-
John (OnePutt)
It is with deep regret that I have to inform everyone: John Oneputt has passed away last week. It was very sudden and unexpected as John was in good health regarding his cancer. Alice informed me that it may have been a sudden heart attack. His doctors have also attended his services. Alice is not in the frame of mind to…
-
Officially 5 big ones!
Curiosity just had me check out some of my old records. It is official. March 12, 2011. Diagnosed with kidney cancer. Nephrectomy march 15th. Nothing but a barrel of laughs ever since. Still can't get that damn song out of my head. Although it has changed from a tune by the phantom of the opera played on a harpsichord in…
-
Solid Kidney Mass @ 25 years old.... ALM? RCC?
Hey All, Thanks for accepting me onto the forum - i've found reading your posts extremely helpful as I wait for more tests. I'm hoping for some insight/others experiences/ advice on some news of a mass in my right kidney. I had 2 ultrasounds which found: 2cmX1.7cmX1.2cm - Homogenously hyperechoic renal mass, suspected to…
-
Footstomper, where are you?
We miss you and hope you are doing well. Hugs Jojo
-
New Guy On Board
I am new to the group. I found out I had kidney cancer by accident Jan 13 2016. I went to my famly doctor with some unexplained back pain. After the X-ray did not show anything, he ordered a CT scan. It came back showing a large 7cm growth on my left kidney along with imflamable lymp modes. He sent me to an urologist. He…
-
Howdy
It has been a while since I have been on this site. I see we have several newbies and I offer my welcome to all. To the rest of the group, HI! In February I had my third major back surgery in three years. This was by far the most complex and the hardest to recover from. I am getting there but it is slow going. That,…
-
How to Post Pictures
Hey, guys, I've gotten a couple of questions on how to post pictures inside the post here on CSN. It's not very user intuitive, so I'll go step by step. I would recommend opening your post in a new tab on your browser so you can switch back to this one for reference. 1: The picture must be online already (like on Facebook,…
-
Happy St. Paddy's Day to all!!
Anyone having a nip or two......or twenty of Jameson's, or the like? Slainte!! (pronounced - slan cha) That's Gaelic for "cheers" or "good health"......more importantly, good health. Donna~
-
crazy question about stitches
So, its been exactly 4 weeks since my partial lap. I had a two week followup with the surgeon and he said everything looks good and I have to come back in 3 months. When I was there I showed him that there was a stitch sticking out and he said thats ok. They are now rubbing against shirts. I assumed it would dissolve and…
-
25 Years Old with Tumor on Kidney
Hello, I am 25 years old and will have surgery in three weeks to remove a golf ball sized tumor on my kidney. It all started 3 months ago. My first day back to work after my wedding and honeymoon I fainted. My blood pressure was extremely high (190/110) and I went to the ER. I've never had blood pressure issues. After a…
-
New to Forum
Just a quick good morning to everyone. New to all of this and looking forward to learning and contributing.
-
Treatment on hold
I was all set to start my treatment with Sutent this past Wed. but they noticed that I would get a rapid heart beat without to much exertion .We are trying to find out what is causing this. Has anyone had this problem before or after starting treatment? Sierra
-
Cancer and Alcoholism
This is not kidney cancer specific, and I have posted over on the head and neck cancer forum too. Has anybody had to deal with (either personally or with friend/family) recovering from cancer and alcoholism at the same time? My brother has throat cancer and he had a partial laryngectomy last week. He will be going home…
-
Made it to two years-ish.
I haven't been here in a while. Briefly, i had a radical right nephrectomy June 5, 2015. I was feeling pretty confident having made it to my two-year anniversary. Never really considered that my scans were scheduled on same day. In a demonstration of ineptitude, my scan results showed up in my patient portal almost…
-
Damn scanxiety!
I have my three months chest/abdomen/pelvis CT on Wednesday. The anxiety is starting. I really don't care for the 1 week wait between the scan and seeing my oncologist. I was spoiled before. Used to I'd get scanned in the morning and see him in the afternoon and get the result. Three things really bothering me of late.…
-
Scans in 1 week
Hey, all, Been a while since I've posted, but I have been reading and keeping up with the times. Just been very busy with Jake, who just turned 4 months old on the 2nd (pic below). He's been doing great with his clubfoot treatments; he breezed through the casting and tenotomy surgery and is now wearing a boot/bar brace 23…
-
Newbie Here....venting/feedback
Hello, I am a 52 yr old, widowed mother of 2. I just joined the message board last night in need of people who can relate to my story. I started going to the doctors in June 2014 due to a terrible pain on my right side. Went to a GI Dr. In Dec 2014, thinking it may be my bowels. He asked me "what is going on with your…
-
New here
I had my right kidney removed one month ago. Open nephrectomy, clear cell, 4 cm., stage t1a, grade 2-3/4, unifocal, limited to the kidney. I realize how lucky i was that it was caught so early before it had a chance to spread.. i wish i had found this site sooner, there is lots of good information here.. I have a few…
-
Qustion about Human growth hormone treatment
Other than having Kidney cancer last year I've had allot of other health issues. Well after many many test they finally found out that one of my many problems is I have a growth hormone deficiency. Well there is treatment for this which is replacing them with daily injections. My question is it if anyone knows of this and…
-
chemo before Sutent
I was wondering if any one started on a different chemo treatment before using Sutent? I was to start treatment last week but because of a rapid heart beat and now I have to have radiation for a tumor on my windpipe I don't think they can use Sutent at this time. They think the radiation will stop the rapid heart beat…
-
Surgery Yesterday
Hello, I had my robitic partial nephrectomy yesterday morning. They were able to spare 85% of my left Kidney. I spent the night in the hospital and was released a few hours ago. Unfortunately, I was not able to empty my bladder. So, I was sent home with a catheter. I'll get the catheter removed on Tuesday. I'm sore and I…
-
Anyone: Have liver prob with Votrient?
My liver functions have worsened with my last couple of blood workups. Anyone out there who has had liver function problems while on Votrient? Any advice? Dutch
-
Unremarkable
CT scan results are in; unremarkable! What a relief! There was an incidental finding of a < 1 cm nodule on left adrenal gland which will be followed and removed if necessary. in my next life, I want my husband's temperament which, I am sure, is much more mentally healthier than mine. Sarah
-
Questions after 2 wk followup
Hi guys, I had my 2 week dr appt today following my partial neph. Def use tyenol not advil like I had asked you guys about. Path: 2.5 cm pt1a, pnx, pm, xunifocal, limited to kidney, clear cell rcc, grade- 1-2, margin says renal parenchymal margin is not involved He said I need a lasix renal gram and blood workup for 3…
-
THE KIDNEY IS OUT
John went today to have the right kidney removed. We knew they were going to be taking the kidney, nodes, and adrenal, but there was a question as to whether the liver or colon were affected. We were told 4 hours good time for no complications, six hours if they had to resect any of the liver or colon. Just over three…
-
chromophobe rcc
I am a 31 year old female. In July, 2015, I incidentally found out I had a mass in my kidney from an ultrasound in the ER due to a gallstone. After having my gallbladder removed, my surgeon ordered a CT scan, which confirmed a solid tumor. I was able to find a wonderful urologist who specializes in robotic partial…
-
Town to live with good cancer hospital
Hello all, Comming to terms that I may well need to move my family from SE Mexico to SOMEWHERE, USA. This is for very important insurance/financial considerations. If we do this, it will be like a brand new start for my wife and kids who have never visited the states. I want to shop around a little in various states and…
-
10 days later!
Hi everyone, Its been ten days now and its getting better everyday. I do have pains not even close to the surgery site. Like my lower back is killing me from sitting. The recliner is my best friend right now, but my body doesnt like it so much. I did use ice. That def helped me not just on surgery site but also because the…
-
colonoscopy
Hi Everybody, I'm having a colonoscopy soon and I was wondering if anybody does anything different with their prep since their cancer dx. I had a radical nephrectomy 7 years ago. I have had colonoscopies before, so I know what to expect, but was just wondering about all the fluids during the prep with only the one kidney.…
-
Someone should really tell you these kind of things!
So my husband has been on chemo pills for 3 calendar years now. Our insurance out of pocket maximum is $5700 per individual a year. The COPAY for chemo pills is $3000 for a 30 day supply. So we usually pay a month and a 1/2 then they are free for a year. I just found out they have programs that will help you pay for this.…