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New Clinical trial to see of Cabo will trump Sutent. This is great.
Cabozanitinub is going to start studies to see if it will become a FIRST IN LINE drug for kidney cancer. This means that there could be a drug to come out ahead of the one already prescribed first, Sutent. I think the article says a Phase 3 trial is going to start of the drug.…
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Pain in middle of shoulder blades
New to site. I and a 48 year old white female. At the beginning of this year started having symptoms of fatigue and right side pain. March 2nd 2016, my doctor ordered a CT scan and the results showed a renal Mass 12 by 16. After much testing, my urologist determine a right radical nephrectomy was necessary. The surgery was…
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Seeking long term Survivors of Stage IV Wilms
I have read a lot of success stories about Wilms Tumor where the tumor was diagnosed at early staging (I or II), but what about successs stories of Stage IV Wilms? I've met some Stage V survivors, but have learned that each tumor is staged separately in Wilms V and oncologists consider Stage IV to have worse outcomes. My 4…
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Recently Diagnosed
I am a 35 year old female, recently diagnosed with a 4cm fluid filled malignant mass on my left kidney. I am so emotional at this point to where i don't how to think and feel about this. I feel as though this is a death sentence for me and I just don't want to deal with it at all. The urologist stated I will have to have…
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72 hours until partial nephrectomy
Hello everyone - Seventy two hours and counting! For those of you who've had the partial neph, please let me know if you have any suggestions for preparing or recovering. I'd love to lose about 30 pounds and get in shape prior to the surgery, but that's not likely to happen. They'll do the surgery robotically, which should…
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1.3 cm non aggressive tumor
Hello, I have been told there is a 1.3 cm tumor on my right kidney 70% cancer or 30% benign. I am opting for partial neph for piece of mind and to get on with my life. Does anyone know the chances of reccurance? my doctor told me around 4%. Those seem like pretty good odds.
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Newbie
hi everyone. I recently ended up in the er with belly pain and came out with unknown cause but now own a 2.5 complex lesion saying possible for rcc. Any advice would be good. The er suggested mri or ct scan with contrast to confirm. Positive for urine in blood. wbc indicating no infection. Weird thing on blood work red…
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not diagnosed but undergoing testing
Hi everybody I am new to this forum and have a few questions.Since 2012 I have had some weird symptoms that no one can figure out(facial flushing,digestive problems,weight loss and gain,and generally feeling lousy)Have been checked for neuroendocrine tumors at Univ of Iowa,St Louis Univ and Barnes Jewish.In 2014 even went…
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May 2016 Update
Hello, All, It occurs to me that my posting on the forum has quieted a bit over the past few months... a 6-month-old will do that to you! But I figured I would let you all know how we are doing and also let you know about one big life change that will happen in a few weeks... First, as some of you may remember, Jacob was…
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Radiation
I am now on sick leave for the rest of the school year as I have started radiation on Monday. I am living in the Portland area and my wife is still in Eastern Oregon (that sucks) but my team is hoping the radiation will shrink the big tumor and the rest as well. After three days the only problems so far is fatigue and a…
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Help Understanding a CT Report
After getting a chest xray I was told I needed at CT of my abdomen due to the radiologist seeing a mass in the upper left quadrant of my abdomen. Did the CT with contrast and IV and what was found is possible aneurysm. Here is the radiologist impression There is an oval 3 cmm mass in the hilum of the left kidney. It has…
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Hi everyone
It has been awhile since I have been on here to let you know how I am doing. In Nov last year I fell and tore ACL complete tear in my knee, well a lot of therapy never helped, and doc injected Synvisc one in knee 3 months ago and it helped with pain some but not a lot. He said he would have to do surgery at some time and I…
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My Mrs and research
Ive posted here before that Mrs Stomper Phd is a researcher in Viral oncology. At a meeting at the National Institute of health today they were dicussing my cancer. A fellow researcher asked her if she had read his paper in Science (a VERY well respected, peer reviewed publication. The study discovered that cancerous mice…
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Stage 4 MRCC
I was diagnosed with Stage 4 Kidney Cancer with metastasis to the lungs last Jan. 27, 2014 and was given 6 months to live.....Miracoulously my 13cm tumor on the right kidney shrunk to 6cm and had a right radical nephrectomy last Sept. 18, 2014......P the metastasis to the lungs have almost also resolve completely prior to…
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4 cm grade 1 clear cell
Hello, first sorry for my english , I .m not a native speaker, I live in Japan but Im from Europe.…I m 36 years old, I discover incidental my cancer.…here , I have annualy screening.…last year I was pregnant and I skip the abdominal ultrasound my bad! .…I have 4,5-3,5 clear cell, grade 1 , was a shock for me because I…
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NED
Monday the 9th i had my CT scan and chest x-ray today i saw my doc all test came back clean..... I wish the same to every one
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Partial Nephrectomy
while taking blood thinners, has anyone ever had to have this type of surgery? What are the do's and dont's? How did you prepare?
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what to expect now
My surgery was 6 weeks ago, complete nephrectomy, right kidney, RCC. The tumor was 7cm located in the middle of the kidney just clear of the main artery. Stage 1, slow growing, contained within the kidney, good pathology, did not seem to have spread. I read where someone ran a low temp for awhile. I'm doing the same, and…
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New
I just have been told that my MRI has shown a tumor on lower lobe of right kidney. Urologist want take the tumor out in one month. What is involved? What should I expect?
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Unexpected visit from NED today!!
So yesterday, Mothers Day I woke up with a UTI, visible blood, etc. Although I was started on antibiotics pretty quickly, it was enough to send me into a total emotional meltdown because I've also been experiencing intermittent left flank pain. So today I followed up with my PCP, explained my anxieties & thankfully she…
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New
Thank you to everyone for your responses to my post. I will be here often with many questions. I have a 1.8 cm tumor on my right kidney. It will be removed with open surgery. I am 67 years old and just don't know what to expec? Thanks again!!
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Brenda?
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A quick update before the real update
Morning all, I am off for my first 6 week PET-CT scans tomorrow since taking Votrient. Anxiety levels are actually pretty low - the results will be what they will be without me worrying about them. This casual attitude could well change over the next 48 hours waiting for the results, but if I have to change treatment…
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RCC causing Hyperparathyroidism?
Hi guys, Have any of you had a parathyroid gland issue clear up after removing your Renal Cell Carcinoma? I was scheduled for parathyroid surgery due to elevated PTH (diagnosed primary hyperparathyroidism) and now that I had my partial nephrectomy 3 months ago, my PTH levels are back to normal levels! My endocrinologist…
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Sorry this is a bit off topic but ...
It has been a good long while since I've posted anything here. Actually for the past few weeks I didn't even think to come read the latest posts like I used to do on a daily basis. All the more reason I feel bad for even considering to post this, but I've got no other place to put forward this request. Can someone tell me…
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Heart problems linked to Kidney Disease and vise versa?
Hi everyone! I'm back after yet another surgery (unrelated to kidney cancer) that blew the lid off of the pain scale sending me once again into afib. The pain was worse than the worse kidney stone pain I've ever had! I started having afib every time I suffered an acute kidney stone event and was never able to bounce back…
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New here and awaiting biopsy
Greetings - Looking for a little support/positive stories on which to focus . . . Had CT scan on Tuesday, which identified a 3.5cm "cyst" on left kidney. Ultrasound today suggests its a mass, and not filled with fluid, which is - apparently - highly suggestive of kidney cancer. Recommendation is that I follow up with…
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Update & Clarification
Went to my urologist/surgeon/oncologist (jack of all trades) for first blood tests 4 months following my partial open nephrectomy and got clarification on my TNM score: T1a N0 M0 Grade 3. When he told me this in the hospital, my befuddled mind thought he said stage 3. Boring I know, but shoot, I'll take 1 and be thankful!…
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Scan Results
I got the scan results form Monday the chemo I have been getting for the past five months OPDIVO is still not working. The tumors all continued to grow, one in particular that has been causing the bleeding in my lungs and me to cough up blood grew the most. I met with a radiation specialist this week and our goals was to…