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Need assistance
Hi my name is Shoaib and I have AML- M4. Did a BMT one and a half years ago and now it seems I have relapsed with 50% blast cells in my blood. My doctors, here in Pakistan ,have thiugh decided not to treat me and put me on palliative care. As per them they canot do much as per their protocols. Trying to get out of here and…
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SISTER JUST DIAGNOSED
Hello to all of you wonderful warriors. I'm from the ovarian cancer board (member for about 10 years), but just found out my sister has leukemia. As you can imagine, I am very distraught. To make matters worse, we are miles and miles apart. Right now, they are running additional tests, including a mammogram for suspicious…
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CLL and Chemo regiment. Anyone know symptoms of medication?
I was diagnosed with CLL about two years ago. Over the last couple years at 6 month intervals, my white count was going up about 15k each time. Just recently (last 6 months)with two check ups, my platelet count was dropping. My Oncologist recommended that I start Chemo. My doc said the side effects of the particular…
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Rituxan/Fludarbine/Cytoxan "3" punch
I just went through 1 round out of 6 for the next 6 months. Each month is three days in the morning. Either I am just lucky but, it didn't bother me at all. The only thing that bothered me was being next to people with colo=rectal/ ovarian/ pancreatic cancer. I felt embarrassed being there with such a paltry affliction. BOB
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18 year Bone Marrow Transplant Survivor needs to talk....
Diagnosed 18 years ago with CML, had MUD (matched unrelated donor)Transplant in 1993. Had Thyroid removed due to cancer in 2004, and had basal cell cancer in 2005. Having multiple health issues and am now on SS Disability. Would like to talk with other long term survivors, to see how they are doing. Thanks so much.
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Looking to hear from APL long-term survivors
Hi there, I just finished induction for APL and have been in the hospital for the last 6 weeks. It was pretty bad. The doctors tell me that the outcomes for APL are good but I could really benefit from hearing from some long-term survivors of this right now to give me a boost. Knowing there is some light at the end of…
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I was recently (1 year back) diagnosed of ALL. I do now have severe hearing loss... Has this happene
I was induced into a coma last year and woke up earlier this year... So I quickly realized... "why does everyone ignore me??" everyone realized that there was a problem, so my family brought pads of pens showing me what's going on with me including that I do have cancer which was when I heard about it. I still haven't…
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Acute Promylocytic Leukemia
Hello, I was diagnosed with APL September 17,2001 at the age of 26. I am interested in hearing from anyone else with this subtype of leukemia to compare treatments, prognosis etc. Take care, Lisa.
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lower back pain
For all aml or cancer patients. If you recently had chemo and have lower back pain please have your dr. check for septic discitis. My father had this symptom and was never checked and then it turned into septic shock. I knew my father would have wanted me to tell others to prevent this from spreading. He passed away on…
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AML M5 Questions
My father was just diagnosed with AML subtype M5 on Valentines Day. We are all blown away completely. He is a healthy man with no health problems- no diabetes, no heart issues, no respiratory issues.... nothing. He is healthy, in great condition, perfect weight... It is just so hard to accept this!!!!! Maintenance chemo…
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My husband has CML looking for support on how to get through the hard times
My husband is 36 and was diagnosed with CML (he was in the blastic phase) in December 19, 2008 (2 days before our youngest daughter turned 1). We went to the doctor because he had a sore throat and found out his white count was 90,000. It has been a roller coaster ride ever since our family has been thru sooo much, I had a…
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newly diagnosed with no insurance
Hi, I was diagnosed the end of July with a B cell lymphoma. I was alright with that diagnosis and somewhat prepared. My problem is I do not have insurance, and I have applied for our state insurance. It has been a nightmare. I cannot get treatments started until this goes through. I am hoping it will be at the end of this…
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anyone tried Gleevec?
Hi I'm new to this board, but not new to cancer. I have colorectal cancer and am expected to get into a clinical trial using Gleevec. So, I thought I'd ask around to see if anyone here has ever tried it. Thank you so much for any information you can pass out. We are all in the battle together
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CML and anaresp
Hello, I was diagnosed with CML in April of 2009. I take Gleevec (400 mg.) each day. Occassionally, when my hemoglobin is low, I use to get shots of procrid. However, now my oncologist has changed that and I am getting anaresp instead. When researching this drug I read that anaresp should not be used by anyone who has CML.…
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idarubicin and memory
Hi, I am new to the site and have a question. I was diagnosed with APL in 2007 when I was 21(i am now 24)and have been in three years remission I just ended the pill maintainence program in August. I did an induction round of Idarubicin, then two more consolidation rounds, I was then put on two rounds of Arsenic as well as…
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Diagnosed with apml in 98 pregnant and just found out chemo damaged heart
I was diagnosed with apml in 98! Went through induction with idarubacin, which was horrible! I was 22 at the time! Three more rounds of chemo two with more idarubicin chemo! I've been in remission ever since but really took care of myself out of great fear of ever having this awful disease again, I juiced organic veggies…
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Newly AML Diagnosed 08/27/2010
My name is Cassandra, I was diagnosed on 08/27 of this year. Been thru the week of Chemo (3 & 7). I am just writing to see if there is anyone out there that has been thru this that can share. I was told that my bm biopsy came back as Leukemia with dysplasia. They subtype I was told didn’t fit in with the traditional…
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imptce. of finding the cause
They are finding that a lot of fist responders at Ground Zero at eh World Trade Center are coming down with leukemia. I am particularly interested in the effects of heavy metals toxicity and leukemia. I realize that once the cancer develops, it needs aggressive tretment to kill the cancer cells, but I am wondring if there…
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Newly disgnosed with acute leukemia
I was diagnosed on Monday, 6-10-02. Scared about treatment protocol and outcome. I am 32yrs, mother of 2 children. My 12 year old son finished his cancer treatment for Ewings sarcoma excatly 1 year ago.
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AML subtype M2
I am a 43 yr old female that was formally diagnosed with AML right before Mothers Day on May 7th, 2010. I was released from the hospital to spend the holiday with my family (husband, 9yr old daughter and parents)and then readmitted on May 12th to begin the induction phase with idarubacin and cyterabine (7+3) therapy. I…
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Looking for answers...please help
In 2005 my brother Kevin Dills, who was 25 years old at the time, was diagnosed with a rare type of AML. Instead of being in his blood or bone marrow it was in his chest a mediastinal mass. He was experiencing some arm and chest discomfort and was having a hard time swallowing. By the time he was diagnosed...the tumor was…
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18 And Just DX
i just found out this week that i have leukemia, my family and myself are still in shock.. just looking for someone i can talk to about what i am and going to be going through.. thank you
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APL - women to share journey
Hi, I'm just about 1 year into this trip - APL. I'd like to connect with a few women who have gone on this journey - maybe even some who are at the same stage or a little ahead of me. My journey has been fairly easy but now I'm finding some challenges in this year and would like to share some info with others. Please write…
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To proceed with a BMT or stay on treatment?!
I am 43 and currently undergoing the Dana Farber protocol for PH+ ALL and have been on Gleevec since July 2010. I am midway through the intensification phase of treatment and still in remission. My Dr. is now recommending that I consider a BMT vs. moving to the next and final treatment phase. I am at a crossroads in terms…
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Myelofibrosis
I was diagnose with myelofibrosis in April of this year 2009. I had to have blood transfusions and a splenectomy. My spleen was over 5lbs, they took a liver and lymph node biopsy and the myelofibrosis has spread to those organs also, they tried a low dosage chemo pill called revlimid and I have so many different allergies…
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CLL Stage 0 "Treatment" ?
Hi all - I have Stage IV colorectal and normally post on that board. A very good friend of mine has been diagnosed with Stage 0 CLL. She is on the "watch and wait" plan. I gather this is normal, but wanted to check it out with you guys. So far she feels well - she had one negative CT, then developed a thyroid nodule…
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NEW CLL 59 YEARS OLD
Hi there to all you. I found out I have cll about nine mouths ago.I go to my cancer center every three months. Also they take care of any sickness,colds ,ect I get.I am on the watch and wait with no treatments.right now am at stage 0.Also I have been to Duke UN. cancer center.They approved highly of the work my home cancer…
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Leukemia with stem cell transplant
Has anyone been treated for Leukemia (5 rounds of chemo followed by Stem Cell transplant)?? I started treatment in May and had my transplant on August 2, 2010. I returned to work on November 1st. I still have some issues with a lump in my throat and swollen calves. I was supposed to have a bone marrow biopsy on Wednesday…
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problems after autologous stem cell transplant
i was diagnosed with AML 5 in june 2010. after that i had 3 chemo including flag. now i had gone through autologous stem cell transplant last month(nov. 2010) as there was no full matching donor for me. till now i m feeling good & all my blood counts are normal. i am very thankful to god & people like you who pray for…
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ALL Ph+ remission using Gleevec
My husband was recently diagnosed with ALL Ph+ and is taking 600mg of Gleevec daily. He is currently in remission. His siblings are being tested now to see if one of them could become a donor for a bone marrow transplant. He is 69 years old and in very good health. Has anyone been in this particular circumstance? How long…