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Anyone with Hemophilia or fon willabrands too
Hi new to this discussion board. Looking for anyone he might have bleeding dis order hemophilia too, its rare non clotting problem hoping to find a doctor who might know how to try it along with the leukemia. Just DX in nov. Any help appreciated
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CLL and nodules in Kidney
When you have CLL with nodules in your kidney is that a sign that the cancer is spreading?
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help..dr said possible leukemia..
Hello, As it stands now i am in partial remission for aggressive thyroid cancer so everything on the throid front is all good. But now this.. For the past two months i have been suffering from nausea, headaches, low appetite, easy bruising, brain fog, muscle weakness, joint pain, and fatigue. My endocrine oncologist said…
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Elevated WBC
Hi everyone, I hope and pray everyone is well or in the process of being well. I may not post often but i do follow each of the posts. I had CBC done yesterday to re-check WBC levels. They've been elevated for few yrs now. The last normal range I had was in 2010 (close to high end limit 9.2). He asked me to call him…
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Bone pain and blood types
Has anyone experienced any Long-Term issues as far as arthritis or brittle bones since treatment? I was diagnosed in 2001 with AML and did the 3 rounds of chemo as well as a stem cell transplant. I have been cancer free since October of 2001 but noticed some ongoing issues especially in the past year or two. I have been…
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ACUTE PROMYELOCYTIC LEUKEMIA (AML-M3) WITH BLEEDING UTERUS
Hi -- I had posted about my aunt been diagonosed with APL and I have gotten good imput. Now i have a different question. Have any of you (females) been diagonosed with leukemia while having a bleeding uterus condition? If so, how do you stop the bleeding during treatment? Thank you.
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Please Help! -- > ACUTE PROMYELOCYTIC LEUKEMIA (AML-M3)
Hello warriors -- God bless you all. I come from the breast cancer forum (dx at the age of 32). My aunt was just diagnosed with ACUTE PROMYELOCYTIC LEUKEMIA (AML-M3). Has anyone here been diagnosed with this type of cancer? She had been bleeding for a long time from her uterus and needed to remove it but waited too long.…
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Acute biphenotypic leukemia
I am new here so I thought I would post a summary of my diagnosis. In 2008 I was diagnosed with acute biphenotypic leukemia at the age of 16. After going through chemotherapy I entered remission. At the age of 18 (2011) I relapsed and recieved a bone marrow transplant, and again went into remission. I decided to put off…
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Exciting new antibody targets all cancers, starting with AML; clinical trials at Oxford University a
The first drug to target a mutation common to all cancers goes to trial soon in the US and UK, Stanford and Oxford. Solid cancers in one trial, AML in the other. Trial headed by stem cell pioneer Irving Weissman of Stanford Univerity. Many peer reviewed journal papers are mentioned at below link for review. Good luck!…
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WBC count
I was diagnosed with CLL about a year ago. Right now I have a white blood cell count of 14.6. I am fatigued quite a lot, and was wondering if it is just my job (teacher), or whether the CLL is possibly kicking in already. If anyone has any thoughts on this, and what I could expect in general, I would appreciate it. Thanks.
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Can anyone answer me honestly?
My really good friend just told me, when he was around 14 he found out he had leukemia.... He did chemo for a year or more. And after they needed to do a BMT. His brother was a perfect match. As i said this was all when he was 14-16 years old. Now he is 18 and he is fine. The BMT was successful. But I'm just wondering if…
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Dasatinib (Sprycel) - adult acute lymphocytic leukemia (Ph(+) ALL)
1. Can anyone provide information about the experiences of adult acute lymphocytic leukemia (Ph(+) ALL) patients who stopped taking Dasatinib (Sprycel) after going into remission and completing consolidation therapy? A stem cell transplantation was not and will not be performed. 2. What information and/or research is there…
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AML M6- New to the site
My dad was diagnosed on July 2nd with AML.. We just found out that it is Acute Erythroid Leukemia, of course one of the rarer ones. Anyway, he did a clinical trial first and it only killed 80% of the cancer. He then did the standard induction chemo and that wiped his bone marrow clean. He has had a hard time getting his…
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Does anyone know of any grant websites for cancer survivors
Hi, My name is Alyssa I am wondering if anyone knows of any websites that are actually real for cancer survivors to get grant money to go back to school? I have been a survivor since I was six years old, I am now 24 years old!! I always hear about these scholarships or grant money that is awarded to cancer survivors but…
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all with ph+ adult
My husband has all w ph+. He needs someone to talk to. Can someone please help?
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20 yrs old plz talk
my gf is 20 yrs of age and has had leukemia sins was 6, they put her on meds for sometime but now the meds arent work and the white cells are gettin larger and worse, Im scared and so is she, she starts treatment thurs radation and chemo. any advise would be great i could use some thanks.
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Not Going for Treatment
I am new to this Discussion Board and I have never been on one before. I really do not know what to do, as my husband is refusing to go for treatment for his CLL. We found out that he has this the day after coming home for vacation. His WBC count is 80,000, lymph nodes are all swollen, lost 81 lbs since this February, very…
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LGL - might have MDS now - Dr. Sokol at Moffitt Ctr in Tampa????
ugh - here we go again. Quick overview - Hubby diagnosed Dec 2012 with LGL Leukemia. Started with Methotrexate & high dose Prednisone. helped initially to increase hemoglobin, but not a sustainable treatment. Moved on to Cyclosporin A. no results. 3rd attempt was Campath, injectable. Did it for 6 cycles - absolutely…
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APL survivors fertility
im 16years survivor now. Diagnosed when i was 15 and now im 31 with a normal health and life since the last pills treatment after 4 chemios. im concerned about fertility issues for leukemia survivors. Any shared story will be appreciated. thanks
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Questions
I have been under the care of a hematologists for the past 9 months and have been told to "wait and see, and follow up blood tests every 3 months" I don't have a diagnosis yet, while it has been suggested that T-LGL and T-PLL are 2 possobilities because of my high cd8+ t-cell counts and have been going out of my mind…
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I HAVE A DREAM...
...that one day we will have a pink heart shape pill that cures all cancers and our biggest complaint will be that it comes only in 6 different flavors. Please, join me in this dream and until then god bless us with nothing but happy hopeful days. Laz
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AML M2
My dad, 57 years old and a smoker, was recently diagnosed with AML M2. He just completed the 3-7 chemotherapy plan and has been in the hospital about 11 days. Every day he is stricken with fevers. He has mood swings and he is extremely weak. The doctors aren't very informative or helpful. Tomorrow he has his second biopsy,…
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AML M5
2013-04-07 Hello to all! My name is Michelle and my husband was told back in January that he had AML. As you can imagine it was a shock to us. He had induction chemo and just finished his second round of consolidation treatment. He is in complete remission just after the induction chemo. They are suggesting a stem cell…
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Reluctant Lessons of Waiting and Pain!
I knew cancer would be a difficult experience, but I wasn’t quite prepared for just how tedious an experience it would be! I once read that movie making involves brief moments of high drama interspersed with long items of total boredom. Anyone who has lived through cancer treatment knows that description applies to us too.…
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18 newly diagnosed with ALL - looking for people with experience
Hi everyone, I'm 18 and was diagnosed with ALL about 2 weeks ago... Im day 10 into my intensive chemo and though my doctor gave me the long list of possible side effects, I really have no idea what to expect... Im constantly hungry but anything i eat seems to want to come back out... i get light headed after short walks,…
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long term survivor seeks info
i had ALL at age for in the early 1970's. was treted with St. Jude protacol in Amarillo, TX. i am 44 now and have had 3 cancers since 2010 and am now facing a 4th. i would like to talk to others that share my background and chat about what has gone on with them. i just need some info from those that have been there and…
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23 with leaukemia All
Hi new to this just seeing if there was anyone out there who wanted to chat. Currently in my 1st yr of maintence after being diagnosed 28th december 2011. Dont have anyone i can talk to as im the youngest on my ward with this type of cancer as i did not want to be transfered to teenage ward at another hospital as at the…
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Chloroma aka Extramedullary Leukemia aka Granulocytic Sarcoma
Wondering if anyone else has had experience with these? My mom currently has disease free marrow after a stem cell transplant for blast crisis CML in 2006, but has intractable chloromas that have taken over her right torso, and eroded through the skin. We have tried all kinds of treatment (local radiation, with and without…
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AML relapse
I was diagnosed in March 2005, at the age of 21 with AML M5. I was 86% cancer in my bone marrow and was given a 10% chance to live. After a few rounds of chemo and a BMT, I was "healthy" again and went back to work in 2006. I worked for a few years as I regained my strength and all that. I finally went back to school…
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LGL Leukemia - Stem cell transplant or Bone Marrow Transplant - have you had one?
Dear LGL family, Yes, at 25 I was told my a specialist I had LGL - Leukemia. He said it was found mainly in women and men in their 60's. I know I love to craft - crochet and knit and be a 'granny' at heart but I was relieved to find there was a reason behind the skin infections and mouth ulcers I had suffered from for…