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APL
Hi I am 24 years old and was recently diagnosed with APL in October 2011. I have been hospitalized since then. They did a bone marrow biopsy and said everything looks good, and they are just waiting for my ANC counts to go up to 500 and as of yeaterday they were 100. Does anyone know roughly how long it takes for them to…
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APL
My daughter, 41, was diagnosed yesterday with APL leukemia. They are starting chemo today because it is so aggressive. Anyone out there know about this? What to expect with the treatment? I want to go to Orlando to be with her, but I still have five weeks of breast cancer chemotherapy to finish before I can go. Any help…
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AML November 2011 to August 2012
My sister in law passed away 8/6/2012. It was gut wrenching to see her and my husband say their good byes... she told him that she would be waiting for him when it was his time (he has lung cancer) so he wouldn't have to make his journey alone. He joked back that she was cutting in line as he was suppose to go first. He is…
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I'm 22 w/ ALL
Hi, my name is Danielle and i was diagnosed w/ ALL on 11/2/01 and I'm about to b on the 2 yr maintenance. I would love 2 talk 2 anyone w/ ALL or who has had ALL.
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18 year old with ALL
Found out my cousins primary was not brain cancer but actually ALL(Acute Lymphoblastic Leukemia) she has the possibility to die which scares me more than being eaten by a "dump truck bug". Wondering what can I do shes in the hospital now. Her leukemia mets to the ovaries and brain. I pray day and night everything will be…
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College student with ALL seeking support
Hello, My name is Sarah i'm 19 and i was just diagnoed with ALL about 4 months ago. I'm a college Freshman majoring in pre-med i was just looking for some support to help me through this very trying time. Thank you very much. Love Sarah
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XUELAN
You are a true gentleman, reasonable and understanding. Thanks for reading the article and taking the time to respond. Good health to you and your family.
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Chronic and Severe Anemia in 2 year old (please read if you have info)
I posted a question regarding severe and chronic anemia in a 2 year old under childhood cancers. If you might be of help, please check out my post and respond.
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Whooping cough vaccinations
My oncologist recommends I get vaccinated for pertussis. I am leery of doing so. I'm searching for advice and experiences to help my decision-making.
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What happens now after AML is in complete remission
My husband (32 years old) finished his AML treatment at the end of September after 5 rounds of chemo. He's fianlly in complete molecular remission. His cells were growing back very slowly but they are growing. First he was seen every week for blood tests. Now every month. Doctor said that after 6 months, his blood will be…
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Leukemia treatments
Hi! I have AML. I have gone through the first 30 days of treatment following with 4 other treatments, a week in the hospital every month. They are setting up my bone marrow biopsy, which HURTS me sooooooooo bad, as you know, surely. Let's say the biopsy comes back okay...what, if anything, do they usually do after? Any…
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lymphnode leukemia
my daughters fathers died of this kind of leukemia he was first told he had a flu and then thought he was having a heart attack and was taken to the hospital where he was taken to tisch hosp in manhattan 5 weeks later he died ho come all these other people live so much longer i dont understand they said they got rid of the…
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CLL chemo
I was diagnosed ten years ago with CLL that did not require any treatmant at the time. Through the years I was upgraded to stage 0 than stage 1. About 5 months ago I went in for a hernia operation which was stopped because of my blood count. I'm now at stage IV and started FCR chemo three weeks ago. I've been very sick…
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Gleevec after meals??
My fiance has been a remission CML patient for the past 5 years, recently he showed signs of relapse. About 0.03%, doctor feels its due to his irregular schedule of taking gleevec and not following the medicine instructions of taking it an hour after meals. Is this common? Should we been concern that is a sign of the…
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Persistent side effects from BMT for AML
I am over 10 months since my BMT for AML. My donor is from Europe. Neither of my siblings was close to a match. I have done very well over all. Surviving the inductions (2) and consolidation was more difficult that getting through the transplant, although the total body irradiation was not fun at all. I had 2 episodes of…
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CLL w/transformation to Large Diffuse B Cell Lymphoma
My husband was diagnosed last October with CLL by February of this year it has transformed to Large Diffuse B Cell Lymphoma. He just finished 6 rounds of R-Chop at the end of June. The transformation is a rare thing. Has anyone had this experience? He has testing today to re-stage the lymphoma and then we will see what the…
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ALL patient - what to do to build up white blood cells and Platlets (9000)
My daughter is now going through her second phase of treatment for ALL and had white blood cells went very low also platelets 9000. Any suggestions. tks June
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ALL PH+ adult survivors
Our son, ( early thirties) was diagnosed with ALL PH+ a few months ago. We were all set for a BMT when the donor fell through very recently. Since the bone marrow biopsy showed that he is in remission, he has chosen not to wait for another donor and pursue the transplant. he has a bad feeling about the due to the high…
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Does anyone know if ALL patient is qualified for disability??? Please let me Know
My daughter was just dx with ALL. How do we go about disability, and what do we do about her job. I am so confused and devasted, I don't know where to turn to for help in this matter. Thanks June
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Myelodysplastic Syndrome
Under discussion boards there was not a board listed for MDS or a board for blood cancers. However under the leukemia board I did find some older post re: MDS. Myelodysplastic Syndrome is one the least known of blood cancers as well as Myeloproliferative Neoplasms. If you ask the man on the street what is Mylodysplasia,…
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AML
my sister in law was diagnosed with AML in December, 6 months after my husband, her brother, was diagnosed with stage 4 NSCLC. She has had two rounds of chemotherapy administered 24/7. The doctor is now telling her that he has tried all the chemo he can on her and her only option is a clinical trial or go home and they…
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Pregnant Childhood ALL Survivor
Wondering if there is anyone out there who has been fortunate enough to survive and thrive after having ALL. I have been extremely fortunate in my life and am even married and expecting our first child aka ( alien nugget) in September. As lucky as I have been I still wonder what will be around the corner. I asked my OBGYN…
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To Twinkle 100 and others
My daughter was dx with ALL in November 2011. Horrible journey, she is just out of a serious sepsis infection that almost killed her. Do you have any information on how to avoid these infections in the future? Also I must commend you for being kind and taking the time to educate us. Fortunately, my daughter had many BMB…
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AML
Over 50 , have had two bone marrow transplants in last year. Still quite tired and neuropathy in feet and back. Would like to hear from anyone with similar experience.
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AML/ALL can you have both??
My mom was recently diagnosed with leukemia but they said her cells showed up with AML and ALL and that it is acting more like ALL but they are treating as if AML. I'm nervous and curious if anyone has ever heard of having both types?? She has been in the hospital for 6 weeks now and is waiting for her neutrophil and white…
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CLL diagnosed almost a year ago Watch and wait
Hi I was diagnosed about a year ago. I am now 40 and am a mommy to 3 little boys. I was scared out of mind last October when I came on this website. I got a lot of positive feedback from everyone here. I am doing well and on Watch and Wait/ See Active Watch ( i prefer the later). I have swollen lymph nodes on my neck and…
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Acute Promylotic Leukemia - AML
I was diagnoised with AML M3 in May 2011 , underwent 3 phase of Chemo for 3 months with 3 hospitalisation for 15 days first time and then 5 days each. Now maintenance is gonna start .Would like to connect with people who have undergone the same.
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APL and arsenic
Hi, I was recently diagnosed with APL on April 17th. I completed induction in the hospital (Idarubicin and ATRA) and started arsenic last week. I still have 8.5 more weeks to go and the nurses are having a hard time finding a line due to small veins. It takes the nurses a few tries and poking around to finally find a line…
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MDS progressed to AML in remission, now what?
My father has recently gone into remission ~5-7% blasts after his MDS progressed to AML. He is getting conflicting opinions...He received induction chemo at a BMT center (Shands at UF) with wanting the end result being a BMT. His dr at the BMT unit is recommending him carry on with consolidation and move forward towards a…
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Myelodysplastic Syndrome preleukemia
Hello my name is Nancy and I am 38 yrs. old. I was diagnosed with Hogkins Disease in 1996, I did a year of chemo. which put it into remisson, but three months later I was diagnosed with MDS. I eventually had a Allogeneic Stem cell transplant in Sept. 1999. And I basically have been doing pretty good I have not been able to…