Sorry that I haven been posting

Chris17
Chris17 Member Posts: 175
in Lymphoma (Hodgkin and Non-Hodgkin) #1
The last 6 months have been up and down with different things going on post chemo, been to urgent care several times , to the ER twice with kidney problems , been suffering severe sinus infections due to retuxin, and now for the last 6 weeks i have had a fever that wont go away and it seems that tylenol does not have a full affect, had numerous labs, blood cultures and x rays done and nothing is wrong my primary says i called me oncologist and saw her and now i am going on monday for a CAT scan and later that week for a sonagram,i dont understand that they say nothing is wrong, is having a fever for 6 weeks normal? My oncologist finally said there is a possibility that my cancer is back, and she will want a bone biopsy soon,first thing im thinking is here we go again,i was numb when i left her office,so i hope its not back and the scans can prove it is something else going on, will post more when i learn the results, and again im sorry for not posting in the last few months
Chris FNHL stage 3 hopefully still in remission
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Comments

  • allmost60
    allmost60 Member Posts: 3,178 Member
    #2
    So sorry...
    Hi Chris,
    I'm so sorry the last 6 mo's has been so difficult for you. Common sense tells me that running a fever for 6 weeks is absolutely NOT normal. I find it disturbing that your doctors let this go on for 6 weeks...one week in my opinion is enough time to show that something is going on in your body to raise red flags. With that being said, I'm glad to hear your doctors are NOW taking the needed steps to find out if your cancer has come back. This is something all of us have to live with the possibility of happening, and all we can do is watch and wait until symptoms appear and then deal with it. My heart hurts for you and can only imagine how scary this must be. Remember we are always here for you and will do our very best to give you comfort and support while you wait to find out. My best wishes, positive thoughts, and prayers will be with you. Take care, Love..Sue
    (FNHL-2-3A-6/10)
  • Chris17
    Chris17 Member Posts: 175
    #3
    allmost60 said:

    So sorry...
    Hi Chris,
    I'm so sorry the last 6 mo's has been so difficult for you. Common sense tells me that running a fever for 6 weeks is absolutely NOT normal. I find it disturbing that your doctors let this go on for 6 weeks...one week in my opinion is enough time to show that something is going on in your body to raise red flags. With that being said, I'm glad to hear your doctors are NOW taking the needed steps to find out if your cancer has come back. This is something all of us have to live with the possibility of happening, and all we can do is watch and wait until symptoms appear and then deal with it. My heart hurts for you and can only imagine how scary this must be. Remember we are always here for you and will do our very best to give you comfort and support while you wait to find out. My best wishes, positive thoughts, and prayers will be with you. Take care, Love..Sue
    (FNHL-2-3A-6/10)

    Thanks Sue, my onc called me
    Thanks Sue, my onc called me early the other morning to tell me another result was in , my liver enzymes are high and she wants an ultra sound done as well, tomorrow i go for the CAT scan and wednesday i go for the ultra sound,the fevers are still on going onc said just take tylenol like its a fix all, im really tired all the time,sleeping alot and i wont know whats going on until the end of this coming week, its aggravating, and depressing at the same time, and its not easy waiting around for an answer, will post more when i have results
    Chris FNHL stage 3 hopefully still in remission
  • forme
    forme Member Posts: 1,161 Member
    #4
    Chris17 said:

    Thanks Sue, my onc called me
    Thanks Sue, my onc called me early the other morning to tell me another result was in , my liver enzymes are high and she wants an ultra sound done as well, tomorrow i go for the CAT scan and wednesday i go for the ultra sound,the fevers are still on going onc said just take tylenol like its a fix all, im really tired all the time,sleeping alot and i wont know whats going on until the end of this coming week, its aggravating, and depressing at the same time, and its not easy waiting around for an answer, will post more when i have results
    Chris FNHL stage 3 hopefully still in remission

    Hoping
    Hi Chris,

    So sorry that you are having so many health issues right now. I have had periods of fevers for many many weeks in a row. It is so tiring and frustrating too. I hope that your onc will be able to find the problem and that it will be something fairly simple. The waiting is the hardest part. I've been waiting a long time. Lame..

    Hoping and praying you are still in remission. I'll be looking for your post on the results. Sending you positive energy for your scan and ultrasound.

    Peaceful healing
    Lisha
  • Chris17
    Chris17 Member Posts: 175
    #5
    forme said:

    Hoping
    Hi Chris,

    So sorry that you are having so many health issues right now. I have had periods of fevers for many many weeks in a row. It is so tiring and frustrating too. I hope that your onc will be able to find the problem and that it will be something fairly simple. The waiting is the hardest part. I've been waiting a long time. Lame..

    Hoping and praying you are still in remission. I'll be looking for your post on the results. Sending you positive energy for your scan and ultrasound.

    Peaceful healing
    Lisha

    I got the results from the CAT scan and the ultrasound shows nothing, but my onc wants a PET scan now as that is the test that found the cancer when i was diagnosed, she still wants a bone biopsy and im not sure i can handle that again, i told her that i want to be given twilight sleep or something similar, i was traumatized when i had the last one, so i will wait for the x ray people to call me and make the appt, i am so tired of scans and being jabbed with needles when i did the CAT scan last Monday when they inserted the IV they blew a vein, my arm hurts and is black and blue,and i know when i go for the PET i will be injected again( by the way i forgot to mention the vein they blew was the only working one i had left)does it ever end?Will post more as results come back, ty for letting me vent, was either vent here or curl up in a ball and cry.
    Chris
  • allmost60
    allmost60 Member Posts: 3,178 Member
    #6
    Chris17 said:

    I got the results from the CAT scan and the ultrasound shows nothing, but my onc wants a PET scan now as that is the test that found the cancer when i was diagnosed, she still wants a bone biopsy and im not sure i can handle that again, i told her that i want to be given twilight sleep or something similar, i was traumatized when i had the last one, so i will wait for the x ray people to call me and make the appt, i am so tired of scans and being jabbed with needles when i did the CAT scan last Monday when they inserted the IV they blew a vein, my arm hurts and is black and blue,and i know when i go for the PET i will be injected again( by the way i forgot to mention the vein they blew was the only working one i had left)does it ever end?Will post more as results come back, ty for letting me vent, was either vent here or curl up in a ball and cry.
    Chris

    Thats why we're here...
    Hey Chris,
    No curling up in a ball...just get on here and vent away. I'm so sorry you have to go through all of this. Do you have anything you can take to calm your nerves while waiting to get the tests completed? I sure hope so. Be sure they give you something before your bone biopsy...I swear I will NEVER get it done again without being knocked out. I'll have you in my prayers Chris...try to stay as calm as possible..I know, easier said than done. Much love...Sue
    (FNHL-2-3a-6/10)
  • Chris17
    Chris17 Member Posts: 175
    #7
    allmost60 said:

    Thats why we're here...
    Hey Chris,
    No curling up in a ball...just get on here and vent away. I'm so sorry you have to go through all of this. Do you have anything you can take to calm your nerves while waiting to get the tests completed? I sure hope so. Be sure they give you something before your bone biopsy...I swear I will NEVER get it done again without being knocked out. I'll have you in my prayers Chris...try to stay as calm as possible..I know, easier said than done. Much love...Sue
    (FNHL-2-3a-6/10)

    PET scan
    PET scan will be done next Wednesday at 8:45AM so another long wait to wait and see,i hate waiting so long,but i will try and be patient will give my arm a chance to heal for the injection.Will be glad when this is over, im tired, mentally and physically,but it is what it is, will post when the results are back from that.
    Chris FNHL stage3 hopefully still in remission
  • Chris17
    Chris17 Member Posts: 175
    #8
    Chris17 said:

    PET scan
    PET scan will be done next Wednesday at 8:45AM so another long wait to wait and see,i hate waiting so long,but i will try and be patient will give my arm a chance to heal for the injection.Will be glad when this is over, im tired, mentally and physically,but it is what it is, will post when the results are back from that.
    Chris FNHL stage3 hopefully still in remission

    PS
    Sue ty for your kind words means alot, i will be alright, i have made it this far.
    Chris
  • JoanieP
    JoanieP Member Posts: 573
    #9
    Chris17 said:

    PS
    Sue ty for your kind words means alot, i will be alright, i have made it this far.
    Chris

    Chris
    So sorry to hear about all you are going through. My husband's enzymes were high from taking tylenol with the shingles. I tell my Dr. I do not want to wait for results on a Pet scan. He calls within a day. I hope you hear good news soon!!!!!!! Take care and God's blessing at this difficult and frustrating time. Thinking and saying a prayer for good results.
  • Chris17
    Chris17 Member Posts: 175
    #10
    JoanieP said:

    Chris
    So sorry to hear about all you are going through. My husband's enzymes were high from taking tylenol with the shingles. I tell my Dr. I do not want to wait for results on a Pet scan. He calls within a day. I hope you hear good news soon!!!!!!! Take care and God's blessing at this difficult and frustrating time. Thinking and saying a prayer for good results.

    Waiting for results
    Well now the wait starts , i had the PET scan yesterday, the fever is still around, and my nerves are shot, will keep good thoughts as best as i can,Joanie thanks for your words of support means alot to me, soon as i know the results i will post.
  • allmost60
    allmost60 Member Posts: 3,178 Member
    #11
    Chris17 said:

    Waiting for results
    Well now the wait starts , i had the PET scan yesterday, the fever is still around, and my nerves are shot, will keep good thoughts as best as i can,Joanie thanks for your words of support means alot to me, soon as i know the results i will post.

    Waiting with you
    Hi Chris,
    Geez...still with the fever?? I can only imagine how shot your nerves are! Well...we are sitting here waiting with you and sending good thoughts and prayers your way. Hang in there friend. Much love...Sue (FNHL-2-3A-6/10)
  • dixiegirl
    dixiegirl Member Posts: 1,043 Member
    #12
    allmost60 said:

    Waiting with you
    Hi Chris,
    Geez...still with the fever?? I can only imagine how shot your nerves are! Well...we are sitting here waiting with you and sending good thoughts and prayers your way. Hang in there friend. Much love...Sue (FNHL-2-3A-6/10)

    Waiting
    Oh Chris,, I am so sorry you are going through so much right now. I understand completely how frustrating waiting is.

    I will keep you in my prayers honey and hope the fever breaks soon. Just rest when you can and know there will be answers soon.

    And BTW, cry if you want to, just make sure to stop after a short period of time and don't keep crying for days...you need to be able to see you know.

    Take care,

    Beth
  • Chris17
    Chris17 Member Posts: 175
    #13
    dixiegirl said:

    Waiting
    Oh Chris,, I am so sorry you are going through so much right now. I understand completely how frustrating waiting is.

    I will keep you in my prayers honey and hope the fever breaks soon. Just rest when you can and know there will be answers soon.

    And BTW, cry if you want to, just make sure to stop after a short period of time and don't keep crying for days...you need to be able to see you know.

    Take care,

    Beth

    Thank you Sue and Beth
    Thank you ladies for all your concern and good thoughts as i know you have your own battles to fight and i wish you good thoughts as well and lots of prayers hope i hear something by tomorrow as far as crying its a strange then i havent really cried since this all started back in April 2008, i guess im overdue,ladies again i thank you all and will let you know as soon as i hear anything.
    Chris FNHL stage 3 hopefully still in remission
  • miss maggie
    miss maggie Member Posts: 929
    #14
    Chris17 said:

    Waiting for results
    Well now the wait starts , i had the PET scan yesterday, the fever is still around, and my nerves are shot, will keep good thoughts as best as i can,Joanie thanks for your words of support means alot to me, soon as i know the results i will post.

    waiting and waiting
    Dearest Chris,

    You posted your post on June 2, Thursday. Today is Friday. I certainly
    hope you hear positive news before the weekend. If not, I would give my
    doctor a phone call. Hmmm, maybe not.
    My husband had a CT scan for his discomfort in his abdomen on a Thursday.
    On Friday our doctor called with the DX pancreatic cancer. Since he was
    at work, I decided not to tell him until Monday. I wanted him to enjoy the
    weekend, especially since he was playing golf on Sunday. Pancreatic Cancer
    is very rough, he passed away exactly 2 years later.

    Thankfully our Dx is treatable. No matter what the pet scan shows.

    I will look for your post. God speed. Love Maggie
  • Chris17
    Chris17 Member Posts: 175
    #15
    miss maggie said:

    waiting and waiting
    Dearest Chris,

    You posted your post on June 2, Thursday. Today is Friday. I certainly
    hope you hear positive news before the weekend. If not, I would give my
    doctor a phone call. Hmmm, maybe not.
    My husband had a CT scan for his discomfort in his abdomen on a Thursday.
    On Friday our doctor called with the DX pancreatic cancer. Since he was
    at work, I decided not to tell him until Monday. I wanted him to enjoy the
    weekend, especially since he was playing golf on Sunday. Pancreatic Cancer
    is very rough, he passed away exactly 2 years later.

    Thankfully our Dx is treatable. No matter what the pet scan shows.

    I will look for your post. God speed. Love Maggie

    Well PET scan is ok onc said but she wants to send me to a cancer center for a second opinion, she will see me tuesday for a final exam before she will refer me, so i still dont know what is wrong, but she said the only true way to see if its NHL is to have a bone biopsy, so im hoping that when i get to go to the cancer center i can ask about having it done under anesthesia, so again i will post after i learn more, it seems like it never ends, fever is still on going last check was 99.9 earlier was 100.0 this is week 8, im really tired of this , all i want is my life back the way it was but i know my life will never be the way it was before, all i want is to know what is wrong with me,ty for your reply maggie, means alot.
    Chris FNHL stage3 hopefully in remission
  • miss maggie
    miss maggie Member Posts: 929
    #16
    Chris17 said:

    Well PET scan is ok onc said but she wants to send me to a cancer center for a second opinion, she will see me tuesday for a final exam before she will refer me, so i still dont know what is wrong, but she said the only true way to see if its NHL is to have a bone biopsy, so im hoping that when i get to go to the cancer center i can ask about having it done under anesthesia, so again i will post after i learn more, it seems like it never ends, fever is still on going last check was 99.9 earlier was 100.0 this is week 8, im really tired of this , all i want is my life back the way it was but i know my life will never be the way it was before, all i want is to know what is wrong with me,ty for your reply maggie, means alot.
    Chris FNHL stage3 hopefully in remission

    I agree
    Dear Chris,

    I am so happy your oncologist said your pet scan looks OK. I will look for your post
    about Tuesday's doctor visit. Your oncologist looks like she is taking every precaution,
    that's good. 8 weeks of a low grade fever?? Is it possible there is a bacterial infection?

    Oh yes, please get anesthesia for the BMB. I have had only one BMB, and it was not pleasant.
    On Tuesday, get a prescription for anxiety medication. I know nothing about the anesthesia
    VERCET, but I saved this post from long ago. See what the doctor says? MAKE SURE WITH BONE
    MARROW BIOPSIES YOU HAVE VERCET GIVEN. I understand their is no pain, and no memory of BMB.

    Getting one's life back to normal. Oh yes, I understand how sad and tired you are.

    Hugs and all my love and prayers Maggie
  • allmost60
    allmost60 Member Posts: 3,178 Member
    #17
    Chris17 said:

    Well PET scan is ok onc said but she wants to send me to a cancer center for a second opinion, she will see me tuesday for a final exam before she will refer me, so i still dont know what is wrong, but she said the only true way to see if its NHL is to have a bone biopsy, so im hoping that when i get to go to the cancer center i can ask about having it done under anesthesia, so again i will post after i learn more, it seems like it never ends, fever is still on going last check was 99.9 earlier was 100.0 this is week 8, im really tired of this , all i want is my life back the way it was but i know my life will never be the way it was before, all i want is to know what is wrong with me,ty for your reply maggie, means alot.
    Chris FNHL stage3 hopefully in remission

    Ugh...waiting
    Hi Chris,
    Glad your getting the second opinion...certainly need to get to the bottom of this fever you have going on all of the time. I absolutely agree with Maggie about getting sedation for the BMB. There is no reason EVER having this procedure done without being sedated. Hang in there Chris...one of these days things will start to turn around for you...you just have to keep the faith. As always...my prayers are with you. Keep us informed dear.
    Much love to you...Sue (FNHL-2-3A-6/10)
  • Chris17
    Chris17 Member Posts: 175
    #18
    allmost60 said:

    Ugh...waiting
    Hi Chris,
    Glad your getting the second opinion...certainly need to get to the bottom of this fever you have going on all of the time. I absolutely agree with Maggie about getting sedation for the BMB. There is no reason EVER having this procedure done without being sedated. Hang in there Chris...one of these days things will start to turn around for you...you just have to keep the faith. As always...my prayers are with you. Keep us informed dear.
    Much love to you...Sue (FNHL-2-3A-6/10)

    Thanks Maggie
    Thanks Maggie for heads up on the Verced i will tell the Doc i will see for the second opinion and hope they will agree. Sue thank you so much for your prayers and good thoughts, thnaks to all who posted here, its nice to know that people still care which seems to be a rare commodity in todays society, again thank you all it means so much.

    Chris
  • miss maggie
    miss maggie Member Posts: 929
    #19
    Chris17 said:

    Thanks Maggie
    Thanks Maggie for heads up on the Verced i will tell the Doc i will see for the second opinion and hope they will agree. Sue thank you so much for your prayers and good thoughts, thnaks to all who posted here, its nice to know that people still care which seems to be a rare commodity in todays society, again thank you all it means so much.

    Chris

    Chris
    Dear Chris,

    I will look for your post Tuesday evening or Wednesday morning. Let all
    of us know what the outcome was.

    Good luck tomorrow, Tuesday. Same prayers going your way. Love Maggie
  • allmost60
    allmost60 Member Posts: 3,178 Member
    #20
    miss maggie said:

    Chris
    Dear Chris,

    I will look for your post Tuesday evening or Wednesday morning. Let all
    of us know what the outcome was.

    Good luck tomorrow, Tuesday. Same prayers going your way. Love Maggie

    Same here...
    Same here Chris...good luck tomorrow and I'll be waiting to hear whats up, right along with Maggie and everyone else. My prayers are also coming your way, along with some good positives vibes. Hang in there friend...Sue (FNHL-2-3A-6/10)
  • Chris17
    Chris17 Member Posts: 175
    #21
    allmost60 said:

    Same here...
    Same here Chris...good luck tomorrow and I'll be waiting to hear whats up, right along with Maggie and everyone else. My prayers are also coming your way, along with some good positives vibes. Hang in there friend...Sue (FNHL-2-3A-6/10)

    Back from doc appt
    Well i just got back from seeing my oncologist, she went over all results with me and told me that she cant find anything, so she made a referral for me to see a lymphoma specialist, she said he may see something shes missed or can maybe think of another test etc, i spoke with her about the Verced, she said that the doctor 3 doors down from her uses that for colonoscopies that he does and she will look into it as i told her that it can be given by mouth as well, she wasnt even aware of that,so hopefully she will use it for future patients she gets and they wont have to suffer, i will call the specialist tomorrow and make the appt, that way my doc will have time to fax my records to him,and get the ball rolling as to what is going on with me,thank you all for your concern and i will keep you posted on what will happen, im praying that i will find something out soon,i feel like im in limbo, but will try to keep good thoughts and be patient.


    Chris FNHL stage3 hopefully still in remission

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