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T-CELL BREAKTHROUGHS - I READ THIS TODAY I WANTED TO SHARE
Cancer researchers worldwide are heralding the results of a "sensational" new study, in which a team from the University of Pennsylvania showed that a cancer patient's own immune cells can be genetically re-engineered to target and kill cancer cells. Though it's a preliminary study involving only three patients with…
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Any type of leukemia at time of diagnosis, pls help
Hi at the time of diagnosis of anytype of leukemia what were your blood values WBC neutrophils platelets etc or any other values that were red flag? Thank you and wishing everyone here remission and eventually cure..
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Campath LGLL
Does anyone have experience with Campath for LGL Leukemia? The side effects scare me. I need to know if I will be able to work while on this IV treatment. This disease really stinks
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CLL at a younger age
I was dx with CLL at the age of 47. At that time I was at a stage 0. Now, 3yrs later I'm at stage III. I had a bone marrow test last summer that was inconclusive. Does anybody know what comes next? I've been in a wait and see mode but I can't help feeling some anxiety about this now.
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Need Some Advice
My nephew who was just married on Saturday 11-28-09, has been saddened to learn (yesterday) that his new father-in-law has been diagnosed with leukemia and will be going into the hospital for 5 weeks of treatment. Now our family is not new to cancer as my father is a prostate cancer survivor and I am a breast cancer…
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ALL- MY DAUGHTER RELAPSED AFTER ONE YEAR OF CHEMO
Can any one tell me if they had this experience and survived? One year of fever and infections and hospitals and the chemo did not work. Please write and let me know if this is normal. Doc says that the prognosis is poor. thanks
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CML - PCRU but with enlarged lymph nodes?
Anyone out there with CML, PCRU, but with enlarged lymph nodes? I've been PCRU for about 9 months, but just found enlarged lymph nodes about a month ago. Getting nervous here... My biopsy of the lymph nodes is later this week.
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21 year CML survivor
Yesterday was my 21st Cancerversary for CML! I was told that I had 2 years to live, but hey, I'm still here! Thanks to all the research going on, there are more and more of us long term survivors. Was on Interferon injections for about 10 years and then have been on Gleevec for the past 11 years. Keep up the fight out…
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Recently diagnosed
May 21, 2013 I have just learned that I have this rare disease called Large Granular Lymphocyte (LGL) Leukemia. I have had a bone marrow biospy, my white blood cell count (WBC) is low. I show no other symptoms everything is wonderful. My question to anyone is when and if do symptoms occur?
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LGL Leukemia symptoms
I was diagnosised with LGL leukemia last January. I'm a 57 y/o male. Recently, I've also been diagnosised with a heart arrythmia. For the last three years I have suffered from fatigue and cognitive problems. They are getting progressively worse. My primary care doctor and cardiologist think these problems are caused by…
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Stage 3 LEUKEMIA
My Uncle is at stage 3 leckemia, and this week his doctor told him that his body will not handle chemothereby, and that he only has 4-6 months to live!! is this possible! is there no other treatment! do we just wait until he dies?!! please if anyone here can be of any real help then please advise me on what to do? thank…
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Second induction failed aml m0
we just found out my husband's second induction failed. He's only 44 years old. After the first round failed to bring him into remission, we were bummed but still hopeful a second round would be successful. At this point I am absolutely devistated! is there still hope for us?
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41 Yr old Adult Survivor of Childhood ALL looking for Others
I am a 41 year old survivor of ALL. Was diagnosed at 15. I had agressive chemo for 2 years and also cranial radiation. For a while now I have noticed my memory slipping as well as being tired all the time, achy bones, congnitive impairment, and other things. I also have felt for a long time that I think in a different way…
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ports!
My port may be infected. Can someone please tell me if I have my port removed, how soon can I have another one put back in?
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anyone out there my age?
Hey I'm 19 goin' on 20 in April and the most of the time I've been in the hospital I've never met anyone my age they are always little kids or more older adults...anyone wanna make a new friend?
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Looking for BMT survivor feedback (mom is day +52)
Hi everyone- My Mom had an allogenic non related mini BMT (reduced intensity chemo beforehand and no radiation) couple months ago. She is at day +52. She is super tired, wants to sleep all day. She is a bit out of it mentally and is struggling on and off with eating or having no appetite. They think she might have some…
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AML M5 - just diagnosed
I am a 37 year old father of 2 who was diagnosed 7 days ago with AML M5. I am on day 6 of induction therapy (3 + 7). It has been a difficult week for my wife and I. I am looking for any positive success stories out there for people that have survived AML M5.
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AML
hi i could sure use some advise, insight if anyone has had this experience, my sister was admitted to icu from doctors office 9/10/12, diagnosed with aml 9/11/12 and began chemo that day as she was very sick and told she would die within a couple of days without the chemo at the rate her wbc were increasing, i believe she…
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Myelodisplastic Syndrome (MDS) to AML - treatment
My mother was diagnosed with MDS just under 2 years ago. It has since mutated into AML - she received one round of chemo and is in remission. I have a questions about the treatment she receives. She must get a nupagin shot "once in a while" - I think it's long lasting & a strong "dose" because they shots never had such a…
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M4 Inversion 16
I'm new here. Just wondering if there are any survivors of AML M4 Inversion 16 out there? I was diagnosed in Dec 2011 (coming up on 1 year survivorship!). I was one of the lucky ones who did not need a bone marrow transplant. Would love to hear others stories of survivorship of the same subtype.
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Primary Plasma Cell Leukemia
My husband was diagnosed with Primary Plasma Cell Leukemia on November 23, 2012. It is a very rare aggressive form of Myeloma/Leukemia. The problem is there are no forums for me to share and get support. Myeloma people act like we have Leukemia and Leukemia people want to tell us we have Myeloma. It is like he has both,…
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CLL
I was diagnosed January 23, 2012 with CLL at age 52. I have no signs or symptoms and was told I was stage 0. The first thing my oncologist told me was to NEVER get the SHINGLE SHOT! I don't remember the reason because I was still getting over the shock of being told I had CLL. All I remember hearing was NO SHINGLE SHOT! I…
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LGL
Looking for LGL survivors with whom I can chat
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Chronic Fatigue
After 7 years of treatment for Leukemia (chemotherap/radiationy:treatment plus 2 relapses and BMT) my child has chronic fatigue. The doctors aren't doing anything about it. Has anyone had success with alternative treatments (herbs, accupuncture, nutritional supplements, etc) to treat chronic fatigue?
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Bone marrow transplant for AML
I just want to talk with others who have had bone marrow transplants for AML.
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Diet
Hi, I have CLL. I am just wondering what dietary changes people have made after their diagnosis. Thanks.
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BMT for AML eto necessary?
Hi my husband has been diagonised with AML eto (8,21 translocation). He needed two rounds of chemo to get it in remission. His doctor thinks it will get okay with just chemo but there is another doc who thinks BMT is the way to go. I just don't get it. Why will we need BMT if this thing can go away with chemo alone. Is…
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New here...please help.
Hi, My aunt has CLL, she is in her middle 80's. She has been on a pill form of chemo for 2 weeks now, just found out from the dr. that she would have to be on this chemo pill for 1 or 2 years! She is feeling awful and has constant nausea and very tired. Has anyone else been on chemo pills for a couple of years with CLL?…
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research paper
I really need help. I am looking for someone who has leukemia. I have to ask them questions for my reasearch paper. If anyone can help I would appreciate that. Please email me at bananaport12@hotmail.com.
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ALL w/Philadelphia Chromosome
Hello All, My fiancee was diagnosed with ALL this past Spring. Orginally, we thought he would be fine after 12-18 months of treatment, but now we have discovered that he has the 'Philadephia Chromosome' which makes ALL more difficult to treat. Per his doctor he would have to have a BMT. Well, we found two B.M. donors and…