APL

JNunez87
JNunez87 Member Posts: 3
in Leukemia #1
Hi I am 24 years old and was recently diagnosed with APL in October 2011. I have been hospitalized since then. They did a bone marrow biopsy and said everything looks good, and they are just waiting for my ANC counts to go up to 500 and as of yeaterday they were 100. Does anyone know roughly how long it takes for them to go up? Also does anyone know the chances of the leukemia to come back with apl? I was told it is the most curable form of leukemia. I am just really nervous as to what happens when I get out of the hospital, and want peoples opinion. Thank you!

Comments

  • TanyaC97
    TanyaC97 Member Posts: 20
    #2
    Welcome. I know with me
    Welcome. I know with me each time my counts finally started to go up they usually climbed pretty quickly. Being stuck in the hospital is not fun and I am sure you can't wait to get out.
    Once you get out follow all the precautions they give you to keep safe from infections. Hand sanitizer, soap and disinfecting wipes are your new best friends and will be for a while. I was lucky that friends and family went through my house and gave it a through cleaning and then kept up with toilets and such for me while I was ill. I was really careful and kept masks and gloves handy too.
  • JNunez87
    JNunez87 Member Posts: 3
    #3
    TanyaC97 said:

    Welcome. I know with me
    Welcome. I know with me each time my counts finally started to go up they usually climbed pretty quickly. Being stuck in the hospital is not fun and I am sure you can't wait to get out.
    Once you get out follow all the precautions they give you to keep safe from infections. Hand sanitizer, soap and disinfecting wipes are your new best friends and will be for a while. I was lucky that friends and family went through my house and gave it a through cleaning and then kept up with toilets and such for me while I was ill. I was really careful and kept masks and gloves handy too.

    Thank you so much.. This was
    Thank you so much.. This was very helpful.. I hope my counts start going up soon..
  • Jaimi Marie
    Jaimi Marie Member Posts: 1
    #4
    Hi...The waiting is the hard
    Hi...The waiting is the hard part. I was diagnosed with APL earlier this year and have been in and out of the hospital since then. I am now getting ATRA and Arsenic daily but they are putting me back in the hospital again over Thanksgiving. I just cling to the knowledge that APL is indeed the best type of cancer to have if we are going to have cancer, and that will be cured. There are many others that are worse off than we are, which is sad, but I am a single mom with 3 kids, and I have to lean on the statistics that say we will beat this! Good luck to you! :)
  • ysabeltorres
    ysabeltorres Member Posts: 1
    #5
    Jaimi Marie said:

    Hi...The waiting is the hard
    Hi...The waiting is the hard part. I was diagnosed with APL earlier this year and have been in and out of the hospital since then. I am now getting ATRA and Arsenic daily but they are putting me back in the hospital again over Thanksgiving. I just cling to the knowledge that APL is indeed the best type of cancer to have if we are going to have cancer, and that will be cured. There are many others that are worse off than we are, which is sad, but I am a single mom with 3 kids, and I have to lean on the statistics that say we will beat this! Good luck to you! :)

    You're not alone
    To all the APL patients if you dont have a Facebook account get one. There is two social groups and it consists of all APL patients there are approximately 162 worldwide. Just post a question and you will definetly get a response. Excuse my penmensionship its sloppy. Well there is an APL patient who has been a 19yr survivor out of Beumont Texas and two women from Texas also both 12yr survivors. All patients have gotten different treatments but they've all survived it. If you get Facebook in the search bar type in Acute Promyelocytic Leukemia and there you will find the group.
  • Daddys_Girl123
    Daddys_Girl123 Member Posts: 3
    #6
    JNunez87 said:

    Thank you so much.. This was
    Thank you so much.. This was very helpful.. I hope my counts start going up soon..

    My husband was 33 when he
    My husband was 33 when he was diagnosed with APL. He went thru extensive chemo treatments in the hospital. Then he took chemo meds at home for a year and a half. He has been in remission since May 2008. His oncologist told me, if you have to have leukemia that APL is that kind you wanna have. The chances of getting in remission is like 95%. I wish you all the best! Cancer is a monster and affects so many of us, but stay strong..you can win the battle!
  • tinnieval@hotmail.com
    tinnieval@hotmail.com Member Posts: 7
    #7
    Jaimi Marie said:

    Hi...The waiting is the hard
    Hi...The waiting is the hard part. I was diagnosed with APL earlier this year and have been in and out of the hospital since then. I am now getting ATRA and Arsenic daily but they are putting me back in the hospital again over Thanksgiving. I just cling to the knowledge that APL is indeed the best type of cancer to have if we are going to have cancer, and that will be cured. There are many others that are worse off than we are, which is sad, but I am a single mom with 3 kids, and I have to lean on the statistics that say we will beat this! Good luck to you! :)

    Hello I first want to say
    Hello I first want to say wow you are super women to me I also have three children and apl I could not think how much harder it would be if I were a single.i hope you have many family and friends that help you through this.i hope you are well I would really like to know how you are.i am just now going to do chemo pills.
  • tinnieval@hotmail.com
    tinnieval@hotmail.com Member Posts: 7
    #8
    Jaimi Marie said:

    Hi...The waiting is the hard
    Hi...The waiting is the hard part. I was diagnosed with APL earlier this year and have been in and out of the hospital since then. I am now getting ATRA and Arsenic daily but they are putting me back in the hospital again over Thanksgiving. I just cling to the knowledge that APL is indeed the best type of cancer to have if we are going to have cancer, and that will be cured. There are many others that are worse off than we are, which is sad, but I am a single mom with 3 kids, and I have to lean on the statistics that say we will beat this! Good luck to you! :)

    Hello I first want to say
    Hello I first want to say wow you are super women to me I also have three children and apl I could not think how much harder it would be if I were a single.i hope you have many family and friends that help you through this.i hope you are well I would really like to know how you are.i am just now going to do chemo pills.
  • tinnieval@hotmail.com
    tinnieval@hotmail.com Member Posts: 7
    #9
    Jaimi Marie said:

    Hi...The waiting is the hard
    Hi...The waiting is the hard part. I was diagnosed with APL earlier this year and have been in and out of the hospital since then. I am now getting ATRA and Arsenic daily but they are putting me back in the hospital again over Thanksgiving. I just cling to the knowledge that APL is indeed the best type of cancer to have if we are going to have cancer, and that will be cured. There are many others that are worse off than we are, which is sad, but I am a single mom with 3 kids, and I have to lean on the statistics that say we will beat this! Good luck to you! :)

    Hello I first want to say
    Hello I first want to say wow you are super women to me I also have three children and apl I could not think how much harder it would be if I were a single.i hope you have many family and friends that help you through this.i hope you are well I would really like to know how you are.i am just now going to do chemo pills.

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