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Leukemia

CLL plus Tumours to Spine and Brain - Chronic Lymphatic Leukaemia
Hi I am writing on behalf of my partner, who is female and was diagnosed with cancer of the ovaries approximately 7 years ago whilst pregnant. After delaying treatment to protect the baby she had an operation to remove the ovaries/tumour followed by a course of chemotherapy. She has been in remission ever since. On 29th…
Unsure
Hi everyone, frist can I say that I haven't be diagnosed with anything or might not be. I am experiencing some symtoms that I would like to share with you all and maybe get your feed back. I went to the doctor back in November with flu like symtoms and a lump on each side of my neck. She told me to come back after six…
CLL symptoms
I have just started chemo (BR) treatment for CLL which was diagnosed because of a knawing pain, discomfort in my upper abdomen, right under my rib cage. I also am experiencing a bloated stomach and can't put any pressure on my abdomen. My spleen is not enlared and liver appears normal in CT scans, so the doctors are…
T-Cell LGL Leukemia. Recently diagnosed. Need your help with FB support group.
Hello, I was diagnosed with T-Cell LGL (Large Granular Lymphocytic) Leukemia in May 2012. I soon realized that the disease being so rare as it is, there doesn't seem to be a consistent, reliable and easily accessible online place for support that is for and by the LGL patients themselves. I have taken an initiative to help…
26 year old AML patient - blood count of 0
Hi there, My 26 year old sister Laura was diagnosed with AML on 11/10/12 and started chemo four days later. We were told a few days after that she has type M4eo. We were told to expect her blood count to go up early last week and that she would be able to come home before her next round of chemo this week for a few days,…
Life after bone-marrow transplantation
Hi everyone. I wished that I had known about this web site 6 years ago when I went through the procedure. I might've made things a little less scary for me. I still go through some fears at times like not finding someone who can really relate on how it really is to live life after surviving leukemia and everything that…
Friend diagnosed with aggressive ALL starting chemo today
I am usually on the Breast Cancert thread, as I just completed 7 months of surgeries, chemo and rads for Stage 1 BC, so I've kindof been there and done that. One of the people who was most helpful to me through the process was the other admin here at work in my department. She constantly came to me and "marveled at my…
First Child Treated in Trial of T Cell Therapy for ALL
Check out this video on YouTube: http://youtu.be/pTQuZ2hWa-0 pretty cool!
Inravascular B Cell Lymphoma
My mom was diagnosed with Intravascular Lymphoma. I am on the discssion board for Lymphoma but her cancer is more of a Leukemia. It is in the blood. Her Chemo is R-CVP. If she gets stronger they will switch to R-CHOP. She has had a problem after her first treatment with SIADH, Syndrome of inappropriate antidiuretic hormone…
CLL
I still have CLL after chemo, a very small amount. I am still so tired even though I have stop my chemo about 6 months ago. I might have caught some thing, or this takes a lot longer then my doctor said I still have pain even more pain then before and more tired. I have a hard time getting help from my doctors. Did any one…
MY DAUGHTER FELL ASLEEP IN DEATH
After a year long of constant struggle, my beautiful daughter passed away on Monday November 26. I was there when she took her last breath. She went to sleep peacefully. May all of you on this forum be more fortunate in conquering this monster. Good health to all of you.
Post-Chemo Treatment - Platelets Fluctuating - A.L.L
Hello, I was diagnosed with ALL in 2009 at age 19. I went on a 3 year chemo treatment plan (no radiation and no BMT). I am now 23. I had an extended chemo plan because of my high risk of relapse. I have been in remission since March 2009. I have stopped all drugs since November 2011 as that was my last chemo pill that…
TO AML SURVIVOR WHO ALREADY MARRIED, NEED SOME ADVISED
Somebody here who had AML leukemia and had already married? Need some help, because i dont know what to do if doctor or test show me that im infertilized because of the chemo,drug and other.... im already in love with someone and planing to get married. i cannot bare to say to my partner about this,because she love to have…
Diagnosed w/APL Eff May '09--Arsenic Trioxide is HORRIBLE
I'm 60 yrs old diagnosed May '09 w/APL; in hospital 2-1/2 months last Summer. Do chemo MWFs each wk for 30 dayz at a time (over 8-11 wks). Can't do ATRA, so doing Arsenic Trioxide. Anyone out there doing this specific 'chemo' treatment & what are your side effects? Thanx.
Dad just diagnosed with AML
My dad was just diagnosed with AML yesterday and had his first chemo today. The chemo drug they are using is Vidaza for 7 days. He is 88 years old and feels like he will be able to resume a fairly normal life after this 7 days of treatment. My sister and I are in the dark because we have not been able to speak to his…
Bone Marrow Transplant Stories
My husband was diagnosed with APL last year. He went into remission for a few months it now has come back in his Central Nervous System. The doctors are now wanting to do a BMT with his own stem cells. If anyone could give me their experience with a BMT I would greatly appreciate it.
Diagnosed with ALL, PH+ at age 35
Hi everyone, I was diagnosed last month with Acute Lymphoblastic Leukemia and Philadelphia Chromosone positive. I am 35 now. I am so scared. The disease was accidently discovered after a visit to the ER due to abdominal pain. Currently undergoing HyperCVAD protocol chemo. I am terrified about the future. I have two small…
Any AML survivors age 60+?
My mom was just diagnosed with AML M4, Cytogenetically normal, still waiting on some other genetic tests. She's 69, physically very healthy, has been dealing with induction fairly well. She's worried about her age and would very much like to connect with people who had good outcomes in her age group. Anyone out there a…
Any survivors of ALL as a young adult out there?
I'm a 23 year old who was diagnosed with ALL a year ago. I'm currently on maintenance chemotherapy and I'm looking for survivors' stories from people who were diagnosed as a young adult. I would also like to share my story with anyone in a similar situation and encourage each other throughout our journeys.
Update---Hematomachrosis and CLL
I husband has had hematomachrosis for several years. Last week was diagnosed with CLL. Doctor says the CLL wouldn't kill him except for the hematomachrosis which would kill him in a year or two without taking out the blood. He has to have blood taken out every couple months but with the CLL they can't do it. They plan to…
XUELAN
Hi Xuelan: I remembered you were going to be tested this month. I hope all is well. Take care.
i dont know what to think
I recently went to a doctor an they ran a liver function Test a thyroid test an a arthritis panel an all 3 came back fine they also ran a cbc an my absolute nutrophil was 15,702. Absolute lymphosytes was 6,310.. an absolute monosites was 16,073... They are telling me that I have to go to a hemotologist an that I may have…
Hematomachrosis
I husband has had hematomachrosis for several years. Last week was diagnosed with CLL. Doctor says the CLL wouldn't kill him except for the hematomachrosis which would kill him in a year or two without taking out the blood. He has to have blood taken out every couple months but with the CLL they can't do it. They plan to…
Any ALL Survivors Out There Who Have Advice?
I was diagnosed with ALL last November. I have been in remission for a while now and am in the maintenance phase of my chemotherapy. I was taking Mercaptopurine for a few weeks when my counts started to drop. I have been off them for three weeks now and my counts are still dropping. They were stable for a week or so, then…
AML Low WBC's after a couple of years ?
Hi, I had a question for anyone out there who has had AML Leukemia and been in remission for a little while. My wife was diagonsed with AML M5 in Dec 2010 and went thru her induction and 3 rounds of consolidations from Jan-Aug 2011. She went into remission right after her induction in Dec 2010. She feels good now. She goes…
Bone marrow biopsy
My mom was diagnosed with CLL in 2004. Her numbers have been pretty good, so no treatment as of yet. But her most recent blood test came back with elevated numbers, and since her last biopsy was 4 years ago, they want to do another. She's really dreading it because she said it was horrible last time - wants to be given…
Acute Lymphoblastic Leukemia-Age 17
Hi, my name is Jessica Hawkins and my cousin Daniel was just diagnosed with A.L.L. at age 17. As if this wasn't bad enough, him and his family had been through this same exact cancer diagnostic with his sister at age 5 (around 7 years ago). They are at an all time low and need all the help they can get. However, the reason…
Dad post-BMT status
Hi, my Dad had a bone marrow transplant last July for leukemia. We were lucky enough to find that his sister was a match for the transplant. His latest checkup came up with some unfortunate news in that the percentage of cells of the donor have dropped to under 30 percent and it appears as though his bad cells are…
Philadelphia ALL in Adult 66 Years of Age
My husband has just been diagnosed with Philadelphia ALL. He is 66 years of age with heart condition and diabetis. Would like to talk to someone who has similar situation. We are looking at blood stem cell transplant. Literature tells us that there is a 10% chance if a sibling is the donor. So confused.
Dad got diagnosed with APL
Hello everyone, my dad recently got diagnosed with APL and is going through a hard time with it. He had just finished his second round of chemo but shortly went back in because of a high fever and spent a couple more days in the hospital. I'm the one who is taking care of him the most and try to keep him in a positive…

Leukemia

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