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stem cell transplant
Hi my name is Katie. One of my closest friends has been diagnosed with leukemia. She had lymphoma and actaully was in remission for a very short time before her leukimia was discovered. A stem cell transplant is an option she may have to take and is super scared about it. Her doctor offered her some insight about it but…
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my boyfriend is diagnosed with leukemia again!
he discovered that he had leukemia last year around March, he was treated immediately and after several months he was cured. about 3 weeks ago, he went back to the doctor because he was diagnosed again. I've done my research and searched up a lot of ways to get him cured again once and for all, but he is nervous. can…
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Someone pleasee help, advice.. Symptoms.
Hey, I'm Chelsea 19 years old... Lately I have been feeling really just like - Ill I suppose is the only way To put it, I can go about my day to day chours.. Go to work etc... But lately it seems to be getting worse, I get really bad hot and cold flushes/swets. There is also this pressure above my right eye like a…
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Tired all the time
I have cll stage zero which is really nothing to worry about, however i am constantly tired. I sleep on averge ten hours a night and a further hour in the afternoon. My locum says it is nothing. Does anybody know if it is cll related? Thanks Ronnie
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APL
Recently diagnosed with APL & looking for people to share there experiences with.
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Did anyone see this?!! LET'S HOPE!
I don't have Leukemia, but this is such GREAT news for some of you and the cancer community!! These 3 people were at the end of their battle for they had run out of treatment options. I know to be cautiously optimistic, but this is incredible! Definitely worth the few minutes to read. This could be an answer to a lot of…
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New and nervous
My parents passed four years ago. My mom died of colon cancer and I inherited it from her. Stage 3c dx last March. Have my second quarterly after chemo blood test next week. Hopefully I'll still be NED. My dad died after a five year battle with leukemia. Do I need to be nervous about inheriting Leukemia from my Dad??? I…
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AML treatment 3 vs. 4 rounds of consol.
I was diagnosed with AML M5 in April. I did the induction round and spent 24 days in the hospital. Came home went back in 3 weeks later for round 1 of consolidation, had fevers went back in for 6 days, home for 6 then back in for round 2. It took 6 weeks for my counts to stabilize after round 2 and I needed blood…
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Chef daddy Mike Son
My Friend Mike called a short while ago to up-date me on his Sons condition. They were able to do the bone marrow test and it showed that the leukemia is no long in there, but his Liver has stopped working. His heart started running supper fast because of the liver not working, his heart just stopped pumping the blood…
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MRD Result
Hi everyone, this is my first time on this site so hope I've done this right. Our 7yr old son was diagnosed with childhood ALL in July this year. The induction stage seemed to go well with Matthew tolerating the chemo well and all the initial tests came back with promising results. The consultant told us that Matthew was…
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Anyone heard of mixed MPD/MDS?
My mother, 65 yrs old, was diagnosed mixed MPD/MDS (myeloproliferative disorder/myelodysplastic symdrome) recently when she came here to help me out with my new born baby... The doctors here gave her no treatment other than blood transfusion, and warned us her very fragile condition. Some pathologists suggested this might…
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Someone pleasee help, advice.. Symptoms.
Hey, I'm Chelsea 19 years old... Lately I have been feeling really just like - Ill I suppose is the only way To put it, I can go about my day to day chours.. Go to work etc... But lately it seems to be getting worse, I get really bad hot and cold flushes/swets. There is also this pressure above my right eye like a…
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Five years old girl is now in ICU due to complication Luekemia with virus in her brain is it possibl
What are the possible medications for luekemia that her brain was infected too.
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74 years old ALL with Phil +
My Mom just finished her first round of Chemo and with the exception of the Pneumonia that she is receiving Antiboitic infusions through her port for, she is doing well. We are getting ready for the second round of Chemo (Intrathecal). We have applied for funding for Gleevac and I hope this goes well for my mom. Anyone…
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ALL- how do you tell "how well" it's going?
Hi everyone. My brother is 23 years old and was diagnosed with Acute Lymphoblastic Leukemia and Non-Hodgkins Lymphoma about a month and a half ago. At that time, they only gave him one to three months because of how far the disease had progressed. We started chemotherapy the next day. The doctors have really been amazed…
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MDS/MPD
My husband was told he had mds/mpd about 4 years ago. He since has been on several chemo treatments. The first only worked for about 4 months. Then he went on a year of clinical trial which worked for about 12 months. We were told this would never go into remission but if he can continue the chemo drugs he will keep him…
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Large Granular Lymphocyte (LGL) and Chronic Lymphocytic (CLL) together
Hi, My Aunt has had Chronic Lymphocytic Leukemia (CLL) for many years, and lately has been treated for it with chemo, transfustion, etc. Now she has been found to also have large granular lymphocyte (LGL). We are looking for doctors that have seen patients with both of these conditions together and bit able to treat. Also,…
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Are there any survivors with CML with a diagnosis since 2005 or earlier??
My husband recently learnt that he has CML. In December 2010 he went for a regular blood work after I saw he was loosing weight when we got the news that he had to go to the emergency room right away. He spent Christmas in the hospital, that is where we celebrated our first Christmas together as husband and wife. He is…
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New Lukemia Treatment
Hi everyone, I'm normally on the prostate cancer thread but saw this on the internet and wanted to share it with you. It's not the "answer" just yet but it indicates they are closing in on it. In part: Doctors have treated only three leukemia patients, but the sensational results from a single shot could be one of the most…
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Meylofibrosis Support Private Support on FaceBook
Hi everyone, a new private support group was just created on Facebook called the Meylofibrosis private support group, created July 29, 2011 everyone is invited to join and all post are only seen by the members. The postings are private and DONOT appear on your facebook wall for family and friends to see, thus giving a…
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AML Treatments - Induction/Consolidations Vs. Insuction/Consolidations and Bone Marrow Transplant
Hi, I was wondering if someone could help me out there. I have seen postings that some have had just a round of Induction and 3-4 consolidations and some go thru Induction/Consolidations and then a bone marrow transplant. I am confused? My wife has AML M5 and is just getting ready to go in for her 3rd round of…
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Would like to talk with other AML patients
I am 38 years old and was diagnosed with AML on March 18, 2009. I am married and have two children, a daughter age 14 and a son age 8. I am in the hospital right now having chemo and really want to talk with others who know what I am going through - the ups and downs, etc. So if you would like that too, let's chat!
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AML M5 Blood Counts recovery time after Consolidations
Hi, Question for people that have gone thru treatments for AML? How long did you go in between consolidations? My wife had her 1st consolidation in Jan 2011 and her counts came up very slowly the doctor told us. The doctor almost didn't want to do a second one because he was concerned her marrow could be at risk. She just…
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Side effects and secondary cancer
Hello, I was treated for APL in 2006 and am in remission now I was wondering if anyone here had a secondary cancer after being in remission with apl. Also, wondering if any of you had problems with bone pain and increased illness as a 'side effect' of all the chemotherapy drugs..
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Hi has anybody had APL that has spread to the spinal fluid?
Hi my husband got APL July 2007 and since has relapsed in the spinal fluid followed by more chemo and aresnic followed by a transplant and full body radiation using his own cells, only to find out 3mths down the line that the it is still in the spinal fluid, more chemo only this time through a ommay resevoir instead on…
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Struggling Recovery with AML
My father was diagnosed with AML in October of 2010. He is currently in remission, however he is struggling with a large set back. He was doing really well, starting to get around and out of the hospital. He then contracted Thrush and has had a set back. He has a temperature, suffering from confusion (names, places, even…
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Chemo Sensitivity and Resistance Assays
Chemotherapy Sensitivity and Resistance Assays When a patient has an infection, doctors often send a sample of infected blood or tissue to a lab where they can grow the bacteria and see which antibiotics are most effective (called Bacterial Culture and Sensitivity Testing). Chemosensitivity testing is an attempt to do…
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AML m4
I was recently DX with amlm4 I have done induction chemo and am about to start consolidation chemo. Just wondering if any one else out there with this type has any stories to share on coping. Also if any one has been to the Dana Farber center in boston would love to hear stories about that. Thanks
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House cleaning
In case there are people out there that do not know what kind of services are available to chemo patients. There is free cleaning service for patient going through chemo, it's called Cleaning for a Reason. It is available for any type of cancer and is available in almost every state. Just look them up online and fill out…
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new to AML
I was recently DX with AML. I have had induction therapy and am about to start consolidation therapy. I have been explained how the therapy works and such I was just wondering how common it is to get a fever and have to go back in to the hospital? I have and 18mo old daughter at home and being away is very hard for me. We…