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need advise have CLL w C17 and TP53
want advice on a natrual treatments for this type cancer. Only one choose for treatment here in the US and its not a good choose. Looking at diet, juicing, no meat and bread but need as much infor as possiable thanks for all your help. Thanks TAP.
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Would Like to have Answers
Hello I was diagnosed with large grandular t cell leukemia this year.I would like to hear from others about this type of luekemia since is a rare form and was not too long ago discovered.It is hard to find answers for this form of leukemia, except from my oncologist.
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Bone Marrow Transplant???
Hi this is my first post here. My mom was diagnosed on Nov. 4th with AML M5 w/FLT-3. As all of you know it is nothing less than a high speed roller coaster ride with lots of ups and downs. She completed her chemo (7+3) and is due to have her first consolidation treatment soon. She handled the chemo really well and has been…
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AML Diagnosed March 16 2012(step-father)
My step-father was diagnosed with AML 3 days ago on Thursday and me and my half brother were there when the doctors came with the news. He is 62 ex-military 30+ years as an Airline Pilot and the most dependable person I have ever met. He has come to terms with what is happening and the reason I am writing this is just to…
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Pregnant 3 months after husband's chemo
My husband (32 years old) was diagnosed with AML on April 2011 and finished his last (5 total) chemo round at the end of September 2011. He finally is is complete molecular remission. However, my concern is that I got pregnant only 3 months after his last chemo (late December). I don't know what to do or how safe this is.…
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CLL Clinical Trial - Revlimid (Lenalidimide)
I'm wondering if anyone is part of this clinical trial or knows someone who is? If yes, do you have any comments or feedback? Thanks.
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leukemia symptoms experienced by all forms
i am very serious about this question and would greatly appreciate every ones input ! ! i am currently experiencing mild night sweats,chills with no fever,lightheadedness,along with some head pain, my lymph nodes hurt off and on but no swelling! i go to see hematolgy next week! wbc was slightly elevated! theres even more…
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What now?
My friend was diagnosed with luekemia in 2006 and just in the last few days has been diagnosed with stage IV melanoma in his lungs. I know this is bad but what happens next? Any advice or direction would be appreciated. Thank you
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L-asparaginase?
Just curious if anyone has experienced this chemotherapy. I personally do not have leukemia but I have a very rare lymphoma. I cannot find anyone who is experiencing any of the same treatments I am and I read on my chemo information packet that this drug was sometimes used to treat ALL. I was just wondering if anyone has…
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AML questions
I am going to be really blunt with my questions here because even though I have read about AML online.. I am still completely confused by it all.... My cousins 20 year old son was diagnosed with AML in October of this year and has since had 3 week long rounds on Chemo the last started the day after Christmas... They are…
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Fibrinogen Level after Chemotherapy
Hello everybody. One of the most common side effects of L-asparaginase is a low fibrinogen level. To boost its level, my niece undergoes cryoprecipitate transfusion. Is there another way that this low level is treated naturally. In the Philippines, low platelet count is treated by drinking a tea made from the tawa-tawa…
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bone marrow transplant
hi i am 26 years old and in the army i have had CML for a year and a half the meds did not i have been on Glevac Tisigina and Sprycel nothing has worked so i am having a bone marrow transplant next month i have to go from ft Stewart Ga all the way to Ft Sam Houston im just trying to find out about the treatment plz if u…
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post traumatic stress disorder around anniversary date
I am a 5 year AML & unrelated BMT survivor. I was originally diagnosed on 12/07/2005 and the memories of being hospitalized with poor prognosis to survive and the Christmas season lingers with me. Every Christmas season I relive the emotions and memories and there are all so many triggers to remind me of those desperate…
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ALL survivor - Throat issues
Hi everyone, Im hoping someone can help me, my name is Tara and I was diagnosed with ALL in 2004. its been 5 years since chemo but I am now experiencing an extremely "tight throat" feeling. Its so bad at times i feel like i cant breathe although i know i can. I had severe panic attachs for 1-2 years after treatment but…
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Bone Marrow Biopsy this Friday
Last Thursday I had an MRI done on my knee. Received results yesterday. Small MCL tear that requires surgery. Dr. said that because of "suspicious area" on my MRI above my knee (lower femur), he wants to do a biopsy of my bone marrow while he's scoping my knee. I've been searching the internet for information on bone…
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LGL Leukemia- New to Site
Hi New to site after any info on Large Granular Leukemia im having Huge problems with Fatigue and Night Sweats (or better described as Night Swims) any info as to progression times treatments etc Please
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Cll staging
I was diagnosed with cll several years ago. The diagnosis was quite clear in that i had stage 0. As far as i am concerned the chances of the disease developing are virtually zero and i can live with doing blood tests every three months. A friend of mine was diagnosed last week with cll and she showed me the results of the…
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Any body have chronic lymphocytic leukemia out there?
Hi I am in remission and want to know how long can it last? On the average. What if it relapses, what are the treatments? MOre chemotherapy? Thanks Richsterr
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Need Some Advice
I am hoping that someone on this forum can give me some advice. I am normally on the Prostate Cancer forum having been operated on 1 year ago for Prostate Cancer. I am going good and am cancer free and still getting “zero’s” on my PSA tests. On an unrelated issue, my last 2 routine blood tests have “flagged” 2 items as not…
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AML after treatments questions
I had a question for people out there that have had AML and been treated with Chemotherapy. My wife finished her last round of consolidation in early August this year. She had AML M5. She has done really well thru her induction and went into remission and her 3 consolidation treatments. The only issue she has had and still…
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I am 22yr old and a ALL survivor
Hello, I was diagnosed with ALL leukemia at the age of 15. I am 22 years old now and i am looking for someone to talk to about it. This is my 4th year cancer free in July. I do not have any friends that have had the same thing as me so no one around me really knows what its like. I'd like to talk to someone that has been…
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Any other CLLers out there tonight?
Wish there was a category for us. We are somewhat unique. The "good" cancer. Hah! What is good about knowing that in your future is pain and suffering? I wish I had never found out. I think I would much rather have just muddled on for however long not knowing what was coming. "Watch and wait" is really "watch and worry".…
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pre leukemia
i have high platelets been diagnosed with pre leukemia have nodule in lung and in neck just watching these no changes does anyone else on here have this
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Just diagnosed with AML-what to expect from induction?
My 66 year old father went in to the clinic feeling run down, and four days later is at OHSU Knight Cancer Center in Portland, Oregon to treat his AML diagnosis. They want to start 7+3 chemo induction on Thursday. Done several transfusions and his platelets went from 16 to 64. I would be grateful for any info on what to…
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FCR Treatment for CLL
Hubby Pat has CLL. Has been in watch & wait for 11 years. Now time to start treatment. Depending on results of tests and bone marrow biopsy, treatment will probably be FCR. Has anyone out there had this treatment and could share their experiences? How bad were the side effects? Will he feel like working? Will he feel like…
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Ionised Alkaline Water
After talking to some parents of ALL patients, I was quite surprised that they have been giving Ionised Alkaline Water to their children throughout the treatment. They claimed that the water is beneficial to their health. Has anybody in this forum been using it? Could you please share?
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Testing for cancer probabilities
What is the cost to test for any cancer probability with or without involving genetic markers?
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2nd bmt w/ gvhd of the gut
Hi, my husband was originally diagnosed with AML in 2006, he had 9 months in remission then it relapsed. In 2008 he received an unrelated double cord blood transplant. 3 years post transplant he was doing great, then abnormal counts caused for bm biopsy. Biopsy showed cancer cells. So here we are getting his second…
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Husband Diagnosed with CMML
I am new to this site. My husband was diagnosed at the end of September at the age of 47 with AML. He was in the hospital for a month and received chemo. His counts were terrific. He is currently out of the hospital and has since had another bone marrow test and the oncologist said that he had an underlying condition of…
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Long Term Side Effects on 22 year old :(
hello! I was diagnosed with AML in 2008, had a BMT, and thankfully in remission ever since. So happy! But now suffering with side effects. Im only 22 years old but have been through menopause, and have osteoporosis due to the radiation. Im just having a hard time being so young and dealing with these issues. Its very very…