am wide awake and can not sleep. Not sure why. Thinking it may be stress or meds or who knows. Been having some weird tingling in my hands and some tightness in my chest. Trying to not worry and over think things. But, of course I…
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Sorry guys...
Hi guys, After my CT scan on Wednesday morning, I just sort of "shut down". I read all of your posts, but just couldn't find the Umph to jump in and respond...felt like my brain had turned to mush..if that makes any sense. Spent Wed and Thurs in a funk, but woke up today and said to myself "snap out of it Sue"...which I…
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Ramping up
I am doing ok, but why is it when I actually am starting to feel better physically the emotional part of me that is dreading chemo this next week is ramping up? I have hit a couple times this week at work that I am just too darned uncomfortable with the scarf so I take it off. It seems odd that I am able to do that so…
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Ramping up
I am doing ok, but why is it when I actually am starting to feel better physically the emotional part of me that is dreading chemo this next week is ramping up? I have hit a couple times this week at work that I am just too darned uncomfortable with the scarf so I take it off. It seems odd that I am able to do that so…
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Energy Level At It's Lowest
Looking for advice....my husband’s energy level is at its lowest. He doesn't sleep through the night, but this is nothing new. He always had problems with sleeping even before being diagnosis with NHL. Now after Chemo, all he wants to do is sleep all day. Yes, I know this is one of the side effects of Chemo. He may be good…
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Meeting in the middle
I would so love to meet everyone! I need the physical group hug more than any of you can imagine!! Here's a thought. How bout we meet in the middle? Kansas can't be more middle of the country can it LOL? Plus I'm about to trapped :) Just putting little bugs in everyone's ears.
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Anyone hear from Sue?
I know her appointment was earlier this morning, just wondering if anyone has heard from her yet? She's been on my mind all day today.
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Med change YUCK
Hi All, Just wanted to let you know that the new meds are so awful. I've been taking the zofran but just feel so yucky. Don't know how else to describe it. Any thoughts or advice. thanks guys.. Lisha
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Life Sucks
Hi peeps, Boy, I hate to complain about anything because some of you are having major health concerns but right now my life is sucky. I pretty much know what to do when I'm sick but as some of you know, I have a cat, Neo, who has been fighting lymphoma since Dec. IN Feb he was also diagnosed with skin cancer, treated with…
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Worried about John
Hi Guys, Steve and I just watched on the news showing the tornado damage in the Carolina's. John lives 14 miles east of Fayetteville N.C. Sure hope he checks in to let us know if he's ok. The whole area around where he lives looks to be having severe storms with tornado warnings and touch downs. Last report said 19 killed.…
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WOW!
I didn't realize I was AWOL for this long....so many posts and so much going on with everyone. I just wanted to pop in to say hello and try to catch up. There are so many posts I have to do a general message to wish you all well. Wherever you're at stay strong and keep the faith. My good wishes and prayers to all. I am…
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I'm Bald
Well my hair gave up the struggle this morning. I got out of bed and it was looking so frightening I tried touching it and way too much came out for my peace of mind. So I had Jim shave it off for me. I don't know about anyone else, but my hair was "hurting" and my scalp was very sore from the weight of the hair. I am glad…
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Sue, thinking of you
Hi Sue, I had started to worry about you , thanks for posting. My thoughts kept going to the scan and then not hearing from you. Thats not your normal to be away without saying so. Of course you can be away any time you like with out letting us know, but I knew something was wrong. I kept thinking that you must be so down…
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immune system damage
Anyone have permanent damage to their immune system due to treatments for NHL? My family doc thinks that is what is going on with me - have been sick off and on since November - as long as I'm on antibiotics I get / feel better - but as soon as the antibiotics are gone, I'm right back sick again with sinus-like issues.…
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Labs not so good
Hi All, Well, I received a call this morning form MD Anderson, the nurse for my onc was concerned about my recent lab results. She didn't like the numbers. They are wanting to do some adjustments with my meds. I really hate that. It seems that I just get used to one change and then they get changed again. I am still…
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Port pain sensations?
Is it normal to feel the port so strongly? I can feel the tubes and everything and it just seems so odd. I wonder if there is a problem with mine?
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Specialists Visit
Hi Peeps, On Monday I'm supposed to be in SF seeing my Lymphoma Oncology Specialist, staying over night and than seeing my Orthopedic Specialist on Tuesday. I've been having more pain than usual in my left hip so need to find out what's going on. I've had double hip replacement in 2006 so should not be hurting. After…
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New To Town
Hey all, I've been lurking around the forum for a shortwhile after I was just diagnosed with Stage 4 Hodgkins Lymphoma. I'm not so sure what to say so I'm going to go through my story so far - with telling your story being therapeautic and all. My first symptoms came upon when I was Studying in Japan last year - Tiredness,…
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Nervous about upcoming appt results
I was diagnosed 5/5/10 with stage IV follicular NHL. 6 rounds of R-chop only got me into "partial remission". I then did a clinical trial drug (Bexxar) in 11/10. I was told I would have a CT/PET scan in early February to see if that had worked. Orders got messed up and February came and went with no tests scheduled. Then…
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Hey Sue, how are you
Just hoping that this morning went smoothly for you. I know that I have not been posting as much, but do try and read as much as possible. I'm keeping good thoughts in my heart for your scan results. Let us know how your doing.. peaceful healing Lisha
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Work/Co-workers/Bosses and Cancer?
I got in trouble today guys. For not being 100% while I am at work and the strain it's causing for my co-workers. They would rather me stay home than to do the best I can while I am there. My timing is off. Not staying caught up and then they don't know when to help. I can barely stop crying and don't have the first idea…
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mechele23
did they get all of your husbands cancer and did he have to have chemo or rads i hope he doesnt have cancer, i really dont think he thinking clear. he things everything is mind over matter iguess all of those yearsinn the marines this is a something you really have fight by yourself my prayers are with you denise
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Questions to ask Oncologist???
I need advice for things to ask the oncologist I'll be seeing. To give a little insight, I have lymph nodes in my neck that are enlarged. One is just to the right of my throat (jugular node) and the second is a hard mass (retroauricular I believe is what they called it). These were confirmed on CT. I have had a third node…
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Maint Rituxan cancelled today
Hi guys, Well...got my labs done(looked fine) and after seeing my onc he decided to not do my Rituxan today until a new set of scans are done. He didn't like the swelling under my left arm or the tender area in the left breast tisue. He also checked the left side of my neck and said it was indeed swollen. Between the…
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CT guided Retroperitoneal Core Needle Biopsy
I do not have a diagnosis of lymphoma, nor am I a survivor, or in remission. Presently going through testing due to abdominal lymphadenopathy, found in the CT scan for appendicitis. ER radiologist said it was lymphoma, I'm hoping she's wrong. Last Monday I had my core needle biopsy. The needle was insert through my back.…
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Rituxin question
Hi all, Just a question. For those of you having rituxin maint, is it the same dose/strength as when you had it with cvp-r or chop-r. Just wondering. Lisha