bone pain with bendamustine

saltfox
saltfox Member Posts: 3
in Lymphoma (Hodgkin and Non-Hodgkin) #1
My wife is experiencing bone pain after her 5th round of bendamustine/rituxan. I have seen many reports of joint aches and pains on this board but not a discussion of bone pain. Does anyone have any thoughts on this? She has had Rituxan numerous times without any issues so we are fairly sure it is the Treanda that is causing it.

Comments

  • CountryGal7557
    CountryGal7557 Member Posts: 164 Member
    #2
    Flexeril
    after I described my 'bone pain' to a rheumatologist, she prescribed Flexeril 10mg before bedtime.

    turns out my "bone pain" was locked tight tendons/muscles around the ankles, knees, finger joints and even bottom of feet. the Flexeril relaxed the muscles/tendons.

    By the 3rd day of taking Flexeril, I was no longer in pain.

    turns out it wasn't achy joints or joint pain, it was the muscles or tendons that were tightening up to protect the bone for some unknown reason. brain was sending the wrong message.

    Try to get into a rheumatologist specialist who has treated other cancer patients (this is very important - I made this specific request of my reg. physian) and just explain exactly how it feels/hurts and hopefully you will get some relief.

    let us know how it turns out!
    Janelle
  • dixiegirl
    dixiegirl Member Posts: 1,043 Member
    #3
    CountryGal7557 said:

    Flexeril
    after I described my 'bone pain' to a rheumatologist, she prescribed Flexeril 10mg before bedtime.

    turns out my "bone pain" was locked tight tendons/muscles around the ankles, knees, finger joints and even bottom of feet. the Flexeril relaxed the muscles/tendons.

    By the 3rd day of taking Flexeril, I was no longer in pain.

    turns out it wasn't achy joints or joint pain, it was the muscles or tendons that were tightening up to protect the bone for some unknown reason. brain was sending the wrong message.

    Try to get into a rheumatologist specialist who has treated other cancer patients (this is very important - I made this specific request of my reg. physian) and just explain exactly how it feels/hurts and hopefully you will get some relief.

    let us know how it turns out!
    Janelle

    Flexeril
    So glad you are feeling better Janelle. Right now for a while my transplant doctors don't want me taking my flexeril on a daily basis. They also have taken me off several medications as they don't want my body having to deal with anything that isn't absolutely necessary.

    The only drug I refuse to stop taking is the Effexor and amazingly enough they haven't pushed it.

    Take care,
    Beth
  • CountryGal7557
    CountryGal7557 Member Posts: 164 Member
    #4
    dixiegirl said:

    Flexeril
    So glad you are feeling better Janelle. Right now for a while my transplant doctors don't want me taking my flexeril on a daily basis. They also have taken me off several medications as they don't want my body having to deal with anything that isn't absolutely necessary.

    The only drug I refuse to stop taking is the Effexor and amazingly enough they haven't pushed it.

    Take care,
    Beth

    Beth, you are soooo cute! I
    Beth, you are soooo cute! I love your new picture! =) Janelle
  • allmost60
    allmost60 Member Posts: 3,178 Member
    #5
    CountryGal7557 said:

    Beth, you are soooo cute! I
    Beth, you are soooo cute! I love your new picture! =) Janelle

    Dang it...I can't see the pic!!!!
    I can't see it on my computer...what is up with that?? I still see her cute doggie. Is there something I'm doing wrong, or a setting on my computer I need to tweek? I wanna see BETH!!!! ha! Hey Beth...post your picture on your expression page..(if you feel like it)...then I can see your sweet mug! Love you...Sue (FNHL-2-3A-6/10)
  • dixiegirl
    dixiegirl Member Posts: 1,043 Member
    #6
    allmost60 said:

    Dang it...I can't see the pic!!!!
    I can't see it on my computer...what is up with that?? I still see her cute doggie. Is there something I'm doing wrong, or a setting on my computer I need to tweek? I wanna see BETH!!!! ha! Hey Beth...post your picture on your expression page..(if you feel like it)...then I can see your sweet mug! Love you...Sue (FNHL-2-3A-6/10)

    Firefox
    Sue I had to download Firefox browser to be able to see the change. Don't know why I couldn't see it with Internet Explorer.

    Thanks Janelle, you are so sweet

    Beth
  • cookingirl
    cookingirl Member Posts: 183 Member
    #7
    dixiegirl said:

    Firefox
    Sue I had to download Firefox browser to be able to see the change. Don't know why I couldn't see it with Internet Explorer.

    Thanks Janelle, you are so sweet

    Beth

    Bone pain with Bendamustine
    Hi - finished 6 months of Treanda in April and did have arm, shoulder and neck pain the last few months. Dr. prescribed Naperson (?), an anti-inflammatory drug, but it hasn't helped much with the pain. Hoping it just goes away one day.

    I agree Beth - what a darling picture! Is that your mask your hand is on? You're so very young and beautiful - good to see your face! Fran

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